Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

jerseyangel Proficient
jerseyangel
Posted
I believe I'm allergic and intolerant to soy, but I can handle shampoo that has soy protein in it. It's strange I can use it topically because when I injest it my skin breaks out. Soy oil honestly isn't as problematic, but if you're worried maybe you could return it to the store?

I'm intolerant to soy--I get symptoms similar to gluten if I eat the protein. I can eat lecithan in small amounts with no problem--not the oil, though. I am using a shampoo that contains soy protein (Giovanni) and after 2 weeks, have had no problem with it at all. Truth is, I'd rather not use soy at all since I'm intolerant, and really don't know if it is affecting me by using it topically. It is difficult to find a shampoo (and even moreso a conditioner) that has no SLS, gluten AND soy--so I took the lesser of the evils! Andrea--what kind of shampoo do you use, if you don't mind my asking?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I was going to say, can you imagine having bathroom duty in this community of celiacs. :lol:

I will be conveniently absent when that job is given out.

:lol::lol:

OMG...I never thought about that! :o

Yeah...I'll be busy shopping at The-Other-Side-Of-The-Mountain Mall when those kind of chores come up!

Camille'sBigSister Newbie
Camille'sBigSister
Posted

Oh dear God! I just read the spoon theory! How poignant, and true.

Susan, I'm so jealous! I adore raspberry and cream, so I'm coveting that garment! About my husband, he's still living in the 1940s! :lol::lol::lol: I haven't yet been able to drag him, in proverbial kicking and screaming mode, into the 21st century. Imagine, as a faux finish artist, trying to be stress-free while living in a house with LR and DR walls covered in 1970s paneling!!! :angry::angry::angry: He actually likes it. :blink: Poor old dear, he lives life with blinders on. :lol:

G'night all. Hugs all around.

Cissie

Camille'sBigSister Newbie
Camille'sBigSister
Posted
I was going to say, can you imagine having bathroom duty in this community of celiacs. :lol:

I will be conveniently absent when that job is given out.

I simply MUST add this caveat: I'll clean my own, but I AIN'T GONNA CLEAN NOBODY ELSE'S!!! :lol::lol::lol:

Cissie

jerseyangel Proficient
jerseyangel
Posted
I simply MUST add this caveat: I'll clean my own, but I AIN'T GONNA CLEAN NOBODY ELSE'S!!! :lol::lol::lol:

Cissie

I'm with you, Cissie--we all do our own bathrooms! :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
All I know about blood is that it is red outside the body!

:lol::lol: Yeah...me too and it makes me all woozy and weak if I see it...so you wont find me volunteering to do any blood draws in Rachelville. I'm such a baby. :ph34r:

I've never gotten used to having my blood drawn...I still cringe everytime and I turn away and either close or cover my eyes. I know....what a wuss huh? :ph34r:

One time the nurse told me I had been great through the whole thing and then she presented me with a Barbie sticker and a lolipop....cuz I was such a "trooper". :blink:

I was with my friend and apparantly she thought I was child w/ my Mom. :ph34r:

jerseyangel Proficient
jerseyangel
Posted

I'm a huge baby when it comes to needles--or any medical procedure. I always remember what my dad told me when I was literally 5 years old. I was on his lap, and I had to get a shot. He put his had over my eyes, and whispered--just don't look. No matter what, when I'm about to be "stuck", I remember not to look. It helps :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mango04 Enthusiast
Mango04
Posted

So all this talk about Rachelville has me thinking about farming LOL....

I noticed the other day that my co-op sells two different kinds of certain things. The two categories are organic and sustainable. So I'm wondering, are they allowed to use Auxigro and such on sustainable farms????

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

So, obviously in Rachelville, we are NOT going to have DOCTORS, are we? But what WILL we have?

Oh--I couldn't find the spoon thing that every one is referring to--what page is it on? :(

VydorScope Proficient
VydorScope
Posted
So, obviously in Rachelville, we are NOT going to have DOCTORS, are we? But what WILL we have?

Oh--I couldn't find the spoon thing that every one is referring to--what page is it on? :(

Her you go...

Open Original Shared Link

AndreaB Contributor
AndreaB
Posted
Andrea--what kind of shampoo do you use, if you don't mind my asking?

I just switched to Dove since it was listed on other sites. I would also prefer to avoid everything you are. What do the SLS's do anyway? I used to use Abba or Jason shampoos and conditioners.

jerseyangel Proficient
jerseyangel
Posted

SLS-Sodium Laurel Sulfate is a detergent that can be irritating to some people. I researched it a bit, and felt I'd be better off using products without it. I had what was diagnosed as eczema on my eyelid for years--used everything to treat it, even Rx creams. When I stopped using products with SLS, it cleared up, and has not come back. It's a little bit of a challenge, like I said, to find products without that, gluten or soy--they all seem to have one or the other. :blink: Did you get a chance to try the Kiss My Face Olive Oil Soap? That is very good.

Lisa Mentor
Lisa
Posted
SLS-Sodium Laurel Sulfate is a detergent that can be irritating to some people. I researched it a bit, and felt I'd be better off using products without it. I had what was diagnosed as eczema on my eyelid for years--used everything to treat it, even Rx creams. When I stopped using products with SLS, it cleared up, and has not come back. It's a little bit of a challenge, like I said, to find products without that, gluten or soy--they all seem to have one or the other. :blink: Did you get a chance to try the Kiss My Face Olive Oil Soap? That is very good.

Patti:

Is that you, how pretty you are. Inside and out. :)

Lisa

AndreaB Contributor
AndreaB
Posted

Patti,

I love your new picture! :P

Haven't bought the kiss my face yet. Our grocery bugdet is extinct. :) We've decided we can't afford to buy everything organic. :(

jerseyangel Proficient
jerseyangel
Posted
Patti:

Is that you, how pretty you are. Inside and out. :)

Lisa

Lisa--You are too kind (hugs) :)

Green12 Enthusiast
Green12
Posted

Patti!! I love your picture, gorgeous :):):)

I also never look when I am getting a shot or blood drawn. I don't want to see the needle going in, or the blood being pulled out- I think I would pass out if I did look.

Mango, I'm not sure about the sustainable farming and auxigro. Will have to look into that. Are you planning on taking up farming? :lol:

Mango04 Enthusiast
Mango04
Posted
Mango, I'm not sure about the sustainable farming and auxigro. Will have to look into that. Are you planning on taking up farming? :lol:

I do hear it's easy to find fruit picking jobs in Australia. Maybe I'll become a farmer. At least then I'll have something more valuable to contribute to Rachelville :lol::lol:

Green12 Enthusiast
Green12
Posted
I do hear it's easy to find fruit picking jobs in Australia. Maybe I'll become a farmer. At least then I'll have something more valuable to contribute to Rachelville :lol::lol:

:lol: There you go! Good plan :lol:

VydorScope Proficient
VydorScope
Posted

y'all better bring your hubby's, I dont want to be as alone there as I am here!!!

Matilda Enthusiast
Matilda
Posted

Dear Girls,

Could you do me a favour please? I'm off on my holidays. Please don't post anything for the next 2 weeks as I'm already about 200 posts behind and will never catch up with the gossip. Feel free to resume posting on July 31st. Thankyou for your cooperation in this matter...

Hehe! There will literally be about a thousand posts to read when I get back! I'm looking forward to it already. I hope everyone will have miraculously got better.

Best wishes,

Matilda

jerseyangel Proficient
jerseyangel
Posted

Julie and Celia--Thank you both! It's a little odd having my face pop up every time I post--will take some getting used to....Celia, we are non-identical twins (I forget the proper name for that) :D

Poor Vincent--don't worry, we'll bring our guys with us! :lol:

VydorScope Proficient
VydorScope
Posted

OMG THIS IS SO TRUE!!!

Open Original Shared Link

miamia Rookie
miamia
Posted
Patti,

It's Paternal Twins :)

Floridian

are you feeling any better?

Miamia

jerseyangel Proficient
jerseyangel
Posted
Patti,

It's Paternal Twins :)

:lol: Yes! I knew it was that or Fraternal!

Vincent--I identified with more than a couple of items on that list :ph34r:

Lisa Mentor
Lisa
Posted

If I missed it............but where would Rachelville be, what part of the country? I could offer a pilot, who could fly to Maine and bring back Lobsters and fresh seasonal corn-on-the-cob for the Feast of Sea and Land.

Rusla could do the blessing

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,553
    • Most Online (within 30 mins)
      7,748
    Jennifer CCC
    Newest Member
    Jennifer CCC
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.