Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

CarlaB Enthusiast
CarlaB
Posted
Oooh...Caramel. :D

Love the new pic......heck....I couldnt even tell which was was you...everyone looks healthy and happy. :)

I'm the one on the upper right with the bangs ... I cut my bangs last week.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
Anne AMP Apprentice
Anne AMP
Posted

I don't know who did the test. The local lab said they had to send the specimen somewhere else cause they couldn't do it. What did you do for your leaky gut?

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

:lol::lol:

Sorry...I guess Carla and Donna beat me to the punch about Lyme testing! :ph34r:

So yeah...anyone else wanna add that Igenix is the best lab for testing?? :P

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I don't know who did the test. The local lab said they had to send the specimen somewhere else cause they couldn't do it. What did you do for your leaky gut?

I'm not doing anything specific as far as treating leaky gut. Candida and Leaky gut are generally a symtpom of a larger problem. For me its mostly mercury and other heavy metals...and I also have Lyme.

I'm addressing those things since if it werent for them I wouldnt have leaky gut to begin with.

My gut isnt going to heal with all this other stuff going on...so I have to prioritize. Get rid of the big issues and then the body can pretty much heal itself.

dlp252 Apprentice
dlp252
Posted
I'm the one on the upper right with the bangs ... I cut my bangs last week.

OMGosh! I can't see the new pic here at home, but I think I saw it at work before I left...I thought that was a group of kids, lol!!!! :lol:

Anne AMP Apprentice
Anne AMP
Posted
I'm not doing anything specific as far as treating leaky gut. Candida and Leaky gut are generally a symtpom of a larger problem. For me its mostly mercury and other heavy metals...and I also have Lyme.

I'm addressing those things since if it werent for them I wouldnt have leaky gut to begin with.

My gut isnt going to heal with all this other stuff going on...so I have to prioritize. Get rid of the big issues and then the body can pretty much heal itself.

How do you get metal toxicity diagnosed?

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I don't know who did the test. The local lab said they had to send the specimen somewhere else cause they couldn't do it.

I wouldnt trust those test resuts. <_<

The labs most doctors use have something like 60% sensitivity for picking up Lyme. Thats real bad...you want something close to 100% sensitive when testing for something as serious as Lyme. This is why most cases go undiagnosed. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted
OMGosh! I can't see the new pic here at home, but I think I saw it at work before I left...I thought that was a group of kids, lol!!!! :lol:

It is, who says I'm a grown up??? :lol: If you hit refresh, you should be able to see it.

happygirl Collaborator
happygirl
Posted

Happy Birthday, Carla!!!!!!!!!

I hope you are having a wonderful day!!!!!!!!

xoxo

AndreaB Contributor
AndreaB
Posted
I'm the one on the upper right with the bangs ... I cut my bangs last week.

I guessed that that one was you only because the other one that looked older than the ones in front looked like Morgan. You look like teenager.

So yeah...anyone else wanna add that Igenix is the best lab for testing?? :P

Me, Me, Me!

AndreaB Contributor
AndreaB
Posted

Happy Birthday Carla!

Enjoy your dessert. Have some for me......that means you need to have much more than you normally would. :P

dlp252 Apprentice
dlp252
Posted
It is, who says I'm a grown up??? :lol:

:lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
How do you get metal toxicity diagnosed?

I have real good Dr.'s who specialize in this type of stuff. They understand how all this works and what types of things cause it.

Conventional...or "mainstream" Dr.'s do not really address these issues. I see "Integrative" Dr.'s who diagnose and treat all sorts of things but mostly specialize in Mercury Detox, Lyme Disease and Autism.

Also these things seem to be intertwined.

If you have Lyme you tend to have issues with heavy metals....if you have heavy metals for sure you've got candida...if you've got candida and mercury then you've probably got leaky gut....if you've got leaky gut you're likely dealing with a whole lot of intolerances...and so on and so on.

If your a small child with all of this going on....that would be called Autism. :(

So I have Dr.'s who know how it works. I've only very recently started any treatment. I've treated candida and leaky gut in the past....to no avail...because I wasnt really getting to the root of my problems. I was basically doing it on my own.

CarlaB Enthusiast
CarlaB
Posted
How do you get metal toxicity diagnosed?
You take a chelating agent and do a urine test.
CarlaB Enthusiast
CarlaB
Posted

Thanks Andrea and Laura.

Laura, have you started the new antibiotic yet? What are you now taking?

Off for ice cream and presents. Andrea, ANY ice cream is more than normal!! LOL Normally I'd eat a whole pint, tonight, just a half pint. :P

happygirl Collaborator
happygirl
Posted

yes. zithromax (no doxy bc of the sun) 3 x a week.

CarlaB Enthusiast
CarlaB
Posted
yes. zithromax (no doxy bc of the sun) 3 x a week.

I'm on Biaxin,from the same family. My insurance wouldn't approve the zith. :blink: They have no problem with Mepron, but they denied zith. Strange.

I'm on doxy, but they're going to change it for the summer, probably to mino. Good thing you're not on it, I got sun poisoning on my hand through the car window when I had #35 sunscreen on.

Anne AMP Apprentice
Anne AMP
Posted
I'm on Biaxin,from the same family. My insurance wouldn't approve the zith. :blink: They have no problem with Mepron, but they denied zith. Strange.

I'm on doxy, but they're going to change it for the summer, probably to mino. Good thing you're not on it, I got sun poisoning on my hand through the car window when I had #35 sunscreen on.

Hi Carla,

Is it too nosey of me to ask why you are taking doxy? My sister was on it for about a year and had wonderful result for pain.

CarlaB Enthusiast
CarlaB
Posted
Hi Carla,

Is it too nosey of me to ask why you are taking doxy? My sister was on it for about a year and had wonderful result for pain.

No, it's not too nosey, this is the stuff we talk about! :) I have Lyme Disease and a babesia coinfection. I'm on a bunch of medication and supplements for it -- medications to kill the bugs, supplements to rebuild my immune system.

AndreaB Contributor
AndreaB
Posted

Here's a link to root canals and cancer for anyone interested.

Open Original Shared Link

I know my doctor has told me they have been implicated in women with breast cancer as well.

There is another good site which I think Rachel already linked.....tuberose.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
You take a chelating agent and do a urine test.

:blink:

Just noticed I totally read the question wrong. Thought she asked "How did you get diagnosed for heavy metal toxicity?" My post makes no sense. :ph34r:

Ummm...yeah...what Carla said.

You take a chelating agent and do a urine test. :D

NoGluGirl Contributor
NoGluGirl
Posted

Dear Andrea and Rachel,

Now I am back where I started! I just want to cry! :( This root canal business is causing major problems. All I know is I am in pain and need to fix it. The problem is what is the answer?

Dear Donna,

I think the Valerian may be the trouble. I know it gave me difficulty. The morning supplements should not be a problem. However, the 5-HTP could be the source. My father said it could do that, too. He used to work for an herbal company. Anyway, those are two possibilities.

Dear Mango,

:lol: Those geese do sound like ours! They stole them! The Auxigro people poisoned them, then brainwashed them! You know what this means...another lawsuit. As District Attorney of Rachelville, I am obligated to file a major lawsuit. They won't get away with this! :angry:

Dear Laura,

We can take Zithromax? I did not know that! It is one of the few antibiotics I tolerate! It is great, you only take it once a day. Those others you have to take four times a day.

Dear Carla,

Skyline Chili sounds terrific! So does the ice cream and caramel sauce! You really do look like a kid in that pic! I kept thinking "Where is Carla?" :lol: HAPPY BIRTHDAY!

Sincerely,

NoGluGirl

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Good thing you're not on it, I got sun poisoning on my hand through the car window when I had #35 sunscreen on.

WTH?? :unsure:

I did not know this about Doxy....you cant take it during the summer?? :huh:

When I was first getting sick and my face was totally burning from the neurotoxins...they stupidly diagnosed me with Rosacea and put me on high doses of Tetracycline. Yeah...what do you think that did to me?? :rolleyes:

Hint: It did not help. :angry:

Anyways...they said I couldnt go out in the sun...because the antibiotic makes you more susceptible to sunburn. Is that the case with Doxy as well?? Why is it that the antibiotic causes this? :unsure:

I did go out in the sun while I was on Tetracycline and I didnt have any adverse reactions that I can recall.

Clark Bent as Stupor-Man Contributor
Clark Bent as Stupor-Man
Posted

happy birthday carla...

I was reading some lymenet posts over the weekend and read a post that reminded me of what you said regarding your lyme situation... saw the name was sixgoofykids and the location was ohio so I'm assuming that's you, right?

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Andrea....I read the link you posted.

I had read about the testing on rabbits in one of the posts on LymeNET.

I just cant believe I never knew any of this stuff was so toxic or harmful. It blows my mind. :blink:

On the one hand I sort of feel fortunate to be learning...so that I'm informed and dont end up causing more harm to myself down the road.

And then on the other hand I just want to put my hands over my ears and eyes and just walk around going "La -la-la-la-la-la-......I cant hear you...I cant see you....La-la-la-la" :ph34r:

Yeah...I just wanna block it all out and go back to normal when I didnt know anything and I wasnt sick...and I could eat all kinds of garbage...and I was just a normal fast food eating citizen who'd never heard of a neurotoxin. :huh:

Anyone else??

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    4. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748
    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.