Omg...i Might Be On To Something

[dlp252]

I just took a look at Chip--what a cutie I'm glad you two had each other for a while.

I also thought your Santa picture was sweet.

Thanks!

Guess what's in my new skincare products (Philosophy)--dermochlorella

:lol:

I wish I could figure out the reason for my many food intolerances--they don't seem to be easing up any.....I do have a new appt with the new gastro in a couple weeks. (Had to cancel the last one due to a bad cold).

I'm going to give him a try, and then revisit the thought of being tested for Lyme. I don't think it's the case for me, but well, I just don't know

On a positive note, I have found a digestive enzyme that agrees with me! I've been taking it for over 2 weeks now, and no problems. It also is helping with the gas and bloating.

I've been doing research on protease deficiency. All of my intolerances are plant-based proteins. Two of the more common symptoms of this are insomnia and anxiety. I have both of those, and most of the other symptoms, too.

The enzymes seem to be helping with the sleeping, and when I thought about it, the anxiety too (some).

I think getting tested for lyme is a great idea. I also don't think it's the case with me either, but it COULD be, so best to rule it out, lol.

That's great about the enzymes...Dr. S just told me he wants me to take them, so I've pulled out the ones the BioSET lady gave me when I first went to her...I'm not sure if they agree with me or not. Wow, if they could help with my sleeping I'd be happy.

I would be very concerned given the fact that Autism rates are souring across the nation and these kids are testing positive for Lyme. Its a gamble...some might be willing to take that risk....I would not want to gamble with a new life.

Some of these babies obviously cant cope with the toxic overload while others may fare better. Genetics are definately involved. I figure if I'm very susceptible to these toxins...any child I carry who is being exposed to these same toxins is just as susceptible.

And then, there's also just the physical and mental drain of trying to take care of a child when you're feeling so sick. I'm sort of glad I never had the strong urge to have children...seems unnatural I guess, but perhaps someone upstairs knew I wouldn't be able to deal with it at some point. I suppose if I really had that drive to have children, I might feel otherwise.

[AndreaB]

Okay, so I put up a picture of my little dog Chip (on my personal photo). Had to put her down about 2 or 3 years ago. Her owners turned her in to the vet to be put down but the vet thought she had some time left so I adopted her. Poor little thing was so sick, but so darned cute. I had her for two years and she had such a cute little personality.

She was a cutie. I'm glad you had each other too.

I wish I could figure out the reason for my many food intolerances--they don't seem to be easing up any.....I do have a new appt with the new gastro in a couple weeks. (Had to cancel the last one due to a bad cold).

I'm going to give him a try, and then revisit the thought of being tested for Lyme. I don't think it's the case for me, but well, I just don't know

I'm glad you are willing to look into lyme as well, even if it is a slim possibility. Just make sure you order the Igenix paperwork yourself or see an LLMD that uses them.

I'm glad you are finding some relief of insomnia with the enzymes. You know, we are intolerant to most of the plant proteins as well, but I don't have insomnia or anxiety. That would tell me there is still something going on with your system.

Unfortunately my seasonal allergies don't seem much improved, but it's a little too soon to tell yet. They are usually bad from May-July. I've already been sneezing a little more than normal.

[Mtndog]

I've been thinking of this some more ... I got pregnant with no help (except from Adam ) ....

OMG- for some reason this TOTALLY cracked me up!!!!!!!!!!!!!!!!! :lol: :lol:

Hi Donna- What's your Bumble Bar status? I miss Bumbles and peanut butter. I actually cheated- the other night I majorly racheled some peanut butter and the whole time I was thinking "OMG I am racheling this and i AM GONNA PAY!!!!!!!!!!!!!!!!!!" So far not too bad.

Interesting but I've been off those EVIL PPI (Nexium and prilosec) for 3 days now and you know what? I feel better! It's weird. I feel like I used to feel, like my stomach is actually moving and grooving and doing stuff. NEVER again. My GI wanted me to go back on zantac if I got pregnant because she said it was safer. At this point, I think I would have the GERD surgery before going back on one of those (my esophagus flap, forget what's it called, doesn't close all the way).

It's funny how you guys mention that you definitely didn't think that you had Lyme because I think I've put off the testing because I'm convinced I DO have it. I live in Lyme Central (New England). I'd actually be surprised if I DON'T have it.

I saw a rheumatologist who evaluated me and said that he didn't think that I fit the clinical diagnosis of Lyme, but we shall see.

I should start a bet- Lyme or stupid Nexium?

Oh- yes, I will up load some very goofy pics in a bit. we'll start with childhood, progress to bad hair days, and prom pics. You should see my confirmation picture. There i am all dressed up in my red confirmation robe and I have red feather earrings that look like clips you use to smoke what's left of a joint (roach clips ). At the time i had no idea

a) what marijuana was

what a roach clip was

I can only imagine what the bishop was thinking: Should I bless this mess?

[jerseyangel]

I'm glad you are willing to look into lyme as well, even if it is a slim possibility. Just make sure you order the Igenix paperwork yourself or see an LLMD that uses them.

I'm glad you are finding some relief of insomnia with the enzymes. You know, we are intolerant to most of the plant proteins as well, but I don't have insomnia or anxiety. That would tell me there is still something going on with your system.

Unfortunately my seasonal allergies don't seem much improved, but it's a little too soon to tell yet. They are usually bad from May-July. I've already been sneezing a little more than normal.

Yep--if I do go ahead, I'll most definately make sure Igenix is used.

I think this has been a particularly bad year for seasonal allergies--mine are driving me nuts, although they are always worse in the spring. Hope it won't be too bad for you this summer.

Love your latest picture, by the way. Very pretty!

[AndreaB]

It's funny how you guys mention that you definitely didn't think that you had Lyme because I think I've put off the testing because I'm convinced I DO have it. I live in Lyme Central (New England). I'd actually be surprised if I DON'T have it.

I saw a rheumatologist who evaluated me and said that he didn't think that I fit the clinical diagnosis of Lyme, but we shall see.

I should start a bet- Lyme or stupid Nexium?

I would be surprised if you didn't have it as well. I think I'd rely on the LLMD for a clinical diagnosis, combined with test results.

I vote for lyme, but it sounds like the Nexium was still causing problems.

Your confirmation description.....

So far, all of us on this thread have or suspect lyme and/or mercury (along with candida). Patti if you test positive for lyme (and you could since Mark had the bull's eye a few year back, and you live in a lyme hotspot as well), then where does that leave me?

I sincerly don't believe I (or my family) have lyme but I'm keeping my mind open. It's really hard for me to get my teeth taken care of when Talitha seems to need some treatment sooner rather than later. She has so many indosyncrasies (sp?) and is very immature for her age.....hence some of the problem with school work. It's not that she doesn't know it though. I just wonder how much damage (possibly permanent) that mercury has done to her......and Seth (although he's too little to tell much yet). I'd hate to see what the public school system would do to her. Thankfully I can homeschool.

[CarlaB]

Bev, because of where you live and that almost all your avatars are pics taken OUTSIDE, plus your symptoms, I've thought it was a possibility for you, too.

I live in a "no risk" area.

Adam's family is having a reunion this summer. I said, "Great, where is it?" Adam told me it was at a State Park in NY! I said, "NO WAY!" If I go east, it's going to be to a place covered in cement! I'm especially not going to risk him getting exposed.

Rachel, I appreciate your opinion on Lyme/autism. It seems that most of these kids get autism after immunizations, so I definately would shy away from them if I thought my kid might have Lyme! I can't say I would avoid having kids altogether though, but it's a risk each person has to weigh for themselves. I think that just knowing that the kid might have Lyme is a huge help in their care. Plus, kids play outside and get ticks ... they could get it anyway.

I just think there's more to it ... here's an interesting quote I found. I think they make some interesting points about how it's all interconnected. Open Original Shared Link

Open Original Shared Link

The following is a medical hypothesis paper written by Kathy Blanco, the mother of 2 children with autism... another mother who has done a great deal of research in the field of autism. I present this here as "another piece to consider". Do I personally think it is the Lyme disease itself that is "causing autism"... no. Do I think it is part of the problem... yes. The reason I say that is because iron feeds bacteria, viruses, parasites and cancers and Lyme is certainly known to be caused by ticks (and they could certainly be considered "parasites" of sorts). This issue of a possible link between autism and Lyme, in my opinion, may be one where the "condition of the host" is what determines what presents itself as an issue. For example, if a child has measles viruses injected into him (i.e., from the MMR), those viruses appear to be e the ones to grow, thrive and multiply on things like iron and be found in the gut of children with autism (as Andrew Wakefield has found)... and personally, I suspect the same may be true in the case of Lyme. There are many viruses, parasites, etc. now being linked to mental illness... and thus, I don't think, personally, that Lyme is "the cause" of autism... I think that with so many other issues, it is "an effect" that may present itself as a result of the deeper underlying issues - metal toxicity - which provides a favorable environment.

Lyme may have many parallels to autism and some appear to believe that children who have Lyme disease, once treated for Lyme, appear to have "recovered" from their autism. As such, yes, this is "an issue" - especially if there can be a misdiagnosis of "autism" when "Lyme" may be the true culprit... and for those for whom this may be the issue, I wanted to present this argument for an "autism-Lyme connection". Many of the issues discussed in Kathy's paper are also things we find in those who have metal toxicity and as such, I think the jury is still out on this one... an issue - yes... a "cause" of autism - personally, I don't think that is the case.

Of course, that is just "my opinion" on this issue. Kathy is the person who has really been studying this one and so, I present her paper here for those who are interested in this issue of a possible autism-Lyme connection!

[CarlaB]

I think I've put off the testing because I'm convinced I DO have it. I live in Lyme Central (New England). I'd actually be surprised if I DON'T have it.

That would explain why you left Rachelville for a while ... it was difficult to stay in denial around here!

[dlp252]

Hi Donna- What's your Bumble Bar status? I miss Bumbles and peanut butter. I actually cheated- the other night I majorly racheled some peanut butter and the whole time I was thinking "OMG I am racheling this and i AM GONNA PAY!!!!!!!!!!!!!!!!!!" So far not too bad.

I have three in my cabinet that I bought last Saturday...not bad. I haven't opened one of them yet. Course, I DID eat a whole chocolate gluten free brownie and OD'd on sugar so that may have helped me stay away. I really miss my PB too...every so often I buy a jar and just deal with the side affects. We had a page not to long about about the Racheling of peanut butter.

It's funny how you guys mention that you definitely didn't think that you had Lyme because I think I've put off the testing because I'm convinced I DO have it. I live in Lyme Central (New England). I'd actually be surprised if I DON'T have it.

It's hard...I've had some exposure to higher risk areas, including VERMONT, but it's still hard to think I might have it. I keep thinking that the guy who did the ART session where it was found was actually finding his own.

So far, all of us on this thread have or suspect lyme and/or mercury (along with candida). Patti if you test positive for lyme (and you could since Mark had the bull's eye a few year back, and you live in a lyme hotspot as well), then where does that leave me?

I sincerly don't believe I (or my family) have lyme but I'm keeping my mind open. It's really hard for me to get my teeth taken care of when Talitha seems to need some treatment sooner rather than later. She has so many indosyncrasies (sp?) and is very immature for her age.....hence some of the problem with school work. It's not that she doesn't know it though. I just wonder how much damage (possibly permanent) that mercury has done to her......and Seth (although he's too little to tell much yet). I'd hate to see what the public school system would do to her. Thankfully I can homeschool.

I see cases of lyme on lymenet from your area... Plus there's travel, how many of us have traveled into areas that have ticks or black flies.

I'm pretty sure Dr. S thinks the majority of my problems are from mercury though (or actually probably mold). He really shook his head when I said I had 11 fillings and that 6 of them had gold crowns over them.

[Mtndog]

We had a page not to long about about the Racheling of peanut butter.

i am NOT going to read it as it will CAUSE me to go Rachel more pb.

In spirit of new avatars <------------------------------------------------------- (me at 4, my sis at 2 and my mom at 37). I love this pic!

Oh, as far as staying away from the thread, I think that I felt like it was too "Lyme-centric" (is that a new word?) and I really wanted to think about everything and observe my body for awhile. I actually haven't spent much time on c.com in general (or nearly as much as I used to). I just really needed my own space to think about what was going on. It was actually good- I wrote a lot on DS.

carla- It cracks me up that you notice all my avatars are outside. That's actually true....I'd live in a luxury yurt if I could (note: key word LUXURY- down comforter, fireplace, full kitchen!).

Actually that last pic I had up of me and Angus was taken at a state park nearby that is a hotbed of Lymeiness. i actually think in my case it was the black flies that got me. They tried to eat me alive!!!!!!!!!!!!!!!!!!!!! Worse than piranhas!

[dlp252]

Great avatar Bev!!!

Lymecentric!

[AndreaB]

It's hard...I've had some exposure to higher risk areas, including VERMONT, but it's still hard to think I might have it. I keep thinking that the guy who did the ART session where it was found was actually finding his own.

I've been wondering whether it was possible for Scott or his helper to pick up their own lyme. I don't know exactly how that works though.

In spirit of new avatars <------------------------------------------------------- (me at 4, my sis at 2 and my mom at 37). I love this pic!

Love it!

It was pretty focused for awhile but I'm glad you're back. We all need breaks from time to time.

[CarlaB]

Bev, you still look the same as you did when you were 4!!

[jerseyangel]

Bev--I love the picture of your mom and her girls.

[dlp252]

Cute graduation picture Patti!

Can I just say too how nice it is to have both Patti and Bev posting again! It makes me

Does anyone know what time Rachel's appointment is...I'm sort of excited about this one for some reason.

I've been wondering whether it was possible for Scott or his helper to pick up their own lyme. I don't know exactly how that works though.

I think this way half the time, lol, and the other half of the time I know it's probably got nothing to do with it, or I wouldn't have "reacted" to some of the other stuff...metals for instance. He saw that I still have metals, but I think he is long since done with chelation. I'm just going to be so interested to see the Western Blots and am sort of hoping that it definitely shows lyme. I think I'd rather have lyme than to have a problem with molds which I won't be able to do much about, and that would mean I wouldn't get well. If it's just lyme, metals and candida, I can deal with that, lol.

[AndreaB]

Cute graduation picture Patti!

Thanks for the heads up......mine was still showing a little girl in a chair.

Very nice picture Patti.

Can I just say too how nice it is to have both Patti and Bev posting again! It makes me

Me too. The whole "family" is almost together again. Where's Susan? Celia has been lost touch with. We've still gotta get Robbin back too.

Does anyone know what time Rachel's appointment is...I'm sort of excited about this one for some reason.

Don't know. I'm excited too.

If it's just lyme, metals and candida, I can deal with that, lol.

Isn't it amazing how we get so excited about a diagnosis, even a not very favorable one, since it means something can be done to get better?

[happygirl]

Hi ladies

love the new pics, bev and patti. happy to have you back, carla.

i'll write more later, but just wanted to add my voice of support, Charlie. Make sure you next get tested for co-infections, even before you started LD treatment. You are in NJ, so there should be experienced LLMDs in your state. I luckily love my dr.....and for me to say that is a huge, huge, huge accomplishment.

Bev, I'm happy you are getting tested. Patti, like with the others, I don't care what it is any of us have, but I just want us all to KNOW so we can deal with it. I thought I was the least likely Lyme patient...and then I met numerous people like me (food issues) at my doctor's.

Today is not a good day (I think I started a flare last night)....but I'll update everyone later. In general, though, I do have some good things to report.

[jerseyangel]

Hi Laura--I'm enjoying your pictures, too I'll look forward to your good news! That's very interesting about all of the people in that waiting room with food issues. To think I used to feel so alone about this stuff.

Andrea--That was nice to say about the "family" being back together I never actually left, as you know, I just lurked and read along. I love all you guys we've been through a heck of a lot together!

Donna--You make me , too!

[AndreaB]

Laura,

I still find it interesting that gluten seem to be the main first intolerance out there and then everything else pops up. The only reason I would have suspected you for having lyme is that I thought VA was a higher state for it. I know NJ is. I'll look forward to your update also.

Patti,

I missed Julie in my list as well. She was also a lot of fun to have on here.

Talitha was in excrutiating pain for a couple hours yesterday (excrutiating for her anyway). I think it was the left front side. Then her stomach started bothering her. Finally went away about 1 hour after lunch. I'm thinking it may have been the few slices of banana she tried yesteday. I just don't know if it's capable of causing the intense pain she had. She could barely walk because of it. She has a very low pain threshhold.

[AndreaB]

Donna! You got your avatar changed!

Details please.

[AndreaB]

Oh, and Laura, I'd like to add that I hope this flare is over quickly for you.

I seem to be having problems remembering everything I want to say......you guys must be rubbing off on me. I still don't know how Rachel can keep so much straight with all the brain fog.

[dlp252]

Donna! You got your avatar changed!

Details please.

Yes, I'm still getting the error message, but suddenly today the stuff to actually change the avatar came up.

This is me and my boyfriend Timmy, lol. My mom loves to say that. I think we must have been around 3 at the most. I have more to post so I'll be changing it or my personal photo throughout the weekend. If I can find a "wedding" picture this weekend I'll post that too, lol.

[CarlaB]

Andrea, if Adam eats a banana with any green on it (barely-ripe, the way I like them), then he gets terrible stomach cramps that last a long time.

Laura, I'm looking forward to the good news! I hope your herx is over quickly and leaves you feeling better than before it started.

[AndreaB]

Andrea, if Adam eats a banana with any green on it (barely-ripe, the way I like them), then he gets terrible stomach cramps that last a long time.

This one was totally ripe. Had some brown speckles but not many. She's highly intolerant to them and we thought we'd see if her body had forgot about them. Her reactions are typically stomach and/or GI related.

[Clark Bent as Stupor-Man]

i'll write more later, but just wanted to add my voice of support, Charlie. Make sure you next get tested for co-infections, even before you started LD treatment. You are in NJ, so there should be experienced LLMDs in your state. I luckily love my dr.....and for me to say that is a huge, huge, huge accomplishment.

thanks... I actually already got tested for co-infections, which came back negative... on my initial visit, I got tests drawn for co-infections through one lab, the CD57 test through Labcorp, and the Western Blots through Igenex...

the LLMD I'm seeing is definitely experienced.. had her recommended to me from 2 people... as you indicated, being in NJ does have its benefits in treating lyme... I think a number of the big lyme organizations are based out of NJ... although there's also been somewhat of a crackdown around here on lyme doctors, which I know is going on in a number of other states as well

[Mtndog]

Aww you guys..it's good to be back.... We need Susie Q....and Robbin too!

Carla- Everyone says that! That I look exactly the same now as I did when I was little..it's kind of bizarre but I'll see people from my distant past and I don't recognize them because they've changed so much and I always hear "OMG you look exactly the same"

Thanks patti- I love that pic of us. It was easter! Patti- your hs graduation picture is so cute! This is fun! I have a few more up my sleeve (SCARY stuff!). Andrea- i have 2 horse ones you'll love!

Health and happiness to all!