Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

AndreaB Contributor
Speaking of the SIBO, I am starting my sequence of treatment for it, either tonight or tomorrow. Even though I tested neg for it, I'm still having GI issues, so she wants to try it.

Hope all goes well with the SIBO treatment. I also hope this flare dies down quickly for this weekend.

Make sure you get your rest. :)

I want to do this horse rescue, but it's too far away for right now. There are plenty of local shelters.

Horse rescue? Now that sounds like something I'd like too. Of course I wouldn't mind shelters either. I just always want to bring the kitties home. :ph34r:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
DingoGirl Enthusiast

Tabasco - - I don't know if I"ve written this before on here (dingo'd it if I have :ph34r: ) but there is something that works quite well for me: get some tea, any kind you'd like. Put about 2 tablespoons of flax seeds in - - this is assuming you can tolerate them, of course. Let the seeds and tea steep. The seeds will get slippery and soft......you just gently crunch them at the end of the tea. Works like a charm for me......and yes, drink LOTS of water!

Thank you, but this just totally made me smile...poopy...diarrhea...poopy. :lol:

:lol: you are a nut, Lady.

and yes, get those attorneys to FULLY fix up your home office!!! work from home on the days you're not well.....after FIFTEEN YEARS (cannot conceive of this) I think they would do it!

patti-Please come to Boston. Oh please oh please oh please!!!!!! The house next door to us is for sale and it's cute and Angus would greet you EVERY morning. He even said he's made you a gluten-free coffee cake cuz he knows you're coming. Actually, it sounded more like "Woof garble garble grrr WOOF!" but I knew what he meant!

HARRUMPH!!!! no, no, no, NO!!!! we want her!! Come to California!!! Yay Patti!! Yes, yes, California!!!! :rolleyes:

and yes, isn't she wise and clever for not divulging this info, whereas I, as we all know, WOULD in fact broadcast it to the world....

Bev - - I was going to suggest the nursery/garden center......will think of something else. the animals will love you....:)

and speaking of animals, I have got to go now, and take my sweet girl to the vet....

Andrea - - - what a love you are, thank you for your PM!!!!!

see you.

Judyin Philly Enthusiast
Speaking of the SIBO, I am starting my sequence of treatment for it, either tonight or tomorrow. Even though I tested neg for it, I'm still having GI issues, so she wants to try it.

Judy, thanks for the info on lymph stuff...I called someone today and I think I'm going to try to get in next week.

LAURA...GLAD THE LYMPH INFO HELPED. I THINK YOU'LL REALLY BE HELPED BY THE 'MLD'

GET A GOOD GOOD GOOD THERAPIST...THAT'S THE KEY.

LYNNE IS A BIG FAN OF THIS TOO.

SO YOUR GOING TO DO THE ANTIB ???..THAT STARTS WITH 'r' EVEN THO YOU TESTED NEGATIVE ON THE SIBO TEST???

.

GOD --I HAVE THE PILLS RIGHT HERE IN MY DRAWER. NEVER TOOK THEM

I SCORED ONE POINT OVER NORNAL SO ''I DECIDED NOT TO DO IT'

DR TOMORROW WILL PROBABLY WANT ME TO.

I'M TELLING HIM...

I'LL DO THE ENDOSCOPY AND COLONOSCOPY FOR YOU IF YOU DO THE INGENX LYME TEST AND THE CD57 FOR ME...

TIME WILL TELL

JIN..THANKS FOR THE NICE WORDS AND TO THE REST OF YOU

THANKS FOR BEING THERE '''ALWAYS''

JUDY

jerseyangel Proficient
I'm almost certain that the allergies were a result of whatever is going on with me. Lyme, mercury, mold, whatever. I'm not nearly as congested as I was before I went gluten/casein free...I think taking some of the burden off my system has helped to keep the allergies in check too.

I'll bet you're right. Being casein free has probably helped a lot with that, too. Are you allergic to dust mites?

15 years!!!! Wow!

Speaking of the SIBO, I am starting my sequence of treatment for it, either tonight or tomorrow. Even though I tested neg for it, I'm still having GI issues, so she wants to try it.

Can't wait to see if it helps you. I've heard good things about it. I have a feeling my dr may give it to me regardless of the test result. Just my take on how he spoke about it.

Sorry you are on a cycle of bad days just when you have special plans. Just not fair :angry: Hope it passes soon and you hace a nice time.

patti-Please come to Boston. Oh please oh please oh please!!!!!! The house next door to us is for sale and it's cute and Angus would greet you EVERY morning. He even said he's made you a gluten-free coffee cake cuz he knows you're coming. Actually, it sounded more like "Woof garble garble grrr WOOF!" but I knew what he meant!

How tempting is that! Angus AND a coffee cake :D

Andrea--how is Talitha today? Is she still having the pain?

Hi Judy!!!

tabasco32 Apprentice

noglugrl

what do you suggest or did for constipation take or eat? THe miralax is not really working or I am not drinking enough water. I think my colon has stopped working? I don't know that's what it feels like.

dingo

I have tried flaxseed, grinded flaxseed with water it didn't work.. are teas o.k. for people with candida?

It's weird but when I drink the miralax it makes my throat pop.

I feel like my food is going to come up my throat.. gross huh?

AndreaB Contributor
Andrea--how is Talitha today? Is she still having the pain?

She still hurts. I think she pulled a muscle when she fell.

tabasco32 Apprentice

anyone

is brown rice o.k. for candida? how about brown rice pasta? any grains o.k.?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice
Are you allergic to dust mites?

Used to be. On my first allergy test 4 years ago, I was allergic to them. When I was retested a year and a half ago, I wasn't.

CarlaB Enthusiast

Rachel, go have a treat. :wub: Don't let one person stop you from posting on other threads. Just let it go ... you've said it all ... just like you said, you don't need the stress.

Mtndog Collaborator
noglugrl

what do you suggest or did for constipation take or eat? THe miralax is not really working or I am not drinking enough water. I think my colon has stopped working? I don't know that's what it feels like.

dingo

I have tried flaxseed, grinded flaxseed with water it didn't work.. are teas o.k. for people with candida?

It's weird but when I drink the miralax it makes my throat pop.

I feel like my food is going to come up my throat.. gross huh?

Oh you poor thing...the miralax did that to me when I was really really constipated. It's disgusting!!!!!!!!!!!!!!!

One tea that I used to drink for constiaption was laci LeBeau's Super Dieter's tea:

Here's a link with the ingredients:Open Original Shared Link

It has senna in it which CAN cause problems but it gave me almost immediate relief. Definitely check with your doctor first.

andrea- Hope talitha feels better soon!

jerseyangel Proficient

Rachel,

Carla beat me to it, but I was just going to say the same thing--or words to that effect ;)

You have to be exhausted--please try and relax and do something nice for youself tonight. Anything to get your mind off the board for a while. :)

Mtndog Collaborator
Rachel,

Carla beat me to it, but I was just going to say the same thing--or words to that effect ;)

You have to be exhausted--please try and relax and do something nice for youself tonight. Anything to get your mind off the board for a while. :)

i agree- not worth the stress. Take a well-deserved break!!!!!!!!!!!!!!! :wub: :wub: :wub: :wub:

DingoGirl Enthusiast
I have tried flaxseed, grinded flaxseed with water it didn't work.. are teas o.k. for people with candida?

Tabasco (is your name Lisa? I am not sure :unsure: ) - - I think the problem was grinding the flax seeds, maybe? their outer husks are very slippery and slimy.....I used them fully intact when I needed a poopy (hi donna!) experience. Like Kramer said....."wet and WILD!!" (I think that was after he had an enema :ph34r::lol: )

Andrea - - what is the latest on Talitha? you know, sometimes I read these pages SO fast, as I am SO far behind, blow me if I just don't dingo all kinds of important information.

And Rachel - - what is up? is it the heinosity of that other thread? I am going to have to venture into that one now, to see what this is all about....which means - - more reading which equals - - more dingo'ing. :huh:

Patti - you would choose Angus and coffee cake over dingos in sunny california? :o:lol:

I am confused over many things on our beloved OMG thread and to clarify things would require going back, many, many pages....I just don't have the stamina.

xoxo

CarlaB Enthusiast
I am confused over many things on our beloved OMG thread and to clarify things would require going back, many, many pages....I just don't have the stamina.

xoxo

Just ask, you don't need to go back! :ph34r:

jerseyangel Proficient
Patti - you would choose Angus and coffee cake over dingos in sunny california? :o:lol:

Your sweet dingos and California sound wonderful. :D And I'd love to meet you in person, too! Gosh--everyone! It would be so nice for us all to be able to meet face to face. :rolleyes:

jerseyangel Proficient
Just ask, you don't need to go back! :ph34r:

Yea, I forgot :huh:

What are you confused about, Susie?

jerseyangel Proficient
Used to be. On my first allergy test 4 years ago, I was allergic to them. When I was retested a year and a half ago, I wasn't.

I asked because after I tested highly allergic to them last year, I put protective covers on my mattress and pillows and noticed a difference.

Funny--I used to be highly allergic to cats, and last year was found to be only mildly allergic. I think living with a cat so long de-sensitized me :D

CarlaB Enthusiast

On LN they're talking about a Lyme float ... it's a canoe trip ... we could meet there, it's for Lymies and their families ... we're all family here. ;) Of course, it's only an hour away from my house! LOL Easy for me to suggest. :lol:

jerseyangel Proficient

A Lyme float sounds like a frosty summer drink! :D

CarlaB Enthusiast
A Lyme float sounds like a frosty summer drink! :D

Yeah, I picture a Steak and Shake Lime freeze every time I read it ... but I always liked vanilla malts ... stupid barley.

CarlaB Enthusiast

Or we could meet here Open Original Shared Link

It's for Lyme patients and caregivers ... those of you who don't have it or haven't been tested are caregivers. :rolleyes:

DingoGirl Enthusiast
What are you confused about, Susie?

:unsure: oh my gosh, it's all the letters and numbers, I think. When people throw around their number readings, and letters - - see, I'm so confused I can't even remember. :lol: and the "bands" - - that's confusing too......I think that involves letters and numbers. Oh, and the names of the @*$!&*!! germies, all the babs, chlorella (and is that a virus, or a beverage you all drink? :huh: ), and all the other weird names of the evil bugs, and all the treatments, I forget what is for what and who's taking what for what..... :huh: and then this mysterious HERXING...... See, I was gone for a while, and when I came back, and I still do come and go, and there are new things all the time from your brilliant scientifness, and dang if I just can't follow it all. :huh:

but, I'm here to support the lymies, and all others, and just to share the love. :wub:

A Lyme float sounds like a frosty summer drink! :D

:rolleyes: and it sounds YUMMY!!!! lime sherbert with - - whipped cream, soda water, and - - dare I say, vodka, perhaps? ;)

Or we could meet here Open Original Shared Link

It's for Lyme patients and caregivers ... those of you who don't have it or haven't been tested are caregivers. :rolleyes:

Excellent, I'm a caregiver! :)

AndreaB Contributor
i agree- not worth the stress. Take a well-deserved break!!!!!!!!!!!!!!! :wub: :wub: :wub: :wub:

I ditto Carla, Patti and Bev.

Love and hugs coming your way. :wub: :wub: :wub:

AndreaB Contributor
Andrea - - what is the latest on Talitha? you know, sometimes I read these pages SO fast, as I am SO far behind, blow me if I just don't dingo all kinds of important information.

Some days things are moving pretty quickly over here. :blink:

Talitha still hurts but she's doing better, ("a little better" she says). :)

Gosh--everyone! It would be so nice for us all to be able to meet face to face. :rolleyes:

I still would like to do that. Just don't know that we'd ever have the extra money. :(

DingoGirl Enthusiast
I still would like to do that. Just don't know that we'd ever have the extra money. :(

(raises hand) I KNOW! We print out and send this entire thread to.....let's see......Oprah? Dr. Greene? Lyme Central? Richard Branson? (with Virgin Atlantic) Or - who's the richest man - - is it Warren Buffett? Elisabeth Hasselbeck? is she the wealthiest Celiac we know?

just brainstorming here. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.