Omg...i Might Be On To Something

[NoGluGirl 5]

Dear Susan,

I go around saying that quote from Seinfeld all of the time, too! It is a lot of fun to say! I forgot about the rescue signal, though! That was so funny! It was a terrific episode!

I hope Tika and Stinker feel better soon! Hopefully, the test results will come in soon. Then they will have answers and can treat your furry babies! Annie sounds really sweet. She reminds me of the Schnauzers we had growing up. They were like Annie where they would always be there to comfort you if you were sick or sad.

Dear Patti,

Could it be DH? I get blister-like zits. I thought they were zits. Now, I think it could be DH. That would make sense.

Sincerely,

NoGluGirl

[NoGluGirl 5]

OMG now I am ROTFLMAO because you all thought pipcs were something. we might have to make them something. HMMMM...what WOULD a Pipc look like. Must think about this.

Chrissy- I am SO sorry about your neuro. LAME! My first appt with my LLMD was 2 1/2 hours. He gave me a 5 page write-up just from that! My next appt to go over my results is 1 1/2 hours. These docs DO NOT kid around. Just wanted to say HUG :wub:

Oh and I have a GI that DOES listen to me. Stereotypes and all, I MUCH prefer female doctors. They actually listen and don't seem to have such a god-complex. Not true across the board but this has been my experience. All my docs, except Dr Lyme, are female.

Donna- I want to hear you sing...........................I've always wanted to sing!

OK- two goals for the near future:

1. Write lyrics to a theme song for rachelville

2. new avatar of me dressed the way I'm SUPPOSED to dress this summer I was just walking through my backyard singing "Tick tick tick tick".

What am I going to do...REALLY? I love being outside and I live in Lyme Central. Actually, knowing me, I have probably been infected more than once. I think one time was when I got into a brawl with a rat in Lyme CT. She was drunk and trying to steal my date so I gave her some whooparse. She bit me AND stole my date. BIACH.

OMG- I think I am giddy. I'm cracking myself up which is pretty rare.

Dear Bev,

ROFLMAO! That is all so hilarious! You wanna hear something even crazier? I knew what you meant with pipcs! I knew exactly what you meant! I figured it was a typo. I sort of got confused at first, but realized what you were talking about.

I love to sing as well. I dance, compose, sing, write music, etc. I wish I could play the electric guitar! That would really help me! Songs sound better when they have music with them!

I can just see you and that rat tumbling around! Whooparse is deserved in certain cases!

I say she was one of those cases! You should have smacked her good! She is a ho!

Sincerely,

Jin

[dlp252 5]

Gosh Patti, the first thing that came to my mind was also hives, but I think those are bigger aren't they. Do they look like little blisters...DH maybe?

All you musical people...I can't read a single note of music, lol. I have to learn it by hearing it. Not very easy.

[AndreaB 1]

Donna,

I'm sure you'll do fine.

We all, I've decided to cancel getting my amalgams/crowns done this year. I don't want to chance thing with Seth for one and I really need to apply the money to current bills. With prices going crazy, I don't need the added stress of an already far short food budget. Obviously if I need to have a crown done before next year we'll deal with it and go see the dentist in Eastern Washington.

I may still have a challenge done with Talitha, but hubby and I will have to discuss it. Mitch thinks we both could benefit from chelation. I won't do any challenge or chelation until my teeth are taken care of though. We are eating organic and though my allergies are bothering me I think they are a little better than last year (so far). We don't eat gluten or dairy which are the two big problem foods, nor do we eat soy (which we think is a big problem food )

I started taking selenium every other day (started Tuesday). If Seth's eczema doesn't clear up then I can suspect that and go back to the chlorella. Still won't get my teeth done yet though. It's a hard decision to make but I think it's the right one right now. Carla, I think you've already said that.

[jerseyangel 413]

Andrea,

I think your decision makes a lot of sense. Sorry I didn't weigh in--when Matt got home he needed to use the computer.

That song is perfect for us! Love it!

I spoke to Judy a while ago, and we both think it's a reaction to the seeds in the trail mix. That's the only thing that makes sense. I wasn't outside long enough to get bit this many times, and I was just in and out of the car. Plus, they were appearing today out of nowhere. Thanks for all your thoughts

I just heard that Rosie quit The View and won't be back--in case anyone's interested .

[CarlaB 22]

Patti, just to be sure, check your bed for spiders!! I guess it's from having had the sensation that bugs were crawling on me, or maybe it was from living in a very small place while our house was being built 8 years ago (it had maybe 900 sq. ft.). It was impossible to keep the spiders out of that small place ... anyway, I still check my bed for spiders every night! It didn't help any that I found one there about a year ago!

Maybe these OCD tendencies will go away with the Lyme.

It very well could have been the seeds. You are sensitive to many things.

Andrea, sounds like a good decision on many levels. I definately would not have that kind of work done while breastfeeding. I remember that my ob/gyn wanted me to have mammograms done early because my mom had breast cancer, but I was always breastfeeding or pregnant! LOL

[jerseyangel 413]

It's definately coming from within...I just had more raise up on the inside of my arms. I'm feeling itchier--I took a Claritin a while ago. Helped maybe a little.

[Clark Bent as Stupor-Man 0]

quick question for you lyme experts... I started minocyline on Saturday and took 2 each day on Saturday and Sunday... stopped it on the advice of my dr. on monday due to the bad rxn I was having... my dr. said to start it back up at half the dosage after the symptoms subside... 5 days later, I'm still having the symptoms, less severe than on Sunday night into Monday but probably equal to how I've felt since Tuesday... my body just feels so ridiculously heavy like gravity is pulling me down 100 times more than normal... I don't even know exactly what my question is, but anyone have any advice or insight as to why I'm still feeling like this after stopping the meds on Sunday?

[CarlaB 22]

Charlie, sometimes when I start on a new med I feel a little worse until after the first herx, my regular herx that happens every 24 days.

I always take the medicine through the bad feeling unless I think it's a reaction to the medicine and not a Lyme flare. I'd bet you're just reaching the bugs. It's very common for people to feel worse before they feel better.

Recently, I had a one week break from the medicine and felt the BEST I've felt in YEARS. When I started back on meds, I was sluggish again, but still better than I felt before I started the meds.

I guess my point is, I'm not shocked and I think the reaction is pretty normal. If it were me, I'd ease back into the medicine. If it's too much of a problem, maybe it's the wrong treatment for you.

I'd say you're still feeling bad because you stirred up the bacteria. This nightmare started for me after a 21 day round of doxy ... I never recovered because it stirred up my almost asymptomatic Lyme.

[Clark Bent as Stupor-Man 0]

Charlie, sometimes when I start on a new med I feel a little worse until after the first herx, my regular herx that happens every 24 days.

I always take the medicine through the bad feeling unless I think it's a reaction to the medicine and not a Lyme flare. I'd bet you're just reaching the bugs. It's very common for people to feel worse before they feel better.

Recently, I had a one week break from the medicine and felt the BEST I've felt in YEARS. When I started back on meds, I was sluggish again, but still better than I felt before I started the meds.

I guess my point is, I'm not shocked and I think the reaction is pretty normal. If it were me, I'd ease back into the medicine. If it's too much of a problem, maybe it's the wrong treatment for you.

I'd say you're still feeling bad because you stirred up the bacteria. This nightmare started for me after a 21 day round of doxy ... I never recovered because it stirred up my almost asymptomatic Lyme.

you're referring to a round of doxy you had a couple years ago and not ABX you took when you started treating lyme, right?

I'm thinking along the same lines as the most likely possibility... not that my lyme was entirely asymptomatic and dormant as I feel it's likely connected to my neuro and some physical problems, but that the rxn I'm having is probably connected to the lyme being stirred up in some aspect... and I guess the longer these symptoms last, the more likely that is the case as an adverse rxn to taking 2 days of ABX would probably not last too long before dying down... I think it's still a possibility that I just had an adverse rxn to the med itself or something in it, but that's probably less likely each day I still feel like this...

I still don't know if I can handle the mino though... I just haven't seemed to handle too many meds/supplements in the past year that may be effective but are just too much for me to take... was that way when I tried treating the candida with an antifungal and I have a feeling the mino, though possibly quite effective, may be too strong of a med for me to start on... but I can discuss that with my dr. next week based on how I feel upon restarting the mino at 1/2 the dosage, assuming I restart it this weekend

[CarlaB 22]

Yes, doxy prior to the Lyme.

My LLMD's assistant told me the bugs do get stirred up when you start the meds ... I know mine did. I'd start on half the dose and try to hold out through it.

Drink some lemon water. It helps some as it alkalinizes the system.

Be sure to get more rest than usual, not just sleep, but rest as well.

Are you doing anything do detox? I have a far infrared sauna and it helps a lot, especially during a herx. I also take many supplements for detoxing ... recommended by my LLMD.

You can expect to feel worse for a while after starting the meds. You might try posting on Lymenet about it, too ... the people there are pretty experienced and will be able to assure you that it's perfectly normal to feel bad as you start the meds.

[Clark Bent as Stupor-Man 0]

Yes, doxy prior to the Lyme.

My LLMD's assistant told me the bugs do get stirred up when you start the meds ... I know mine did. I'd start on half the dose and try to hold out through it.

Drink some lemon water. It helps some as it alkalinizes the system.

Be sure to get more rest than usual, not just sleep, but rest as well.

Are you doing anything do detox? I have a far infrared sauna and it helps a lot, especially during a herx. I also take many supplements for detoxing ... recommended by my LLMD.

You can expect to feel worse for a while after starting the meds. You might try posting on Lymenet about it, too ... the people there are pretty experienced and will be able to assure you that it's perfectly normal to feel bad as you start the meds.

thanks for all the advice... I'll probably post something on lymenet over the weekend... I've read a lot of info there recently, just haven't posted yet...

I'm not really doing anything to detox... aside from maybe something like exercise/physical activity, which I'd be inclined to think would aid in detoxing stuff out of your body... but this is one thing I've wanted to look into the past week or 2, just haven't had a chance... you know of a website or post that has good, specific information on aiding in the detoxification process while treating something like lyme?

[Rachel--24 7]

I'm thinking along the same lines as the most likely possibility... not that my lyme was entirely asymptomatic and dormant as I feel it's likely connected to my neuro and some physical problems, but that the rxn I'm having is probably connected to the lyme being stirred up in some aspect...

Charlie,

My guess is that you've stirred up Lyme and other toxins. I'm not even on antibiotics but when I do stuff to stir up toxins I can stay symptomatic for several days. This happens from doing even the minor detox stuff...as well as taking detox supplements, Nystatin, the sauna I had, etc.

If you are doing other things alongside the antibiotics it can add to it. Even the excerise you're doing can stir up toxins. Anything meant to help detoxify can loosen up toxins stored within. The antibiotics would stir up alot more than what you're used to...so you would feel worse.

Also...Lyme and its buddies (mercury, parasites, candida, etc) dont live in seperate worlds in our bodies. They hang out together. When you stir one thing up...you stir everything up. I had read that somewhere and I try to remind myself of that all the time. Its easy to forget that and think that when your taking something like Nystatin...you're only touching yeast. It doesnt happen that way though.

Same with antibiotics....they may only be targeting Lyme...but in the process of stirring up Lyme....you're stirring up the whole toxic environment where these guys are thriving.

[CarlaB 22]

Charlie, my LLMD has me on a lot of immune support -- supplements -- vitamins, minerals, Oncoplex (broccoli sprouts), Host Defense (mushrooms), etc.

I would suggest looking at the Burrascano guidelines for the supplements he recommends if your LLMD hasn't recommended any. When you start them, first wait till you've been on the mino for a while, then start no more than one new one every three or four days to watch for reaction.

I could take a lot right away, but oddly enough, I was taking almost the same supplements on my own as Burrascano recommends, so my system was used to them.

Rachel's right about exercise, too. It raises your body temperature and brings oxygen to the bacteria. I exercised a lot prior to starting meds, so it hasn't been bad for me. If you exercise now, continue, if not, start slowly.

I really recommend the Burrascano guidelines. It's a great overview of treatment, detox, etc. You can find it on www.ilads.org. I think detoxing properly is the single most important thing in being able to handle the treatment. If you can't get rid of the dead bacteria, you will feel bad.

[Rachel--24 7]

I think detoxing properly is the single most important thing in being able to handle the treatment. If you can't get rid of the dead bacteria, you will feel bad.

Yup. Totally true...you gotta be able to get rid of the toxic waste or you'll feel....well....like toxic waste...GARBAGE.

[Judyin Philly 6]

DID IT AGAIN --------

WILL I EVER LEARN???? JUST DID LONGGGGGGGGGGGGGGGGGGGGGGGGG DR APT UP- DATE AND LOST IT ALL WHILE CHECKING SOME SPELLING.

I'M TOO TIRED AND MAD TO WRITE IT ALL OVER AGAIN TONIGHT.

IT WAS A WONDERFUL VISIT AND I STARTED ON THE RIFAXIMIN TODAY FOR SBIO. TAKEN 2 DOSES SO FAR SO GOOD. HE'S ON CALL THIS WEEKEND AND TOLD ME TO CALL IF IF I HAD A PROBLEM.

I DID A LYME TEST AND IT WAS SENT AWAY AND SHOULD GET RESULTS IN 5 DAYS. NO IT WASN'T WITH Igenex...AND THAT'S A LONGGGGGGGGGGGGGGGGGG STORY.

WROTE 2 REFERALS FOR MORE MLD..PT...THANKS GOD AND ONE FOR THE NEW GI WHO DID THE HYDROGEN BREATH TEST. WILL CALL TO SET UP APT TO SEE HER ASAP AS 10 DAY DOSE IS DONE.

IT WAS A DAY OF COMING TO TERMS WITH MY NEEDS AND PUTTING MY TRUST IN THIS DR. WHO HAS FOUGHT MANY HMO FIGHTS FOR ME OVER THE 25 YEARS I'VE BEEN SEEING HIM.

HE'S BRIGHT, KEEPS UP WITH CURRENT RESEARCH AND IS ABREAST OF NEW CONCEPTS.

HE SAID WE WILL GET TO THE BOTTOM OF WHY I'M NOT 100%. I TRUST HIM AND RIGHT NOW...IT'S WHAT I NEED. IF YOU HAVE QUESTIONS...PLEASE MESSAGE ME. I'M JUST SICK I LOST IT ALL AS SO MUCH DETAIL WAS THERE.

THANKS TO ALL OF YOU WHO HAVE BEEN SO SUPPORTIVE OF ME WHILE I TRY TO HEAL.

I APPRECIATE YOUR CONCERN AND SUGGESTIONS MORE THAN YOU WILL EVER KNOW

LOVE YOU ALL --JUDY

[AndreaB 1]

I'm glad you posted over here Judy.

We'll be waiting for your results and long story when you feel up to telling it.

Keep us posted on the SIBO to please.

Love and hugs.

[Rachel--24 7]

Ok....so I am WAY freakin toxic!!

Not like thats any kind of shocking new development or anything...but yeah..I'm a toxic dump site.

I'm realizing that ANYTHING I do to try to detox stirs up a whole lot of stuff. No wonder I wasnt doing well on supplements ....aside from the intolerances I think anything that is meant to promote health or detoxification moves stuff around and gets me sick.

After the sauna I had all that nausea, burning eyes, skin and tongue. Also some swelling and throbbing in my head.

It was pretty much the same thing with the chlorella...too much for me to handle...especially both of them together.

So I get the same symptoms from my Nystatin...some days its mild and other days more severe....depending on how toxic I'm already feeling.

I started my coffee enemas (yeah, I know TMI ). Just dont look at my picture as I talk about enemas...OK??

Anyways.....major burning of eyes, mouth, swelling of head, nauseusness, etc. It started out minor but worsened as I did it for 3 consequetive days.

So then I went ahead and did my first castor oil pack. OMG....it was even worse than the enemas. Now I'm realizing its an accumulation of all those toxins being mobilized. Coffee enema especially stimulates the liver to dump toxins....and I imagine not all of them are getting excreted.

I *think* the symptoms I get (the burning and swelling)....are histamine reactions. I think once the toxins start mobilizing and floating around...my immune system responds...increasing histamine.

I'm pretty much always in this state to some degree but yeah...exposure really can set things off making it worse. Whether its perfume, foods, my own adreneline (hormones etc.) and apparantly even the process of trying to remove some of these toxins.

I rested my body for a few days but didnt feel much better...then realized I had forgotten to take my charcoal for a couple days.

Taking the charcoal helped alot. I dont know how I managed the past few years without it.

Ever since I had to say goodbye to my ice cream (I still stare at it in the freezer though ) I've been more constipated. The ice cream for some reason totally made me regular.

I'm getting alot of fiber now...from oatmeal cookies and stevia. It might be too much fiber?? I saw Donna mention something about this.

Anyways because of the constipation I went back to enema to clear out stuff....I'm on nystatin, cats claw and noni...and I dont want dead bugs hanging out. Got enough problems with toxins...thank you very much.

All I'm doing now is plain warm water enema...and STILL...the same symptoms of burning eyes, mouth, swelling, extreme nausea, etc. I do 2 consequetive enemas and its the second one which really gets stuff loose...and this is when I start getting symptoms....but at the same time I'm also getting rid of alot of garbage.

I dont feel toooooo bad talking about this since Donna's real good about discussing her episodes of "D".

Thanks for making this easier Donna.

I told my friend that I must be just incredibly toxic and also incredibly sensitive to these toxins....hence all the immune responses.

In the past I would have stopped what I'm doing....thinking I'm making things worse. Now I'm thinking I'm doing the right thing in getting rid of stuff but I'm just gonna continue having these reactions until my immune system isnt so overwhelmed anymore.

Getting rid of the mercury is the main thing but maybe getting all this other garbage out first will really help with the mercury detox.

My friends that I've talked to about it say that yeah...I need to push forward with this.....that I didnt feel good when I was accumulating all this poison and I'm not gonna feel so good trying to get rid of it either.

I'm gonna just stick to the more mild detox stuff...little at a time...alternating these things and then when (or if) I stop getting these symptoms I can try supplements and some of the other stuff I havent tolerated so far....like the chlorrela.

What do you guys think?? I'm thinking I'm in the range of really high toxicity considering most people dont throw up after the saunas or get these symptoms from a plain enema.

[CarlaB 22]

I think it's a good idea to do some detoxing, Rachel. Keep it slow enough that it's not too uncomfortable, but do enough so that you know you're accomplishing something. You might even take a few days' break once in a while.

The chelator that my doc gave me says to take it Mon.-Thurs. only. That gives Fri.-Sun. to rest. That might be a good idea for you, too. Give yourself a few days to catch up.

Yeah, it's pretty much not normal to toss cookies after a sauna. The sooner you get detoxing, the sooner you feel better, but don't Rachel it either!

[Rachel--24 7]

THANKS TO ALL OF YOU WHO HAVE BEEN SO SUPPORTIVE OF ME WHILE I TRY TO HEAL.

I APPRECIATE YOUR CONCERN AND SUGGESTIONS MORE THAN YOU WILL EVER KNOW

LOVE YOU ALL --JUDY

Judy....how frusterating that you lost all that info.

I hope you can share some of it again...even if its just in bits and pieces.

We're here for you...as always!!

I'm happy you trust your Dr. and are getting some testing done. I'm glad you're getting the Lyme test....even if its not Igenix. If this one is negative you can still do Igenix next time.

Always thinking of you.

[Rachel--24 7]

Yeah, it's pretty much not normal to toss cookies after a sauna.

ROFL..

Yeah....that weekend I googled the heck out of "sauna and vomit" "sauna and throw up" "sauna and puke your guts out"

and I came up with NOTHING.

OMG...that never happens...I can always find something....but this time I came up empty.

I'm gonna do what you said and take days off for resting my body. There will definately be no racheling with this stuff.

[Judyin Philly 6]

ANDREA..THANKS SO MUCH FOR BOTH POSTS

RACHEL..STILL CAN'T BELIEVE HOW AWFUL YOU FEEL.

I'M SO SORRY AS YOU ARE TRYING HARDER THAN ALMOST ANYONE ON HERE TO HEAL.

GOD WHAT A GROUP WE ARE

BUT..........I CAN SAY WITHOUT A DOUBT..... AS MY DR AND I WERE 'LOUDLY AND RESPECTFULLY DISCUSSING'''

THESE FRIENDS I'VE MADE HERE ==WHERE I'M GETTING MY INFO AND HELP ARE THE MOST INTELLEGENT...BRIGHT...INQUISTIVE RESEARCHING ....(LIKE A DOG WITH A BONE)---WOMEN I'VE EVER HAD THE PLEASURE TO GET TO KNOW.

PRAYING FOR YOU RACHEL...YOU DESERVE A BREAK AS I THINK I'VE WRITTEN A THOUSAND TIMES.

LOVE YOU KIDDO.

UNCONDITIONAL LOVE........WHERE IN THIS BIG WORLD DO WE FIND THAT THESE DAYS BUT HERE AND FOR ME...D/S

NITE AND AGAIN...THANKS...

[DingoGirl 12]

RACHEL! OMG - - your scientificness is slipping! Just put in "sauna + nausea" and you will get 140,000 pages. Yup! check it out.

JUDY - - - - HEINOUS!!!!! I"ll check DS tomorrow to see what happened.

Hugs and love to all. I am so worried about my Stinker. more sideways/falling/tilting than ever, and of course she decides to do this on a three-day weekend. Well, there's nothing life-threatening, nothing terribly urgent, I just don't like to see her this way.....

had much more to say, dingo'd all of it.

hugs and love to all.

xoxo

[AndreaB 1]

What do you guys think??

I think that's a good plan. The one thing I'm concerned with is blocking your pathways. I assume you'll be able to figure that out depending on how you're feeling.

Can you get into Bioset to clear pathways when you need to?

[Rachel--24 7]

RACHEL! OMG - - your scientificness is slipping! Just put in "sauna + nausea" and you will get 140,000 pages. Yup! check it out.

Yeah...but I really only wanted to know if its normal to "toss cookies" (as Carla so graciously put it ) after the sauna??

Apparantly it only happens to me.