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Omg...i Might Be On To Something

Rachel--24

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jerseyangel Proficient
jerseyangel
Posted
And it's so nice, we have this place not only where "everybody knows your name," but where "everybody knows your CRAP," literally! :lol:

:lol::lol::lol:

Glad Stinker is rallying yet again! Bless her heart :)

Soooo....yesterday a customer told my boss that she needs to take me outside and SMACK ME AROUND for awhile!! :blink:

and on my BIRTHDAY even!! :o

Well, pooh on her :angry:

just a quick goodmorning to all---still reading along.

i'm off to an IV and an impromptu drs visit...having some other issues...then off to my first visit with a PT.

on top of all this, I've had D for the past four days. I think its because I added alinia for three days. Delightful.

I still owe a catch up post, but tonight we are going out of town AGAIN. The next two weekends after we are home, and I am so excited. I need to rest!

I'll write more...eventually ;). Hope everyone has a wonderful weekend. R-happy you got an app't with Dr. A.

Laura sweety, I'm sorry you're having a hard time this week--and with so much to do :(

Glad you're getting some downtime soon--try not to over do, and don't worry about writing here. We'll be here when you get the chance ;)

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miamia Rookie
miamia
Posted

Hi all

ok quick update- am having a really rough time- I have stopped the diflucan and the hormones for right now- I think they were just completly overloading my system. I have an appointment wiht my doctor on monday and we will discuss the next steps. I made a big list of stuff I want to discuss with him and it seems to keep getting longer. I kind of cant wait to get in there.

Right now i am just trying to relax- basically living with my hot water bottle on my stomach and doing castor oil packs at night.

Laura-

I did a 3 day alinia- that stuff killed me- it made me constipated instead of D though- but I always go that way. I hope you are alright.

Rachel-

I am so glad you were able to get an appointment- nice birthday gift.

Andrea-

hope everythign with T is going better.

Susie-

happy to hear stinker is doing better.

Rinne-

I think we have the same food tastes I am all about the thin crust pizza- my favorite used to be from this brick oven place in Brooklyn- so good.

Has anyone heard of the body ecology diet- I forgot the womens name Dianne something?

I know I forgot alot of people and alot of things but I will post more later

miamia Rookie
miamia
Posted

oh Patti-

I could never forget you I hope you are feeling better!!!!!

and Donna- hope your gree toes are making you happy its so weird how little things like painting your nails can make you happy- I painted my toe nails watermelon color its my favorite- I think painting my toe nails is the one "girly " thing I do

CarlaB Enthusiast
CarlaB
Posted

Hi everyone! My brain just isnt' working right, so I don't have much to say. :blink: Strange for me.

Rachel, what was the customer's problem? That you don't eat very many things? I loved retail ... I find people to be amusing. I didn't like managing apartments though ... when it's their place of residence, EVERYTHING is serious!

Once after a particularly hard day, a man came in to tell me there was a problem with his stove. He had a pan on it and the bottom of the pan blew out! :unsure: I told him I thought it was a problem with his pan, not the stove because the stove is supposed to get hot! I told him that if anything weird happenend again, then let me know ... it never did ... not with him anyway. That job caused a Lyme flare ... it was the one I'd go into and get sick.

I can't figure out why I'm not feeling as good as I was before. I had a few good hours yesterday, but went to bed yesterday afternoon for the rest of the day.

Rachel's post reminds me, I haven't felt good enough to sit out in the sun, I must do that today. We haven't had rain in so long the smog is bad. Normally we don't get this till August.

Charlie, judging by how the posts are done at Lymenet, I'd say a lot of us have trouble with large paragraphs!

jerseyangel Proficient
jerseyangel
Posted

Hi Miamia,

Probably a good idea to stop the meds for now--you don't want to get any worse. I hope that the doctor, on Monday, will have something else to offer.

It's been such a long road for you--I think about you often :)

dlp252 Apprentice
dlp252
Posted

Carla - hope you feel better soon! We're having an epidemic here aren't we?!

I am glad you finally got to paint your toes! It always makes me feel better getting pretty! I love make-up! I am getting some new make-up tomorrow. I may go to the grocery as well! They have Lay's Stax on sale! Yay!

Yes, like Mia said...painting my toes is one of the girly things I do that always makes me feel good. I only paint them in the summer though...gotta give them a break to breathe in the winter months. I also LOVE make up...only wear it on Sundays and special ocassions, but I still love to buy it. :P

Glad you got your new cookware! Cleaning is a bit easier if you put water in it while it is still hot.

Good thing I've got some muscles on me cuz these pots and pans are like weights!! I could totally work out with my cookware!!

They are multi-functional.

Do some bicep curls whilst removing the pans from the stove. :P

I swear...if someones gonna get lost...wether its in a dream....real life...whatever....its always ME!!

What is up with that?

I'm thinking it wasn't YOU who was lost but WE who lost you...as in we just didn't know where you were...or I should say I didn't know where you were, but I suspect the PT guy did. :lol: :lol: :lol:

Sleep

Choose a regular pattern of sleep. Your body and brain repair themselves during sleep. Your body sleeps better (deeper and more restful) the hours before midnight. It is best to be in bed by 10:00 p.m. If you awaken early, do not get up if it is before 5:00 a.m. Try to fall asleep again. Even if you are awake, stay in bed until after 5:00. This will help you develop a natural rhythm and pattern that your body will begin to follow. Be consistent. You should get between 8 and 9 hours of sleep every night. Also, maintain your sleep schedule even on weekends and vacations.

This was a great list!!! I do much of it already. This sleep thing is interesting. I've tried to stay to a regular sleep pattern as much as possible for the last 10 years or so (wish THAT had helped me more, lol), but these specific times are very interesting. I always go to bed at 9:00, even on weekends, cuz I have to get up so darned early during the work week...and I used to get up when I woke up, but lately I've been staying in bed until after 5:00...mostly because I just CAN'T get up, but now I'm glad I'm not forcing myself. :P

and as you've been doing, you can see improvement in symptoms without necessarily directly treating an underlying condition... this is what I was doing for the past 15 months until I finally got a diagnosis of lyme disease through a positive blood test with Igenex last month... I saw improvement in a number of areas through dieting, taking supplements, a mostly regular sleep schedule, and exercise and physical activity the past few months as I was again able to do so... so continuing along the same lines of what you're doing now might be your best option while saving up money to do some further testing...

Great ideas! I've just been doing what I can to take stressors off my body...getting enough rest (as much as I can with my horrible insomnia), eating foods that agree with my body as much as possible, etc., continuing to exercise, etc. Those are all things which really don't cost money but help.

and I am watching, whilst puttering around in the studio-slash-office, the Spelling Bee, how lame is that?????

Whic would be why you know words like Scatological! :lol:

Go Stinker, Go Stinker, Go Stinker!

Soooo....yesterday a customer told my boss that she needs to take me outside and SMACK ME AROUND for awhile!!

Hum, I have no official enactment duties in Rachelville, but I say we should have retail therapy...only instead of shopping, perhaps we can take the customer outside and smack them around. :P

I totally agree that further food intolerance testing isnt useful...it wasnt helpful for me at all. It doesnt get to the root of the problem and since with leaky gut intolerances are constantly manifesting and changing...testing isnt really beneficial...that was my experience anyway.

It was helpful for me, but only because I don't have immediate reactions to stuff--my reactions are almost always delayed and sometimes by a day or two. :P Knowing which foods were contributing allowed me to take more burden off my body by avoiding them completely. If I got immediate reactions I would have just tried my best to avoid the stuff that caused it and wouldn't have needed the testing.

just a quick goodmorning to all---still reading along.

i'm off to an IV and an impromptu drs visit...having some other issues...then off to my first visit with a PT.

on top of all this, I've had D for the past four days. I think its because I added alinia for three days. Delightful.

Hope you have a good weekend too. Hope the appointment goes well! Sorry about the D...unfortunately, I know all to well what that's like. :(

ok quick update- am having a really rough time- I have stopped the diflucan and the hormones for right now- I think they were just completly overloading my system. I have an appointment wiht my doctor on monday and we will discuss the next steps. I made a big list of stuff I want to discuss with him and it seems to keep getting longer. I kind of cant wait to get in there.

Right now i am just trying to relax- basically living with my hot water bottle on my stomach and doing castor oil packs at night.

I've heard of the Body Ecology diet, but don't know what it is exactly.

I am so sorry you are better yet!

jerseyangel Proficient
jerseyangel
Posted
Hum, I have no official enactment duties in Rachelville, but I say we should have retail therapy...only instead of shopping, perhaps we can take the customer outside and smack them around. :P

Or better yet, we Rachelvillians take her outside and open up a can of whup-a** :P That oughta teach her :lol::ph34r:

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dlp252 Apprentice
dlp252
Posted
Or better yet, we Rachelvillians take her outside and open up a can of whup-a** :P That oughta teach her :lol::ph34r:

That'll work. :P Bet we wouldn't even have to make contact....can you imagine staring down any combination of us on a bad day. :P

CarlaB Enthusiast
CarlaB
Posted
That'll work. :P Bet we wouldn't even have to make contact....can you imagine staring down any combination of us on a bad day. :P

We'll send in Susan and the Dingos! They have the stare down.

jerseyangel Proficient
jerseyangel
Posted
....can you imagine staring down any combination of us on a bad day. :P

I shudder to think.... :o:unsure::P

DingoGirl Enthusiast
DingoGirl
Posted
Or better yet, we Rachelvillians take her outside and open up a can of whup-a** :P That oughta teach her :lol::ph34r:

Patti :lol::lol::lol: And remember, this can apply to certain bosses, too, who need a good beating in the parking lot ;)

We'll send in Susan and the Dingos! They have the stare down.

:lol: *I* don't really stare that much, but

:mellow: <------ that is kind of how the dingos stare - - only you can FEEL what they're thinking, as they WILL YOU with their thoughts to get you to do things..... :lol:

morning, all. :)

oh, I posted a picture of my silly Annie, she does the CUUUUUUUTEST face when I use this certain voice, it happens when she has gotten into the recycling, and I find, say, an ice cream carton torn into hundreds of bits, or when she has taken her little raccoon hands and gotten up and gotten a bag of chips or something and rachelled the whole thing......so all I have to do is say, in a very low and menacing and slow voice - "DID YOU DO THIS????? and she slithers to the ground, curls her lips and shows her teeth - - I let her stay scared for about 10 seconds, and then say "I STILL LOVE YOU" and she immediately melts and we kiss and make up.....but the funniest thing is, if she's done something naughty, she assumes this position the minute I walk in the door - - before I've even discovered it, thereby giving herself away - - - it is the most adorable thing I've ever seen..... :)

dlp252 Apprentice
dlp252
Posted

Very cute picture of Annie!

AndreaB Contributor
AndreaB
Posted
just a quick goodmorning to all---still reading along.

Good to hear from you Laura. :) I hope all goes well with your appointments today and that you get a reprieve. Have a fun weekend, but try to get your rest as well.

We'll be here when you're able to update us. :D

Hi all

ok quick update- am having a really rough time- I have stopped the diflucan and the hormones for right now- I think they were just completly overloading my system.

Glad you are giving your body a break. Hopefully your doctor will be able to help with your questions.

T is still being very moody. Don't know if it was seeing Grandma this last weekend or the cinnamon crunch cereal or something else. She's usually worse after seeing Grandma but not this bad.

Hi everyone! My brain just isnt' working right, so I don't have much to say. :blink: Strange for me.

I would suspect the amoxy and how it was making you feel coupled with the herx you are starting. Hope you bounce back quickly.

This was a great list!!! I do much of it already. This sleep thing is interesting. I've tried to stay to a regular sleep pattern as much as possible for the last 10 years or so (wish THAT had helped me more, lol), but these specific times are very interesting. I always go to bed at 9:00, even on weekends, cuz I have to get up so darned early during the work week...and I used to get up when I woke up, but lately I've been staying in bed until after 5:00...mostly because I just CAN'T get up, but now I'm glad I'm not forcing myself. :P

I've been very, very bad about this this last year. I'm up til 12 or 1 most nights and your supposed to get the best benefits from sleep before then. I listen to messages at night if Mitch gets off the computer in time. Can't do that during the noise of the day. I probably need to try and get myself used to going to bed early and waking up early. Seems like when I tried that before Talitha would get up if she saw a light on out here. Seth is still in my room and he goes through some rough mornings at times. If I'm still in bed I can just tell him to go back to sleep. I'll have to think on this though.....it may be worth another trial run. Of course that would also mean I can't wait up for Mitch when he's late.

We'll send in Susan and the Dingos! They have the stare down.

:lol::lol:

:lol: *I* don't really stare that much, but

:mellow: <------ that is kind of how the dingos stare - - only you can FEEL what they're thinking, as they WILL YOU with their thoughts to get you to do things..... :lol:

:lol:

oh, I posted a picture of my silly Annie, she does the CUUUUUUUTEST face when I use this certain voice, it happens when she has gotten into the recycling, and I find, say, an ice cream carton torn into hundreds of bits, or when she has taken her little raccoon hands and gotten up and gotten a bag of chips or something and rachelled the whole thing......so all I have to do is say, in a very low and menacing and slow voice - "DID YOU DO THIS????? and she slithers to the ground, curls her lips and shows her teeth - - I let her stay scared for about 10 seconds, and then say "I STILL LOVE YOU" and she immediately relaxes.....but the funniest thing is, if she's done something naughty, she assumes this position the minute I walk in the door - - before I've even discovered it, thereby giving herself away - - - it is the most adorable thing I've ever seen..... :)

How cute! :D

AndreaB Contributor
AndreaB
Posted

Patti,

Are you doing a little bit better today? A lot better?

jerseyangel Proficient
jerseyangel
Posted
Patti,

Are you doing a little bit better today? A lot better?

About the same, thanks :)

Did Talitha get my email?

GRUMP 1 Contributor
GRUMP 1
Posted
Yep. :D Love that place! We also shop at Wild Oats and Fred Meyer, oh and Country Village in Longview.

I don't know Wild Oats. Do they have a good selection of stuff? Where are they at? Shop at Freddy's from time to time. Love Country Village, but they need more selection of things.

Grump

AndreaB Contributor
AndreaB
Posted
Did Talitha get my email?

Yep, she liked the pictures. :D

I don't know Wild Oats. Do they have a good selection of stuff? Where are they at? Shop at Freddy's from time to time. Love Country Village, but they need more selection of things.

Wild Oats has a decent selection. Nothing like Lingonberries since Lingonberries specializes in gluten-free stuff. Wild Oats is off exit 28 (Mill Plain Blvd), left at ramp light and down 2-3 miles. I think it's off 160th.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Thank you for clearing up the funky screen issue! I thought the forum changed its format. It was harder to keep up with everyone the way it was. It was either the outline format, or the linear one. Whatever it was, I did not like it! I did what you told me, and now it is back to normal!

Glad everythings back to normal. It happened to me once and it was not fun trying to read the threads that way.

I'll write more...eventually ;). Hope everyone has a wonderful weekend. R-happy you got an app't with Dr. A.

Thanks Laura. Glad you got the next 2 weekends for yourself and some much needed rest....you've been on the go go go...its gonna really feel good to just relax after this. :)

Well, pooh on her :angry:

Yeah...but get this....the customer that wanted me smacked around was a GUY! :huh:

He even did a demonstration of how my boss should go about this "beating". :rolleyes:

What a LOSER.

Right now i am just trying to relax- basically living with my hot water bottle on my stomach and doing castor oil packs at night.

Mia....I hope you're appt. goes well. I'll be thinking of you. :)

I know things have been really rough for you lately...I agree that the estrogen and diflucin were probably too much for your system. I think you may need to do things in baby steps....like me you are probably pretty toxic right now. Diflucin is so hard on the liver....it cant be good for someone who's already toxic.

I'm glad you stopped and can give your body a rest now.

Rachel, what was the customer's problem? That you don't eat very many things?

:lol::lol:

Noooo...it didnt have anything to do with my lack of food choices....not this time anyway. :rolleyes:

It was because it got busy up front so I went up there to open a checkstand. I pulled a bunch of people over and was starting to ring up someones groceries. This rude guy blasted over to me demanding to know where some type of wine was. He was loud and said he was in a hurry and had no time to look through all the wines...he wanted me to direct him to the location of the wine.

I know NOTHING about wine....he could probably find it faster than I could. Regardless...I was BUSY with a long line of customers and he was demanding and rude. :angry:

I told him there wasnt much I could do from where I was...I couldnt leave my checkstand...I was helping other people, etc. I could call someone to meet him on the aisle but not sure if anyone was available at that moment...all I could do from where I stood was call someone for assistance.

He said "THEN DO IT!!" "I'M IN A HURRY!!" :angry:

I called my boss...she said she knew nothing about wine. "I told her she better go help him cuz he's freaking out on me. :rolleyes:

A few minutes later I see him getting all irritated and about throw another fit in the front lobby cuz he didnt want to wait in line....my boss rang him up. :rolleyes:

So yeah...I guess he had told her she needed to smack me around. She told him "Ummm....how bout I DONT smack her around...but just talk to her instead." :rolleyes:

I really cant stand customers who come into the store and get all demanding like that because they are running late. I would NEVER go into a store acting that way....nobody is sympathetic to people who act that way.

I've had customers come in all freaking out because they are in a hurry and have this WHOLE list of groceries to buy...and are wanting ME to go around doing ALL their shopping for them because they are in too much of a hurry to look for the items they need. :blink:

I think its rude. I'm not a "personal shopper" for people who are capable of doing it themselves. Elderly or disabled people...I have no problem assisting them...rude people who are running late...ummm...PUHLEEEEEZ. :rolleyes:

People have no manners...I can be very obviously busy with a customer and have another customer step in and totally interupt...asking for my help with something.....not even saying "excuse me" or anything. Those people are alot less likely to get my help. :angry:

I know in retail "the customer is always right"....but I will NEVER let a customer get away with being disrespectful to me...or to assume that they can take their anger issues out on me because I'm wearing a store uniform. I DONT THINK SO!

So yeah...sometimes customers get upset with me when I dont cater to their rudeness. :rolleyes:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Carla - hope you feel better soon! We're having an epidemic here aren't we?!

Yeah...I stayed home from work today!! :blink:

I'm better now and might go in to get my work done but this morning my head hurt really bad, eyes blurry, dizzy, sore, etc.

I know why though...it was because I ate 3/4 of a bag of my moldy sunflower seeds last night. :ph34r:

I had only planned on eating like 2 or 3....but yeah I cant "Carla" anything.....I racheled it. I think instead of eating only 2 seeds...I ate all but 2. :rolleyes:

I knew it would probably mess me up....I even did an enema thinking maybe I could sweep out all the poison. :ph34r:

Ummm....I guess it didnt work. :P

Hum, I have no official enactment duties in Rachelville, but I say we should have retail therapy...only instead of shopping, perhaps we can take the customer outside and smack them around. :P

:lol::lol:

Yeah....that could be very therapuetic!!! :D After our "retail therapy" when we're feeling nice and relaxed....we can then go SHOPPING! :lol:

That'll work. :P Bet we wouldn't even have to make contact....can you imagine staring down any combination of us on a bad day. :P

HEINOUS!! :lol:

but the funniest thing is, if she's done something naughty, she assumes this position the minute I walk in the door - - before I've even discovered it, thereby giving herself away - - - it is the most adorable thing I've ever seen..... :)

One of my old roommates had a dog that did this. She was the most perfect dog I've ever been around....very well behaved. Her only bad habit was getting into the garbage. You could never get upset with her cuz she was just too darned CUTE about it....always giving herself away.

By the way...her name was Annie....not the dog....but her owner. :)

The dogs name was Lady....she was a golden retriever. :)

AndreaB Contributor
AndreaB
Posted
I know in retail "the customer is always right"....but I will NEVER let a customer get away with being disrespectful to me...or to assume that they can take their anger issues out on me because I'm wearing a store uniform. I DONT THINK SO!

So yeah...sometimes customers get upset with me when I dont cater to their rudeness. :rolleyes:

UNBELIEVABLE!!!! :angry: The nerve of some people. I'm in disbelief over here. :blink: I knew people were rude, but......

When I'm in a hurry I just try to get the children moving faster and cooperating. :huh:

AndreaB Contributor
AndreaB
Posted
Yeah...I stayed home from work today!! :blink:

I'm better now and might go in to get my work done but this morning my head hurt really bad, eyes blurry, dizzy, sore, etc.

I know why though...it was because I ate 3/4 of a bag of my moldy sunflower seeds last night. :ph34r:

I had only planned on eating like 2 or 3....but yeah I cant "Carla" anything.....I racheled it. I think instead of eating only 2 seeds...I ate all but 2. :rolleyes:

Uh oh. :( Glad you are feeling well enough now to consider going in for the rest of your shift though. :)

AndreaB Contributor
AndreaB
Posted
The dogs name was Lady....she was a golden retriever. :)

I :wub: golden retrievers. :)

happygirl Collaborator
happygirl
Posted

someone sent this to me:

Open Original Shared Link

tabasco32 Apprentice
tabasco32
Posted

Hi everyone again

So yeah on the skunky diarrhea, no I didn't eat any doritos I just smelled and tasted it in my brothers room not tasted it literrally but if someone is eating something salty like chips or crakers I can taste the salt. It had to be the doritos in his room. How sensitive can you be? I don't have celiac disease unless leaky gut and mercury can also mimic that! Is this for real? So I went back to my gi doctor big mistake. He says I need to eat more I am anorexic. Yeah when It hurts to eat anything! He says if I keep losing weight he will lock me up against my will and put a tube in my stomach. I showed him my mercury results test and He said it has nothing to do with what is going on with me that mercury is neurologic. He wants me to do a mercury plasma blood test. NO MORE BLOOD TEST! 10 blood test in one year, last one I fainted because I am so weak. On tuesday I am having a digestion test done. They give you some radioactive solution to drink with food or something to check how your digestion is working. Should this be safe with mercury and candida? He also wants to do an endoscopy to check for celiac? Is this safe with mercury? I haven't even had wheat or gluten for 8 or 9 months. He says I might have a lazy stomach. It empties slow or something because I get bloated on one side of my upper left abdomen after I eat. dont know.

Take care

Lisa

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
UNBELIEVABLE!!!! :angry: The nerve of some people. I'm in disbelief over here. :blink: I knew people were rude, but......

Yeah...I think it might be a "Bay Area" thing....everyones always in a rush here. <_<

I didnt realize it until I first moved to Manteca in 1999. OMG....everyone was so pleasant and everyone seemed to move at a slow pace. It was like a whole different world. :unsure:

There was farming all over....some intersections didnt have any lights...it was QUIET and PEACEFUL....I could hear the cows mooooing every once in awhile.

Its not like that anymore though....in 8 years alot of that farmland has houses now...the intersections and roads have been expanded and have lights...overpasses now go over the traintracks...I rarely hear the cows anymore and people are getting just as rude and impatient as they are here in the Bay.

Its all about lifestyle. If you live somewhere where its calm and quiet.....spend a day in a retail store over here...you would not BELIEVE it. :blink: You would gladly go home at the end of the day. :P

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      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
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    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
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