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Omg...i Might Be On To Something

Rachel--24

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tabasco32 Apprentice
tabasco32
Posted

HI rachel,

I know that I need to detox but for some reason charcoal and whey really give me bad abdominal pain. Why would this be? It hurts so bad. Should I take with food instead of without? And with constipation I'm afraid it will stop moving and be stored somewhere else.

I have done everything for constipation and nothing really works. not even enymas, just magnesium citrate. I wont do that again.

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tabasco32 Apprentice
tabasco32
Posted

Hey

Does anyone have trouble with ground meats like turykey or beef or chicken. I notice I was eating my ground turkey meat that I cooked in a frying pan, no oil just water. Then My guts started to pop and bubble. Is that an intolerance? Is this why I am still losing weight?

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
HI rachel,

I know that I need to detox but for some reason charcoal and whey really give me bad abdominal pain. Why would this be? It hurts so bad. Should I take with food instead of without? And with constipation I'm afraid it will stop moving and be stored somewhere else.

Are you sure its the charcoal and whey giving you pain?? Some days you are saying they are ok...and others days that they're causing you pain.

Charcoal should not be taken with food unless you want it to absorb your food instead of the toxins. My Dr. tells me to take it away from food.

You can take the whey with food.

Nothing is working right now because you are very toxic and still have a mouthful of amalgams. Your digestive system is not in great shape and more than likely you have infections....bacteria, parasites, etc. Thats what happens when you become toxic from mercury.

These things are going to cause you some pain and discomfort....thats why its imperative that you find the right Dr. whos knows all of this and can help you to detox SAFELY...and who can treat you for other things that may be going on because of the mercury. Thats the *key* to getting better...finding the right Dr.

Sometimes you are just going to have symptoms no matter what you do...because of the situation you're in. Detox is also not a comfortable thing to go through. :(

Was Scott ever able to get an email through to you?

Judyin Philly Enthusiast
Judyin Philly
Posted

hi all

hi Jin

I'm fine just reading along.

don't have anything to add of importance.

just trying to get my gardening caught up

love catching up on all of you too

hugs judy

AndreaB Contributor
AndreaB
Posted
love catching up on all of you too

hugs judy

It's always good to see you Judy!

tom Contributor
tom
Posted

Wow slow Sunday in Rachelville! :(

I think I did too much today - not that much by most standards - and am more slow-brained than any time since soy-free except for that 2am insomniac post.

Luckily still felt good at sax-playing time!

:)

Oh, I mentioned something to Pseu-tze that she . . .. .hmm is insisted the right word? . . . . .lets say encouraged me to pass on. <words . . .grrr . .come slooow>

Here we go - some late nights I've read back for grins. And it ranges from amusing to insightful [edit: to heart-wrenching ups & downs and] back to hilarious etc. (Hehe as if I have to tell YOU all) :P:D

But the thing is it feels like someone who didn't start watching Seinfeld until, say, season 7, grew to know and like the characters etc, then started catching the reruns.

Just reading old pages w/out knowing most of the cast would definitely be a lot different and not near as worthwhile.

:):)

Bumped into the birth of the attack geese today! :lol: LOL :lol:

NoGluGirl Contributor
NoGluGirl
Posted

Dear Julie,

I tolerate cheese, but not much else in the dairy department. It is the lactose that aggravates my system. I cannot eat yogurt or pudding, it makes me as sick as gluten. :( I have not tolerated beans as of late. However, the citric acid derived from Aspergillus is a good possibility.

Mold is not my friend by any means! Plus, there is mold all over our house! Lately, it is even in the toilets! We never used to get it in there! WTH? This just started, but the mold in the basement is nothing new. I am so afraid is toxic mold, and making us all sick. We cannot afford to get it tested, though. It is over $600 to test your mold. :unsure:

I am glad you enjoyed my rant on stupid commercials! :) That is what it is for! :lol: It really is rediculous. There is no way a woman came up with that one. I wonder how the woman doing the voice over keeps a straight face while saying that.

Dear tom,

I do tend to cover a ton of things in a single post. If it makes it easier, I can break them up. I know the others probably could use that as well. I think it might make it less confusing that way. I do not mind.

Yes, the food intolerance issues are driving me nuts! I have wondered if it is a delayed reaction to something, as you suggested. It is so hard to say. I need to do a rotation diet to find out. Keeping a food journal should help.

My parents drive me up the wall! I have no freakin' idea what is going on with those people! All I know is, they have got to be completely insane or something! I know menopause does weird stuff to people, but come on! Both of them are lunatics! Schizoid comes to mind!

I am so glad you came across the rant on the Always commercial. :lol: That just had to be the highlight of your day! Men are so squeamish about tampons and stuff. Yet, they talk about their unmentionable body parts every chance they get!

Why is this so? At least, that has been my unfortunate experience. :blink:

Yes, those attack geese are really something! You must be careful! Make sure you have not been around Auxigro! They are slowly recovering. Now they are even more protective than ever!

Dear Judy,

I am glad you are makin' er. I was wondering how you have been. You always add something valuable when you post. We are all happy that you are reading along. The gardening sounds good! I would not mind doing some of that! :)

I probably will not get to, though. My parents are crazy. Instead of planting beautiful flowers, they want to pour concrete! :huh: Yes, I said concrete! :blink: That is not going to add value or beauty to this property. Not to mention, concrete is a permanent structure, and will increase the property tax. I told them, "Why don't we just build a freakin' parking lot?"

Dear Lisa,

I have not had trouble with ground meat as long as it is not too fattening. Fat makes me really sick if I overdo it. Right now, I think you are reacting badly to everything because you are so toxic. The mercury is making your body sensitive to everything. Once you get those other amalgams out, and can detox, then chelate, I am sure you will be able to tolerate more foods.

Sincerely,

Jin

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rinne Apprentice
rinne
Posted
Wow slow Sunday in Rachelville! :(

I think I did too much today - not that much by most standards - and am more slow-brained than any time since soy-free except for that 2am insomniac post.

Luckily still felt good at sax-playing time!

:)

Oh, I mentioned something to Pseu-tze that she . . .. .hmm is insisted the right word? . . . . .lets say encouraged me to pass on. <words . . .grrr . .come slooow>

Here we go - some late nights I've read back for grins. And it ranges from amusing to insightful back to hilarious etc. (Hehe as if I have to tell YOU all) :P:D

But the thing is it feels like someone who didn't start watching Seinfeld until, say, season 7, grew to know and like the characters etc, then started catching the reruns.

Just reading old pages w/out knowing most of the cast would definitely be a lot different and not near as worthwhile.

:):)

Bumped into the birth of the attack geese today! :lol: LOL :lol:

Wow. :)

AndreaB Contributor
AndreaB
Posted
Wow slow Sunday in Rachelville! :(

Yah, it's been pretty quiet this afternoon/evening anyway.

Here we go - some late nights I've read back for grins. And it ranges from amusing to insightful back to hilarious etc. (Hehe as if I have to tell YOU all) :P:D

But the thing is it feels like someone who didn't start watching Seinfeld until, say, season 7, grew to know and like the characters etc, then started catching the reruns.

Just reading old pages w/out knowing most of the cast would definitely be a lot different and not near as worthwhile.

:):)

We had a lot of fun last summer. :D The "cast" is mostly the same, with some additions and subtractions. Floridian cleared all her posts so you miss the fun with her unless it was quoted by someone.

tom Contributor
tom
Posted

Hehehe I don't think u need to change your posting style. Seemed to me the audience just doesn't want to see it mushed together into one huMUNGOus paragraph.

And I'm w/ them.

I just get carried away in that I want to start responding to something but that [REPLY] button is sooooooo far away!!! :lol:

Dear tom,

Yes, the food intolerance issues are driving me nuts! I have wondered if it is a delayed reaction to something, as you suggested. It is so hard to say. I need to do a rotation diet to find out. Keeping a food journal should help.

Oh oh Oh Jin - u need a food/symptom journal as much as anyone. I was disheartened to read that u didn't already have one.

<tries to read betw lines>

<fails>

So u already plan to? If convincing is needed I'm sure you'll get ganged up on HARD!

I am so glad you came across the rant on the Always commercial. :lol:

:lol: I'm laughing almost as much at the fact that I would've never even known it was rant-worthy!

My parents are crazy. Instead of planting beautiful flowers, they want to pour concrete! :huh: Yes, I said concrete! :blink:

I cannot get my head around that at all. I think I can usually imagine possible (tho irrational to me) reasons for ppl doing things that seem :wacko: wacko (isn't that part of a 'benefit of the doubt' mentality?) but in this case, I'm ready to give up.

I'll assume there are no plans for a bball court or roller-hockey rink.

tom Contributor
tom
Posted
Floridian cleared all her posts so you miss the fun with her unless it was quoted by someone.

Ahhhhhhh

All those posts w/ only dots? But that was a diff name - maybe tk6katt or close.

By the attack geese page.

Nah that must be someone else. Ohhhhh was this the name change done by admin?

Gah my head's gonna hurt if I keep trying to think this much.

AndreaB Contributor
AndreaB
Posted
Ahhhhhhh

All those posts w/ only dots? But that was a diff name - maybe tk6katt or close.

By the attack geese page.

Nah that must be someone else. Ohhhhh was this the name change done by admin?

Gah my head's gonna hurt if I keep trying to think this much.

That's the one. She changed her user name.

Don't think too much......that's dangerous. :lol:

The regulars that were on the thread last year that aren't now are t6katt, robbin, and juliem. Most everyone else was just here for the party. There are probably a few I forgot though. :unsure:

tabasco32 Apprentice
tabasco32
Posted

jin

Yeah I think your right. There was a lot of little fats pieces of cartilage in the meat that was causing me problems I believe. What sad is that I don't have an appointment with the dentist for another month.

But Rachel is right, I do need to wait awhile for the other teeth as I become more sick with each removal. I hope the new naturopath will be able to help me more since she was in my situation before. I really was to go to ART. I might talk my dad into taking a air trip with me.

Rachel,

The charcoal wasn't a problem for me at first. I didn't change my diet at all when I started the charcoal. Then I was noticing more pain on my left side. So I stopped everything for 2 days even the charcoal. I put the charcoal in again and the pain came back. The same familiar pain.

Maybe I should try one more time just to see?

lisa

miamia Rookie
miamia
Posted
jin

Yeah I think your right. There was a lot of little fats pieces of cartilage in the meat that was causing me problems I believe. What sad is that I don't have an appointment with the dentist for another month.

But Rachel is right, I do need to wait awhile for the other teeth as I become more sick with each removal. I hope the new naturopath will be able to help me more since she was in my situation before. I really was to go to ART. I might talk my dad into taking a air trip with me.

Rachel,

The charcoal wasn't a problem for me at first. I didn't change my diet at all when I started the charcoal. Then I was noticing more pain on my left side. So I stopped everything for 2 days even the charcoal. I put the charcoal in again and the pain came back. The same familiar pain.

Maybe I should try one more time just to see?

lisa

Lisa-

I know i have said this before but you really need to LISTEN TO YOUR BODY!!! If it is telling you something is not right for you, at least for right now listen!!

you have to be careful when taking anythign that causes toxins to break up , and be released. While you want this to happen if you are not excreting them properly you are just freeing them up to play havoc in your system. Sinc eyou suffer from constipation this could very likely be happening to you and adding to your discomfort.

This is why it is so important to be under the care of a good doctor or naturapath, or whatever who really knows this stuff and can work with you.

miamia Rookie
miamia
Posted
Well...I can tell you this...it doesnt involve the racheling of foods, treatments or anything of that nature. ;)

FOR ONCE!! :lol:

Actually it involves my ex....the one that causes me stress (and not always intentionally).The one that I cant completely move on from cuz of this heinous illness holding me back. :(

As you guys know....I get physical reactions from stress...its just as toxic to me as say....alcohol or peanut butter. Probably even MORE toxic!!

I think the episodes of stress I've been dealing with all this time have definately gotten in the way of healing. I need to stay focused on getting well....thats my priority. So my resolution was to NOT put myself in vulnerable situations...to avoid people who are toxic to me. To not let myself get sucked into stuff that distracts me (in a not so positive way) from what I'm trying to acheive.

I was doing GREAT...until yesterday. :ph34r:

I called to extend birthday wishes...and probably next weekend I'll go to one of these parties....and probably the next day I'll be down...and upset about how this illness has taken so much away from me. :(

I think it robs me of my strength. When I was healthy I was always strong (probably too strong)...it would take ALOT to make me cry. Not so much anymore....certain things can knock me down very easily. I cant always control how my body reacts to stuff so all I can do is avoid situations that could potentially set me back.

I'm just not always good about that. :rolleyes:

So thats the story of my stupidness. :ph34r:

Hey...I have been trying to eat more yams this week!! :o

I think I had 3 or 4. :ph34r:

Yeah...the sweet potato haze caused me to be stupider than EVER. :lol:

The more toxic I am the stupider I get. :rolleyes:

Dont know what my excuse is this time but the yams sounds good enough...I'll take it. :lol:

Rachel-

good news on the yams. And i hope i didn't push you into a confession. I don't want you to ahve to reveal anything you are not comfortable with. But i can very much relate to your story.

miamia Rookie
miamia
Posted
So, should I not share that I can now eat peanut butter, and made Eric a frozen peanut butter cheesecake for his bday in April? :ph34r:

(i am actually eating everything but gluten, eggs, and edy's ice cream, which bothers me for some reason)

LAura-

I hope you ahd a great BDAY and this is such great news about all the foods!!(yes I am jealous ) but i am very happy for you!!

Rachel-

I just tried to send you a PM but your file is full

miamia Rookie
miamia
Posted

Rinne-

I know what you mean (I think ) about taste being a good indicator of the bodies intolerances. I ahve had so many food allergy tests done and I find them very inaccurate. I feel like somethime my body tells me exactly what it needs. And if i wasnt to try something i am not sure about by just putting it on my tongue i can tell how it will sit. It is very strange.

I am a huge fan of almond butter!! I love it but i have to say i still love Peanut butter too. My favorite almond butter is this brand KEttle (Ithink thats the name) for some reason i think it tastes better than the other brands.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel-

I just tried to send you a PM but your file is full

Mia...I deleted my mail. :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
The charcoal wasn't a problem for me at first. I didn't change my diet at all when I started the charcoal. Then I was noticing more pain on my left side. So I stopped everything for 2 days even the charcoal. I put the charcoal in again and the pain came back. The same familiar pain.

Maybe I should try one more time just to see?

Lisa,

Is the pain on your left side near your back.....where your kidneys are??

If it is...it most likely means your kidneys are really burdened from the mercury and under stress when you're trying to detox. This is what happened to me...but its improved some. When I can feel it..I back off of whatever I'm doing.

How many charcoals are you taking??

Is it possible you're taking too much??

Also...even though I'm totally for ART....and I think its a great tool for people to use to guide them back to wellness. I think in your situation it would be much more important for you to get a good Dr. here in your area FIRST.....and then if its affordable for you...you can have ART done.

I think ART can be very useful for you but you very much need a Dr. to work with you now....while you still have these amalgams in and getting more toxic with each removal.

You need a Dr. to give you the proper support with supplemenation in order to get your body to where its strong enough to handle these removals....and you cant go through anymore removals and not take anything for detox or you'll get worse.

If you dont feel like the charcoal is doing you any good then dont take it anymore but I would wait for a Dr. before getting anymore amalgams out and I wouldnt do it without having any protective agents in your body....charcoal is one of those protective agents. It might not be the best one for you but you definately need something.....you can work all that out with a Dr.

I hope you can get a Dr. before you go back to the dentist and continue with the removals.

Oh....did you hear from Scott?? If this Naturopath doesnt work out....then I'm sure that Scott can direct you to a better Dr.....although you may have to travel to the Bay Area.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I know what you mean (I think ) about taste being a good indicator of the bodies intolerances.

This doesnt seem to work too well for me. :unsure:

All of the things which really make my taste buds happy are the things that I shouldnt be eating and end up causing reactions.....basically everything that tastes good is off limits. :(

Oh....theres also plenty of stuff that doesnt taste good thats off limits as well :rolleyes: ...one that comes to mind is quinoa. GROSS.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Here we go - some late nights I've read back for grins. And it ranges from amusing to insightful [edit: to heart-wrenching ups & downs and] back to hilarious etc. (Hehe as if I have to tell YOU all) :P:D

But the thing is it feels like someone who didn't start watching Seinfeld until, say, season 7, grew to know and like the characters etc, then started catching the reruns.

Just reading old pages w/out knowing most of the cast would definitely be a lot different and not near as worthwhile.

:):)

Yeah....its really fun to go back and relive some of these moments. :)

I guess I never thought about it from the standpoint of someone who really hasnt "met" the cast. I can see your point...it wouldnt be the same at all.

Your post just reminds me of how special this place is...and yeah....lots of ups and downs in these pages...but lots of love and support all the way through. :wub:

I'm glad you're finding enjoyment from the Rachelville chronicles....being so new to the thread its really cool that you've already gotten to "know" the cast in a way that you're able to go back and have fun reading all this stuff. :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Miamia...I got your pm...will reply to it later. :)

and no.....you did not push me into anything Sweet Spice. :)

Hey Lisa...

I thought of one more thing that may or may not be helpful to you. For a long time now I've taken ALL my supplements out of their capsules and have only taken the powder in water.

I'm really sensitive and can even react to the capsules themselves...whatever they're made from...vegetable sources, gelatin, etc.

I dont ever take the capsules and I've found I can tolerate more things this way. The capsule is just one less thing to worry about if I take the powder out of it. I do this with my charcoal too.

It might be something you can try and see if it makes a difference for you. :)

barbara123 Apprentice
barbara123
Posted
Does anyone know if it's ok to take Magnesium Citrate with have a leaky gut? I bought some for constipation. Is oxypowder good Miamia and do you take it everyday?

Have you tried Miralax? My sis works for a dr in San Diego she suggested this and it does help. It draws fluid from your body and is a stool softerner. i have terrible problems with constipation. lucky if one BM a week.

hope this helps

Barb

dlp252 Apprentice
dlp252
Posted
Does anyone have trouble with ground meats like turykey or beef or chicken. I notice I was eating my ground turkey meat that I cooked in a frying pan, no oil just water. Then My guts started to pop and bubble. Is that an intolerance? Is this why I am still losing weight?

Not with ground beef or turkey, but I have a problem with chicken in any form. :(

Here we go - some late nights I've read back for grins. And it ranges from amusing to insightful [edit: to heart-wrenching ups & downs and] back to hilarious etc. (Hehe as if I have to tell YOU all)

But the thing is it feels like someone who didn't start watching Seinfeld until, say, season 7, grew to know and like the characters etc, then started catching the reruns.

Just reading old pages w/out knowing most of the cast would definitely be a lot different and not near as worthwhile.

Bumped into the birth of the attack geese today!

:lol: This has been a fun, magical place. :P I had fun last week going back too.

We had a lot of fun last summer. :D The "cast" is mostly the same, with some additions and subtractions. Floridian cleared all her posts so you miss the fun with her unless it was quoted by someone.

It's too bad cuz her posts were some of the funniest you can imagine!

I'll assume there are no plans for a bball court or roller-hockey rink.

:lol:

I am a huge fan of almond butter!! I love it but i have to say i still love Peanut butter too. My favorite almond butter is this brand KEttle (Ithink thats the name) for some reason i think it tastes better than the other brands.

Yes, I buy this brand of hazelnut butter. I've also tried the cashew butter from them, but not sure I've tried almond butter...it's not cheap in my WF. :lol:

This doesnt seem to work too well for me.

All of the things which really make my taste buds happy are the things that I shouldnt be eating and end up causing reactions.....basically everything that tastes good is off limits.

Oh....theres also plenty of stuff that doesnt taste good thats off limits as well...one that comes to mind is quinoa. GROSS.

Ditto!!! I definitely go soley by what I think tastes good. :P Although, I am finding that my tastes have changed a bit here and there.

I thought of one more thing that may or may not be helpful to you. For a long time now I've taken ALL my supplements out of their capsules and have only taken the powder in water.

I'm really sensitive and can even react to the capsules themselves...whatever they're made from...vegetable sources, gelatin, etc.

Yep, the geletin showed up for me in my BioSET testing so I've been taking stuff out of the capsule for a few weeks now...I do think it's making a difference for me.

hope this helps

Barb

Hello Barb.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
Yah, it's been pretty quiet this afternoon/evening anyway.

Floridian cleared all her posts so you miss the fun with her unless it was quoted by someone.

Is she all right? Does anyone know what happened to her? And why did she clear all her posts?

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      how much gluten do I need to eat before blood tests?

      By trents · Posted

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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