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Omg...i Might Be On To Something


Rachel--24

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Rachel--24 Collaborator

Lisa,

This is the BEST news I've heard all day!! :D

I'm SOOOOO excited for you!! I actually feel really good about this Dr. I agree with everything shes saying.

You do need proper supplementation...protective agents and things to support your immune system and detox are critical during amalgam removal. You havent been taking things and thats why you've been getting worse each time you get a filling removed.

The supplements are just as important as what the dentist is doing to remove the fillings as safely as possible. He can only do so much....you have to take care of the rest. You have to make sure you support your system.....sounds like this Dr. knows what shes doing. :)

I'm also VERY glad that shes telling you that you CANNOT allow yourself to be constipated. You need to be getting this stuff out or its gonna redistribute itself to other areas of your body. I'm happy that shes stressing this issue.

I dont even think you need to worry about mold in the magnesium citrate because I *think* you said that yours did not contain citric acid.

Even if it did...and even if you're having some discomfort from it....its way more important to make sure you're not constipated. If the enemas or anything else you've tried is not working...then you have to go with what does work.

The magnesium citrate I took didnt cause any bm's at all....nada.....it just gave me a bad allergic type reaction in my head. If the stuff is cleaning you out then thats all that matters right now....I think you should take it since the warm water enemas did not work.

Oh...and I LOVE that she acknowledges that the candida is only there because of the mercury!! B) Some Dr.'s are ignorant and go about treating candida as if it became a problem all on its own....it doesnt work that way and I'm glad your Dr. is on top of everything.

YAY!!

I was really worried about you getting worse and worse w/out having proper guidance. I feel totally relieved that this Naturopath seems capable of getting you through this. :)

I'm so happy I could totally scream too! :lol:

I was kinda worried that she wouldnt be knowledgeable....its SOOO hard to find Dr.'s who have any clue about this....let alone alot of experience. I feel pretty confident that this lady knows her stuff and I'm really excited to hear how things go on Monday!!

Dont forget to let us know how things go. :)


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Rachel--24 Collaborator

Lisa,

Is it at all possible your Mom and Dad could go with you on Monday?? That way they could get a better idea of all that you're going through and also it will be good for them (and you!) to hear that you WILL get better from this. :)

AndreaB Contributor
So, the pipes needed to be cleaned. waiting for mag citrate to take effect :ph34r: :ph34r:

It's been 2 hours and so far nada. Gosh I hope it's outta me soon. YUCK a DOOKIE :rolleyes::lol:

Hope this works soon for you.

Sorry you're feeling so yucky today. :(

Hugs and :wub:

tom Contributor
Just popping in to say hello- last two days have been rough- must have played too much skee ball :P

I'm can't tell if you're being facetious or not!! :lol:

I had a couple yrs where I'd swear I may as well have been allergic to both exertion and digestion. :(

tom Contributor
I'm so happy I could totally scream too! :lol:

I think I *heard* it!!

dlp252 Apprentice

Oh Lisa....I am soooooo happy for you!!!! Yay! I was truly getting worried about you and this NP sounds very, very good! And yes, perhaps only a teaspoon or less rather than a tablespoon. :lol:

Silly Rhonda...indeed, where do you think you are. :lol:

GRUMP!!! That is a great story...it sounds like you had a great time! Phew, so glad the car was still there...was the camera? :lol:

one was - fresh garden salad......and the other was, garden tomatoes....... the other two food choices were equally bizarre

That is just so wrong! :lol:

When in Willow Glen which coffee place do u 2 walk to? I'd guess it's her "usual" and that it's almost certainly Peet's or Starbucks (either in that order or depending on which is slightly closer) but I swear the WGCRC (CoffeeRoastingCo) is far superior in all ways.

Hum, wonder if the WGCRC is related to the Campbel CRC? :lol: Have one just down the street from me. :P Too bad I can't drink it right now... Hum, maybe I can just have one ONCE in a while. :ph34r:

Jin, if you are not dairy-intolerant, try taking some shredded sharp cheddar cheese and frying little mounds of it in a little butter (flip with a spatula to fry both sides). Yum Yum Yum!!!!

I uesd to do this too...yummy. I didn't do it with the butter, but hey, if you can do dairy, do the butter, cuz everything is better with butter. :P

So, the pipes needed to be cleaned. waiting for mag citrate to take effect

It's been 2 hours and so far nada. Gosh I hope it's outta me soon. YUCK a DOOKIE

Oh, hope that goes okay for ya! :unsure:

Oh and grrrrrrr - turns out my newly REdiscovered REinfatuation w/ music has a downside. W/ the Stones' "Sticky Fingers" blarin' (best rock'n'roll album EVER btw), I was rockin' at a stoplight hard enough I hurt my neck!!! LOL and boohoo

To paraphrase a wise man... well dahyum, that ain't no fun! :lol:

dlp252 Apprentice

Tom....did I miss the discussion on who the little girls are in your avatar...yours? someone elses? rent-a-kids? :lol:


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tom Contributor
Hum, wonder if the WGCRC is related to the Campbell CRC? :lol: Have one just down the street from me. :P

I got to know the place well enough that I'll have to say no. And nothing ownership-related to w/ LGCRC either. (Darn good one tho)

There was a stretch where I thought I'd tried them all in a 10mi radius :D but never heard of CampbellCRC. Oh wait - if it's downtown I didn't go looking there. Bit out of the way.

Barefoot Coffee in Santa Clara was the winner - just like the Metro says.

Tom....did I miss the discussion on who the little girls are in your avatar...yours? someone elses? rent-a-kids?

<-----Natalie

&

Nicole----->

I brought them up earlier today after Pseu-zee's mention of Hershey's Nuggets.

(Kids of old girlfriend)

NoGluGirl Contributor

Dear tom,

I always have a notebook and pen handy! I am an artist and writer. You know how that is. I have a compulsion to draw and write. I also have a stationary fetish. I will have no trouble recording my food diary.

I find your obliviousness hilarious as well! :lol: I must say your naivite is quite refreshing at times. It is nice to know things other people do not all the time! That leaves more to say later. It is not good to reveal all of your secrets at once!

Frico? There is a name for you! :lol: It sounds like something you call that lunatic on the street. That is my guess. I need to try this. I have to be careful, though. I cannot overdo the fat.

Dear Alison,

I have never tried that. I can tolerate cheese, but not high lactose items. No pudding or yogurt allowed! It makes me as sick as gluten! :( I will take some Smart Balance and try that with some cheese.

Dear Lisa,

I am so happy for you! You are finally going to get to see your Naturopathic Doctor! :D That is terrific! We will all be anxious to hear how your appointment goes next week! Only one week to go!

Sorry I made you want Cheez-Its. They are so good! At least now I know I might be able to recreate them, but need to work on that. Maybe I will be able to create them and give you the recipe. I know you should begin feeling better soon.

Dear Grump,

What a wonderful story! I especially like the part about you knocking your son in the water! :lol: I am so glad you had such a great time! It sounds really fun! Plus, you got fish! :)

Dear Bev,

I am sorry to hear you are having a tough time. Too much ski ball could be the cause! It is a sport, you know! ;)

That is an arcade champion event! Only we have the power! Maybe the brain fog and headache will go away soon.

Being exhaustipated does not help! :( Dookie Drano is what you need! I am sure the Magnesium Citrate will work soon enough. Do not take more! Overdoing it is much more dangerous than underdoing it sometimes.

Sincerely,

Jin

Mtndog Collaborator

Lisa- that is AWESOME!!!!!!!!!!!!!!!!!!!!!!!!!! Really happy for you!

Rachel- Thank you thank you thank you for the coffee enema info. It's doesn't always unclog the pipes but it always helps with the "toxic headache". I actually was able to take angus for a walk about an hour after because I was less concerned about my head exploding in public :P

I'm realizing how important it is NOT to be constipated, especially with all the toxins and i am ready, willing and able to do whatever is necessary :P:rolleyes::ph34r:

tabasco32 Apprentice

Thanks guys for all your positive comments.

Yeah Rachel I do get a head thing from the magnesium citrate, more sensitive to lights and noise and head pressure. I feel that it can be a detox agent of some sort too? I don't know but the whey protein does this to me as well. Charcoal doesn't. I hope the prunes and apple juice help out too. I hope I can tolerate that. To drink something different than water and lukewarm chicken broth would be great.

Yeah my mom is going with me on Monday. The weather in fresno is over 100 degrees and I don't have air in my car so she is taking me in hers. My appointment is at 9:30 but it starts getting hot at around 10:00 a.m. I just can't wait. No wonder I have been feeling worse.

I was afraid it was the dentist and I was going to have to see a new one.

By the way how is the oxypowder, anything good coming from that yet?

When I have to go number 2 I need reading material, always have. I got this book from my little brothers closet.

*RICKY RICOTTA'S*

GIANT ROBOT

VS. THE MUTANT MOSQUITOES FROM MERCURY

Go Figure.

Oh and Chapter 3 is Titled: Mr. Mosquito Hates Mercury! ^_^

tabasco32 Apprentice

hey mntdog

Have you been able to go yet? What type of mag did you take and how much? Don't tell me the whole bottle and It hasn't worked yet. You should try Natural Calm if you have a whole foods near buy. I'ts 22 bucks a container though. I just took mine back now my mom has to go get it again for me today. I have already skipped a bowl movement yesterday and today.

Must be because I cleaned house on Friday! :D

tabasco32 Apprentice
Just popping in to say hello- last two days have been rough- must have played too much skee ball :P

Yesterday was bad pain and today is brain fog. Can't concentrate long enough to do all the reading to catch up but wanted to pop in and say hi! TOTALLY brain dead.

I've had a major realization- my Exploding Head Syndrome I believe is a toxic headache. I get it much worse when I am constipated. :(

So, the pipes needed to be cleaned. waiting for mag citrate to take effect :ph34r: :ph34r:

It's been 2 hours and so far nada. Gosh I hope it's outta me soon. YUCK a DOOKIE :rolleyes::lol:

I get this way too! Especially when I take Magnesium Citrate. Plus I get pressure in my throat.

miamia Rookie
Mia

You seem really fustrated with me. I know Mia I'm sorry. It's just that all this is new to me. I don't really know what it means about listening to your body and things. I guess when I get use to it, it will be more easy for me to answer my own questions.

Lisa

By the way how are you feeling MIA

Lisa-

sorry if i sounded harsh at all. I just don't want you to be more uncomfortable than you ahve to be . I know for me its hard not to want to do anything that can help but you sound just as sensitive as i am and that often means not being able to do these things. So I am just saying to take it easy with the supplements and so on and always start slow!!!

miamia Rookie
That's great news Lisa! I'll be looking for you update on Monday after your appointment.

Mia! Only two weeks to go!!!!

Andrea-

yes 2 weeks and today my docotr and the new doctor talked and the ne docotr is supposed to call me tomorrow so I can get the testing sone before i get into his office- I am very excited to have the whells in motion. You know how i get antsy!!

CarlaB Enthusiast
But the thing is it feels like someone who didn't start watching Seinfeld until, say, season 7, grew to know and like the characters etc, then started catching the reruns.

Just reading old pages w/out knowing most of the cast would definitely be a lot different and not near as worthwhile.

:):)

This is a neat analogy.

Going back ... :ph34r: ... scary.

Floridian cleared all her posts so you miss the fun with her unless it was quoted by someone.

Didn't know this ... why?

one was - fresh garden salad......and the other was, garden tomatoes....... :huh: the other two food choices were equally bizarre :lol:

How odd. :blink: Though I do crave things like sushi. I don't tend to crave chemical laden food ... or non-food. ;) I don't really crave anything .... I hate eating.

I also miss Big Macs and MacDonald's Fries!

This is one thing I miss. I think there are others here who miss them, too. Must have it with a Coke. :)

One time I asked the teenager behind the counter what was in the Big Mac. He looked like this :huh: The manager was there and started to tell me, and I told them I was just joking, I know what's in it. The manager said that many people think they remember the song, but they always get something wrong. I told her I'd tell her if she'd give me a free Big Mac. I got the free Big Mac. :P

I suffer every day, Does that not count for any thing. :(

Yes, I'm sorry, I wish you didn't ... yet that has nothing to do with suffrage.

Sounds like you had a great day!

Talking about sweets, since I am latina I really miss pan dulce. MEXICAN SWEET BREAD.

I spent a summer in Mexico back when there weren't very many Hispanics up North (like in Ohio and Indiana). I LOVED the Mexican food, especially flan and mole! The last day there the lady we were staying with made me a huge bowl of flan after our dinner of mole!

I didn't have either again for years .... but now there are a lot of Mexicans here, so I can get good Mexican food anytime I want. :)

I remember the Mexican bakeries having incredible stuff .... no wonder I had a belly ache the whole nine weeks. :lol:

AndreaB Contributor
You know how i get antsy!!

I get antsy too. I'm glad you'll be able to get the tests done before you're seen.

AndreaB Contributor
Didn't know this ... why?

I'm not 100% positive but I'm pretty sure it was because of all the silliness and trying to get the thread back to some semblence of normal.....whatever that is. :P

One time I asked the teenager behind the counter what was in the Big Mac. He looked like this :huh: The manager was there and started to tell me, and I told them I was just joking, I know what's in it. The manager said that many people think they remember the song, but they always get something wrong. I told her I'd tell her if she'd give me a free Big Mac. I got the free Big Mac. :P

That's great! :D

tabasco32 Apprentice

Hey found this out,

"The best forms of supplemental magnesium appear to be those chelated to an amino acid or a Krebs cycle intermediate such as citrate or malate. Krebs cycle intermediates are compounds utilized in the Krebs cycle (also known as the citric acid cycle), the metabolic process that produces energy within the cells. These forms of supplemental magnesium appear to be better utilized, absorbed and assimilated than inorganic mineral forms (i.e. carbonates, chlorides, oxides). In fact, research has shown that magnesium citrate is more soluble and more bioavailable, with respects to gastrointestinal absorbability, than magnesium oxide."

I also found that some of the ingredient in citrate is citric acid, hum.

I wonder if this would still be a problem? :unsure: ?

NoGluGirl Contributor

Dear Carla,

That is so awesome that you got a free Big Mac! ;) Way to go! As you said, they also need to be eaten with a Coke! I was glad to find out from other members that Coke is safe. I was told by some others it was not. Now I know! I love Vanilla Coke! Sometimes, you just need a little bit!

Dear Mia,

We hope you get to do the testing first! That would really help on your appointment day. Having the information available is necessary for a good, productive visit with a doctor. When there are results back, there is more of an idea of what is wrong and how to fix it. You cannot treat a patient if you do not know what is causing the trouble.

Dear Lisa,

It sounds like you could be onto something there! What you said makes sense. Citric acid being fungus-derived is a problem for a lot of people probably. They just do not know it. Aspergillus does not sound appetizing. I have severe sensitivity to mold.

Sincerely,

NoGluGirl

CarlaB Enthusiast
We also would throw the buns in the fryer and fry them and then put sugar on them. :blink:

So much for the fries being gluten-free. :(:lol:

I'm glad you found a good doctor. This sounds very hopeful.

Well, the house auction was today. We didn't get it. The bank sends lawyers and buys back some of the auctioned houses. They have to be auctioned after foreclosure. The bank/lawyer paid more than it was worth. I'm sure they'll sell it now, so maybe we'll still get it. It doesn't really cost them anything to buy it since they're buying it from themselves. I guess they just think they can make more off it this way.

I'm glad we went though ... we drove the price up $50k from opening bid! That has to help OUR property value. :lol:

I went to see my gyn/doc today. I've gone to the same guy for about 17 years. Last year I told him about gluten, how I felt better off it, but all my tests came back negative. He said to quit looking for clinical proof as dietary response WAS clinical proof.

Anyway, I had to tell him about the Lyme because he needed to know what medications I was on (because of why I was there). He was totally anti-lyme. He told me the tests weren't perfect. I told him that the test was VERY positive, I had most of the symptoms, and I'm responding to treatment ...

He then told me he was sure I could find someone locally to treat me, that anyone treating only Lyme is suspicious and could be running a scam. I told him I didn't care, I was getting better and that's all that mattered.

I thought it was odd that he finds a Lyme specialist suspicious ... after all, he's a specialist, too ... should I also find him suspicious? What about an oncologist? What about a dermatologist? Or an orthodontist? Can every health complaint have specialists EXCEPT Lyme?

Anyway, there's nothing wrong with me ... I had a sore, but nothing serious ... he's also concerned that there may be inflammation, which could be true, after all, I'm killing a lot of bugs right now. Better safe than sorry ...but it was disturbing after all these years that he thought I was so ignorant, especially after his positive response to being gluten-free.

rinne Apprentice
We aren't all into junk food and candy. I love my chocolate but due to the chemicals in most of the candy bars etc......I won't eat them.

...

I only have two words for you, Enjoy Life. :P:lol:

.....

I'm still finding greaut humour in my obliviouuusness.

Me too. :)

I suffer every day, Does that not count for any thing.

....

So glad you had such a wonderful day despite the suffering. :) What a great story.

....YUCK a DOOKIE

:o:unsure::lol:

Feel better, sending hugs. :wub:

...

My new naturopath just called me at home.

.....

That is wonderful news and how reassuring to know that the dentist you are seeing is the one to be seeing.

I know how scary it is to be in constant severe pain and I am sorry to hear that it is so much of your daily experience right now. :( I hope this doctor will be able to help you find some relief. :)

It even has a name!!!

Frico !

It can also be done w/out the butter in a (good) non-stick pan.

Med heat? Med high? Forgot!

Great :angry: just what I need, CHEESE LUST. :lol::lol:

It can also be done in the oven on parchment paper, I've made crackers with asiago that way, ;) fortunately there is not a scrap of cheese in the house or I would be on my way there. :lol:

Actually, back to my theory, in the name of research several weeks ago I ate a Hagan Daas ice cream bar. I did it purely for research, after all I have to know what the competition tastes like. :ph34r::lol: I did enjoy eating it although I found it rather sweet but as soon as I was done eating it I could only taste a watery sugary flavour that wasn't that appealing. Blush, blush, the rinnebar is better. :lol: My sweetie thinks so too, therefore it must be so. LOL

P.S.

I have heard that good teflon can be used on medium heat but I think the consensus here is that it is evil.

tabasco32 Apprentice

Something else online I found out, hum?

Puneet asks about citric acid allergy.

No, citric acid is not a mold. It is produced by fruit to

protect the fruit from mold.

Yes, I used to have allergic symptoms similar to some you

list, especially the sore throat after drinking fruit juices.

I did not have asthma, but I did get sore throat and sores in

my mouth immediately after eating fresh fruit or fruit juices.

Yes, I used to think that I was allergic to citrus.

Something else I found out

Then, I found a dentist who told me that the sores in my mouth

could be related to my fillings, which were silver-mercury

amalgam. When I consumed fruit, the citric acid would cause

mercury to leach out of the fillings to be absorbed by the body.

I had my mercury-silver fillings removed and replaced, and

could immediately consume huge amounts of citrus fruit and juice

without symptoms.

Many other allergic reactions were reduced by over 90%, and

I recovered the cost of amalgam replacement in saving money that

I used to spend on antihistamines.

earl

NoGluGirl Contributor
I only have two words for you, Enjoy Life. :P:lol:

Me too. :)

So glad you had such a wonderful day despite the suffering. :) What a great story.

:o:unsure::lol:

Feel better, sending hugs. :wub:

That is wonderful news and how reassuring to know that the dentist you are seeing is the one to be seeing.

I know how scary it is to be in constant severe pain and I am sorry to hear that it is so much of your daily experience right now. :( I hope this doctor will be able to help you find some relief. :)

Great :angry: just what I need, CHEESE LUST. :lol::lol:

It can also be done in the oven on parchment paper, I've made crackers with asiago that way, ;) fortunately there is not a scrap of cheese in the house or I would be on my way there. :lol:

Actually, back to my theory, in the name of research several weeks ago I ate a Hagan Daas ice cream bar. I did it purely for research, after all I have to know what the competition tastes like. :ph34r::lol: I did enjoy eating it although I found it rather sweet but as soon as I was done eating it I could only taste a watery sugary flavour that wasn't that appealing. Blush, blush, the rinnebar is better. :lol: My sweetie thinks so too, therefore it must be so. LOL

P.S.

I have hear that good teflon can be used on medium heat but I think the consensus here is that it is evil.

Dear Rinne,

I am sorry to hear you have Cheese Lust! It is difficult to deal with! I have had Frito Lust today. My parents eat all kinds of things I cannot have. It sucks.

I think you are right about the Teflon. Most people say it is evil! I am careful. I use it when I have to. It is just that the fumes coming off of it are a problem for me. I prefer not to use it all of the time. Mostly, I use the stainless steel pots.

They are great!

Dear Lisa,

That is encouraging news! That means it is not derived from mold? So it is not bad for you if you do not have mercury fillings? Is that what this means? I am wondering if this is an issue with people that could have mercury poisoning from other sources, like fish.

Dear Carla,

Oh, those fries! I miss them! Oh well, once I get a few bucks, I can go and get that Top Secret Recipes book that has the recipe in it. Then I can degluten it. I can pass along the recipe to my buddies, too!

That is too bad about the house. How unfortunate you did not get it. So what do you plan on doing now? Is there another property you are interested in? Maybe something else will come along.

Sincerely,

Jin

tom Contributor
I will have no trouble recording my food diary.

Sweet!!! I think the biggest hurdle for most of us, well . . . .me :), is/was always having something to write with/on. Or was it the remembering to DO the writing immediately? Hmm I forget. :lol:

I find your obliviousness hilarious as well! :lol: . . . . . .

. . . . It is not good to reveal all of your secrets at once!

I'll bet no man, w/out having it pointed out to him, would think of how women would hate that slogan. Ok maybe some docs in the right specialties. Sometimes ignorance IS bliss!! :P:lol:

But . . . . SECRETS???!! :huh:

I ain't got no stinking SEcrets!! :blink:

Frico? There is a name for you! :lol: It sounds like something you call that lunatic on the street. That is my guess. I need to try this. I have to be careful, though. I cannot overdo the fat.

Dear Alison,

I have never tried that. . . . .

...... I will take some Smart Balance and try that with some cheese.

I remember now - I saw Fricos on Food Network Giada's "The Italian Kitchen".

The cheese has enough fat that no more is needed, but a good non-stick sure is needed. I wouldn't try it on a very scratched/gouged one.

She had several applications but the one that comes to mind was a wedge in a bowl of soup. Of course she HAD to use an italian cheese. Something betw mozza & parm - aged yet shreddable. Only guess is Peccorino.

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      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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