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Omg...i Might Be On To Something

Rachel--24

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AndreaB Contributor
AndreaB
Posted
For those of us dealing with mercury...

I read something encouraging on another thread (Hyperthyroid)....the poster said he/she is going through heavy metal detox and losing the food intolerances.

YAY!

That makes me real excited. :D

I can read about it a thousand times over but its always the personal experiences that are so encouraging to me. :D

Sigh........we still aren't there yet. I'm soooooo tired of these food intolerances. :(

I caught up quickly. Past time to get the little one (who's not so little anymore) to bed and let hubby on the computer.

Susie,

Hope you have a better day tomorrow. :)

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tom Contributor
tom
Posted
Any thoughts from you?

I never tried oregano oil, but that is NOT what I think of as a candida die-off.

I'd read and been told it would be like a bad flu, and it was. For 3 days. 3rd day only 60% as bad. I couldn't imagine trying to work or even go to the store on any of the 3. Well, maybe a store late on day3. Then no other days felt like a die-off, and I slowly started feeling better. I'd actually have to check the food/symptom diary to guess how well, how quickly, but there were still other problems preventing full wellness.

<curse you evil soy!> :o

But I really only know mine. I thought the 3day bad flu was typical. And I figured I'd be on the diet for a month d'oh!

I have no clue what makes the mouth burning. Can it be the oil itself? But you've used it before. Did it only start burning after many drops?

:unsure:

I wonder if the new forum member who owns a healthfood store would know what to say about this. He knows a TON !! Acct name tvhealthfood (the TV is Tr-Valley) and I met him for coffee today lol!

He lives just a few miles away. We ended up talking near 2.5hrs and the time flew. :)

I posted his thread where he's offering his help and expertise didn't I? Ya I think so.

P.S. Where WAS everybody?? W/out my query at ~9pm PST, there was >13 hrs w/out a post I think!

And Jin calls ME absent!?

mftnchn Explorer
mftnchn
Posted

Maybe we all are naturally pacing ourselves...cause it isn't always easy to keep up with lots of posts every day.

Well, the jury is out still on the soda, epsom salts, salt bath. I just put in 1/2 cup of an equal mixture of each. First time really sweat but I couldn't stand it, so this time I made sure the windows were open and cool air blowing in, so wasn't quite as hot.

Didn't seem to hurt me. My allergies have been a lot worse today--sinus, etc. Could simply be the seasonal issue. Otherwise seem fine. No further problems from the bakery, but I'll watch it in the future. Tonight and tomorrow I take DMPS so the next few days are the test I guess.

Gonna try the lemon water and the spirulena if I can find any I think is safe to use.

Janet, on the oil I think lots of good points here, also those of us who have a lot of food intolerances are prone to developing them--just takes a bit of exposure.

CarlaB Enthusiast
CarlaB
Posted
Tung oil sounds quite disgusting! I do not think I would like to taste that stuff!

Nope, it's not edible. :)

That is great about the Ambien CR! It really might help. This could be the answer! As you said, you still need to get to the source of the trouble, though. Treating symptoms only helps temporarily.

Just as the GI symptoms have come with Lyme flares throughout my life, so has the insomnia. I think it will fix itself once I'm better.

Tom, the oregano oil is HOT! It burns on the way down, and being oil, it's hard to mix with the water ... thus, a chaser.

dlp252 Apprentice
dlp252
Posted

Well, I'm so excited!!! I actually slept until 3:00 this morning!!! I went to bed at 9:00 and woke up at 3:00...that's 6 hours of sleep! Just unheard of!!!! Usually by 3:00 I'm awake at least two or three times and one of those to use the restroom... Of course, didn't get back to sleep since I have to get up at 4:00, but 6 hours!!! I'll take it. :P

Also, the bad D has seemed to clear up. Not sure what caused it and why it lasted so long, but I'm back to my "normal" D, lol.

Carla & Donna - Have either of you tried Tryptophan for your sleep issues? I'm taking 1000 mg each night and seem to be getting more restful sleep. I thought I would mention it since you two are having such troubles sleeping.

Glad you are feeling good! I haven't tried tryptophan although I'm taking 5-HTP. Carla and I were trying to decided if they are the same or similar and I don't know if we ever came to a consensus, lol. I know my doctor said it's the same thing that's in turkey that makes people sleepy. :P Anyway, I'm taking 5-HTP, and 6-9 mg of Melatonin plus another herb my doctor recommended (not specifically for sleep, but helps the liver detox). I'm also taking calcium and magnesium in the evening. I take one 5-HTP cap about 7:00, I take another 2 at 8:00 and another 2 right before bed along with the 2 melatonin tablets.

Donna, the oregano oil dosage depend on the manufacturer. I bought Wild Oats brand. It initially looked more expensive, but when I read the dosage, it was only 4 drops vs. 30 of the other brand I was looking at. I take it twice per day before a meal.

Woohoo, glad you got the Ambien CR approved! I'm still going to ask about that when I see one of my doctors who can prescribe, lol.

I'll check Whole Foods for their brand of oregano oil. I also just saw some at Puritan Pride which looks okay too.

Has anyone taken the food intolerance test at Optimum Health Resource Labs? I think they used to be York Labs. I did the 96 food intolerance testing and sent it in early August and I haven't heard a word! I really regret ordering the test now. But, this was prior to finding the doctors that I'm working with now. The test wasn't cheap and I feel like it was such a waste of money. I've emailed them a couple of times with no response. I'm going to try calling them today to see what they have to say.

Yeah, like Rachel, I've heard nothing good about this lab, at least not for a long time. I think when I first started posting at this site there were a couple of people who had fairly decent experiences, but that was it. I've not been tested in this way...my testing was with BioSET and with skin scratch testing at my allergist's office.

I think I got glutened this week. With so many ups and downs as a matter of course, I never for sure know what causes what. But....I walked into a bakery shop with my husband so he could get some bread for himself. I started feeling strange pretty quickly and went back outside. That evening I was fatigued and the next couple days had cramping and diarrhea this morning with no change in my Vit C/mag. Hmm. I suppose there was flour in the atmosphere. Might be an indication of how sensitive I will be--I haven't dared challenge gluten.

I work with 4 other celiac/gluten intolerants, and one of them can't be around bready things at all. I'm sure she'd have a reaction if she walked into a bakery, but even just being around a lot bread will do it. We used to have "Bagel Fridays" here and she couldn't go down into the kitchen during the time the bagels were here. So, it's possible!

So now I'm wondering, what does this all mean. It's not as if I was short of carbs on the diet. SO is this a carb thing or a potato thing?

Are you an auntie yet?! Re the potato....maybe a potassium thing?

For those of us dealing with mercury...

I read something encouraging on another thread (Hyperthyroid)....the poster said he/she is going through heavy metal detox and losing the food intolerances.

YAY!

That makes me real excited. :D

I can read about it a thousand times over but its always the personal experiences that are so encouraging to me. :D

Yay indeed!!! I've been pretty sure it was something like this that was the cause of all my sensitivities and intolerances and you're right, it's great to hear first hand accounts.

Come to think of it, our friend tom has been a bit of an absentee lately! He is cheating on us with another thread! It is true! I know it is difficult to take, but the Silly Thread has stolen him away from us! :o Could it be, that is where the others have gone?

Yep, several post over there. I can't keep up with that and this too, lol.

And Jin calls ME absent!?

Wasn't Jin, lol.

Didn't seem to hurt me. My allergies have been a lot worse today--sinus, etc. Could simply be the seasonal issue. Otherwise seem fine. No further problems from the bakery, but I'll watch it in the future. Tonight and tomorrow I take DMPS so the next few days are the test I guess.

And also could be a bit of detox...according to what my massage therapist said, the sinus congestion could be a bit of detox. I was EXTREMELY congested as she was working on me, but was oddly VERY clear after a couple of days.

CarlaB Enthusiast
CarlaB
Posted
And also could be a bit of detox...according to what my massage therapist said, the sinus congestion could be a bit of detox. I was EXTREMELY congested as she was working on me, but was oddly VERY clear after a couple of days.

Ya' know, I woke up very congested this morning. It's all in my chest and throat, some in my sinuses, but not as bad. Good point about the detox. I was wondering how I caught another cold when I just got over one! So, today I'm laying off the dairy ... but it's a SIGNIFICANT source of calories for me, so I don't know WHAT I'll be eating ... definately will have to make more fudge today if I can drag myself downstairs to do it. I'm at the low end of my weight ... so cutting out the 600+ calories per day from dairy isn't that great of a thing for me right now ... my clothes are getting loose and hubby is calling me "the incredible shrinking woman" again.

Honestly, I'll be glad when I can get back to how I used to eat a couple years ago -- lots of fruit and raw/lightly-steamed veggies ... just waiting for my GI symptoms to diminish ... and waiting to be able to CHEW again! Braces should come off in Feb.

Donna, YAY on your good night's sleep! I had to try other sleeping pills before the Ambien CR would be approved. I liked the regular Ambien, too ... I broke it in half, took half when I went to bed, then half when I woke up ... each half was good for about three hours. I did wake last night, but I barely remember it and went right back to sleep after going to the bathroom.

AndreaB Contributor
AndreaB
Posted
Well, I'm so excited!!! I actually slept until 3:00 this morning!!! I went to bed at 9:00 and woke up at 3:00...that's 6 hours of sleep! Just unheard of!!!! Usually by 3:00 I'm awake at least two or three times and one of those to use the restroom... Of course, didn't get back to sleep since I have to get up at 4:00, but 6 hours!!! I'll take it. :P

Now that is geat news! :D

Honestly, I'll be glad when I can get back to how I used to eat a couple years ago -- lots of fruit and raw/lightly-steamed veggies ... just waiting for my GI symptoms to diminish ... and waiting to be able to CHEW again! Braces should come off in Feb.

February will be here before you know it! I hope you can figure out something for calories. Are you just going of dairy short term until your congestion clears up?

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tom Contributor
tom
Posted
So I'd really had enough of being on such a strict diet today and ate a jacket potato :o Well, within an hour my blood sugar went crazy, and I have cramps in my stomach, but (and this is either great news or quite scarey, depending how you look at it), I feel so much better emotionally. I'm like a different person.

Hmmm the stomach cramps aren't surprising to me, but the rest sure is. I have no idea.

Does "jacket potato" mean "magic potato"? Am I the only one who's unfamiliar w/ the jacket part? I've heard of one 'coated' lol w/ butter but that seems irrelevant. :lol:

Dear tom,

I know about the Celiac group, because HouseKat and I have been PMing each other! :lol: I was so glad to finally find someone here in town! Maybe will we get the chance to meet soon! Adele's will probably be the best place! She lives on this side of town, or at least works nearby.

Oh cool, I figured you'd seen that thread. But there was no mention of it here! I hope you CAN meet soon. In-person is fun. You can bring a squirt bottle in case HouseKat misbehaves. ;)

We have wondered where you were lately! :lol: You have not been on here as much. Normally, we see more posts than you have been writing recently. If you are spending some time on the Silly Thread, say hello to Bev and Susie Q for me!

I miss them! :(

. . . . . Come to think of it, our friend tom has been a bit of an absentee lately! <_< He is cheating on us with another thread! It is true! I know it is difficult to take, but the Silly Thread has stolen him away from us! :o Could it be, that is where the others have gone?

We were missing Bev other THERE yesterday too! Hope she's ok.

BTW Jin, I think the record reflects more time betw posts from *you* than me. :P

Yesterday, lol, on the sillythread, lol, Nikki informed us it was International Talk Like A Pirate Day!! And it's awful harrrrrrrrr-d to keep that up!

CarlaB Enthusiast
CarlaB
Posted
February will be here before you know it! I hope you can figure out something for calories. Are you just going of dairy short term until your congestion clears up?

Yes, going off dairy before did nothing for me ... but I know it does cause mucus in the system, so I thought it was a good idea to lay off it for a few days.

I found this Open Original Shared Link

It's about infection and the relation to dental work, back pain, GI disorders, etc.

AndreaB Contributor
AndreaB
Posted
It's about infection and the relation to dental work, back pain, GI disorders, etc.

That's an interesting article. It will probable be 2 years before I can get my other cavitations taken care of as I've got to get the amalgams out. Then I have to find money for detox/chelation so it may be longer than that. They are smaller than the one under the root canal which I just had taken care of.

CarlaB Enthusiast
CarlaB
Posted
That's an interesting article. It will probable be 2 years before I can get my other cavitations taken care of as I've got to get the amalgams out. Then I have to find money for detox/chelation so it may be longer than that. They are smaller than the one under the root canal which I just had taken care of.

The only questionable dental work I have is that I've had my wisdom teeth pulled. I think I remember a piece of one of the teeth show up on the x-rays that were done for my braces/TMJ work. It was part of a root.

I'm thinking that's not good ... but I also know that my Lyme was bad before I had those teeth pulled ... so I'm not sure it's a problem. Maybe I'll look into it later ... my healthcare is already costing a fortune! I can't do it all.

AndreaB Contributor
AndreaB
Posted
The only questionable dental work I have is that I've had my wisdom teeth pulled. I think I remember a piece of one of the teeth show up on the x-rays that were done for my braces/TMJ work. It was part of a root.

I'm thinking that's not good ... but I also know that my Lyme was bad before I had those teeth pulled ... so I'm not sure it's a problem. Maybe I'll look into it later ... my healthcare is already costing a fortune! I can't do it all.

I would look into in the future for sure. That's awful that they left part of the root there!

CarlaB Enthusiast
CarlaB
Posted

I was looking up cavitations ... I guess it doens't have anything to do with that root being left there ... check this out. Open Original Shared Link :o

AndreaB Contributor
AndreaB
Posted

I read a portion of that article and looked at the pictures. :o is right! I still have 3-4 of these things to get rid of. If finances allow it.......things have been really slow this month and I'm hoping the trend doesn't get worse. :(

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Hi Rinne!! :)

We miss you!!!!!!!! :wub::wub::wub:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I read a portion of that article and looked at the pictures. :o is right!

Yeah...this is the one thing that still leaves ??'s in my mind.

I just wanna make sure that Amy tests me next time I see her....and hopefully it wont be too much longer. It feels like FOREVER since I've had ART!! :huh:

Anyways...I enjoy my appt.'s with her. :)

Andrea...I meant to say that I like your new avatar. :D

The chlidren are growing!! :o

rinne Apprentice
rinne
Posted
Hi Rinne!! :)

We miss you!!!!!!!! :wub::wub::wub:

Hi Rachel, Hi Everyone! :wub: :wub: :wub: right back at ya. :)

I seem to be suffering from computerphobia these days, I haven't been on much at all. :( I do miss you.

I've had a so so summer, improved for a while and then seemed to slip back, most recently much better. I actually had two days last week where I felt almost normal and hour long stretches without any pain.

I'm sorry to hear you got knocked down but glad to hear that you were able to bounce back quickly. :)

So glad so many "old timers" :lol: here ...... and wonderful to see new faces that seem to be regulars. :)

In response to the potatoes, they are a nightshade and nightshades are inflamatory. Tomatoes, eggplants and peppers are all nightshades, do any of these give you problems?

I've been really busy with the rinne bars, I created some new ones. I decided to go big and take on partners. I'm working with an agency now, they think there may be a million dollar market in them. My goal is to make it possible for you to pick them up in your local grocery store. That would be so fun. :)

tom Contributor
tom
Posted

:) Rinne

Ahhhh it's good to hear from you and that the bars are going big-time. (Whose word was taifun?)

LOL Even if I can't eat one yet, I'm buying one the 1st time I see 'em!! :lol:

You and your insightful wisdom have been missed. :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I've been really busy with the rinne bars, I created some new ones. I decided to go big and take on partners. I'm working with an agency now, they think there may be a million dollar market in them. My goal is to make it possible for you to pick them up in your local grocery store. That would be so fun. :)

OMG!!! :o

Rinne....I *have* to get better by the time the bars hit the supermarkets!! B)

This is gonna be GREAT. :D

I'm looking forward to racheling the Rinne Bars....ALL of them :D

My goal is to make it possible to eat several Rinne Bars in one day. :P

Ummmm.....do you guys think I might double in size once I get better?? :unsure:

I'm totally excited at how far you've come with this!! Just dont forget to visit Rachelville when your bigger than Ben & Jerry!! ;)

I'm glad your feeling better these days. I was very happy to read your post tonight. :wub:

miamia Rookie
miamia
Posted
OMG!!! :o

Rinne....I *have* to get better by the time the bars hit the supermarkets!! B)

This is gonna be GREAT. :D

I'm looking forward to racheling the Rinne Bars....ALL of them :D

My goal is to make it possible to eat several Rinne Bars in one day. :P

Ummmm.....do you guys think I might double in size once I get better?? :unsure:

I'm totally excited at how far you've come with this!! Just dont forget to visit Rachelville when your bigger than Ben & Jerry!! ;)

I'm glad your feeling better these days. I was very happy to read your post tonight. :wub:

Rachel-

this made me laugh I told my sister the other day if i get better i am gonna eat myself into a nice plump state!!!!!!!!!!

miamia Rookie
miamia
Posted

Hey all-

so its been a rough week but at least the 10th chelation is over and i have sent out my pee test. The place i go for colon therapy has been changing alot and i don't like the way its been changing the women i liked most who ia always went to left for maternity leave and i don't think she is coming back and the only other person i reallly like is the owner and she is going to stop seeing people so i didn;t know what to do My doctor and i agreed it was best for me to see one person becasue than they learn your body. He suggested a few people so i am going to see one of them today. I would really love it if this worked out- so fingers crossed!!!

Oh funny kind of gross story. So after my chealtion i was feeling pretty bad - my colon therapy session ahd gone reallly badly (hence the need to change) and i had just made dinner I really did not want to eat but i knew i had to so i did this whole series of stretches and breathing to help and I sit down and the door bell rings I decided to ignore it but it kept ringing so i finallly answer it and its the guy to pick up my pee early. I had not filled out anything or put the pee in the tube or anything and so i tried to rush but i felt really sick and i kept dropping things and then i shook the pee becasue you have to do that before you put it in the tube but the cap was not on right and then i spilled pee all over and the guy is out side the door and i have all the papers all over and pee on the floor and my dinner on the table getting cold. It was such a mess!!!! Ok I finally got the package together but it was really like such a comedy show (only not so funny at the time)

jerseyangel Proficient
jerseyangel
Posted

Rinne!!

I have missed you :D It was good to catch up on you--how exciting about the Rinne Bars! It all sounds wonderful, and you know as soon as it's possible, I'm buying a case ;)

Rachel and Mia--You two made me smile. I just know there's gonna come a time that you both will be able to eat more freely. I think you're closing in on it :D

jerseyangel Proficient
jerseyangel
Posted

Oh no Mia! :o

I just read your comedy of errors but not funny pee story....we must have been posting at the same time.

You poor thing. Did you finally manage to get it sent?

CarlaB Enthusiast
CarlaB
Posted

Rinne, great to see you back! I look forward to trying one of your Rinne Bars! How exciting!

Mia, how funny! I get in the middle of those comedy routines myself ... I'm starting to see them as funny while they're happening even if they are annoying.

Rachel, I can't imagine how big you will get when you can eat everything! :lol:

I'm reaching the end of this herx... in the next few days I guess I'll see if the Levaquin is helping me to feel better like the Cipro did.

AndreaB Contributor
AndreaB
Posted
Hi Rachel, Hi Everyone! :wub: :wub: :wub: right back at ya. :)

Hi Rinne! :wub:

I'm looking forward to seeing your Rinne Bars and maybe even trying them sometime.........don't know if that will be possible.

Such exciting news! :D

Mia,

Sorry about your funny but not so funny pee story.

Rachel,

I thought you had posted last month that Amy was coming down the beginning of October? Did she have to change it?

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      how much gluten do I need to eat before blood tests?

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      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      Accuracy of testing concerns

      By trents · Posted

      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
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