Omg...i Might Be On To Something

[Rachel--24]

Is it just me, or does it seem there has been an influx of people to this board who are struggling with so much other than just celiac/gluten intolerance??

No...its not just you. I've been noticing it for a long time now. Actually the rate of chronic illness is increasing pretty steadily in adults...a big part of the symptom picture is allergies...including food intolerances. As always gluten and dairy would top the list.

Seems that theres an awful lot of leaky guts nowadays. The rate of Autism is steadily increasing right alongside Lyme Disease.

Most of these kids (90%) test positive for Lyme. They've got heavy metal issues, leaky gut, food intolerances, co-infections, yeast, etc. Its not that diferent from what we're dealing with.

Its an epidemic. Our guts and our immune system are taking a beating.

I think Lyme and its relationship with the heavy metals is playing a huge part in this...and then the other toxins pile up. Thats my theory...and of course genetics play a role as well.

I posted a long thread about Lyme/Autism on another board. I'll pull it up later and post it here.

[jerseyangel]

No...its not just you. I've been noticing it for a long time now. Actually the rate of chronic illness is increasing pretty steadily in adults...a big part of the symptom picture is allergies...including food intolerances. As always gluten and dairy would top the list.

Seems that theres an awful lot of leaky guts nowadays. The rate of Autism is steadily increasing right alongside Lyme Disease.

I've been noticing the same thing. I'm also happy to see that little by little some of this is trickling into the mainstream press.

I saw Jenny McCarthy this morning on The View discussing her Autistic son. She brought up vaccinations, gluten-free/CF diet, fungi, metals, etc. I thought it was great--she really held her ground.

More and more people are gonna get fed up--the way a lot of us did with the medical profession and go out on our own to get some answers.

[ami27]

I'll re-post the Klinghardt "Triad of Detoxification" so you can understand what happens with the infections when you start chelation. I'm glad your Dr. is aware that they can come out and play but dont let things get too out of hand. I dont want you to end up with a bigger problem.

The triad of detoxification:

[ami27]

Where's Tom? I hope you're feeling better and back to your upbeat self. I saw the other day that you were down.

I hope all the others who have been struggling will get to feeling better too.

Rinne, thanks for the poem. It was great.

[dlp252]

to all!

I hope you get this figured out soon......you've been missed.

Thank you!

Could be the ALA. I've read warnings about taking it without a chelator. I know I've posted it a few times but I dont know whether you saw it or not.

Be careful!!

Amy did not want me taking ALA by itself. I only just now started taking it along with the DMSA and the other detox supplements.

Well, I'm not taking DMSA or DMPS, but I am taking some binders...still, maybe not enough, and probably none that work in the brain. I started taking a new brand of ALA a couple of weeks ago...I think this one is stronger (more mg per capsule), and since I take them out of the capsule, it probably gets into my system faster. I should probably get a mild chelator or better binders.

We need our Smiley Spice back...I miss this face( ).

Thank you!

Where's Tom? I hope you're feeling better and back to your upbeat self. I saw the other day that you were down.

I hope all the others who have been struggling will get to feeling better too.

Thanks! I think it must be close to Tom's move time isn't it? Maybe he's just busy with the move stuff.

[dlp252]

<-- Just for Rachel (and hoping it will help me out of this funk, lol). Smiley face.

[Judyin Philly]

Julie....thanks for the edit- forgot to add I finally found a neti pot. I'm going to use it today and see if it makes a difference.

there was just a whole 5 min segment on our health section of the evening news on them and i remember seeing them on this thread but forgot the name. Please let me know how it works for you ok.

I'M HAPPY TO POST ON THE OTHER THREAD AND TRY TO FIGURE THIS OUT WITH THE REST OF YOU. HOPEFULLY MY POSTS AREN'T CONTAINING SO MUCH SCIENCTIFICNESS THAT THEY DONT MAKE SENSE. I'M TRYING NOT TO SCARE EVERYONE AWAY.

you've been so careful posting there are we so appreciative!....when you compare your experience with the sulfer (?) think that's it ...pathways and then the oxalates binding too...........it's new info I hadn't put together. We are all finding our way here but the shrinking of these huge body tumors that only.................SURGEONS...............WERE ALLOW TO DEAL WITH............ MADE we so glad I took charge...........who nows ...................there still my be other 'lite bulb moments' but for now.............it's working and I'm not questioining it.

Also- some are coming over are from d/s and they are just getting the gluten/dairy/soy connection so these poor folks are really getting alot at once..............but you know ..............I wish someone had the 'bigger picture when I started' this journey.........but ha...........no regrets here.

loved the poem too Rinne

Andrea...did i miss your birthday..........lordy.............sorry and hope it was a good one. maybe while we were out of town

[CarlaB]

Carla,

I am so reluctant to get tested for Lyme!!! I don't know why, I think if there is one more thing wrong with me...I'll croak! I know I'd need to go through IGeneX, but what if my doctor thinks I'm crazy? (Well, I already know he thinks that!) Would it be worth going straight to an LLMD? And spending more money??!!!! AHHHH!!!! This all gets so expensive! My hair has been falling out since I was anemic, but now that I'm not anemic anymore, they don't get it. Also, I do have thick hair, so the doctors don't find it a cause for concern. (Except the fact that if I don't clean my bathroom, it's covered in hair in just ONE day!) I have had my thyroid levels checked many times, and it is always normal!

The sinuses thing, I am kind of already doing with an all natural saline solution thing, but I don't get what you do once you "snort" the solution in? I know...TMI.

Well, something like Lyme could be behind all your other symptoms, so I wouldn't hesitate to test for it. It could be the root, not just another thing to deal with. I'd also get tested for metals.

You might want to go straight to an LLMD because he could test you for both. I know your parents are a limiting factor there, so it's something I guess they'll have to decide for you. I think an LLMD would be good for you because he won't think you're nuts.

The salt water just goes through your sinuses, then down your throat. I usually start sneezing then have to blow my nose till it's all out. Afterward I feel much better.

Carla, hang in there! I'm glad your neighbors are pitching in with meals while Adam is away? Are the kids there too to check on you? I hope this passes quickly for you.

Thanks. No, the kids are at school during the day. I am doing a little better than I was ... it's starting to lift. I'm still going to let my friends bring some meals because I think cooking all of a sudden would just be too much to add. My friends know it's a chronic illness ... it's not like I'm in bed all day ... so they won't be surprised that I'm up and dressed.

[AndreaB]

<-- Just for Rachel (and hoping it will help me out of this funk, lol). Smiley face.

I love that picture too!

[Rachel--24]

Another thing I forgot to mention (I am just forgetting left and right, brain fog ) is an additional thing that really stood out for me in the article on Candida and Carbohydrates you posted the link to was that eating high protein/low to no carb diets causing the red blood cells to stack, or "sticky blood". This was a red flag, ding, ding, ding, ah-ha, HELLO moment reading that since chronic angioedema has to do with the blood and cascading or stacking proteins in the blood- I am wondering if they are related situations. My angioedema actually became chronic after I went off of a long term high protein/low to no carb diet and I began to eat carbohydrates normally with all my meals.

I've posted alot about "sticky blood"....hypercoagulation. Treatment for that is heparin (perscription) or some specific enzymes that you take away from food which break down fibrin. I dont know about food-related hypercoagulation but typically thickened blood is caused by an immune response to toxins and infections. Pretty much everyone who's chronically ill has this condition to some extent.

It actually prevents the distribution of nutrients...it allows the infections to hide from the immune system and it protects the bugs from treatments that we take. Cancer also can grow easier when we have hypercoagulated blood.

Did you catch my posts on all this? If not I'll re-post. I also have a thread just about hypercoagulation on another board. If you're interested I'll send the link to you.

[Rachel--24]

<-- Just for Rachel (and hoping it will help me out of this funk, lol). Smiley face.

I'm seeing a cruise ship.

I'm gonna have to hit F5 and I'm hoping its the familar pic of you...like this.

[rinne]

Me too! I am just so over it....

Hi rinne, good to see you too!

And hello to Judy!

Hi Patti, thanks for the comments!

Andrea too!

This is just a drive by post, I had a few questions:

...

edit- forgot to add I finally found a neti pot. I'm going to use it today and see if it makes a difference.

What is a neti pot?

I guess this is a little longer than a drive by

Forgot to say LOVE THE POEM rinne, thanks for posting it!!!!

.....

Another thing I forgot to mention (I am just forgetting left and right, brain fog ) is an additional thing that really stood out for me in the article on Candida and Carbohydrates you posted the link to was that eating high protein/low to no carb diets causing the red blood cells to stack, or "sticky blood". This was a red flag, ding, ding, ding, ah-ha, HELLO moment reading that since chronic angioedema has to do with the blood and cascading or stacking proteins in the blood- I am wondering if they are related situations. My angioedema actually became chronic after I went off of a long term high protein/low to no carb diet and I began to eat carbohydrates normally with all my meals.

So this is something I really want to learn more about and see if there is any connection.

Thanks Julie.

The video on the EFT link showed unhealthy blood that was clumpy and then healthy blood that was flowing and after a five minute EFT treatment the person with clumpy blood was retested and their blood was flowing too. The woman doing the test said she felt like she should just through away all her degrees, the minister who developed it offers a free manual.

Thanks to whoever posted it, sorry but I don't remember who.

I just broke out in hives.

I ate the EXACT same thing I ate yesterday.

I am don't think I could be in a worse mood.

Noglugirl - It was actually a doctor who recommended the peppermint tea because it is suppose to "relax" the digestive muscles. I will not be drinking that again.

The ginger does not seem to be a problem. I had a cup of ginger tea last night and was no worse than before it.

I WANT A NEW BODY.

How frustrating, I know sometimes the first day I can handle something but not two days in a row. I hope the hives have receded.

......

Its an epidemic. Our guts and our immune system are taking a beating.

I think Lyme and its relationship with the heavy metals is playing a huge part in this...and then the other toxins pile up. Thats my theory...and of course genetics play a role as well.

I posted a long thread about Lyme/Autism on another board. I'll pull it up later and post it here.

I agree, I look forward to you posting it.

....

I saw Jenny McCarthy this morning on The View discussing her Autistic son. She brought up vaccinations, gluten-free/CF diet, fungi, metals, etc. I thought it was great--she really held her ground.

More and more people are gonna get fed up--the way a lot of us did with the medical profession and go out on our own to get some answers.

I agree Patti.

I saw Jenny McCarthy on Oprah with another woman whose child is autistic, she talked about cutting out gluten and dairy and about the vaccinations as a direct cause of the autism. The stats in 1999 were 1 in 3000 boys were being diagnosed with autism but as of today it is 1 in 94.

She said they need to listen to the mothers, the mothers know their children and see the changes but they don't, I think the mothers have to take charge just as we have.

...

Rinne, thanks for the poem. It was great.

Thanks ami, how sweet of you to say. right back at ya

......

loved the poem too Rinne

Andrea...did i miss your birthday..........lordy.............sorry and hope it was a good one. maybe while we were out of town

Andrea, a happy belated birthday, I hope it was a lovely day.

And thank you Judy.

....

The salt water just goes through your sinuses, then down your throat. I usually start sneezing then have to blow my nose till it's all out. Afterward I feel much better.

....

Thanks Carla.

[rinne]

I googled neti pot, now I know.

[jerseyangel]

Rinne,

This is a neti pot. It's used to clean/irrigate the sinuses.

Open Original Shared Link

[jerseyangel]

I googled neti pot, now I know.

Oops--I was too slow

[happygirl]

psssttt

just saying hello. had a good weekend....new meds are helping!

[Rachel--24]

I saw Jenny McCarthy on Oprah with another woman whose child is autistic, she talked about cutting out gluten and dairy and about the vaccinations as a direct cause of the autism. The stats in 1999 were 1 in 3000 boys were being diagnosed with autism but as of today it is 1 in 94.

The vacinations are definately a trigger for autism but they are not the whole story. Theres more going on and there are kids out there who did not get vaccinated and yet they still have Autism.

There is definately more than one trigger for it...I dont think they will ever find a direct link to *one* single thing...because its a multitude of things causing it. It can be different for each child.

Certainly taking mercury out of the vaccines would help...but I dont think it will prevent autism from occurring. I do believe the numbers would decrease ALOT....and thats the most important thing.

I had totally forgotten about my Autism/Lyme post...so thanks for reminding me. I'll do that now.

She said they need to listen to the mothers, the mothers know their children and see the changes but they don't, I think the mothers have to take charge just as we have.

I agree...the parents need to take charge. Conventional medicine has nothing to offer as far as treating Autism. Unfortunately alot of the parents are closeminded about trying alternative things...even the gluten-free/cf diet is frowned upon by some parents who have never tried it for their child.

The Dr.'s are NOT trying to treat this epidemic. The parents need to support each other and start getting the word out as far as what is really working for these kids. McCarthy is doing a good job of this.

I've been reading her book. I have no doubt that it will help alot of other parents who might not know about how much the diet can help their child.

[Green12]

Oops--I was too slow

Thanks Patti for answering rinne's inquiry

Rinne, we had talked several pages back (it had to be over a month ago) about cleansing out all the allergens (i.e. dust and pollens) and old mucous gunk that traps the viri and bacteria in the nasal canal. A neti pot is an old ancient tool to help with the process, you fill the pot with warm filtered water and high quality sea salt and then up one nostril it goes up into the nasal canal and out the other nostril.......but you could just snort it like Carla does.

I have a question rinne, what is EFT?

Patti and rinne, I also saw Jenny McCarthy on The View today, and I saw her and the other gal (I think it was Holly Robinson Peete) on Oprah discussing autism, interesting stuff. I was also happy to hear her talk about a gluten/casein free diet being key and the children being full of candida and needing to detox with anti-fugals. Also Jenny mentioned that she will be trying hard to fight for a test for babies to see if their immune systems can handle the vaccinations. So there definitely seems to be a shift in what is being put out there as far as alternative therapies go and I think you are right Patti, more and more people are fed up and taking action to find the answers themselves and there are multiple success stories.

Rachel, I did read your posts about the hypercoagulation and the fibrin. I had inquired about all of the things that had anti-fibrin properties, did you have a list??

melmak- I am so sorry you are breaking out in hives! Finding the source of hives is difficult to pinpoint, like trying to find a needle in a haystack, but it is definitely your body trying to kick something out through the skin. There have been several discussions in this thread alone, and in other categories on this board, they seem to be quite common.

High histamine foods can contribute, I don't know what your diet looks like but the list of high histamine foods includes things like tomato products, chocolate, tomato products, just to name a few.

[Rachel--24]

More and more people are gonna get fed up--the way a lot of us did with the medical profession and go out on our own to get some answers.

I hope so Patti. I pray for this everyday. Too many people are suffering and not getting anywhere with the mainstream Dr.'s.

The medical community is very AGAINST the ones who are out there making a difference.....like the Dr.'s I'm currently seeing. Its not right and I do hope that these Dr.'s start getting the recognition they deserve and I hope more and more people turn their backs on the medical community that is run by the pharmaceutical companies.

The info is out there for us. McCarthy said she earned a Ph.D. in "Google Research"

Yeah me too...

[Judyin Philly]

I hope so Patti. I pray for this everyday. Too many people are suffering and not getting anywhere with the mainstream Dr.'s.

I HAVE THE SAME PRAYER TOO RACHEL...

The medical community is very AGAINST the ones who are out there making a difference.....like the Dr.'s I'm currently seeing. Its not right and I do hope that these Dr.'s start getting the recognition they deserve and I hope more and more people turn their backs on the medical community that is run by the pharmaceutical companies.

JENNY AND MS PEETE WERE INCOURAGED THAT THE CDC HAS CHANGED THEIR POSITON PAPER ON VACACINES............NOW THAT'S A BIG ONE.

I TOO THINK ............WHY IS IT SO HARD TO MAKE SURE THE LITTLE ONES HAVE HEALTHLY IMMUNE SYSTEMS BEFORE................THEY GIVE THE SHOTS................THAT'S WHAT THEY ARE FIGHTING FOR NOW.

THESE LINKS JUST KEEPING COMING UP.

I DON'T GET WHY WE.................CAN SEE IT....................AND THE DOC'S CAN'T. TOO MUCH BOOK LEARNING I GUESS.............NOT ENOUGH ............LOOKING OUTSIDE THE BOX

The info is out there for us. McCarthy said she earned a Ph.D. in "Google Research" Yeah me too...

OMG I LOVED THIS ONE TOO.

ALSO MOMMY INSTINCT...SHE'S AMAZING.

GOD I WAS DOING SO WELL LIMITING MY COMPUTER TIME.............NOW I'M GETTING SUCKED BACK IN.

OH MY .....................

[Rachel--24]

Ok....heres my Lyme/Autism post.

PART 1

--------------------------------------------------------------------------------

For now noone knows what role Lyme plays in Autism....it is only known that up to 90% of the kids test positive for Borrelia (the bacteria which causes Lyme). This is a relatively new finding and as of now there hasnt been any research or studies to determine how Lyme and Autism might be connected.

This is something that is being more and more talked about and currently there is an epidemiologic study underway. Its a population-based study comparing the prevelance of Autism in Lyme endemic areas with that of Autism in non-endemic areas. The study is taking place in New Jersey and Connecticut. Both of these state top the list of reported cases of Lyme Disease in this country. New Jersey...I believe also has the highest number of kids with Autism.

Heres more detail about the study...

Open Original Shared Link

I'm posting this info. and links for anyone who might be interested as most of us do know someone who has a child with an ASD diagnosis.

1 out of 150 children are diagnosed Autism Spectrum Disorder. Many of these children have also been diagnosed with Lyme Disease/borrelia related complex, but most remain undiagnosed. It is estimated that up to 90% of children with autism may be also infected with Lyme Disease/Borrelia. Most of these children have never even been bitten by a tick.

Open Original Shared Link

Lyme disease is the fastest growing vector-borne disease in the nation. In 2001, the Center for Disease Control recorded 18,000 new cases, but some experts

estimate that the actual number is closer to 200,000. This is four times the

number of HIV cases per year. Autism grows as exponetially as that, and an NIH

bulliten explained of late it is seen in 1/166 children. Amongst those

statistics, is the further frightening 1-6 children now have a developmental,

psychiatric problems in the US.

Lyme disease results in underconnectivity of brain areas, defects of the

fusiform gyrus and loss of purkinje cells in the cerebellum. Recently reports

of white matter disease are prevelant in children and adults with autism

paralleling patterns in lyme disease.

One thing is for certain, autism lyme connections do exist. For those of you reading this that are unfamiliar with lyme disease, it is a primarily tick borne illness that stems from a bacteria called Borrelia. This type of bacteria is very hard to detect as it is generally a spirochete, a form of bacteria that bores into cells and eventually causes the cell walls to collapse. When the cell walls collapse around the bacteria, the bacteria is then covered by the cell wall. This makes the bacteria virtually invisible to the immune system, and very hard to treat. If this bacteria gets into the nervous system, it can cause neurological insult and result in autism spectrum symptoms for its victims.

Open Original Shared Link

Why Autism AND Lyme?

Autism and Lyme share significantly similar manifestations in the neurotoxin, inflammation, detoxification, dietary, nutritional, advocacy, legislative and judicial arenas.

Many characteristics of Lyme disease and autism are shared by the neurological system. These include white matter and gray matter involvement, antibodies to myelin basic protein, hypo perfusion (blood flow restriction in the brain), thyroid antibodies, paralysis of the gut (many presentations, megacolon, encopresis, diarrhea, constipation, pain), hyperacusis (sound sensitivity), light sensitivity, touch sensitivity, sleep problems involving the melatonin cascade, including serotonin uptake, violent behavior outbursts, seizures, rapid mood swings, obsessive compulsive disorder, visual spatial involvement, slow processing and word retrieval, cognition loss, memory impairment, brain fog, dyslexia and word-finding problems, stuttering, bladder dyscontrol, and depression. (2)

Other known signs are low muscle tone at birth and higher incidences of birth defects. Included in this category are the known in utero infections that can cause autism, including syphilis, which is in the Borrelia family. It has also been surmised that seasonal births and autism have connections, which would confirm the infectious agent responsible for autism, encompassing all infections during pregnancy, including a Lyme bacterial load in mother or father and other viral co-infections.

According to Dr. Radoff, patients infected with Borrelia burgdorferi have many other infections much like a complex of infections known to occur in AIDS, Babesia, Mycoplasma Pneumonia, HSV I and VI , cytomegalic virus, bartonella, Chlamydia P, EBV, and Ehrlichia.

It could be said that autism is a Borreliosis complex or that autism has a complex of infections. This is well-proven when you test children for these bacterial and viral co-infections. These children are greatly immunosuppressed and have numerous metabolic dysfunctions, including low glutathione, known to be caused by Borrelia infections and increased Reactive Oxygen Species (ROS).

Open Original Shared Link

Neurological Borrelia complex would lower celiac disease 57 natural killer cells, especially the neurological presentation of Lyme, excluding the musculoskeletal presentations. This is illustrated by the fact that neurological Borrelia complex is a very specific marker that generally does not cross over another disease state, even AIDS. Typically, children with autism have low celiac disease 57. There are also signs of lowered NKT cells in autism, a known borrelial stratagem for survival.

Lyme is perfectly capable of doing major damage to the brain, as the Grier article states, in sort of a delayed fashion, if you will. And you will note that the author states that the infection lies at the blood brain barrier (BBB) and is the gatekeeper to let in other infections.

This is curious in autism, in that, for such children with Borrelia infection, other infections would be allowed into the brain, including vaccine viruses, a major hot button in autism causes.

It is possible that the two are conjoined in damage and that the long-term effects of congenital Borrelia complex could hamper the body's ability to mount a significant, timely, and typical response to vaccine viruses. This would explain the higher incidences of reactions to vaccinations in children with autism.

Curiously, many mothers of autistic children are hampered by infections that could cause autism in their children. It is quite possible that the prevalence of autoimmune disorders found in families with autism is an infection that has existed chronically in the body for years, if not decades, much like syphilis.

Sweeten et al. has proposed a higher propensity to autoimmune disorders in mothers of autistic children, such as Hashimotos Thyroiditis (a known Babesia resultant infection), rheumatioid arthritis (viral and bacterial), rheumatic fevers (infection based viral or bacterial), and other less well-known condition such as vitiligo, depression, fibromyalgia, Chronic Fatigue Syndrome (CFS), Attention Deficit Disorder (ADD) (known to also be caused by autoimmune processes), etc.

[Rachel--24]

PART 2

On the LIA Foundation list-serv (lyme-autism@yahoogroups.com), a high resultant infection rate of Borrelia in autism has been reported in whole families, and, concurrently, therapies that are effective against this pathogen are relieving symptoms of autism and, in some cases, children are recovering from autism, due to the pathogen's multi-systemic nature of infection, especially its affinity to the brain/gut.

This is not an easy course. Children with Borrelia and autism have many detox pathway problems and other infections in the mix, if not harsh clinical presentations of neuroborrelisosis, including seizures, considered the late stage of Borrelia. Herxing is hard, sometimes unbearable.

However, the earlier the pathogen is caught, the better chance a newly diagnosed autistic child will recover from this devastating illness. This is why this an important new paradigm is so important, because, if left to its devices, Borreliosis complex can ruin lives and families throughout lifetimes and generations. Borrelia is known to be one of the sneakiest, hardest, and quickest-to-survive organisms known to man. It can evade the immune system in 100 different ways and change its outer surface proteins to hide and sequester away from most of our sophisticated antibiotic regimes.

News reports indicate a staggering number of Lyme disease cases going unreported. With autism rates rising each year, doctors are examining this new connection.

With new CDC numbers showing one of the largest populations of Lyme disease sufferers being boys from the age of 5-14, this rings of d

[Rachel--24]

PART 3

Autistic-spectrum disorders (ASD) affect one in 160 children in the United States and up to one in 80 in certain states.

Both complex and multi-factorial, the myth of ASD as a genetic disorder with no effective treatment or cure is being debunked by the biomedical community, which is using special diets, nutritional supplementation, and detoxification therapies to treat the underlying biochemical imbalances that perpetuate the behaviors of ASD children.

Part of the investigation involves an examination of the role of infectious agents in ASD. Certainly viruses such as human herpes virus 6, Epstein-Barr virus, and rubella have been discussed.

More recently, Borrelia burgdorferi, the spirochete bacteria responsible for Lyme disease, has come under more careful examination as a contributing factor in autism.

Borrelia burgdorferi (Bb) is primarily a tick-borne agent, although there is evidence of transmission via mosquitoes, fleas, and lice. Originating in the town of Old Lyme, Connecticut, Lyme disease is no longer the domain of New England, with increasing numbers of cases reported across the US.

Epidemiological studies investigating the link between Lyme disease and autism are underway. There is strong anecdotal evidence that some connection exists, based on interviews with several doctors who practice biomedical approaches to autism.

Such doctors--doctors who belong to Defeat Autism Now (DAN!), a domain of the Autism Research Institute--who have tested for Lyme disease nationwide, report 50-90% of children test positive. Clearly, further studies are needed to gain more objective and substantiated data; however, at face value, rates look frighteningly high.

The approach to Lyme/autism treatment must be three-tiered:

first, to support the immune system of the individual or "host" to strengthen their capacity to fight foreign invaders; second, to allow antimicrobials to reduce the infectious load on the system; and third, to address comorbid factors such as toxicity, nutrient imbalance, digestive dysfunction, and enzymatic defects such as poor methylation.

Note: The above approach is no different from my own treatment. The adults who are sick from Lyme/coinfections/toxicity/viruses/yeast/etc...are dealing with many of the same things identified in Autism.

The approach is the same...although in each case there are different toxins, infections, imbalances, defects, etc....different obstacles to overcome in each individual. Therefore treatment has to be tailored to that particular persons needs.

Lyme disease and autism share many of the underlying systemic imbalances that arise from infectious or toxic assault on the body. Many patients with either diagnosis show high levels of toxic metals such as lead and mercury.

Elevated mold antibodies are common, as well as methylation defects that can be effectively balanced with methylcobalamin therapy administered nasally or intramuscularly. Along with the dysbiosis that is so common, food allergies, gluten intolerance, and dietary peptide reactions also adversely affect the gut.

Dietary modifications are often necessary to remove stressors that can worsen symptoms and have behavioral ramifications.

A diagnosis of Lyme disease can be significant for an individual on the autistic spectrum. Even if antibiotics are not the treatment of choice, the infectious component must be addressed to optimize the total treatment regimen.

Lyme disease may be one piece of an already complex puzzle. It is impossible to say at this time how significant of a piece it is--whether it may be a primary causative factor or simply another layer of infection in a body with an immune system already compromised by heavy viral, bacterial, fungal, and toxic loads.

Regardless, families with dual-diagnoses are coming out of the woodwork. Mothers with fibromyalgia are testing positive for Lyme, as are their autistic-spectrum children, indicating placental transfer of the infection.

Further treatment regimens must be developed to address the totality of causative factors, including Borrelia and its co-infections. This is a potentially groundbreaking area in the future biomedical treatment of autistic-spectrum disorders.

Open Original Shared Link

The imprisoned thought that Lyme is only caused by a tick bite with a self-limiting rash cured by antibiotics within thirty days cannot be relied upon.

Let's get the "tick bite" out of our heads, once and for all.

We are finding that multiple family members with different presentations of Borreliosis complex are found within the family.

For example, members of Kathy Blanco's own family have connective tissue disorders, heart valve involvement, neurological neuroborreliosis involvement, hormonal involvement, gastrointestinal Lyme, and mitochondrial involvement of Borrelia--again, all within one family.

In my mind there is definately a link between Autism and Lyme...I've seen enough evidence of it. The fact that the adults with Lyme and the children with Autism also have high toxicity.....especially heavy metals...and multiple infections is also significant.

Both mercury and Lyme have the ability to interfere with detoxification and suppress the immune system...two things which could certainly result in triggering Autism.

If the Lyme is there first...it may make it impossible for the body and the immune system to cope with mercury in the vaccinations.

If the mercury is there first....then the immune system may be vulnerable to infections.

I think the fact that many of these kids are born with Lyme is very telling.

If they were exposed to BOTH Lyme and mercury in utero...then in my opinion the stage was already set.

Hopefully at some point all of this will be figured out but for now there ARE kids who are being treated by Lyme Literate MD's and are losing their Autistic traits...in some cases...coming off of the spectrum completely.

-Rachel

Dr. Klinghardt and Dr. Amy Derksen:

LYME: Every Autism child we have tested so far through Igenex has been positive!

[Rachel--24]

psssttt

just saying hello. had a good weekend....new meds are helping!

Great news LAURA!!

Its good to hear from you....was wondering how you were feeling.

[Rachel--24]

Rachel, I did read your posts about the hypercoagulation and the fibrin. I had inquired about all of the things that had anti-fibrin properties, did you have a list??

Sorry Julie...I didnt see your post.

Proteolytic enzymes used to break down fibrin:

Rechts Regulat*

Lumbrokinase*

Nattokinase*

Boluoke*

Wobenzym N*

Vitalzym X.

Bromelain

Carnivora

Mega Serrazyme

PR-390

Some of them are derived from soy...so be careful of that if you're sensitive.

The ones with asteriks are what most people use.

Bromelain is the least effective

I take Carnivora