Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

confused Community Regular

Kassandra,

Im so sorry things are not getting any better. I always sit here and think of everything you have been threw and it breaks my heart. I think an d n c would be the best thing for you, it isnt painful at all either.

Everyone,

I have an question. My magneium was high on the hair test. Well now everytime i try to take an detox bath i get really shakey and just feel off for a few days, Is there such an thing as too much magnesium.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
AndreaB Contributor

I'm sorry for all the stress of your iron counts on top of everything else. I'll be waiting for updates as you are able.

:wub:

confusedks Enthusiast

I'm really annoyed! I just looked over the blood work from last night and ughhh!!!! I AM anemic. All of my other iron numbers are low. I guess I should get an appt with Dr C, my hematologist.

I think I'm going to wait until tomorrow after we re-draw my iron and ferritin, etc.

Nora, I do have low T3 but we have been supplementing it. I will definitely look into all possibilities of the cause of PCOS. I know about Metformin being used because the insulin component of PCOS. Thanks for the links, I will read them. I've read quite a bit about PCOS, but the more info I have before tomorrow, the better.

Paula and Andrea, Thanks. :wub: This has definitely been hard, but I just have to get through it all. I'll probably end up in a psych ward after all of this. :lol: :lol:

CarlaB Enthusiast

What are you taking for T3 Kassandra? We just had to up my dose of Cytomel. My thyroid is doing better, but the T3 was still low. I'm on 5 mcg twice daily.

confusedks Enthusiast
What are you taking for T3 Kassandra? We just had to up my dose of Cytomel. My thyroid is doing better, but the T3 was still low. I'm on 5 mcg twice daily.

I'm taking Cytomel...the same exact dose as you. I don't know exactly what my numbers were for the T3, but they were very low. Dr H said we need to re-test after I've been on it for about a month or so...which is now. I need to try to remember when I see him again. :)

aprilh Apprentice

Hi Everyone,

Kassandra, Sorry for all you are going through. Hopefully, you'll get the iron iv's, get the bleeding to stop and then not have to go through this again.

Paula,

Do you think it was the epsom salt bath that made you herx?

We took my friend's 4 year old to the infectious disease doctor today. He was nice, but he didn't check for lyme. He did check for candida antigen - which I thought was good. I don't know much about checking for "antigen" but it sounded good! :lol: Plus a bunch of other testing.

I have a horrible sinus infection and my cheeks hurt! :(

I have been using the netti pot, homeopathic, plus taking raw garlic (stinky stinky) in an effort to kick this. I even went to acupuncture today. It just won't go away!

Any ideas?

ShadowSwallow Newbie

Guess who's got a Lil' Orange Juggy in her fridge? :ph34r:

I went to the allergist today and it was definitely a productive yet frustrating appointment. He went through and muscle tested which things were the most important for me (out of Lyme, Heavy Metals, Allergies, or detoxing biotoxins). They ordered out: Heavy Metals, Allergies, Biotoxins, Lyme. So I got a DMPS and Glutathonamine IV push.

During all this the person who does BioSet there (Matt) tested me for Sulfa toxicity/sensitivity, and I have it. He desensitized me to it, but it didn't work out for me to have an LED treatment for it. Mercury was the only metal that showed up as a problem in BioSet, so the Dr still expects to see some come out. If it doesn't then we'll just do another challenge after the LED. I'm working on convincing Mom and an LED is really important. And I suppose now I really have to pay attention to the sulfur talk. :P

It also turns out that despite my sulfur toxicity/sensitivity my body LOVES DMPS. :P

Kassandra, I'm really sorry that all of this is springing up on you so suddenly. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular

April,

I never thought an detox bath could herx, but that would make so much sense.

Kassandra,

When its time for an psych ward let me know and maybe we can be roomates lol

AndreaB Contributor
It also turns out that despite my sulfur toxicity/sensitivity my body LOVES DMPS. :P

Well that's good news! Hope you can get your mom to understand the benefits of the LED. :)

CarlaB Enthusiast

April, I always need to take some Benadryl to clear my sinuses out. How about colloidal silver?

Kassandra, 2 mg lunesta. :)

Rachel--24 Collaborator
Everyone,

I have an question. My magneium was high on the hair test. Well now everytime i try to take an detox bath i get really shakey and just feel off for a few days, Is there such an thing as too much magnesium.

Usually when magnesium is high in the hair its actually indicating that you're probably deficient. Most of us who are sick are usually needing more magnesium...not less. If your body was utilizing the magnesium it wouldnt be coming out excessively in your hair.

To be sure you can do a red blood cell test...that will tell you whether or not your levels are "truelly" high.

How much epsom salts are you using in the bath? You might need to cut back and work up to higher amounts gradually. If you're really deficient it could also be somewhat of a shock to your system to suddenly have alot of magesium coming in whenever you're doing the baths.

Another thought is chlorine. Do you ever take baths without the epsom salts? You might want to try that and see if you still feel "off" after the bath. If you're not using a filter for chlorine it can affect you just sitting in the bath and also breathing in the chlorine from the water. I think its recommended that a filter for chlorine be used when taking epsom salt baths.

I dont think an epsom salth bath would cause a herx though.

It also turns out that despite my sulfur toxicity/sensitivity my body LOVES DMPS. :P

Birdy, me too. I dont tolerate sulfur but my body LOVES DMPS......it wants/needs DMPS. I have never had a negative response to it either....but every sulfur containing supplement has tested poorly....and I have not responded well to the ones I tried.

I have to have DMPS by itself....no glutathione or anything else...just DMPS.

Nearly everyone with chronic illness/metals/lyme issues will benefit from the sulfa detox. Most people do have problems with it....which is why Dr. Cowden recommends it as the first LED treatment. People will do better with the other treatments once they've detoxed the sulfa.

Rachel--24 Collaborator

Kassandra...Sorry things are so rough right now. Its been one thing after another! :(

Hang in there...it will get better. Try not to get overwhelmed with everything and just deal with each thing as it comes. I think you're doing a great job of this already. ;)

mftnchn Explorer

Kassandra, my thoughts are with you, this is just so much to track. I think your set of doctors should video conference and work out a plan that takes some of the stress off of you. Also it seems like some close tracking and emergent decision making is warranted.

Hang in there, and so glad you are able to keep us posted.

I'm signing off to pack up my computer for the trip to the USA.

Sherry

confused Community Regular

Rachel.

The water here is still 2 times the chlorine limit. I do have an chlorine ball, but the last few days i havent felt like it was doing much good, even tho its only like 2 weeks old. I really dont think the chlorine ball is made for this high of level. My eyes have actually been burning while im in the bath to.

Im still only on like maybe 1.5 cups of epsom, if even that. I usually put in like 4 or 5 big handfuls.

I really think the water here is a big part of some of my problems. Im wondering if i just need to break down and have short showers, even tho i hate to shower lol

paula

Rachel--24 Collaborator
I really think the water here is a big part of some of my problems. Im wondering if i just need to break down and have short showers, even tho i hate to shower lol

Chlorine is really not a good thing. <_< I kind of feel like the bath ball isnt really sufficient so I do feel like its not removing enough of the chlorine. I use the ball at my moms house but at home I have the showerhead filter and I fill my bath from the showerhead....I think it works alot better.

I dont think its good for you to be taking baths in water that has high levels of chlorine....especially if you're already having detox problems. I would try to get a really good showerhead filter and only use that for baths and/or showers.

confused Community Regular

Even if you can

AndreaB Contributor

Sounds like a good plan Paula.

Rachel--24 Collaborator
Sounds like a good plan Paula.

LOL...are you agreeing that she should give up bathing?? :lol:

Well, I think her family members may object....unless of course she's planning on getting a showerhead soon! :P

Paula, in that case you'll probably have to make getting a showerhead a priority...so yeah....I agree too! No bathing until you get the showerhead!! :lol:

Nanjkay Apprentice
Kassandra, something I came across yesterday mentioned that PCOS is somehow connected to blood sugar problems .... you might Google that and see what you come up with. I can't remember where I saw it, but meant to mention it to you.

I hope you're feeling better.

Kassandra-

Hi...I am so sorry about what you are going through also. I did mention that I did have PCOS also. I haven't read up on it in a couple of years, but "they" wrote then that high insulin levels caused anovulation which causes the cysts.

Or insulin resistance, meaning, you eat, your body produces insulin, the insulin doesn't convert the blood sugar into energy, so the body produces more insulin and keeps pumping it out. Finally, the insulin starts to work and convert the blood sugar. But by this time you have EXCESS insulin floating around that has no place to go. Because the insulin doesn't do its job properly and GRADUALLY like in normal people, it can cause a drastic blood sugar drop especially if you go too long without eating. That is why, I eat every 3 hours whether I am hungry or not. If I go too long, my whole day is shot, I can never catch up and I have low blood sugar symptoms all day.

I hope you will feel better soon. On the days I feel best, I eat mini, well rounded meals every two - three hours.

Nancy

Nanjkay Apprentice
Chlorine is really not a good thing. <_< I kind of feel like the bath ball isnt really sufficient so I do feel like its not removing enough of the chlorine. I use the ball at my moms house but at home I have the showerhead filter and I fill my bath from the showerhead....I think it works alot better.

I dont think its good for you to be taking baths in water that has high levels of chlorine....especially if you're already having detox problems. I would try to get a really good showerhead filter and only use that for baths and/or showers.

Hi Paula and Rachel-

Where do you get the bath ball and where can you get a filtered shower head? i love my baths too, but i am having so many detox issues, I need to start removing the chlorine!

Nancy

AndreaB Contributor
Where do you get the bath ball and where can you get a filtered shower head? i love my baths too, but i am having so many detox issues, I need to start removing the chlorine!

I ordered my showerhead filter from Open Original Shared Link guy. You need to change the filter every 6 months and he sells those as well.

aprilh Apprentice
April, I always need to take some Benadryl to clear my sinuses out. How about colloidal silver?

Kassandra, 2 mg lunesta. :)

I have always been leary of taking any kind of metal. But I would be willing to try it. Is that a nose spray or do you take it internal?

Usually when magnesium is high in the hair its actually indicating that you're probably deficient. Most of us who are sick are usually needing more magnesium...not less. If your body was utilizing the magnesium it wouldnt be coming out excessively in your hair.

To be sure you can do a red blood cell test...that will tell you whether or not your levels are "truelly" high.

How much epsom salts are you using in the bath? You might need to cut back and work up to higher amounts gradually. If you're really deficient it could also be somewhat of a shock to your system to suddenly have alot of magesium coming in whenever you're doing the baths.

Another thought is chlorine. Do you ever take baths without the epsom salts? You might want to try that and see if you still feel "off" after the bath. If you're not using a filter for chlorine it can affect you just sitting in the bath and also breathing in the chlorine from the water. I think its recommended that a filter for chlorine be used when taking epsom salt baths.

I dont think an epsom salth bath would cause a herx though.

Good Points!

Rachel.

The water here is still 2 times the chlorine limit. I do have an chlorine ball, but the last few days i havent felt like it was doing much good, even tho its only like 2 weeks old. I really dont think the chlorine ball is made for this high of level. My eyes have actually been burning while im in the bath to.

Im still only on like maybe 1.5 cups of epsom, if even that. I usually put in like 4 or 5 big handfuls.

I really think the water here is a big part of some of my problems. Im wondering if i just need to break down and have short showers, even tho i hate to shower lol

paula

I purchased my shower head from my local health food store.

CarlaB Enthusiast

April, you can buy the silver in either form. :)

confusedks Enthusiast
Kassandra,

When its time for an psych ward let me know and maybe we can be roomates lol

:lol: :lol: I'll definitely let you know! LOL!

Kassandra...Sorry things are so rough right now. Its been one thing after another! :(

Hang in there...it will get better. Try not to get overwhelmed with everything and just deal with each thing as it comes. I think you're doing a great job of this already. ;)

I'm really trying hard to NOT get ahead of myself, but after today's appt, I'm worried.

confusedks Enthusiast

:(

Ugh. Really rough appointment. She started out by saying that she wanted to put me on some hormones to induce my period, so we could get the really thick lining of my uterus out.

Then as she looked over a 2 year old :o pelvic ultrasound, she realized that pills aren't an option...not aggressive enough. She said she wanted to do a D&C in about 2 weeks. Her concern is that the lining of my uterus is SO thick, that something is seriously wrong. She is going to send the lining to a lab to test for malignant lining. :( :( :(:unsure: She's worried I have uterine cancer. :( :cryface:

She was really upset at my old Gynocologist who *knew* about the lining being twice as thick as it was supposed to be, but didn't do anything about it.

The next step is talking to Dr H...he has to be on board and give a "go ahead" for the surgery. I called him right away and told him what's happening and that I need to hear back from him right away.

I just got a call from the Gyno's office and they said they already got insurance approval and they scheduled it. :( I'm FREAKED out!!!!! :unsure::wacko:

Finally, she said that because my uterus is heart shaped, while they're doing the D&C, they're going to "scope" my uterus to see how deformed (basically...) it is, and decide whether that needs surgery or not in order to correct it. :(

I'm really ready for all of this to be over. I'm scared out of my mind. I'm just trying to do the next indicated thing, like making the phone calls to the Dr's I need to call, etc.

The last thing, she ran all kinds of blood work (8 tubes! :o ) and I asked her to run what the Hematologist runs, and she did. We should get results ASAP. Then we have to see the hematologist and get more Iron IV's, if not before, definitely after the D&C because I will lose a bit of blood apparently.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,007
    • Most Online (within 30 mins)
      7,748

    mlaabs
    Newest Member
    mlaabs
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.