Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

AndreaB Contributor

Off topic.......I'll be gone this weekend so don't talk too much. :lol: I might go through computer withdrawals. :lol:

Leaving tomorrow morning. Not sure what time I'll be back on Sunday, probably afternoon sometime though. Don't know what I'll look like when I get back.......I'm being run all over town and getting a makeover.......my friend mentioned bringing flip flops so I don't ruin my toes though, :P Also going to dinner at a place that says they can handle gluten free. :)

You all be thinking of Mitch being left with the three kids for the weekend. Poor hubby. He's so excited for me to get away though.....much needed break.

What you all have said about food restrictions makes sense. I'm assuming more for those who are severly limited if they restrict reactive foods? They only thing we avoid is gluten (of course) and soy (cept for soy oil occasionaly and soy lecithin). I'm only really concerned about gluten eating out though, unless something says it has soy in it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
confused Community Regular

Andrea,

That sonds like so much fun. Are you going to post before and after pics. Im not sure hubby could handle all 5 kids with me gone overnight.

rachel,

I have been thinking about what you said about the food. I feel you are completely right. I think I am sometimes worse off cause im not eating everything like i was 2 years ago. I know im lacking calcium and other nutrients.

I also think when we give up a food for a long period of time (nomatter gluten, casein, soy, beans or what not), when we add it back to our diet, out bodies freak out. They feel like we are trying to poison them, and we react. I also think we tense up when we add a new food back in and our anxiety kicks in when we try that food again.

paula

CarlaB Enthusiast

Andrea, have a WONDERFUL time!! And, no conservative nail colors!!!!! I'm sure I speak for Donna in this, too .... you need to get a fun, wild color that you like .... and beige does not qualify! ;):lol:

And, yeah, pictures are a must. :)

I am feeling horrible. I feel like I have the flu. I've been reading a lot about Lyme and mold toxins and learned that they cause cytokines, as we have talked about before. I think that's part of the reason I have felt better on abx as I believe abx have anti-inflammatory properties.

I've been on pain killers all day. I am having Adam stop at Whole Foods on his way back home (out of town again) and buy me some curcumin. It's supposed to be as effective an anti-inflammatory as corticosteroids. Hopefully it will give me some relief.

Cholestyramine makes the inflammation worse in Lyme patients, and that is what I'm experiencing. I didn't take it today, and don't think I will take it anymore.

I read an article that peach tree extract (must buy online) is good for mold detox. If I weren't going to Germany in two weeks I'd order some. That might work for some of you. :)

CarlaB Enthusiast

From Kassandra:

I'm out of surgery and all went well. It turns out I have no narcotic pain receptors bcuz after trying IV morphine, IV darcovet AND IV fentanyl and I was still screaming in pain, they tried another IV non narcotic med and I finally was able to stop being in horrific pain.

Just wanted to update everyone!! :)

mftnchn Explorer

Good news, Carla, glad this is much better.

Andrea, how exciting! Both times with friends, and the makeover...I will want to see pictures! And you have Donna's EM to play with too.

Hoping for word about Kassandra...

I feel much worse today (fatigue/foggy/asthma) and hope the ecoffee helps. Put on a mosquito repeller (tablet on an electric thing) different than the odorless liquid we usually use. I starting really reacting--crazy how some stuff like that is deathly and others are fine.

However, the good news is that yesterday I think I resolved the almond problem and the almond grinding problem!!

CarlaB Enthusiast

Oh, heard more from Kassandra, she does NOT need a second surgery! No stone in the bile duct!! YAY!

confused Community Regular

Carla.

Thanks for the updates on kassandra. Im glad things are goign well for her. Too bad we all couldnt go surprise her in the hospital lol.

Ok I really stink the last few days. No matter how much i deodrant it and bathe, i still stink. I reallly hate this.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor
Andrea, how exciting! Both times with friends, and the makeover...I will want to see pictures! And you have Donna's EM to play with too.

However, the good news is that yesterday I think I resolved the almond problem and the almond grinding problem!!

I'm taking the EM makeup with me.....thanks Donna. :)

Glad you got the almond situation solved.

Hope you feel better by tomorrow. :)

Oh, heard more from Kassandra, she does NOT need a second surgery! No stone in the bile duct!! YAY!

Yay! Good news. That's scary about the pain meds. :ph34r:

AndreaB Contributor

Paula,

Hang in there! It will get better. :)

aprilh Apprentice
April I'd check and see if extra detox helps the symptoms. That may give a clue that is is toxin related.

True. Detox always helped me.

So, by that you mean ramp up on chlorella, activated charcoal, and zeolite?

I can try that.....plus I need to do a detox bath. I ordered some magnesium chloride flakes.

Today it seemed a bit better. Last night I took adrenal support, magnesium, and enzymes that fight inflammation.

I *think* the massage stirred up toxins and stressed the adrenals. I got flank pain a few times recently which is usually a sign my adrenals are stressed. Sheesh! Always something!

Rachel--24 Collaborator

YAY for the weekend finally getting here! :D

I need some rest...and I can finally catch up on the posts (again). :)

Kassandra, great news about the surgery going well. Thanks for the update.....and I'm really glad you didnt need another surgery! Hope you'll be able to post soon. :)

Andrea.....this is really AWESOME!! I'm so glad you're having this mini-get-a-way. :D

Enjoy it!!! You've definately earned a little time to pamper yourself. :)

I'll be praying for Mitch. :lol:

CarlaB Enthusiast
So, by that you mean ramp up on chlorella, activated charcoal, and zeolite?

I got great relief from coffee enemas, more than anything, that made it clear it was a toxin problem.

Chlorella, charcoal, zeolite, light exercise, sleep, etc. Anything that helps to detox.

Kassandra is on morphine but is still in a lot of pain, so keep her in your prayers everyone. She's one tough cookie.

Rachel--24 Collaborator
Kassandra is on morphine but is still in a lot of pain, so keep her in your prayers everyone. She's one tough cookie.

Awww.....I hope she feels alot better tomorrow. Yup....she is a really tough cookie....for sure! Tell her she's in my prayers. :)

mftnchn Explorer
So, by that you mean ramp up on chlorella, activated charcoal, and zeolite?

I can try that.....plus I need to do a detox bath. I ordered some magnesium chloride flakes.

Today it seemed a bit better. Last night I took adrenal support, magnesium, and enzymes that fight inflammation.

I *think* the massage stirred up toxins and stressed the adrenals. I got flank pain a few times recently which is usually a sign my adrenals are stressed. Sheesh! Always something!

Massage will overwhelm me with toxins too, especially if I do it twice in close proximity.

Carla, I am with you on ecoffee helping far more than anything else; not that the other doesn't help--I do it too!

mftnchn Explorer

Wonderful news about Kassandra, I was really worried about her needing such an invasive procedure. Hope the pain and inflammation now subsides quickly and no further reactions to meds and stuff.

Sherry

AndreaB Contributor
Kassandra is on morphine but is still in a lot of pain, so keep her in your prayers everyone. She's one tough cookie.

Yes she is and I will. :)

mftnchn Explorer

Me too. :)

nora-n Rookie

Good the gal stone procedure is over and went well, and I am sorry she was in such pain and the pain meds did not take. Some people have different receptors/cytochrome issues etc, there are some for example on whom some pain meds just do not work.

About inflammation, I experienced relief from back pain and shoulder pain from inflammation from LDN. Or, it could have been a combo, that the cortiosl from the adrenals stretched further, as cortisol is very anti-inflammatory too. When the immune system gets normalized from increasing the body's endorphins and metenkefalins, less cortiosol is needed, and it gues further, reducing inflammation. Just a theory to what happened to me.

I sometimes need to use a little hycrocortione cream, like on an arm or leg (yes, it all gets absorbed) , like after travelling or other things that use much cortisol. Otherwise I get the low cortisol headaches, brain fog(much better now) and salt cravings. Getting glutened with even tiny amounts is very stressful too. I eat everything else besides gluten and milk, so I think I get the things i need.

I often wake up towards the morning, I think it is from being on the low side re. thyroid meds. Really annoying.

nora

aprilh Apprentice
Good the gal stone procedure is over and went well, and I am sorry she was in such pain and the pain meds did not take. Some people have different receptors/cytochrome issues etc, there are some for example on whom some pain meds just do not work.

Nora,

What's LDN?

aprilh Apprentice

Glad Kassandra is doing a bit better.....

I am so glad the weekend is here. This has been a tough week!

Andrea, Have fun on your kid-free weekend! We all need those sometimes.

Tonight I woke up with the worst leg cramp. Then I almost passed out! :o Leg cramp woke me from a dead sleep and I jumped up out of the bed so fast. Then I got real dizzy and almost passed out!

The wierd thing was that my calf was cramping, then the front of the same leg started cramping. So, It didn't matter which way I stretched it out - it just kept cramping and it wouldn't stop. I couldn't walk or anything. I haven't ever had it happen that way before.

I figure maybe I am dehydrated or something so I got up - finally after laying back down to avoid passing out :o - I made some cal/mag fizz since it has lots of trace minerals and potassium along with the calcium and magnesium.

It's the middle of the night and I am up drinking this slowly. I do NOT want that to happen again!

mftnchn Explorer

April, I had that happen quite often for a period of time. It was horrible. I think you were doing the right thing to take the cal/mag.

Something weird but that helped me was putting a bar of soap in the bed under the sheet near my feet. No one seems to know why this works but I wonder if it has to do with the electric charge or something.

The other thing was sipping tonic water. But I bet your cal/mag would do the trick for that too. Maybe an epsom salts bath if nothing else before bed might work.

This has all stopped for me, so is no longer an issue. It stopped pretty much after putting the soap in my bed. It has been there for a couple of years, LOL. I took it out just today and figure I no longer need it. We'll see. :)

Jestgar Rising Star
Something weird but that helped me was putting a bar of soap in the bed under the sheet near my feet. No one seems to know why this works but I wonder if it has to do with the electric charge or something.

OK, this is really weird. Is it a specific kind of soap? Natural? Unperfumed? I read once that not having tightly tucked sheets helps, so was it a big bar? Maybe it gives you more room so your toes don't point?

mftnchn Explorer

Well I laughed out loud when I read it but read it repeatedly on the net. There is one type of soap that doesn't work according to many but can't remember which brand. I finally decided couldn't hurt to try, and it seemed to help significantly. I've only rarely had a spell since, and not as severe. I am sure it wasn't giving my toes more room--putting my toes outside the covers made no difference.

CarlaB Enthusiast

The tumeric/curcumin Adam bought me last night seems to help with the inflammation. I didn't need a third pain killer yesterday. We'll see how it does today.

Nora, is that cream cortisol? I've never heard of it. It's not like hydrocortisone is it? I can't take anything with a steroid.

I have heard of the soap thing many times, LOL. Doesn't it help with RLS?

April, sounds like you had a charlie horse. My husband used to get those, I don't know what stopped them. The reaction to jumping out of bed too fast sounds normal. :)

aprilh Apprentice
April, I had that happen quite often for a period of time. It was horrible. I think you were doing the right thing to take the cal/mag.

Something weird but that helped me was putting a bar of soap in the bed under the sheet near my feet. No one seems to know why this works but I wonder if it has to do with the electric charge or something.

The other thing was sipping tonic water. But I bet your cal/mag would do the trick for that too. Maybe an epsom salts bath if nothing else before bed might work.

This has all stopped for me, so is no longer an issue. It stopped pretty much after putting the soap in my bed. It has been there for a couple of years, LOL. I took it out just today and figure I no longer need it. We'll see. :)

Sherry,

I have actually heard of that before. My co-worker runs marathons and constantly gets leg cramps. She says the soap has helped her more than anything. She also drinks the tonic water.

I felt a little better after the cal/mag. I think I went all week without drinking enough water. Then last night I had a glass of wine. i think that finished dehydrating me.....So, today my goal is to work on REHYDRATING!!!

Today is the convention....I think I am going to have to take my 2 kids by myself.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,963
    • Most Online (within 30 mins)
      7,748

    AlissaW
    Newest Member
    AlissaW
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.