Omg...i Might Be On To Something

[VydorScope]

Sort of Vincent except not a web page. Hmm I think I'm too tired to figure out what I'm trying to say. I'll just put it on the avatar. When I get a chance....

The admin here have disabled any display of pictures other then the avatars and photo in yout profile.

[jenyanderson]

The admin here have disabled any display of pictures other then the avatars and photo in yout profile.

Ahhh Ok Well that explains it...I wanted to show DingoGirl (can't remember her name) the pictures of the doggy door I put in. Just in case she was interested in it. The picture is too big to put on the avatar. ah well. These are my kids at the Baltimore Zoo.

[Rikki Tikki]

I see what you are saying Jennifer. Maybe you can Im or email the picture to her?

[jenyanderson]

I didn't think about that..good idea!

I was just sitting outside and the theme song to Mr Roger's Neighborhood stuck in my mind. UGGGGG!!!

[rinne]

OMG....that's not a real place, is it? wasn't that a term coined by some political pundit? Is this Calgary??? Do fill me in.....help me not to be so dumb.....

Yes, a political pundit did coin the phrase and it was meant as an insult but some of us up here find it hilarious, I'm one of them. I'm in Winnipeg, Manitoba, Canada which is above North Dakota. I would like to know what you are finding out about the connections between Celiac, mind and emotions.

Ohhh and like to add that NOW I am only on 2.5 mgs of Lexapro... and Xanax if needed...BUT, I haven't taken any of the Xanax lately... at times I've thought about it, expecially late at night and in pain... but what I do is get my frozen box of spinach and sit and read all the wonderful posts here.

Cecile, I am so glad that you have been able to reduce your medications and who would have thunk spinach could be so versatile? I can just see you telling your doctor that you have substituted spinach for Xanax.

This thread is so helpful. I was fine with the ice cream, in fact I woke up with a happy feeling in my body which is rare for me. I'm not going to do it again for a little bit because I don't think the sugar is good for my arthritis but it was soooo nice to feel like I could eat icecream. Thanks Rachel. Then this afternoon I tried a bowl of Nature's Path Puffed Rice with a little almond butter and I felt nauseaus and I was sneezing and then I slept for 4 hours.

My sweetie was saying he is grateful for Rachelville because he feels so lost at knowing what to do to help me and he can see that I am getting better and that this place is helping me to.

[Rikki Tikki]

Oh Susan:

Did you give me wrong directions? Did I get lost someplace on the way to Rachelville? I might run out of gas before I make it to the next town.

[Canadian Karen]

Well, just popped into this thread and the first unread post was #964, so there is no way in heck I am going to be able to catch up here!

In regards to posting pictures, what you need to do it download the picture on www.villagephotos.com, then copy the link to here (copy and paste)......

Example:

Here is a pic of Rhiannon:

http://img.villagephotos.com/p/2005-12/111.../soccergirl.webp

Hope this helps.....

Karen

[Rachel--24]

I would like to add that in my opinion, what is more difficult then healing one's own body is healing one's own broken heart. I would like to commend Susan on her strength and her most wonderful humor thoughout her trials and tribulations.

So true Celia...more wise words from you today.

Susan is doing a much better job at "healing" than I did. My heart broke 3 years ago and its been a really slow healing process. I think I might be almost over it now. My friends from Rachelville are helping me with this. Actually Andrea said she will do anything for me to not contact my ex. Thats why she gave me her number....dont call the ex...if you feel the urge call me!! I'm thinking she really wants me to move on.

Andrea's the best!

The only science you'll get from me is.....lemme think......the latin names of plants. And maybe, identification of flora and trees in the wilderness.

ROFLMAO!!

Yeah Susan...I can see how that info. will come in real handy for me next time I'm dealing with Auxigro or mass amounts of histamine raging through my body.

[jenyanderson]

Well, just popped into this thread and the first unread post was #964, so there is no way in heck I am going to be able to catch up here!

In regards to posting pictures, what you need to do it download the picture on www.villagephotos.com, then copy the link to here (copy and paste)......

Example:

Here is a pic of Rhiannon:

http://img.villagephotos.com/p/2005-12/111.../soccergirl.webp

Hope this helps.....

Karen

Thanks!! that's what I was looking for!

[evie]

Well, just popped into this thread and the first unread post was #964, so there is no way in heck I am going to be able to catch up here!

In regards to posting pictures, what you need to do it download the picture on www.villagephotos.com, then copy the link to here (copy and paste)......

Example:

Here is a pic of Rhiannon:

http://img.villagephotos.com/p/2005-12/111.../soccergirl.webp

Hope this helps.....

Karen

Karen..your Rhiannon is a sweetie, how old is she? I am keeping up but barely. for a sunday has been more activity than usual. not everyone has been out trimming berry bushes and whatever like Rachel. I save my outdoor garden watering for cooler evening. See you all tomorrow!! evie

[Rachel--24]

Rachel, are you going to the Celiac conference in Stanford in September? I will be there, we're recruiting now, you know, more people from the cult farm......

I saw a thread about this. I never checked it out though. I need info. Sounds like it would be fun if some of the cult farm residents meet there!! Cool....I wanna go.

I drank soooo much water today...I dont think I could possibly be dehydrated. I just got in and showered and feeling relaxed in the a/c 'd house. Well you probably wouldnt be so relaxed here....my a/c is set at 83 degrees. Just the way I like it.

I was thinking I got really dark working out there today...was pretty happy about it too. I lost my "tan" in the shower though....turned out it was dirt. At least I got alot accomplished but man...this week I'm definately calling a gardener. My arms look like I went through a war.

Wow I never equated bloody scratched up arms with having "a great weekend". I'll have to remember that Susan. Tommorrow when they ask me what the heck happened to my arms I'll just proudly hold out my arms and say "I had a blast yesterday...cant you tell!"

Im lost... but I am running low on spoons cuase Im a freaking stupid idiot so thats prbly why... I'll just rejoin you in a few pages....

I have no freakin idea why I'm laughing at this cuz I have no idea what it means.

I must admit...I never looked at Chelse's link about spoons...so all this time I'm totally lost when the "spoon thing" comes up.

Somebody help me understand so next time I can "get" the joke. Or is it a joke?? I'm soooo lost.

Rcahel -- Keep up the gardening. I just spent most of the afternoon pulling weeks and steaking up my sunflowers. A few of them were leaning over, and since they are almost 7' tall I don't want them to fall over.

OMG...7' tall sunflowers! I've never seen such a thing.

My sweetie was saying he is grateful for Rachelville because he feels so lost at knowing what to do to help me and he can see that I am getting better and that this place is helping me to.

Awww....what a sweet thing for him to say. I'm glad you're feeling better. YAY for ICE CREAM!!!!! Good idea about not going overboard. I'd be doing the same...except....well, I've gotten a bit out of hand already. I dont know if I can be stopped at this point.

I'm soooo happy you didnt get sick though...I was worried I had become a bad influence!

[Clark Bent as Stupor-Man]

this might have already been discussed but there's about 208 too many pages for me to look through and probably hundreds of conversations as well..

rachel (or anybody else with similar concerns), I've seen you mention you thought you were reacting to different supplements you were taking... did all of these supplements have an identifiable ingredient (ie. dairy, a corn ingredient, soy, etc.)?

I have a number of supplements I've been taking on and off for months and I've never been too confident in them though I can't say that I'm necessarily reacting to any of them either... for the past few months, all the supplements and vitamins I've taken have been top of the line companies (pure, thorne, klaire labs, metagenics)... all of the supplements I'm taking currently specifically say no corn, gluten, casein, soy, yeast, etc.... has anyone reacted to a supplement that was similarly stated to be devoid of such allergens, and if so, do you know why you reacted? or should I just take these supplements without concern since there should be nothing in them I could have a problem with...

[Rachel--24]

I think you're lost because I took over for a few posts and we got totally off scientific and dietary issues

LMAO

What else is new???

BTW....what is the story with "R". Did I miss that post?? Was I "absent" the day everyone learned of Robert???

How come I dont know whats going on??

I recall stories of a singer you dated....I dont think that was Robert though?? Ummm...actually I'm probably the only here who's so oblivious...but I didnt know who the singer was either. Should I know this?? Julie knew who he was and she is younger than me.

I am sooo lost today.

[rinne]

I must admit...I never looked at Chelse's link about spoons...so all this time I'm totally lost when the "spoon thing" comes up.

Here's what I understood from the link, a young woman with lupus was trying to explain to a friend of her's what it was like to be chronically ill, they were sitting in a restaurant and she gathered together a number of spoons and used them to illustrate how much energy she had and how each task took a "spoon" to complete. This then became the "spoon theory". I'm sure others can add to this and correct me if I am in a fog.

Rachel, you are a fabulous influence in my life as is this whole Rachelville Community.

[Rachel--24]

for a sunday has been more activity than usual. not everyone has been out trimming berry bushes and whatever like Rachel.

Yeah...apparently I'm the only one dumb enough to be doing this today in the blazing heat.

Everyone else is sitting in a/c'd houses, sippin lemonade, reading magazines and watching movies with their feet up.

[Green12]

BTW....what is the story with "R". Did I miss that post?? Was I "absent" the day everyone learned of Robert???

How come I dont know whats going on??

I recall stories of a singer you dated....I dont think that was Robert though?? Ummm...actually I'm probably the only here who's so oblivious...but I didnt know who the singer was either. Should I know this?? Julie knew who he was and she is younger than me.

I am sooo lost today.

oh please, you have 1 stinkin year on me jk of course.

I don't know about Robert either, I don't think I was on the board then, or if I was I totally missed those posts. All I know is, Robert=he who broke Susan's heart.

The Johnny Rivers dude, I had to google him to find out who he was

Hello and welcome to all the new peeps <------official Rachelville greeting business

[Rachel--24]

Rachel, you are a fabulous influence in my life as is this whole Rachelville Community.

Rinne,

You made my day! Very sweet.

Thanks for explaining the spoon theory and bringing me out of the dark.

Its past my bedtime now so gotta say g'nite.

See everyone in R-Ville tomorrow!!!

[Green12]

this might have already been discussed but there's about 208 too many pages for me to look through and probably hundreds of conversations as well..

rachel (or anybody else with similar concerns), I've seen you mention you thought you were reacting to different supplements you were taking... did all of these supplements have an identifiable ingredient (ie. dairy, a corn ingredient, soy, etc.)?

I have a number of supplements I've been taking on and off for months and I've never been too confident in them though I can't say that I'm necessarily reacting to any of them either... for the past few months, all the supplements and vitamins I've taken have been top of the line companies (pure, thorne, klaire labs, metagenics)... all of the supplements I'm taking currently specifically say no corn, gluten, casein, soy, yeast, etc.... has anyone reacted to a supplement that was similarly stated to be devoid of such allergens, and if so, do you know why you reacted? or should I just take these supplements without concern since there should be nothing in them I could have a problem with...

Hi Clark Bent,

I have taken supplements from the same companies you list here, metagenics, pure, etc., and while I don't think I was reacting to any hidden ingredients (i.e. dairy, gluten) they became problematic fro me. I took a trial run without them and noticed I actually felt better without them. In this thread (100s of pages back) for example, we had a discussion about how MSG in its hidden forms are found in a lot of supplements, or that they can be derived from corn but and yet the label regulations allow them to label it 'corn free'.

Some of the others might have additional thoughts/comments to add to this.

[Guest Robbin]

Hi everyone. I can't believe how much I missed in a day. Geez, a new man in Susan's life, Andrea lost then found, brown-outs, Vincent ran out of spoons (hope you are ok), Ryan-I forgot what I wanted to ask you but hey congrats on the sunflowers--one of my favorites You must leave some flower heads dry for the birdies! I think there was an international spiff here too while I was gone Nikki-uk-we need your services in Rachelville!! Don't you have a relative with celiac? Welcome new citizens Susan, Susan, Susan, we LOVE your humor and don't ever think otherwise. Cissie-I feel like I know you --are you related to me? Our hubbies certainly are of one mind.

On a serious note--I am worried about the whole eye thing too. Had a visit Fri to the surgeon, I thought the lenses were clouding over or a detached retina, but he said the retina looked ok, but my vision is getting bad again after being pretty good right after the surgery. I broke out in hives from the drops to dilate, and he had me use the prednisone drops 4 times Fri night and keep up 2 times a day and wants me to come back next Fri. The whole thing is upsetting me so much. I knew I couldn't see as well again and when the tech had me read the chart I couldn't believe it. I asked her if I could read the lines before and she said yes, and I couldn't help it, I just started tearing up and crying. I didn't bluther, but I was shocked. Enough whining-----(sorry) Cissy, I have been to so many drs. over this, I don't know who to turn to next. The dr. I am seeing is a surgeon-he is #6 I think (lost count).

I was searching in the 'related illness' topics for a thread that was started about a month or so ago regarding a type of hives and it was recommended by someone to try cortislim-to reduce cortisol levels to help with the hives-some itch and some are painful-well, I think Julie's post clinched it for me-thank you , Julie, last week I bought some cortislim and I took one Saturday and wow, I am not joking, within a hour and a half I felt so calm, no itching, no food craving, totally headache free. I definitely will continue this, not only for the adrenal calming and lessening of histamine symptoms, but for the related food/sugar craving (which is totally gone!!) I am forever thankful to whoever posted that advice on the thread and I hope they read this. I also hope that this information helps you all in some way, because I think the adrenal function IS the key to the histamine levels and it makes sense that we have so many thyroid problems as well since the adrenal function is so important to the thyroid function. I am hoping the adrenal healing will help my thyroid and in turn help with everything else, including the eyes. Thank you all for the wonderful help you keep bringing me, and Rachel --thank you for the relentless searching and your sharing on here.

[Canadian Karen]

Karen..your Rhiannon is a sweetie, how old is she? I am keeping up but barely. for a sunday has been more activity than usual. not everyone has been out trimming berry bushes and whatever like Rachel. I save my outdoor garden watering for cooler evening. See you all tomorrow!! evie

Rhiannon is 7 - she will be 8 in September. Her face is painted because we had the kids to the circus that day. The black strap is her immobilizer she has to wear because of her broken collarbone. It's healing nicely except for the fact that she was playing tag today with Daniel and they collided and Rhiannon went down - ON THE BAD SHOULDER!!!! So she's a bit sore tonight..... Hopefully not too much of a setback.

Hope all is well......

Karen

[DingoGirl]

Ok, Susan:

Here I am, but where did everyone else go? DO I have B.O.? What?

where am I

Welcome Sally! Everyone say hi, we have a new member (I recruited her from another thread)....where you are is Rachelville, it's a gluten-free paradise Cult Farm, there's a University, it's close to the ocean and a lake, somehow, I think.....all the ice cream you can eat, protective geese and dingos to guard us and our crops....I think....so much more.....everything's magical and perfect and even time exists in its own separate vortex.....

And we are lunatics!!!

Now must continue reading...premature posting, again.....

Ahhh Ok Well that explains it...I wanted to show DingoGirl (can't remember her name) the pictures of the doggy door I put in. Just in case she was interested in it. The picture is too big to put on the avatar. ah well. These are my kids at the Baltimore Zoo.

Oh, how thoughtful of you Jeny! But the thing is, I actually DO live in Pleasantville, a gated community of staid and quiet composure (they're from Stepford, I'm pretty sure).....any construction, seriously, must be approved by the committee, and it ain't R-ville here....you see, the door to the back yard is a sliding GLASS door, so no construction possible. Or financially feasible. I have heard about those things you can put in sliding glass doors for dogs, however, Tika is kind of psycho, and I think that would scare her, she, um, can't walk on TILE FLOORS any more and wierd things like that....demented Celiac dog.....

But thank you anyway!!

now continuing to read again.....

Yeah Susan...I can see how that info. will come in real handy for me next time I'm dealing with Auxigro or mass amounts of histamine raging through my body.

well at least I could steer you away from poison oak....am rather an expert in that area....

[rinne]

Charlie, I am also one of the people who stopped taking any supplements as a result of reading this thread and the information Rachel posted about MSG. I have felt better for not taking them, the sensation I had was a burning running in a diagonal from right to left across my abdomen, similar to being glutened. The supplements were all gluten free, dairy free....expensive, quality I can't say. I definitelydo not trust gelcaps.

I was talking with a friend, her husband has Crone's and she worked in Health Food Stores for over twenty years, she recommends liquid vitamins when we are ill. She said the other ones are just to hard for our bodies, when they are inflamed, to digest. I'm going to look into it because I am concerned that I am not getting all the nutrients I need.

I've been wondering how many people go through gluten withdrawal, I'm particularly thinking of night sweats because mine are gone. I had been relating them to menopause and now I am not so sure. I was reading another thread tonight about someone coming off a drug and it sounded like they were experiencing withdrawal and I was wondering if the night sweats were part of gluten withdrawal and why if you simply stopped poisoning yourself you would go through withdrawal. Does anyone have any ideas?

[DingoGirl]

I recall stories of a singer you dated....I dont think that was Robert though?? Ummm...actually I'm probably the only here who's so oblivious...but I didnt know who the singer was either. Should I know this?? Julie knew who he was and she is younger than me.

I am sooo lost today.

oh my how far we have drifted off topic now......even our president and founder is lost.... I think NO FURTHER discussion is needed on any men in my life....and NO there is NOT a new man! Just a fellow Celiac. Don't y'all gitcher undies in a bunch, now......

But yes, there was a singer, I thought we might have our retreats at his property in Big Sur, except that would entail talking to him, which I prefer not to do.....

we will now leave this topic.

[rinne]

The whole thing is upsetting me so much. I knew I couldn't see as well again and when the tech had me read the chart I couldn't believe it. I asked her if I could read the lines before and she said yes, and I couldn't help it, I just started tearing up and crying. I didn't bluther, but I was shocked. Enough whining-----(sorry) Cissy, I have been to so many drs. over this, I don't know who to turn to next. The dr. I am seeing is a surgeon-he is #6 I think (lost count).

Robbin, my heart goes out to you. This is not whining, this is a place to share these feelings.

[DingoGirl]

Hi Julie, Rinne, Karen, Clark Bent, Evie, anybody I missed? so so tired.....

the spoons.....chelsea is goign to have to give that link again, it was quite good, and too many chapters back to search.

ROBBIN - - - OMG, I am so sorry about your eye problem and having to meet YET ANOTHER surgeon??? Oh, dear, will pray for that....this sounds terribly frustrating......

Rachel, there is a thread about the Stanford Conference wiht a link - I started the thread - but would require you leaving R-ville for just a second to check it out...

Celia - - - my goofball in Florida - - -

Everybody, good night, sweet dreams to all, and yes, this thread is just a hoot, and full of information, but not only that, a balm for the soul.

Nighty-night.....