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Omg...i Might Be On To Something

Rachel--24

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mftnchn Explorer
mftnchn
Posted

Me, too, Kassandra, and hope things start looking up very soon.

Sherry

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AndreaB Contributor
AndreaB
Posted

Kassandra,

I'm glad you got through the proceedure ok. That is alot of meds to take before noticing a difference! :o

Hoping for good results next week......I'll be looking for an update, as always. :)

AndreaB Contributor
AndreaB
Posted

Sherry,

How long til results on the metabolic panel? Sounds like a promising doctor. :)

confusedks Enthusiast
confusedks
Posted
I am taking Mepron, Zith and another anti-biotic called Omnicef.

I was on that combo for a while. Omnicef is the oral version of Rocephin (IV). They give it to a lot of patients in conjunction with other meds. My LLMD explained it saying that it would make the other meds work better.

He put me on it to see if I was allergic because it is related to penicillin (which I am allergic to...) and I did fine. The main reason he said he put me on it was to see how I reacted because he wanted me to go on IV. BUT, lots of people don't go on IV after having been on Omnicef.

Green12 Enthusiast
Green12
Posted
I made it through!!!! :)

Kassandra, I don't know how I missed this! Sorry :(

I'm so happy that part is over for you and yikes about the pain afterwards, but I'm glad it has subsided.

Hope you get some rest :)

Ridgewalker Contributor
Ridgewalker
Posted
I recently looked into the Marshall protocol and decided it was not a safe option for me. The one situation where I might consider it though, would be for Sarcoidosis. This is a condition where there is a problem with Vitamin D regulation apparently as part of the disease process. Even so, you'll need to do a lot of research. The forum for the protocol is very strict about allowing only the very positive mainline view of the protocol to be mentioned. Thus, you don't read there about any of the problems. Some people who have tried it have become even more ill. Marshall himself is I think, a sarcoidosis patient, and is not a doctor--he's an engineer. He developed the approach by using computer simulation.

I found this link especially helpful for thinking through the science of the protocol. Open Original Shared Link

For me, I think the answer is the opposite--I badly have needed Vitamin D supplementation.

Sherry

Thanks for the link, Sherry! I have read that the protocol study forum tends to ban people who criticize or challenge the protocol. That bothered me for obvious reasons. Then there's an active, thriving Sarc forum who takes the opposite view-- they're so against the Marshall protocol that the admins delete any posts even mentioning it! That bothers me, too.

I'm just starting out in researching Sarcoidosis and treatment methods, and I'm already finding the info out there to be a minefield of contradictory and controversial opinions...

What causes it? What secondary issues are caused by it? How do you diagnose it? Can it be cured, or only be put into remission? Nobody really agrees on the answers to any of these questions. Add that to the fact that most Sarc patients go years and years before being diagnosed, and it begins to remind one of another disease many people here are fighting... (Sigh.)

Green12 Enthusiast
Green12
Posted
Thanks for the link, Sherry!

Sarah, I missed your original post too. I don't know anything about the protocol to give any advice or suggestions. I hope you find out some information that can help your mom :)

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CarlaB Enthusiast
CarlaB
Posted
I was on that combo for a while. Omnicef is the oral version of Rocephin (IV). They give it to a lot of patients in conjunction with other meds. My LLMD explained it saying that it would make the other meds work better.

He put me on it to see if I was allergic because it is related to penicillin (which I am allergic to...) and I did fine. The main reason he said he put me on it was to see how I reacted because he wanted me to go on IV. BUT, lots of people don't go on IV after having been on Omnicef.

My LLMD has me on Cedax, which is in the same family. He used that rather than Omnicef because they are very similar but Cedax is easier on the stomach. I probably will not need IV, so Kassandra is correct ... it was used that way for her, but many do very well on it. :) It's a good drug.

I wonder, Kassandra, why it makes other meds work better? It's a such a good med to be considered "secondary." :huh:

Sarah, sorry, I don't know anything about it. :(

rinne Apprentice
rinne
Posted

Hello all. :)

It is good to see everyone here.

I am still working seven days a week and my life has been consumed nearly entirely by the restaurant. The good news is I am having fun and I am making money and I am selling rinne bars though I am very low on them right now. :rolleyes: I ate too many. :lol:

Question, has anyone looked into MMS, (chlorine dioxide), or used it?

Last night I visited with a friend who has esophegeal cancer, a very late diagnosis and he is now on palliative care. He is doing the conventional but also various alternative treatments and is hoping to extend his life for as long as he can.

mftnchn Explorer
mftnchn
Posted
Sherry,

How long til results on the metabolic panel? Sounds like a promising doctor. :)

Not sure, I'll go over to Providence tomorrow for the blood draw. Yes, I think this is a promising connection. She's quiet and soft spoken, but really seems accepting of the approach and wants to review everything. Got the sense she wants to learn from this too. Not sure how much she'll contribute but am glad to have a PCP that will be a team player.

Sherry

mftnchn Explorer
mftnchn
Posted
Thanks for the link, Sherry! I have read that the protocol study forum tends to ban people who criticize or challenge the protocol. That bothered me for obvious reasons. Then there's an active, thriving Sarc forum who takes the opposite view-- they're so against the Marshall protocol that the admins delete any posts even mentioning it! That bothers me, too.

I'm just starting out in researching Sarcoidosis and treatment methods, and I'm already finding the info out there to be a minefield of contradictory and controversial opinions...

What causes it? What secondary issues are caused by it? How do you diagnose it? Can it be cured, or only be put into remission? Nobody really agrees on the answers to any of these questions. Add that to the fact that most Sarc patients go years and years before being diagnosed, and it begins to remind one of another disease many people here are fighting... (Sigh.)

Yes, I get this sense as well. There are extremes for sure. I am not dealing with sarc so I didn't delve into it too much. I think I'd google and look at any forums that post stuff. Some of the people that didn't do well on Marshall have been pretty low key because there have been some threat of suit for posting anything critical of Marshall. But if you are patient there are some things out there and maybe you can PM people to ask. I am afraid it will take a lot of research. Some on Marshall seem to report significant improvement though.

Sherry

aprilh Apprentice
aprilh
Posted
Hi guys! How's everyone been?

A couple of you already know, my mom was recently diagnosed with Sarcoidosis. We don't know yet what organ systems it's currently affecting. She was diagnosed by biopsy of a growth on her leg...

So we know about that, and from what I've heard, it seems that almost everyone with Sarc has lesions of varying degree on the lungs... other than that, we're still waiting for her to get in for testing.

She has symptoms in various systems, but now we don't know what symptoms can be attributed to Sarc, and which are from Candida, which she is still battling.

I thought I'd ask you all what you've come across in your research of autoimmune diseases.

Also, she mentioned that she's found that some Sarc patients use the Marshall protocol... and I know I've read that mentioned in here. So I thought I'd ask about that, too.

If you all could share what you know, I'd appreciate it! :wub:

The frequency specific microcurrent machine i posted about earlier is used for Sarcoidosis.

Here is a link :

Open Original Shared Link

It helps soften scar tissue and in some cases it dissapates.

confused Community Regular
confused
Posted

i just wanted to pop in and say hi to everyone. I have skimmed the post from the last few days but dont have much to respond to.

I have been having a few good days the last few days and im hoping it will last. Last night i did the detox pads and took some charcoal at 5 am. And today i woke up feeling great. I have pulled weeds, painted some and I also did something i have not done in years. I borrowed my sons bike and went for a small bike ride with the kids. I am going to go buy my own once hubby gets off work. Last night we went to an concert then took a walk around the park. Hubby is so happy when i have good days lol.

I havent started my enzymes yet. But once i do I will report how they work.

Lisa,

I seen your post on zeolite. Would that be something that would be good to move arsenic out. I am highly arsenic toxic and I want to move it out at slowly.

paula

Ridgewalker Contributor
Ridgewalker
Posted

Thanks, Sherry and April!

Guest tamedandfoxed
Guest tamedandfoxed
Posted
I made it through!!!! ......

GOOD TO HEAR!! I hope the pain is gone now!

Nancy, zeolites cavities are negatively charged compounds attracting and capturing for elimination toxins and other harmful substances like free radicals.. The elimination of these toxins allows the body's cells to stay functional and repair themselves when damaged....

so... is taking zeolite good for everyone? or specific for certain types of treatment? i'm a bit confused.. sounds like great stuff though..

Sherry-- I've passed on the info for translation, she'll get to it soon, she just started teaching classes this week though, so it may be awhile, but i have a hunch it'll be sooner rather than later, i'll post!

All-- I called the Dr today.. I can't do anymore of this antibiotic. the yeast in my sinuses and in my tummy is making me so anxious.. not only in the moment but just thinking about how damaging it is to my system.. so hopefully she'll call soon. the nurse says she might just have me go on this drug called "elavil" which is actually an anti-depressant but apparently works to calm nerve endings... weird.. we'll see.

xo

AndreaB Contributor
AndreaB
Posted

I hope you can get something that works for you Katy. Sounds miserable. :(

Guest tamedandfoxed
Guest tamedandfoxed
Posted
I hope you can get something that works for you Katy. Sounds miserable. :(

thanks Andrea! I hope so too!

tabasco32 Apprentice
tabasco32
Posted
I seen your post on zeolite. Would that be something that would be good to move arsenic out. I am highly arsenic toxic and I want to move it out at slowly.

paula

Yes absolutely.

tabasco32 Apprentice
tabasco32
Posted
GOOD TO HEAR!! I hope the pain is gone now!

so... is taking zeolite good for everyone? or specific for certain types of treatment? i'm a bit confused.. sounds like great stuff though..

Yes it's good for everyone, health and sick. There is no specific type of treatment. All it does it eliminate toxins and metals from the body. It does not negate the effect of other treatments. It can be taken with anything.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I have been having a few good days the last few days and im hoping it will last. Last night i did the detox pads and took some charcoal at 5 am. And today i woke up feeling great. I have pulled weeds, painted some and I also did something i have not done in years. I borrowed my sons bike and went for a small bike ride with the kids. I am going to go buy my own once hubby gets off work. Last night we went to an concert then took a walk around the park. Hubby is so happy when i have good days lol.

HOORAY for good days Paula!! :)

I'm happy when you have good days too....it makes me smile. :)

I enjoy reading about the fun stuff you do with the kids....and now you get to go buy yourself a bike! YAY! I'm sure the kids love it when you're feeling good too. :)

Lisa,

What can zeolite do about phenols?? Anything?? I need something to get rid of them. I wonder if theres any type of binder that works for phenols. :unsure:

Mia,

Did you ask me about charcoal awhile back?

I'm not taking any binders....I havent for awhile now. Its mainly because they all give me phenol reactions....they're all from vegetable sources....I cant even handle magnesium stearate....and its in freakin everything!! Why?? Why do they have to use vegetable sources for everything!! :rolleyes:

I can tolerate charcoal at times....it just depends on how high my phenol load is. The only way I could probably be ok with taking it daily is if I were to go SUPER strict with my diet....and that just aint gonna happen. :P

If I'm gonna push the limit....I'd rather it be something tasty (like cinnamon rolls :D ). Charcoal isnt high on my 'yumminess' list. :P

I also dont know if it binds with phenols. I dont really wanna take a binder thats only adding to my toxicity...instead of getting rid of it. :unsure:

I guess I'm kind of stuck as far as the binders go. <_<

What I'm doing instead is the No Fenol enzymes and magnesium sulfate cream.

CarlaB Enthusiast
CarlaB
Posted

Rachel, Zeolite will pick up anything with a negative charge because it has a positive charge. Here's a quote from Nutramedix:

Because of their negative charge and honeycomb like structure, zeolites from the clinoptilolite family are able to

eliminate heavy metals, certain viruses, and many positively charged man-made toxins. The negatively charged

Zeolite attracts positively charged toxins which are eliminated from the body. Zeolite is not absorbed into the body;

rather it travels through the intestines binding toxins along the way until it is completely eliminated carrying the

toxins with it.

confusedks Enthusiast
confusedks
Posted

Update... I saw the hematologist and he wants me to start Iron IV's on Monday. We have to wait for insurance approval also. He would have started them tomorrow, but I'm going to Lake Tahoe.

It was a little tense about the port, he wanted to know why I have one, and which Dr had me get it. But then he was okay.

He did say he wants me to go to a GI Dr because he thinks I may have an internal bleed or be malabsorbing. Dr H says it's Babesia related, even he has said that it seems weird the numbers aren't changing at all....they just keep getting lower and lower.

The next Dr I see will be a GI Dr. We have wanted to do this for a while, but haven't really had the chance. I did get the name of a Lyme Literate GI here in LA. Hopefully that will help some...

ShadowSwallow Newbie
ShadowSwallow
Posted

Kassandra,

Glad the appointment went well. I hope the GI doc can be helpful. Can't bartonella cause malapsorption too?

Hm... I wonder if I should get some zeolite. I've felt exponentially better since the urine challenge and I'm not currently taking a binder.

Birdy

rinne Apprentice
rinne
Posted

I am always glad to drop by and learn something new, thanks for the information on the zeolyte, I am going to look into it further.

I will assume that MMS is not something anyone here has taken.

tabasco32 Apprentice
tabasco32
Posted
Lisa,

What can zeolite do about phenols?? Anything?? I need something to get rid of them. I wonder if theres any type of binder that works for phenols. :unsure:

It can eliminate the phenol overload. It balances everything even if you have copper toxicity due to mercury. It will actually balance the copper as well. Since taking the zeolite I have not had a problem with brainfog and unclarity due to phenols.

Many people have done better on zeolite than IV chelation therapy. The cool thing is that you can take it even if you have fillings.

Many, many autistic children take it and are doing great. They start speaking more sentences and words and make eye contact. A child with ADA would hit his head so hard on the wall that his parents had to put a football helmet on his head for protection.

Since taking the NCD he no longer needs the helmet. :)

I use Waiora's Natural Cellular Defense. They clean the honeycomb like cages so they don't already have toxins in them.

Here is a site that may explain more.

www.mywaiora.com/534173

There was a conference call last night. I wish I would have asked that question. There will be a DR. on the call Wednesday night. I will e mail him and ask him about the phenols.

It doesn't hurt to try and it may even help.:)

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