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Rachel--24

Omg...i Might Be On To Something

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Nanjkay,

Since you still have metal fillings, I would highly recommend not taking any kind of chelator, such as cilantro. Cilantro is a very good chelator but if not taken in part with a "protocol" it can be dangerous. I found this out the hard way. :blink: It can move metals and deposit them in other places, which is not what you want. It has to be taken with some kind of binder. I take HMD (www.heavymetaldetox.com) Cilantro/chlorella combo.

Chlorella is okay to take with fillings. Also, maybe a binder like activated charcoal to help with absorbing toxins?

Its great you are getting a lot of info to ask your LLMD.

April

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Nancy,

Chlorella is good if you can tolerate it.....alot of people cant. You'd also want to use a very pure brand of chlorella.....hopefully one which is not contaminated with mercury.

If you cant tolerate sulfur...you probably wont do well with chlorella. I have never been able to take chlorella. Last time I tried it I threw up 3 times. :blink:

I have never tested well for it in ART either....my body totally HATES chlorella!

Just listen to your body and start out low with anything you take.....you can work up gradually. :)

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hey rachel

How much charcoal do you take and do you still take it. I have taken bentonite clay and chlorella, which I can't tolerate but if I take charcoal it constipates me. The other binders don't do that.

I am out of the zeolite so I need something fast and cheap.

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Nanjkay,

Since you still have metal fillings, I would highly recommend not taking any kind of chelator, such as cilantro. Cilantro is a very good chelator but if not taken in part with a "protocol" it can be dangerous. I found this out the hard way. :blink: It can move metals and deposit them in other places, which is not what you want. It has to be taken with some kind of binder. I take HMD (www.heavymetaldetox.com) Cilantro/chlorella combo.

Chlorella is okay to take with fillings. Also, maybe a binder like activated charcoal to help with absorbing toxins?

Its great you are getting a lot of info to ask your LLMD.

April

Hey everyone-

Thanks for all the tips. I will steer clear of the cilantro for now. Don't want Mercury all over the place. I was on Alpha Lipoic Acid for years... do you think this harmed or helped the Mercury in the brain? The more I hear, the more I realize that I will need a lot of medical overseeing. I will wait until I see Dr. H and do it with supervision. My hair analysis says that I do have aluminum and mercury. Plus I have the mercury filling. My blood shows nothing too significant. I know that I did very poorly on the activated charcoal. Got very nauseaus. I looked up Zeolite and will check it out again.

If I have trouble with Chlorella, don't know if I will and charcoal, what else do you recommend for getting out the intestinal toxins?

I am so confused...even about doctors. And i am confused about the order in which to deal with these things. Deep breaths.

Carla-

I didn't fully understand what you were saying about the ABX and my tummy. Did you mean that what I am feeling is the die off of intestinal bacteria (good thing) and NOT that I doing damage to the tummy (bad thing)? I hope it is the first so I have one less thing to worry about. :unsure:

Yes, I am starting to switch back to chicken soup and softer foods. I had this pain 8 years ago when I went to the Mayo clinic and they couldn't find anything. The only thing that made it stop was to stop eating. I thought at that time that it was a pancreas/enzyme problem.

I started Cat's Claw and Andropgraphis at the same time as the ABX and perhaps it is too hard on the stomach. It is upper abdomen constant pain under the rib cage. Like I am being punched there.

Did treating the Bartonella with ABX alone help you see the worms or was it with the Enula?

I read in Kenneth Singleton's book "The Lyme Disease Solution" that Mepron "should always be taken with fatty foods because it is much better absorbed when ingested with a fatty meal" and "it can cause temporary liver damage and blood tests for liver function must be allowed on a regular basis" and the "use of coenzyme Q10, Alpha lipoic Acid and vitamin E...these should not be taken while taking Atovaquone (Mepron) because they are fat soluble antioxidants that tend to neutralize the pro-oxidant effects of Atovaquone against Babesia."

I realize, as I am writing this, if I am taking an ABX for the Bartonella. <_<

Nancy

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Hi all!

I found the name of that machine that My ND used for my sinus infection. She also uses it on Fibro patients. I was thinking it would be good for Sherry's new hypercoagulation problem - but not sure.

Frequency Specific Microcurrent.

Why was that so hard for me to remember? :blink::blink:

I'll post more after I do some research on it.

April

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Hi all!

I found the name of that machine that My ND used for my sinus infection. She also uses it on Fibro patients. I was thinking it would be good for Sherry's new hypercoagulation problem - but not sure.

Frequency Specific Microcurrent.

Why was that so hard for me to remember? :blink::blink:

I'll post more after I do some research on it.

April

April, is that like a TENS unit?

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April, is that like a TENS unit?

Julie,

A tens unit is much stronger.

What is Microcurrent? Microcurrent is a faint electric current that is so small it is measured in millionths of an amp. By comparison a TENS unit and most other electro-therapies produce milliamps, 1000 times greater. Your own cells generate a current in the microamp range and this is why you can

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Mftnchn--

my french friend says the word that you searched with (or got searched with thru translation) was an adjective, which is used for everything.. so your search is not refined enough... she said she'd be willing to search for you for something if you would just let me know what it is exactly you are looking for.

Thanks so much!

On this web page http://www.reperes-sante.com/boutic/bou_ri....cgi?req=larges there is a section No. 104 p 30, about a treatment for Ledderhose (the same condition I have, this is what it is called in the feet; in the hands it is called Dupuytrens. I have both conditions).

The treatment protocol has 9 points, and is signed R. Masson.

This is the section I am interested in. The google translation is only half understandable.

Sherry

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Hi all!

I found the name of that machine that My ND used for my sinus infection. She also uses it on Fibro patients. I was thinking it would be good for Sherry's new hypercoagulation problem - but not sure.

Frequency Specific Microcurrent.

Why was that so hard for me to remember? :blink::blink:

I'll post more after I do some research on it.

April

Thanks I look forward to hearing. This isn't a new condition for me, I have had it for 8 years or so. But it is getting worse.

Sherry

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Nanjkay,

Since you still have metal fillings, I would highly recommend not taking any kind of chelator, such as cilantro. Cilantro is a very good chelator but if not taken in part with a "protocol" it can be dangerous. I found this out the hard way. :blink: It can move metals and deposit them in other places, which is not what you want. It has to be taken with some kind of binder. I take HMD (www.heavymetaldetox.com) Cilantro/chlorella combo.

Chlorella is okay to take with fillings. Also, maybe a binder like activated charcoal to help with absorbing toxins?

Its great you are getting a lot of info to ask your LLMD.

April

April-

Thanks for your advice. Sorry you had to find out the hard way...

Do you think something like Zeolite by Nutramedix would be OK even though I still have the fillings in? I looked at the website..it looks like it may be a chelator and not a binder? Can you tell?

Nancy

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I think electrical current might be a risk factor...I'm off to my first appointment with a new PCP, hope this goes okay. I'll check into it when I get back.

Sherry

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Hi guys! How's everyone been?

A couple of you already know, my mom was recently diagnosed with Sarcoidosis. We don't know yet what organ systems it's currently affecting. She was diagnosed by biopsy of a growth on her leg...

So we know about that, and from what I've heard, it seems that almost everyone with Sarc has lesions of varying degree on the lungs... other than that, we're still waiting for her to get in for testing.

She has symptoms in various systems, but now we don't know what symptoms can be attributed to Sarc, and which are from Candida, which she is still battling.

I thought I'd ask you all what you've come across in your research of autoimmune diseases.

Also, she mentioned that she's found that some Sarc patients use the Marshall protocol... and I know I've read that mentioned in here. So I thought I'd ask about that, too.

If you all could share what you know, I'd appreciate it! :wub:

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I'm off to my first appointment with a new PCP, hope this goes okay. I'll check into it when I get back.

I'll be waiting to hear about this. :)

Sarah,

Sorry I don't know anything. :(

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I didn't fully understand what you were saying about the ABX and my tummy. Did you mean that what I am feeling is the die off of intestinal bacteria (good thing) and NOT that I doing damage to the tummy (bad thing)? I hope it is the first so I have one less thing to worry about. :unsure:

For me, it was the die off, the worms, etc. It was not doing further damage to the tummy ... things merely got worse before they got better.

Did treating the Bartonella with ABX alone help you see the worms or was it with the Enula?

I took Humaworm and saw a tapeworm and a small amount of roundworms, then the Enula seems to be getting more roundworms .... still .....

I read in Kenneth Singleton's book "The Lyme Disease Solution" that Mepron "should always be taken with fatty foods because it is much better absorbed when ingested with a fatty meal" and "it can cause temporary liver damage and blood tests for liver function must be allowed on a regular basis" and the "use of coenzyme Q10, Alpha lipoic Acid and vitamin E...these should not be taken while taking Atovaquone (Mepron) because they are fat soluble antioxidants that tend to neutralize the pro-oxidant effects of Atovaquone against Babesia."

I get blood tests monthly and take the Mepron with at least 20 gm of fat. I don't supplement CoQ10 or Vitamin E (except in my multiple). I take all supps at least two hours away from meds. I've never heard that about ALA ..... but I do take ALA away from the meds. I'll have to ask Dr. H about the ALA.

I realize, as I am writing this, if I am taking an ABX for the Bartonella. <_<

Nancy

Rifampin and Levaquin are used for bart. :)

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For me, it was the die off, the worms, etc. It was not doing further damage to the tummy ... things merely got worse before they got better.

I took Humaworm and saw a tapeworm and a small amount of roundworms, then the Enula seems to be getting more roundworms .... still .....

I get blood tests monthly and take the Mepron with at least 20 gm of fat. I don't supplement CoQ10 or Vitamin E (except in my multiple). I take all supps at least two hours away from meds. I've never heard that about ALA ..... but I do take ALA away from the meds. I'll have to ask Dr. H about the ALA.

Rifampin and Levaquin are used for bart. :)

Good to know about the stomach. i will try to take my supplements away from the ABX...good idea. I am not takine Rifampin or Levaquin...so it looks like I am taking the two ABX for the bart and one for Lyme itself.

Interesting about the worms...is Humaworm a nutramedix product as well? Did you do this during the ABX treatment?

I looked up zeolite. Looks great but they say it is to remove metals. Does this mean it is a chelator or is it a binder. I would like to start taking it even before the filling comes out...but if it is a chelator, perhaps I should wait. <_<;)

Nancy

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Good to know about the stomach. i will try to take my supplements away from the ABX...good idea. I am not takine Rifampin or Levaquin...so it looks like I am taking the two ABX for the bart and one for Lyme itself.

Interesting about the worms...is Humaworm a nutramedix product as well? Did you do this during the ABX treatment?

I looked up zeolite. Looks great but they say it is to remove metals. Does this mean it is a chelator or is it a binder. I would like to start taking it even before the filling comes out...but if it is a chelator, perhaps I should wait. <_<;)

Nancy

Humaworm is from www.humaworm.com.

You mean you are taking abx for Lyme and babs right? The zith/biaxin also hits Lyme as well as keeps the babs from becoming resistant to the Mepron. My prediction is that Dr. H will add Plaquenil to make the zith/biaxin work better, hit the babs (it's antimalarial), and as a cyst buster. I also predict that he will add Enula and Art. :) We'll see when you go. :)

I don't believe Zeolite actually chelates. I believe it's more like chlorella as that is the product it replaced in the Cowden protocol. In the description it says it is not absorbed, but absorbs toxins in the intestines. It does remove metals and other toxins. You could wait and ask Dr. H about it to be sure.

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I made it through!!!! :)

The actual procedure itself was fine (they actually got me to sleep this time, lol) and she took lots of pictures of my insides. She said there was "a ton" of tissue. We should get results from pathology on Monday.

I woke up in horrific pain. It was a 10 on a scale of 1-10. They gave me 6 :o :o IV pushes of Fentanyl! It wasn't until the 6th one that I had any relief. They also gave me 2 percoset. :blink: Fentanyl is 100x stronger than morphine apparently. The first few I didn't even know she had given me.

I am really really tired. Been sleeping since I got home basically. I'm in very little pain now, and glad to be out of pain because that was pretty horrible.

Apparently I will have a period for about 2 weeks. :( I'm not very happy because I can't really go in the water/wear a bathing suit in Tahoe. I leave on Wednesday.

Also (can't remember if I posted or not...) I have an appt with the Hematologist tomorrow. I will have to wait to get Iron until I get back, and maybe even a week after that because the Dr is out of town.

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Humaworm is from www.humaworm.com.

You mean you are taking abx for Lyme and babs right? The zith/biaxin also hits Lyme as well as keeps the babs from becoming resistant to the Mepron. My prediction is that Dr. H will add Plaquenil to make the zith/biaxin work better, hit the babs (it's antimalarial), and as a cyst buster. I also predict that he will add Enula and Art. :) We'll see when you go. :)

I am taking Mepron, Zith and another anti-biotic called Omnicef. Can't find out what the omnicef is for. I am not sure what his plan is... I do think I did the right thing, at least I am getting looked at, starting a first step and then I will go to Dr. H. My concern is that Dr. R wanted me to slowly increase to dose strength because he knew how sensitive my system is, which I am doing. I am only at half strength right now. Given this and what you mentioned do you think this will make me develop a resistance to Mepron?

I don't believe Zeolite actually chelates. I believe it's more like chlorella as that is the product it replaced in the Cowden protocol. In the description it says it is not absorbed, but absorbs toxins in the intestines. It does remove metals and other toxins. You could wait and ask Dr. H about it to be sure.

OK thanks about the Zeolite. I may give it a try. :rolleyes:

Nancy

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Nancy, zeolites cavities are negatively charged compounds attracting and capturing for elimination toxins and other harmful substances like free radicals.. The elimination of these toxins allows the body's cells to stay functional and repair themselves when damaged.

I have this brochure 12 reasons to take zeolite

1. Capture and eliminate toxins

2. Help Eliminate Heavy Metals

Heavy metals are highly positive charges compounds and the zeolite honeycomb cagelike structure which is absolutely undestructable is very highly negative.

3. Eliminate Carcinogens

4. Help Digestion

5. Help Fight Cancer

6. Help Balance ph levels

I know for a fact it does this because their was a time I was so overly acidic that everything I ate turned waxy in my mouth, like I was eating candles or something. This doesn't happen anymore. I even had my ph balanced check and now it is almost perfect.

7. Super Antioxidant

8. Strengthen Cardiovascular System

9. Strengthen Immune System

Zeolites help this process in diverse physiological ways, using dramatic biological mechanisms. Zeolites eliminate harmful substances, stop destructive attackes of ROS, and find and bind pathogens in the circulatory system.

10. Protect Membranes

Zeolites protect vital membranes.

11. Sharpen Mental Acuity

I know for a fact it does this too because my brainfog is no longer there.

12. Adaptogenic Properties

I started taking zeolite for 4 months and I have 6 fillings still. I have been doing good on the zeolite. No braingfog, helps with constipation, energy, and body ordor. It eliminates the ammonia from the body, it helps with my ordor a lot.

People dont know this but most farmers feed zeolite to pigs. They need to feed them zeolite so they can stay healthy because they are very toxic animals.

I have taken Chelators and have had bad side effects. It is not good to take chelators with fillings in your mouth. With zeolite there is no side effects.

There is a conference call tonight and they talk about zeolite with some testimonies and how it works. If you have any questions you can ask on the CALL! :)

If anyone is interested the number is 641 594 7000 and passcode is 678654#

The call is at 9:00 p.m. Pacific time.

Robben West will be the host of the call.

Lisa

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YAY Kassandra, I'm so glad it's over!! (sorry for the bad parts)

Thanks Lisa.

Nancy, no, I don't think that will cause resistance, that is what the Zith is for. :)

Omnicef is for the spirochetes, Zith not only supports the Mepron but also gets to the cell wall deficient form of the Lyme.

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Hi guys! How's everyone been?

A couple of you already know, my mom was recently diagnosed with Sarcoidosis. We don't know yet what organ systems it's currently affecting. She was diagnosed by biopsy of a growth on her leg...

So we know about that, and from what I've heard, it seems that almost everyone with Sarc has lesions of varying degree on the lungs... other than that, we're still waiting for her to get in for testing.

She has symptoms in various systems, but now we don't know what symptoms can be attributed to Sarc, and which are from Candida, which she is still battling.

I thought I'd ask you all what you've come across in your research of autoimmune diseases.

Also, she mentioned that she's found that some Sarc patients use the Marshall protocol... and I know I've read that mentioned in here. So I thought I'd ask about that, too.

If you all could share what you know, I'd appreciate it! :wub:

I recently looked into the Marshall protocol and decided it was not a safe option for me. The one situation where I might consider it though, would be for Sarcoidosis. This is a condition where there is a problem with Vitamin D regulation apparently as part of the disease process. Even so, you'll need to do a lot of research. The forum for the protocol is very strict about allowing only the very positive mainline view of the protocol to be mentioned. Thus, you don't read there about any of the problems. Some people who have tried it have become even more ill. Marshall himself is I think, a sarcoidosis patient, and is not a doctor--he's an engineer. He developed the approach by using computer simulation.

I found this link especially helpful for thinking through the science of the protocol. http://stuff.mit.edu/people/london/universe.htm

For me, I think the answer is the opposite--I badly have needed Vitamin D supplementation.

Sherry

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I'll be waiting to hear about this. :)

Thanks. It went pretty well so far. I have to go back for my physical next week. Interestingly, she told me that she became a doctor because of my LLMD--she thought he was such an exceptional doctor. So very respectful of everything he is doing.

She also said my Enterolab results were the most striking she has ever seen. She's going to review the stuff I gave her, she made a lot of copies. Meanwhile she's just running a complete metabolic panel for labs. She's fine with the Enterolab--just warned me that of course many others don't accept it.

Sherry

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