Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

confused Community Regular
Carla,

I get stinky too when I'm detoxing. Have you done an epsom bath? That or sauna usually helps me.

I sent you a pm with my email.

I'm so glad you are having good results with the NAET. I would love to get your email if you feel like sharing!

Anyone heard from Julie? I don't think she has posted in a long time.

kassandra,

I would like the email to, it hink u have my addy still.

Julie is going fine, I talked to her the other day.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
CarlaB Enthusiast

Hi everyone! I got worse after the last time I posted last night. I took another shower before bed, LOL!

By the time I went to be I felt like I was going to cry like I used to before herxes. I felt very emotional. I also felt overwhelmingly fatigued. I had horrible air hunger .... I constantly felt like I couldn't get enough air .... I stayed calm though and didn't hyperventilate. :) I was achey.

So, I emailed our friend G and she said it sounded like the mold was losing it's living quarters and that I'd detox all kinds of stuff. I get the idea that it's a domino effect .... I lose the mold, so the metals, fungi, bacteria and viruses no longer have one of their places to hide.

I took some chlorella, magnesium, and zeolite. She mentioned some other stuff, too, that I'll take today. I think I'm already feeling a bit better than yesterday, but certainly not the 100% that I felt for the first couple days after getting rid of the bed.

This morning I feel shaky, like I've had to much to drink the night before. I feel like my skin is sensitive like when you have the flu. I had diarrhea and now I feel nauseous. I don't have that overwhelming fatigue at the moment. I don't seem to stink, LOL!

Here's an article I found on detox reactions ..... it's referring to when you take herbs to make your body detox .... it says to slow down when you feel like I did ... in my case does that mean I go out to the garage and sleep on the moldy bed? :lol:

Open Original Shared Link

A cleansing, purifying process is underway, and stored wastes are in a free-flowing state. Sometimes discomfort during the healing crisis is of greater intensity than when you were developing the chronic disease. This may explain why there may be a brief flare-up in one's condition. Often the crisis will come after you feel your very best. In fact, most people feel a surge of energy during the first few days of a cleanse. It is at that point that your body dumps toxins into the blood stream for elimination. Thus the healing crisis. Do not be upset. It means your body is eliminating the toxins. Go as slowly as your body needs to so that your elimination is gradual and comfortable.
confused Community Regular

No, i dont think you need to go back and lay on the moldy bed lol Have you cleaned the area the bed was at yet?

I had to laugh the other day when i askd you about the hepa filter in a vacuum. I looked at my vaccum and guess what it was an hepa filter one lol. I only use the vaccum to vaccuum one area rug in the house so i never paind attention lol.

It seems you are really going in the right direction if you feel that bad. I would eat some blueberries. That is what i do when im detoxing the mold. Im thinking i need to go full force like you are and get it all out once and for all, but im scared.

paula

who has not slept all night and now kids are getting up, ughhh

CarlaB Enthusiast

Sorry about the insomnia Paula. I woke up before 6 AM and thought, what's up with THAT? Then I realized, it was 7 hours sleep. Before I got ill, 7 hours was how long I slept if I wasn't distubed. :) I know my PA would say 8, but I'm waking up on my own and not feeling like I need to go back to sleep ... going to be earlier, means getting up earlier!

So, my days just got three hours longer. LOL.

My kids helped me do a thorough cleaning of my room last weekend. We aired it out (it has 9 windows), we vacuumed with the HEPA, we used the smaller vacuum where the big one couldn't reach, we dusted .... we washed everything .... I think if there were mold still here that I wouldn't be having the detox reaction. :)

Thanks for the suggestion on the blueberries. Maybe I'll put berries in my smoothie instead of my normal mango and pineapple.

confused Community Regular

The no sleeping is not health related but stress related.My parents fly out today for their cruise and im freaking out over here. One reason its 9/11 and the second reason, i always worry about them lol. Plus my 7 yr old has oral surgery today. They also wanted me to get up at 5 am and wake them up and make sure their flight was going to be on time.

I am going to start an complete cleaning of this house today. The hepa vacuum will be my best friend for a few days lol.

I am so jealous of the smoothie. One day I am convinced I will be able to eat one lol

paula

CarlaB Enthusiast

Paula, don't worry about your parents! I hope your son's surgery goes smoothly.

I lost three pounds yesterday!!! I always weigh 131-132 every day ... no matter what I ate the day before. Today I weighed 128! I worked hard to gain this weight (might not make sense to you Californians, ROFL). I did eat less yesterday because I just wasn't that hungry, but that's not too abnormal. I did have a little diarrhea, but I didn't go more times than normal, so it wasn't like having the flu. I'm just shocked by this! Ugh, and I already gave my daughter all my expensive, small jeans!!!

And, I feel intoxicated ... no, more like I'm drugged. I think I'll go take an epsom salt bath. This is horrible. Way different than Lyme symptoms. Good thing Adam's out of town, I wanted to die last night (not suicidal, just didn't want to live because it hurts too bad, you know what I mean?) ... he gets upset and calls it my death wish. It's just like every cell hurts. It has to feel better when this passes, right?

How can one go from feeling nearly 100% to this? Just a venting rhetorical question .....

Rachel, miss mold expert, where are you??

CarlaB Enthusiast

Email sent. Let me know if you didn't get it and you want it.

Birdy, resend me your email, yours didn't go through.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aprilh Apprentice

Carla maybe just cut back on any herbs or supps that induce cleansing, but keep up with the binders and stuff that help it "release" - if that makes sense. At least until you feel a bit better.

You could have stirred up some mold particles when you cleaned. The blueberries are a good idea. They are supposed to also "bind" with certain toxins. I am not sure what - I had an article somewhere. I'll see if I can find it.

CarlaB Enthusiast

Yeah, that's what I'm doing April. I am stopping all my detox stuff that releases toxins. I'm only taking binders. I am also going to buy some liver support. Our good friend from LN recommended that because nausea can be from toxic overload of the liver.

I think it would be dangerous at this point to release any more toxins. I have a headache, am really foggy like I'm drugged, nausea comes and goes, diarrhea comes and goes .... I'm having heart palpitations and air hunger, that's why I think I should not stir anything else up. I've had worse palps and air hunger, but this is the worst I've had in months. I just got a shower so I can go out in public, LOL. Now I'm off to buy some more chlorella, ran out last night and the liver support G recommended.

AndreaB Contributor
Here's an article I found on detox reactions ..... it's referring to when you take herbs to make your body detox .... it says to slow down when you feel like I did ... in my case does that mean I go out to the garage and sleep on the moldy bed? :lol:

Open Original Shared Link

No, I don't think you should go back to the bed in the garage. Sounds like you've got some good advice. This sounds like a hard detox. I hope the binders, blueberries and liver support help you out.

Do you have help with Adam out of town and M back in school.....I'm assuming M has started school already anyway.

who has not slept all night and now kids are getting up, ughhh

I was up most of the night doing a thorough scan of the computer since a virus came up. Try not to worry about your parents. Hope they have a good time.

Hope the oral surgery is/has gone smoothly and you can relax for a bit.

CarlaB Enthusiast

No, Andrea, both my college students are back to school. Morgan is in Spain!!!!! She's having a great time.

I made it to Whole Foods today, but walked around like I was 100. I'm not feeling any better at all, if anything worse. I'm having heart palps and air hunger. Every cell hurts. I was told this was the worst kind of detox and until today I would have argued with that.

confusedks Enthusiast

I sent out an update, if you didn't get it, PM me with your email address! :)

tabasco32 Apprentice

Man Carla that sucks!! You know when I first moved into my grandmas house I had all those same symptoms? My eyes were swollen, I felt achy like I had a hangover, my neck and head hurt, diarrhea and heart palpitations and nausea.

I also was taking more detox herbs thinking that I needed to get rid of the toxic overload. I felt worse doing that. And I was just taking more burbur. All others were vitamins or binders.

Man it's so bad thier, it's like I can taste the dirt. She lives right by some grapevines so I'm sure the dirt is blowing from thier. I need to get out fast.

Did you leave you place at least 2 hours after you dusted? It takes at least 2 hours for dust to settle.

I wore like 2 masks on my face when I dusted. If I sleep their I have to wear a mask to sleep or I will wake up with a headache and swollen eyes. I have to put cotton in my ears or they will itch and I will lose some hearing. I'm sure that's from dust mites. My tongue is more white in the morning to but I think that's because my dumb uncle sprays on his deordorant.

AndreaB Contributor

Carla,

Sorry this has been so rough. It sounds absolutely miserable to go through. Not for the weak anyway. You're a very strong person. :D I don't know that I'd have the fortitude to go through something like this......not that any of us has a choice if we have to.

confused Community Regular
I made it to Whole Foods today, but walked around like I was 100. I'm not feeling any better at all, if anything worse. I'm having heart palps and air hunger. Every cell hurts. I was told this was the worst kind of detox and until today I would have argued with that.

Why do you think i have been putting it off. Im afraid to feel the way you are. Im use to feeling mold toxic that i can cope with it on most days, but im afraid of the detoxing and not being able to handle it. But i guess i need to get strong and get this mold out of me.

I was also thinking about the mold with you while i was trying to sleep. Do you think the mold is what caused your fibro?

Kassandra,

I got your update, there is so much i want to say about it but I will have to do it when im less sleep deprived.

paula

CarlaB Enthusiast

Did the edit function disappear for anyone else?

AndreaB Contributor
Did the edit function disappear for anyone else?

I believe you can only edit for a limited amount of time now, then the post is set.

Have any of you heard of chemical imbalance tests? Do you know what they are, what lab runs the tests?

CarlaB Enthusiast

Oh, okay, thanks, Andrea.

Sorry, haven't heard of the test.

confused Community Regular

well my parents landed to their destination just fine, they wont be on the cruise til late tommorow night. But im not worried about the cruise, just about the flight. My sons oral surgery went great, but he has to have another tooth pulled cause it is dead. He has really bad teeth and i feel so bad for him. He also had to have cavities filled and they did the mercury free, yayy for dentist that care. My stepson is always away for an 2 day tournament and he is fine. So now i think i can sleep tonight lol

Andrea,

Are you looking like for an test for chemicals that have to do with like bi-polar or something.

Were is rachel, i think she abonded us again. Or she went and got an life and forgot about us.

paula

CarlaB Enthusiast
Carla,

Sorry this has been so rough. It sounds absolutely miserable to go through. Not for the weak anyway. You're a very strong person. :D I don't know that I'd have the fortitude to go through something like this......not that any of us has a choice if we have to.

Andrea, sorry, I missed this earlier. Thanks. :) Umm, I would think the same if you told me about it. :D

Sorry you're going through mold issues too Paula and Lisa.

mftnchn Explorer

Carla I didn't get your update...

Sounds pretty bad. Did you back off on Enula and your abx and stuff? Seems like what you are doing is good. A few times I have done a second ecoffee during the bad days and it helps a lot.

Sherry

CarlaB Enthusiast

Sorry, Sherry, I sent it to you.

I stopped everything. I took Malarone this morning, but that was all. I took Magnesium, some liver support, and a bunch of chlorella.

I'm currently on Buhner herbs, no abx. I stopped the herbs.

I was afraid to take anything, heck, I was afraid to stir up things by moving too much! I must have really sounded bad because Adam called a couple hours later and he never does that. I'm doing better now, but as soon as my kids finally get to bed, I'm right behind them, though I may chat for a while before I go to sleep.

I really feel for those of you who have mold exposure .... it's way worse than I thought!

mftnchn Explorer

edited out

AndreaB Contributor
Are you looking like for an test for chemicals that have to do with like bi-polar or something.

It was mentioned by a friends' brother to have T tested for chemical imbalances to see if it's something like that behind her anger and outbursts (like attacking me). We've got a program we can look into but it's run by DSHS and I don't really want to go there right now.

mftnchn Explorer

Sure hope you feel some relief soon, Carla.

Andrea, not sure what the letters stand for. Would it be expensive? I wonder about trying something like SCD or some of the other dietary approaches that work for autism and other neuro symptoms. Seems like it could be a neuro symptom and not just "attitude."

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,279
    • Most Online (within 30 mins)
      7,748

    cruzio
    Newest Member
    cruzio
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Dora77
      Sorry for the long post. I’m 18, and I was diagnosed with celiac disease and type 1 diabetes (T1D). My transglutaminase IgA was >128 U/mL, EMA IgA positive twice, and I’m HLA-DQ2 and DQ8 positive. I’ve been completely asymptomatic since diagnosis, even when I cheated with gluten sometimes in the past and used to eat out(2-5 years ago) I don’t get the typical celiac reactions, which makes it really hard to know when (or if) I’ve been glutened. But for the past year, I’ve been the most strict with my diet, and that’s also when a bunch of new issues started. I eat completely glutenfree, never eat out, dont eat food that says „may contain gluten“.   Current Health Problems • Floating, undigested stools for over a year now. Dont think its related to celiac as it was like this since im 17 and not 13-16( i got diagnosed at 13). • Chronic back pain started gradually, worsens with movement, lots of cracking/popping sounds. Been ongoing for a year now. First noticed in the gym. • Abdominal bulge on the right side, not painful but seems to be getting slightly bigger. Doctor didn’t find a hernia on ultrasound, but it was done lying down (I’ve read those can miss hernias). Noticed it like 6 months ago, couldve been there longer. • extremely dry and mildly swollen hands (this started before I started excessive hand-washing), and bloated face. • Signs of inattentive ADHD (noticed over the past 3 years), now combined with severe OCD focused on contamination and cross-contact. • Growth/puberty seemed to started after going gluten-free. Before that I was not developing. Dont know if any of these are because of celiac as my dad doesnt have those and he is a lot less strict gluten-free then me. I also had pancreatic elastase tested four times: values were 46 (very low), 236, 158, and 306 (normal). Gastroenterologist said one normal value is enough and I don’t have EPI. Family doctor prescribed Kreon anyway (after I pushed for it), and I just started taking 1 capsule (10,000 units) with meals 2 days ago, but couldn‘t see effects yet because I’ve been constipated the last few days. Maybe because of thyroid. I don’t have Hashimoto’s. No thyroid antibodies. But I took levothyroxine for slightly low FT4 levels. My thyroid levels fluctuated between borderline low and low-normal. And recently lowered my dose so that may have caused the constipating. I probably didn’t need it in the first place, and am thinking about stopping it soon.   Current Diet Right now, I only eat a very limited set of “safe” foods I prepare myself: • Gluten-free bread with tuna or cheese • Milk and cornflakes • gluten-free cookies/snacks • Bananas (the only fruit I trust right now) I rarely eat other fruits or vegetables, because I’m scared of contamination. My dad, who also has celiac but doesn’t care about CC, buys fruits, and he might’ve picked them up right after handling gluten bread. That makes me feel unsafe eating them. Even fruit at stores or markets feels risky because so many people with gluten on their hands touch them.   My Home Situation (Shared Kitchen) We’re a family of 5. Only my dad and I have celiac. He eats glutenfree but doesn’t care about CC and sometimes (but rarely) cheats. My mom and siblings eat gluten bread at every meal. My mom is honest (so if i ask her to be cautious, she most likely would try to), but doesn’t seem to understand how serious celiac is. She: • Stopped using gluten flour • only cooks gluten-free meals (but they still heat up gluten bread and also cook gluten noodles) • Keeps separate butter/jam/jars for me • Bought me a stainless steel pan Bu we didn’t replace old wooden utensils, cutting boards, or other pans. The new they bought me pan was even carried home in a shopping bag with gluten bread in it, which triggered my OCD. It also has a rubber handle and I’m scared it might still hold onto gluten. Even if it’s washed well, it’s stored next to other pans that were used for gluten food/bread. Our kitchen table is used for eating gluten bread daily. My mom wipes it but not with soap. I’m scared tiny particles remain. If she made gluten-free bread dough on a board at the table, I’d still worry about cross contmaination contamination even with something under the dough and on the table as at one point the dough would probably touch the table. So I stopped eating anything she makes.   I know OCD is making it worse, but I can’t tell how much of my fear is real and how much is anxiety. Examples: • I wash my hands 20–30 times a day — before eating, after touching anything at home or outside, after using my phone/laptop. • I don’t let others touch my phone, and I’m scared to use my laptop because friends at school or my brother (who eat gluten) have touched it. And it annoys me a lot when others touch my stuff and feels like it got contaminated and is unsafe instantly. • I stopped eating while using my phone or laptop, afraid of invisible gluten being on them. • I wash my hands after opening food packaging (since it was on store cashier belts where gluten food is placed). • I avoid sitting anywhere except my bed or one clean chair. • I won’t shake hands with anyone or walk past people eating gluten. • At school, when switching classes, I wash my hands before getting out my laptop, again before opening it, etc. • I open door knobs with my elbows instead my hands   Job Concerns (Powder Coating, Sandblasting, Etc.) I’m working a temporary job right now that involves: • Powder coating • Sandblasting • Wet spray painting • Anodizing There’s also a laboratory. I don’t need this job, and my OCD makes me believe that dust or air particles there might contain gluten somehow. Should I quit?   Doctors Haven’t Helped My family doctor told me: “Asymptomatic celiac isn’t serious, if you have no symptoms, your intestines won’t get damaged, so you don’t need a gluten-free diet.” I knew that was wrong, but he wasn’t open to listening. I just nodded and didn‘t argue. My gastroenterologist (who’s also a dietitian) said: „If your antibodies are negative, there’s no damage. It might even be okay to try small amounts of gluten later if antibodies stay negative.“ Also said, pepper that says “may contain gluten” is fine if it only contains pepper. She was more informed than my family doctor but didn’t seem to fully understand celiac either.   Questions I Need Help With 1. Is it realistically safe to eat food my mom cooks, if we get separate pans/ and boards even if gluten is still used in the same kitchen? There will always be low risk of cc chances like that she will still touch stuff that was touched by her and my siblings after they ate gluten. And as there are gluten eaters in the house and she also prepares and eats gluten. So would opening the fridge then getting the food and touching the food be okay? So basically what i am doing, washing my hands multiple times while preparing food, she would only wash it once before, then touch anything else (for example water tap or handles) that were touched with gluteny hands, then also touch the food. I dont know if I ever could feel safe, I could try telling her how important cc really is. And I trust her so she wouldnt lie to me then be careless about cc, but idk how safe it really can be if she and everyone else keeps eating gluten and touching stuff in the house after eating. 2. Do I need to worry about touching doorknobs, fridge handles, light switches, etc. that family members touched after eating gluten? What about public places like bus handles or school desks? Or like if i went to the gym, I would be touching stuff all the time, so there will be small amounts of gluten and those would get transferred on my phone if I touch my phone while in the gym. But I want to knos if it would be enough to do damage. 3. Is an endoscopy (without biopsy) enough to tell if my intestines are healed? I’d pay privately if it could help and if i dont get a refferal. Or do i need a biopsy? 4. Could my job (powder coating, sandblasting, etc.) expose me to gluten or damage my intestines through air/dust? 5. Do I need certified gluten-free toothpaste, hand soap, shampoo, or moisturizer? (For example: Vaseline and Colgate don’t contain gluten ingredients but say they can’t guarantee it’s gluten-free.) 6. Is spices like pepper with “may contain traces of gluten” safe if no gluten ingredients are listed? Or does everything need to be labeled gluten-free?  7. Is continuing to only eat my own food the better choice, or could I eventually go back to eating what my mom cooks if she’s careful? 8. is cutlery from dishwasher safe if there are stains? Stuff like knives is used for cutting gluten bread or fork for noodles etc. I often see stains which i dont know if its gluten or something else but our dish washer doesnt seem to make it completely clean. 9. I wash my hands multiple times while preparing food. Do i need to do the same when touching my phone. Like if i touch the fridge handle, I wash my hands then touch the phone. I dont eat while using my phone but i leave it on my bed and pillow and my face could come in contact with where it was.  10. Do i need to clean my phone or laptop if theyve been used by people who eat gluten? Even if no crumbs fall onto my keybaord, i mean because of invisible gluten on their fingers. 11. Does medication/supplements have to be strictly glutenfree? One company said they couldn‘t guarantee if their probiotics don’t contain traces of gluten.  12. I had bought supplements in the past, some of them say glutenfree and some of them dont(like the brand „NOW“ from iherb). I bought them and used them when i wasnt washing my hands so often, are they still safe? As I touched and opened them after touching door knobs, water taps etc. It was like a year ago when i bought those and even though i was eating gluten-free, I never worried about what i touch etc. I know this post is long. I’m just extremely overwhelmed. I’m trying to protect myself from long-term health damage, but the OCD is destroying my quality of life, and I honestly don’t know what’s a reasonable level of caution anymore. Thanks for reading.
    • lmemsm
      I've been making a lot of black bean brownies lately because it's one of the few gluten free dessert recipes that actually tastes palatable.  I've also seen chocolate cake recipes with black beans.  Someone mentioned a cookie recipe using lentils in place of flour.  Just wondering if anyone's run across any tried and true recipes using beans, lentils or peas for desserts?  I've seen a lot of recipes for garbanzo flour but I'm allergic to garbanzo beans/chickpeas.  Was wondering if adzuki or pinto beans might be useful in replacing some or all of the flour in baking.  Since gluten free flours can be crumbly was hoping the beans might help produce a better, less crumbly consistency.  Any recommendations for recipes?  Thanks.
    • lmemsm
      I've seen a lot of recipes for chia pudding, so I decided to make some with chia, water, cocoa and honey.  Didn't like the taste, so I added ground sunflower and ground pumpkin seed to it.  It tasted okay, but came out more like frosting that pudding.  I used to make pudding with tapioca starch, milk powder, water and sugar.  It came out very good but I haven't figured out what to use to replace the milk powder to make it dairy free.  Most starches will work in place of tapioca starch but quantity varies depending on the type of starch.  If I didn't add enough starch to get a pudding consistency, I'd add gelatin as well to fix it.  Avocado and cocoa makes a good dessert with a pudding like consistency.  Unfortunately, I have a bad reaction to avocados.
    • lmemsm
      Seems like when I find a gluten free product I like, the producer stops manufacturing it and then I have trouble finding a new gluten free source for it.  What's worse, I've been contacting companies to ask if their products are gluten free and they don't even bother to respond.  So, it's making it very hard to find safe replacements.  I was buying teff flour at nuts.com and they no longer carry it.  I noticed Naturevibe has teff and soy flour.  However, I can't get a response as to whether their flours are safe for someone with celiac.  Can't get a response from Aldi if their peas are safe for someone with celiac either.  I know Bob's Red Mill has teff flour but was hoping to get a large quantity.  I've been using up the 20 ounce Bob's Red Mill teff flour too quickly.  Does anyone know of a good source for teff or soy flour?  Any recommendations where to get gluten free beans, peas or lentils?  I found some packages of gluten free beans at Sprouts but not much variety.  I've also been looking for lentil elbow macaroni and it seems like no one is making that now that Tolerant was bought out.  Any suggestions for safe sources for these types of ingredients.  Thanks.
    • chrish42
      All I can say is this site is great!
×
×
  • Create New...