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Rachel--24

Omg...i Might Be On To Something

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I got problems with lactose around 92 already. In 04 I went to my daughter's doctor (who will order any tests within reason) and asked to be gene tested for lactose intolerance, and I have a gene that should keep on making lactose, so I knew something else was going on.

Now I have problemswith the casein too so I am planning to re-introduce milk. I tried goat cheese and did tolerate it somewhat. (just google A1 vs A2 milk and that may explain some milk issues for some people) but I am totally milk-free . No butter either, or traces of milk. But it started with the villi thing I think.

I have not noticed any thing with sucrose, but right now I am off any sugar because of candida diet. Stomach much flatter now. Pants tend to fall almost off.....

There is a mold/ yeast article in The Lancet about candida mimicking gluten and triggering celiac, anyone have it?

nora

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Interesting about how you ended up with your bed, Nora! You can get the latex at varying levels of softness. Ours is soft. The beds are still supportive even when they're soft. I love the adjustable wood slats, like right now when my back is hurting, I just make the one near my back tighter, so it's like the lumbar support in the car. It was very comfortable last night. I feel right to sleep and woke up this morning after 8 hours of sleep (but I have been doing that a lot recently since being prescribed the Lyrica).

My back is still killing me and now I've caught Chloe's cold. Even with that, I'm still feeling better than I was.

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I'm reading about treating mold toxicity on chronicneurotoxins.com. In one article (at mold on the sidebar) Dr. Shoemaker says this:

Repeated cytokine responses and prolonged cytokine responses can take their toll on target organs. We have some patients who don't recover all their mental capacity. Some don't have all their joint pains go away. Some acquire new organisms, growing opportunistically in newly altered econiches in the nose, for example, that can create their own additional cytokine responses. Even worse, some patients suffer damage to integrative neuro-endocrine pathways in the hypothalamus. These patients can go on to develop intractable pain, chronic, non-restorative sleep and unexplained weight gain.

He's talking about cytokines due to mold exposure. Interesting since my doctor thought my symptoms seem to be due to cytokines.

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Thanks for the info and recipe, Sherry.

I'm going to wait until i get the book to go full force because I need to understand the reasoning behind all of this. But, right now I am getting familiar with the allowed foods (and unallowed). It's hard enough to feed my family! So, this will take some planning.

2 years ago when I was having major reactions to food and had leaky gut, I went on a real strict diet that consisted of mainly fruits, veggies, some nuts, meats and eggs. I did very well on it and it definately starved the yeast. I lost 20 lbs in like 2 months which I didn't count on - but needed to. I had tried to lose weight in the past but nothing ever worked. The pounds just fell off.

I thought it was "gluten" related, but now I am thinking it was more "yeast/bug" related in my gut.....because as I started introducing grains and flours (all gluten free) back in my diet, I slowly started gaining weight again.

I am hoping the SCD will help me lose weight naturally and help my digestion. Plus, if it works, then I'll know what flours I should/could eat.

If it works for me I am sure it will work for my son.

He is so skinny. He's still gluten free and dairy free, but he has never really gained much weight. You can see all his ribs! He can be very introverted and shy. If someone says something to him in public he gives them an eat sh** look! It's awful! It's almost like he can't function in that area. Then he'll have very angry moments that are more than the average 4 year old.

Something is still aggravating his system and I have to find out what it is. I would like some additional testing for him, but not sure what to do. His stools are normal and have been since he went gluten free. He's no longer gassy either.

I probably need to rerun the heavy metal testing - his copper levels were very high (NOT dmsa challenged). That could be one thing that is aggravating him.

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I'm reading about treating mold toxicity on chronicneurotoxins.com. In one article (at mold on the sidebar) Dr. Shoemaker says this:

He's talking about cytokines due to mold exposure. Interesting since my doctor thought my symptoms seem to be due to cytokines.

I remember you posting about the cytokines and the article that you posted said a lot about it being mold related. Now, it all seems to make sense! I really hope finding out about the mold gives your immune system the break it needs to keep the lyme (if any is left) in check.

We have an older house, too, with the plaster walls. I just put drywall up OVER the plaster in the 1/2 bath I am remodeling. The walls were all messed up with old wallpaper AND there was lead paint all over. I didn't want to rip anything out or sand any of the lead so that's why I put the drywall over. I hope that doesn't create an environment for mold.

It's just a 1/2 bath with a toilet and sink, so hopefully not.

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I am hoping the SCD will help me lose weight naturally and help my digestion. Plus, if it works, then I'll know what flours I should/could eat.

If it works for me I am sure it will work for my son.

I probably need to rerun the heavy metal testing - his copper levels were very high (NOT dmsa challenged). That could be one thing that is aggravating him.

Maybe you could do the Rosmed test I did or something similar. The gut panel is what picked up my inability to digest sugar. If he has that, it could be causing his symptoms. Read the stories by parents on the pecanbread.com site. Had me in tears...

I'm guessing you will lose weight on SCD, seems like most overweight folk do. Underweight don't necessarily lose; gaining weight is a little more challenging but I notice that some of the kids do.

Sherry

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Hello everyone.

I have had a few bad days. I was in so much pain in my stomach area all the way threw my colon that i could not walk. I have never had that kind of pain in my life. My food was coming out undigested, i have no idea what was going on.

Today i felt somewhat better to have an picnic with my mom and the kids for grandparents day. I felt great once i was away from the house. Im not sure if it was th sun or away from the house lol.

The only thing that I can think of is the detox pads. My mom had the same reation a few days ago that lasted 3 days. She is still not 100 percent. The only thing in common is the detox pads. I am going to throw the rest of the away.

She is now having the same things happen to her that happen to me. Years ago my erlobes caved in from the metal. Today she showed me her ears, and they look like mine. Her skin is also starting to act weird. the other day she was canning and her arms turned purple, my legs do this from time to time

Im thinking she has metal toxcity like I do. Once she gets back from her cruise, she is going to be tested.

I am really thinking of doing another metal hair test with my head from head, im thinking the hair from down under was not all that accuarate with everything that is going on.

Sorry is this is all over the place. Im just trying to put my thoughts down lol

paula

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Paula,

Sorry about the gut wrenching pain! That sounds awful. I hope you can get some more testing done or get in with a good alternative doctor who can help you sort all of this out.

Sherry,

Those stories are amazing. Do you make your own yogurt now, too? Do you find you can tolerate (legal) dairy now being on the diet or is it too soon to tell? I am going to try and start today with chicken and carrot soup with cononut milk added. I love coconut soup so this will be yummy.

Anyone,

Does anyone know what Cowden protocol uses for Ehrlichia? I wouldn't think it would be the Samento, but not sure. I don't seem to be getting anywhere with the docs here and thought maybe I could start with some herbs.

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April,

I do make my own yogurt. It is really easy, I've made yogurt for years. I was doing very well on the goat milk yogurt in the US but last week had a severe reaction to my first cup of yogurt here. I realized later I had also taken my mold shot. Pretty sure it is the shot but today will start testing the components of my yogurt started with the probiotic I used for starter.

The jello made with grape juice is really yummy too. Much better than jello from a box.

Sherry

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April,

I do make my own yogurt. It is really easy, I've made yogurt for years. I was doing very well on the goat milk yogurt in the US but last week had a severe reaction to my first cup of yogurt here. I realized later I had also taken my mold shot. Pretty sure it is the shot but today will start testing the components of my yogurt started with the probiotic I used for starter.

The jello made with grape juice is really yummy too. Much better than jello from a box.

Sherry

Do you use the yogurt starter they sell on the pecanbread website? I have heard of making it from probiotics, but not quite sure how that works. I guess I need to get a yogurt maker! Sounds like it was your mold shot. But good that you are checking that out.

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Do you use the yogurt starter they sell on the pecanbread website? I have heard of making it from probiotics, but not quite sure how that works. I guess I need to get a yogurt maker! Sounds like it was your mold shot. But good that you are checking that out.

I've never used a yogurt maker. All you need is some way to keep the warm temperature stable. I've used a number of ways to do that.

My current two ways: 1: use a rice cooker, put water in the pot about half full and put the rice cooker on keep warm. Keep the lid open. Put a plate on the top of the rice cooker pan with a couple of hot pads on it. Put my yogurt on the hot pad. Cover the whole thing with a big pot. I had one that just fit over the top of the plate. Wrap a big towel around the whole setup. Leave it for 24 hours.

2: Half fill a large pot with warm water. Set it on top of a hand warmer that plugs in, I put it on a small rack too so the pot is stable. Put my yogurt down in the water bath but not right on top of the handwarmer...along the side so it just gets the water bath warmth. Put the lid on my big pot and let it be for 24 hours.

Yogurt starter: you can use the one they sell. My LLMD said there is no need to use fresh starter every time though. Just use fresh starter when the quality of the yogurt starts to go down. My LLMD said to get a probiotic that is SCD safe. Kirkman has a good one, that is what I just started using. You just take a capsule of the probiotic, open it up, put it in a spoon and add a little of the warmed milk and stir around until it is well dissolved. Then add to a little more milk and finally to your whole jug. Then next time, use some of your yogurt as starter. I've also just used Nancy's yogurt as starter. It works fine but it contains some ingredients not recommended on SCD. Apparently some of the organisms have a tendency to mutate which is why they say only use a certain kind of starter.

Sherry

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Kassandra, bummer about this "specialist"....sorry it turned out to be a disappointment.

Dont give up though!! I've been told alot of different things from my Dr.'s.

First, the endocrinologist was calling me the "odd bird" (because he had never seen anyone with my symptoms). Since then I've been called "special", "complicated", "one of the worst", "one of the most challenging", etc. etc.

I tried to never let it bring me down. Theres an answer for every one of us. :)

Kassandra-

I too, totally feel for you and I know how much it sucks. I have also been told, even a few weeks ago, by my first LLMD that he has never seen my reaction to anti-biotics...his words "that's a new one for me, never seen anything like it." I have since changed LLMDs...He was perfectly nice, but instilled PANIC in me.

After hearing this type of thing for years I just try to remember the answers will come just not through that particular jerk doctor, that's all!!! :angry:

Hey all-

Trying to catch up and read everything. I have been SO sick for a while and have also realized that being on my lap top makes me feel terrible and so I have really restricted it. I wanted to research why this happens, but I would have to be on the computer to do so!!

Carla- I can't believe that about the mold in your bed. Unbelievable.

Good to see all of you again-

Nancy

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Yay! My trial today of probiotic and then plain goat milk yogurt went just fine. I haven't checked the honey yet, may wait as I am trying to find pure honey. Could be pretty impossible, not sure.

So I am pretty sure it was the mold shot reacting. I still have symptoms; waiting to hear from my allergist.

Sherry

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Sherry, I haven't talked to them yet. They didn't call yesterday. I'll email him today.

We can get our money back for the bed. Hubby thinks that's the better idea. A class action suit can take years and each person may only get a small amount of money. Plus, will the company still be in business? But, I don't think it's right that they get let off the hook for my medical bills due to being sick from the bed. My case is documented here with dates and times. That has to be useful. I'd rather go for the principal of the matter than the money. I'd rather be one more example that nails them for not recalling the beds even if I get less money in the end.

I am feeling fine since getting rid of it. I have a head cold that's going around our family right now. I have back pain, too.

My back finally bothered me so much yesterday that I thought I'd try a new massage place. I haven't been able to find anyone worth going to up till now. She was wonderful. She did a lot of trigger point and myofascial massage. We figured out it's my flute playing putting me so out of whack, so she gave me some exercises. I'm going back Thurs. for a 90 min. massage then will go once or twice per month. :)

It's a great deal .... $49 per month fee for "membership" and you get one massage. Each additional massage is $39. That's for 1 hour. Since she's so good, it's a good deal .... great deal actually ... especially since I'm not quitting the flute, LOL.

My shoulder pain is also from the flute.

So, right now, nothing I'm having is from the Lyme. I still have very mild air hunger. I've had it once in three days where before it was for much of the day. It must be a combination of the babs and the mold .... or like I think the Lyme was, babs aggravated by mold. Maybe now I'll be able to kick the babs!

I'm getting a blood test for mold today.

Well, Palin and McCain are about 15 min. away in a little town ... I think I'll go check it out. Life in Ohio during election time! Hee, hee, we're the state they all want to win as we'll vote either way. :) They'll be at the Golden Lamb. It's a VERY old hotel that almost every president goes to and stays at .... it's also like a museum .... you can see Ulysses S. Grant's room. Yesterday I drove by and they were painting it, rofl.

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Its great you're feeling better and hopefully soon the rest of the symptoms will be gone too.

Are there certain treatments for this type of mold?

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Sherry,

Yay! Great news on the yogurt trials so far. I'm highly suspicious of the mold shot too.

Carla,

Sounds like a nice massage place. Glad your symptoms are so much better. That's a hard decision about the bed but I can see your point in the principal of the matter.

Nancy,

Sorry you've had such a rough time lately. Hope you can find a good LLMD you like.

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Its great you're feeling better and hopefully soon the rest of the symptoms will be gone too.

Are there certain treatments for this type of mold?

I don't know. I know Dr. Shoemaker has written a lot about mold and using cholestyramine for treatment. I guess I'll find out when I get my mold test back. :)

Sounds like a nice massage place. Glad your symptoms are so much better. That's a hard decision about the bed but I can see your point in the principal of the matter.

It was very nice. I'm in a lot less pain than yesterday, but after all that walking this morning, I need to eat so I can take some Advil. I'll hold off on the Norco unless I need it.

I couldn't get in ..... you had to be there three hours early (in the rain with no umbrellas allowed) to get in. So, I was standing down the street ..... saw Sarah Palin across the street walking to the bus. :) Also, John McCain knew we couldn't get in, so walked down the street to the barricades where we were. I was on the other side of the street with maybe ten others, he turned and waved. :)

It wasn't a waste .... it doesn't even take me 15 min. to get there. If I didn't drive a Mini Cooper I wouldn't have been able to park. :D

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Speaking of pain in the back, this is the newest thing here (at least in Sweden): the nail mat, just like the fakirs usd for thousands of years:

www.spikmattan.com it is a plastic mat, and was invented by a lady that had a hurting back. There were lots of how-to's on the net on how to make your own nail bed with real nails, but she found it hard to make and got a prototype made in the best quality plastic (food quality, with a paraffin base, not the usual benzin base) and sold them, and the results have been amazing, it helps for things they coud not imagine, like fibromyalgia and other things I forgot.

I have no idea of how it can be found abroad. There are some english patient responses on her website. Apparently it increses endorphins an oxitocin (same as massage) and I wonder if it maybe works the same way as LDN (I am on LDN, as is my daughter and her boyfriend, with excellent results) . would have to get one and try it without the LDN...

nora

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I did the Biotoxin test on www.biotoxin.info .... I have a 99.99860% chance of being toxic! ROFL

omg i was laying in my detox bath today wondering if u ever did the vcs test lol. I think donna has the list of who is the toxic. Im thinking im higher then u by a smuge. I cant remember, dang mold lol

Were has everyone been hiding. Has anyone been watching the show doctors on tv. Omglmao is all i can say.

paula

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Paula,

I was pretty high on the test too, but I can't remember what it was. It was around 99% though! :o

I think mine is from *internal* biotoxins - but who knows!

I started the SCD diet. I had some die off yesterday - which was a good sign that I was on the right track.

Carla & Paula,

I need you gals to come down/over my way and help me get the kids organized! :D I need them to start learning to do some cleaning in their rooms and having some responsibility on a daily/weekly basis. I feel like I am always the ONLY one cleaning and straightening around here. My hubby empty's the dishwasher and helps pack morning lunches but thats it. He thinks he's really accomplished something with kitchen duty <_< I say try doing 5 loads of laundrey, folding and putting away, bathroom, floors, vaccuuming, dusting, general straightening, making beds (he doesn't believe in that <_< ) ect, ect, ect. and working! It's too much for one person!

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