Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

Rachel--24 Collaborator
I think mold is a factor for me but not THE factor.

I'm kind of at the point that I dont really think there's any ONE factor for me. Even if mercury tipped the scales for me....I'm not really focused on it as a MAIN issue anymore.

The more I'm learning the more it just makes sense that alot of it comes down to genetics. Half of it is probably having to do with the genetic weaknesses and the other half is the toxic exposures.

I dont really care now which toxin put me over the edge because I think at this point the only way that I can recover is to support (or bypass) whatever weaknesses took me down this path to begin with.

This is more where my attention is right now because I think it makes the most sense to me with regards to the rise in chronic illness, autoimmune disease, chronic infection, autism, MCS, etc.

The rapid increase in environmental toxins in recent decades has surpassed the body

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
AndreaB Contributor

I haven't had much in testing done.

What I have had done is Enterolab (including the gene test), Hair analysis, ELISA IgE/IgG and then ART/ASYRA.

The hair analysis told me mercury (metals) is a problem and the gene test told me I have one of the celiac genes. The ELISA test gave me problem foods to remove from my diet and helped bring S to a better point when he was a baby. Going through the diet changes (before enterolab) helped his eczema as I was gluten lite.

I can't really comment on ART for myself and family as we haven't really had a full session, aside from T maybe. But she still had the ASYRA first. We aren't chronically ill though so maybe it's better in those situations. For us, it shaved down time (and money) from having a long ART session for all of us. We were planning on hour sessions a piece this year but now that won't happen.

CarlaB Enthusiast
Oh....its simple. :D

1. Dump a little bit of powder into your hand (sometimes way too much comes out of the box though).

2. Spread that under your arm.

3. Dust off the "excess" powder.

4. Put on your shirt and you're ready to go. :D

Only thing is that the powder ends up on the sink counter. I just wipe it up with the towel my mom has there.....ya know the one thats meant to be "DECORATION". :ph34r:

Oh, I might be way too OCD for this, ROFL! That white powder everywhere would drive me crazy!

Decoration towel .... :lol:

confused Community Regular

April,

I know it was mold, i have seen enough mold in the last few years to know what mold looks like.

carla,

Im thinking i would be too ocd with the baking soda also, unless i could just throw it on while im still in the shower and it can just mix in with the detox bath lol.

paula

Rachel--24 Collaborator
Im thinking i would be too ocd with the baking soda also, unless i could just throw it on while im still in the shower and it can just mix in with the detox bath lol.

Paula...dont try to put it on in the shower! :lol:

You'll end up with pasty clumps of baking soda sticking to your underarms. :lol:

CarlaB Enthusiast

Well, I'm finally feeling better! I have fibro pain, air hunger, and diarrhea (but not so bad that I can't leave the house). Other than that, I feel pretty normal. I also have a sore throat, but I think I'm so used to that I barely notice it. The air hunger isn't as bad as it was ... it's still constant, but at least if I focus I can get a full breath where before I could not no matter what I did.

I have been busy from the time I got up until now. I still feel up to cooking dinner. The weakness and crushing fatigue has let up. So has the feeling that if I move I'll stir up more toxins .... which seemed to happen as I would feel horrible even after only walking a short distance ... I only felt reasonably good lying still.

Oh, and I'm only taking one shower a day, LOL. I still smell worse than I would like, but not so bad as it was.

I'm also on almost all my meds and supps again. I guess I need to be careful and get enough rest (not just sleep) so that I can continue to get better.

This has been so strange ... who would have thought that getting rid of the mold would make me feel bad?! That was the only change that was made ..... just getting rid of the bed.

confused Community Regular
Paula...dont try to put it on in the shower! :lol:

You'll end up with pasty clumps of baking soda sticking to your underarms. :lol:

Well i would dry off first. I dry off in the tub lol. So the rest would just fall into the tub with the other water that is still draining lol.

I am feeling so awesome today. I have cleaned the house from top to bottom. Made the kids breakfast, lunch and now im making an nice dinner of steak, crab legs, baked potatoes and veggies. I also repainted the banister. Hubby and i cleaned up the backyard when he got off work. I still have to iron and get clothes togehter for the kids, since they have school pics tommorow.

There is only one thing wrong when i have these good days tho. I have swept the living room like 13 times lol. When hubby came home he was like boy does the house look good lol. Oh i forgot i also worked out for an hour this morning.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular
Well, I'm finally feeling better! I have fibro pain, air hunger, and diarrhea (but not so bad that I can't leave the house). Other than that, I feel pretty normal. I also have a sore throat, but I think I'm so used to that I barely notice it. The air hunger isn't as bad as it was ... it's still constant, but at least if I focus I can get a full breath where before I could not no matter what I did.

I have been busy from the time I got up until now. I still feel up to cooking dinner. The weakness and crushing fatigue has let up. So has the feeling that if I move I'll stir up more toxins .... which seemed to happen as I would feel horrible even after only walking a short distance ... I only felt reasonably good lying still.

Oh, and I'm only taking one shower a day, LOL. I still smell worse than I would like, but not so bad as it was.

I'm also on almost all my meds and supps again. I guess I need to be careful and get enough rest (not just sleep) so that I can continue to get better.

This has been so strange ... who would have thought that getting rid of the mold would make me feel bad?! That was the only change that was made ..... just getting rid of the bed.

Yayy carla. Isnt it great to feel great. Hmm i wonder how we will both feel tommorow lol

paula

CarlaB Enthusiast

Well, I didn't say "great"! ;) I didn't actually do as much as you. :)

I sat down to play flute at Mass this week, I generally stand. I took a Norco right before Mass to calm the pain. Then I went to Starbucks, watched my son play football, my daughter play softball, went to the grocery, cooked and ate dinner, now getting a shower, then relaxing. So, I should feel okay tomorrow. :D

I'll be glad when I can get some cleaning done again. LOL

It's just nice feeling some improvement and not feeling like I have to lie down all day.

mftnchn Explorer

Great news, both of you!

ShadowSwallow Newbie

(Today's my 18th birthday :D)

Has anyone else taken Spleen Terrain by Apex Energetics? Every time I've taken in the past few days I've felt awful. This is the description from the company's website:

Adrenal and lymphatic support are integral part of this special Spleen formula. The health of the spleen is supported using several plant bud extracts encouraging drainage activity. Litho elements support the immune's anti-parasidal function. The health of the mucous membranes are supported as well. The related meridians of liver, kidney, lung and lymphs are balanced based on their correlation to the spleen.

I'm thinking that the reason I feel bad is because it's helping stimulate my immune system (has colostrum in it) and is causing a small herx (plus, my nose gets runny after I take it). I'm going to lay it off and see if I feel as good as I did before. Plus, I'm now away from the mold. I'm going to cut that patch out of the carpet the moment I get home.

confused Community Regular

Happy 18th Birthday. What did you do for your birthday. To be 18 again would be heaven lol.

Carla,

You stayed at church today, so that is great. Even if u sat down, you still particiapated. That is great from last week. Its funny i hear what you did today, and it seems so much more then what i did lol

paula

confused Community Regular
Great news, both of you!

Thanks sherry. I am so running out of energy now tho and its only after 7pm. I still have so much to do, ughhhh.

paula

mftnchn Explorer

Happy birthday Birdie!

I'm not familiar with that supplement but you sound intolerant to me. I take nattokinase and poke root to help lymph.

AndreaB Contributor

Carla,

Glad you're feeling better today. :)

Paula,

You must be feeling much better to get all that work done! :D Hope you still feel well tomorrow.

Birdy,

Happy 18th Birthday!!! :D :D :D

CarlaB Enthusiast

Happy Birthday Birdy!!!!!!

Carla,

You stayed at church today, so that is great. Even if u sat down, you still particiapated. That is great from last week. Its funny i hear what you did today, and it seems so much more then what i did lol

paula

Yes, that is an improvement!

But I didn't do anything physical except drive my car. :) I just sat and watched .... except for playing my flute, but playing my flute seems to make me feel better.

Thanks, Andrea and Sherry.

I got some sun today too. B)

mftnchn Explorer

I'm noticing that I am now having some symptoms when I take my B vitamines and glutathione. I also had what I can only describe as a mild anxiety attack last Saturday, after taking my reduced dosage mold shot. I've never noticed this type of reaction before but noticed it today again with the shots.

Since my LLMD gave me a "range" of dosage and I am mostly taking the top dosage, I'll cut back and see if that helps. Maybe I am now absorbing enough that I just don't need it and am overdosing. Hope it is that rather than a developed sensitivity.

Sherry

dlp252 Apprentice

HAPPY BELATED BIRTHDAY BIRDY!!!

AndreaB Contributor
Maybe I am now absorbing enough that I just don't need it and am overdosing. Hope it is that rather than a developed sensitivity.

Hope so too.

confused Community Regular

Well im glad i had an good day yesterday. I am back to feeling like death. I had an bad reaction to diner last night. Im guessing it was the mercury in the crab legs. All i know is i hate life today.

paula

confusedks Enthusiast

I saw Dr H yesterday...he's happy with my progress and wants me to continue on all my meds and supplements. He added Protonix because I am having severe stomach pain (radiating to chest pain, rib pain, throat pain) that he said sounds like a stomach ulcer, so he is going to just start me on it to see if it helps.

I had to call his office today to ask what I can do in the mean time because the pain is horribly unbearable. I haven't slept in a few days because its such sharp, unrelenting pain. When I don't have the pain though, I am still doing pretty good. Trying to just slowly do things because I want to do everything....FAST! :)

I also saw my hematologist on Friday and he wants me to call him tomorrow for blood results. If my ferritin is low, he wants me to get IV Infed, but he stopped giving that 5 years ago because 3 out of 4 of his patients went into anaphylactic shcok from it. Needless to say, I don't know what we're going to do if my iron gets low and I need more IV's, because Dr H said NO STEROIDS!!!! <_<

I will keep everyone updated when I get a chance.

CarlaB Enthusiast

That's great news that you're doing so well Kassandra.

I felt horrible today. I think the constant diarrhea is finally catching up with me. I was really weak today. I didn't do anything.

mftnchn Explorer

Kassandra, for ulcers (usually h pylori) what really helped me was Mastica--mastic gum. But I was on a couple other things too initially. Sure hope the pain eases soon!

mftnchn Explorer
I felt horrible today. I think the constant diarrhea is finally catching up with me. I was really weak today. I didn't do anything.

Oh oh. Can you make an electrolye type drink to help replace what you are losing?

I'm doing okay in spite of symptoms, not severe enough to undermine daily function.

A Donna siting, LOL! Wish we'd hear from Julie. Its been quite a while, and I wonder if she is doing ok.

CarlaB Enthusiast

I'm glad you are functional through the symptoms, Sherry.

I was really in bad shape today. I never even got dressed. I'm going to shower now and go back to bed.

I put some trace minerals in my water. Also sea salt (Real Salt). Part of the problem is that whenever I eat .... well, you know. This is a previous symptom. I am wondering if this is a healing reaction??? Sometimes when you're getting better your body revisits old issues that weren't fixed the first time around. Let's hope it's that. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

    2. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    4. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    5. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,142
    • Most Online (within 30 mins)
      7,748

    Mark Conway
    Newest Member
    Mark Conway
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.