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Omg...i Might Be On To Something


Rachel--24

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Green12 Enthusiast

Carla, I was just going to ask if you were feeling any better because you hadn't posted, I am so sorry that not much has changed for you and you are still experiencing the d :(

While I agree with Patti and Andrea, that the supplements (or diet) could be a factor, I still think the infrared sauna has a very powerful effect on the body and the detox process- that is why I was always told to go very slowly with it given my complex health problems and level of toxicity.

I found this info:

In the infrared sauna, invisible light rays emanate from several infrared emitters. This infrared light penetrates deep into the fat and muscles of the body, creating a more powerful detoxifying influence upon the deeper tissues of the body.

Radiant heat (infrared) sauna provides the following benefits:

-Speeds up metabolic processes of vital organs and glands, including endocrine glands.

-Inhibits the development of pleomorphic microforms and creates a "fever reaction" of rising temperature that neutralizes them.

-Increases the number of leukocytes in the blood.

It might be a case that it just "sped" the metabolic processes up really quickly in your body, more than you could handle at once.

It might be a good idea to go back to the drawing board and eliminate your supplements, and things in your diet, one by one to see if that will rule any of them out as the source.


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jerseyangel Proficient

Julie,

Thats a very good point about the saunas--I didn't know that. I know that the healing process can be difficult, and the Kinesiologist told me that sometimes people choose to ease up on some of the suppliments or other things that they're using because of the difficult symptoms.

OK everyone, I don't know what's going on here, but I feel like I'm going through a second healing! You know that feeling when you first got off gluten and started to feel better? And then got really hungry? Thats me the last couple of days. Once I got over the tomato-burning episode, I really seemed to feel better :D

Yesterday, I made brownies from The Gluten Free Kitchen cookbook (the one that uses potato starch). So, naturally, I had to make some Vance's banana "ice cream" to go on top :huh: . Then, today, I made the pumpkin-spice bread from the same cookbook :ph34r:

It's like suddenly, I'm not aware of my stomach all the time--I'm "regular"--and I'm hungry :lol:

I don't know how long this is gonna last, so I'm enjoying it while I can! :P

dlp252 Apprentice

I know Vitamin C definitely give me D if I take too much, I seem to be okay in lower doses throughout the day rather than 1 big one, but that's one of the reasons I stopped taking it at the beginning of the year, so I could see if that was what was causing the D. It helped when I stopped but didn't stop the D altogether.

In your case Carla, I think it really may be the combination of things...

How much Vitamine C and glutathione are you taking...not questioning how much you take but wondering how much I should take, lol.

You're welcome Andrea!

Thanks Rachel! I'm feeling better than yesterday, but am still woozy...I wish I brought my blood pressure monitor to work with me...bet it's really low again. :(

TriticusToxicum Explorer
Julie,

Thats a very good point about the saunas--I didn't know that. I know that the healing process can be difficult, and the Kinesiologist told me that sometimes people choose to ease up on some of the suppliments or other things that they're using because of the difficult symptoms.

OK everyone, I don't know what's going on here, but I feel like I'm going through a second healing! You know that feeling when you first got off gluten and started to feel better? And then got really hungry? Thats me the last couple of days. Once I got over the tomato-burning episode, I really seemed to feel better :D

Yesterday, I made brownies from The Gluten Free Kitchen cookbook (the one that uses potato starch). So, naturally, I had to make some Vance's banana "ice cream" to go on top :huh: . Then, today, I made the pumpkin-spice bread from the same cookbook :ph34r:

It's like suddenly, I'm not aware of my stomach all the time--I'm "regular"--and I'm hungry :lol:

I don't know how long this is gonna last, so I'm enjoying it while I can! :P

Cheers for Patti's Tummy! (now are you gonna pass the brownies? :ph34r: ) :P

jerseyangel Proficient
Cheers for Patti's Tummy! (now are you gonna pass the brownies? :ph34r: ) :P

:D I wish I could! Honestly, my house smells so good now--I wish you could all come over for tea.

dlp252 Apprentice
:D I wish I could! Honestly, my house smells so good now--I wish you could all come over for tea.

You mean there are REALLY brownies...I thought that was another phrase like "frisk the wookie" or something. :P

jerseyangel Proficient
You mean there are REALLY brownies...I thought that was another phrase like "frisk the wookie" or something. :P

:lol: Donna--yes, there are really brownies and ice cream and pumpkin bread! I'm making hay while the sun shines :D


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TriticusToxicum Explorer
:D I wish I could! Honestly, my house smells so good now--I wish you could all come over for tea.

Party at Patti's - Brownies AND Tea AND Ice Cream and BREAD! Check you Wookies Friskers at the door :P

Fiddle-Faddle Community Regular

Andrea, for fruit spread you can make your own freezer jam, using thawed frozen strawberries, sugar, and powdered pectin (I use sure-jell). It's not like regular canning--you're storing the jars in the freezer til ready to use. I usually was my jars in the dishwasher right before making the jam.

I know with 4 children you have no time, but maybe you can make it into a homeschool science lab about liquids and solids....

Green12 Enthusiast

Patti, great news! I am so glad you are feeling "good" and have been able to break from your normal restricted diet to try a few different things, and best yet, that it is sitting well with you :D:D

Everything sounds so yummy that you made :) .

I hope you enjoy every last bite!

CarlaB Enthusiast

Patti, that is great that you're feeling so good!!!! I wish I could come over for real!!! Vance's ice cream ... I'm definately going to have to try that some day!

Donna, I don't remember how much I took ... I remember the glutathione seemed to really be the one that made me feel better and it was taken several times per day. The C I don't remember either. It was about 15 years ago that I had my removal. I think I remember the vitamin C was taken to the point where it started causing discomfort and diarrhea, then back off from that amount.

Julie, thank you for the suggestions on the sauna ... that could be it. I read yesterday that the first thing that starts detoxing is your liver and kidneys. Your liver basically dumps bile into your colon ... that definately could be the cause of the d. It was also definately stuff I hadn't seen before. :ph34r: I seem to be doing somewhat better yesterday and today, so I'm not going to back off anything right now ... but if I take a downward turn, I will.

I've read and appreciated all of everyone's suggestions, thank you. I really don't know how I could cut more out of my diet ... except eggs -- and we're not going there right now :blink:

AndreaB Contributor

Thanks Alison, I will have to try that.

I bought some at the store which has citric acid in it. Still have to check on that but it seems like that has been ok. We'll find out sometime today or tomorrow as Talitha couldn't wait for me to check on it.

Patti, Don't I wish I lived near you......those sound good.

Carla, Keep us posted please. I'm getting concerned.

Hi everyone!

I'm off to find something to eat........have not eaten yet today.......haven't started school today either........errands get in the way of everything.

happygirl Collaborator

x

Rachel--24 Collaborator

Patti.....AWESOME....I'm so glad that you're enjoying some really yummy foods (wish I could have some) and still feeling good!! I'll cross my fingers (and toes) that things stay this good for you. :D

AndreaB Contributor

Just got a call from my dad after trying to reach him for a week. The new med he is on makes him sleepy/loopy. He has a hard time focusing. He said something to the effect that he'll be on the med and dialysis for as long as he's alive, which won't be long. Before he was talking about years.....such a big change from last month. :(

CarlaB Enthusiast

Laura and Andrea, and everyone else, thank you for your concern. I'll keep you posted. Laura, we have to look at the positive ... would we appreciate our health once it returns if we got better that easily? :) I certainly did not appreciate my relative health before!! I have gotten a lot of life lessons from this and grown into a better, stronger person ... Okay, enough of that, where's Richard to lighten things up?

happygirl Collaborator

x

CarlaB Enthusiast

Andrea, sorry about your dad.

Rachel--24 Collaborator

Awwww Andrea...I'm really sorry about your dad. :(

I'm glad you were finally able to reach him ...I know you were getting really concerned. I wish he'd had some better news for you though. :(

AndreaB Contributor

Laura,

He has kidney failure. He had one removed about 5 years ago because of prostate cancer that had spread. He is on dialysis 3 days a week and now this new med. Maybe it's the med because he wasn't that concerned about dialysis to begin with. I'm wondering what happened that he had to be put on it, and no, I don't know what it is. He was hospitalized in September, got out and was hospitalized again within the week with 1 litre of fluid in his lungs. His kidney is shot. He lives in Arizona which is a warm climate. Don't know if winter blues applies to warm climates or not since they still see lots of sun. Apparently he can't be left alone because his wife's brother came over to watch him while she ran errands.

CarlaB Enthusiast
Don't know if winter blues applies to warm climates or not since they still see lots of sun.

The lack of sunlight in the winter still bothered me when I lived in Florida. They make full-spectrum light bulbs that I use a lot of in my house, in areas that you want it to be like daytime (kitchen, bathroom, etc.). I don't really like them in the family room because of the purplish tint of light in them. I don't even notice the lack of light now. I don't think it was ever a huge problem for me, but it did used to bother me enough that I noticed.

AndreaB Contributor

I've heard of those light bulbs. I will be looking into getting them for next winter. I don't think I've really been bothered by winter blues. Now if we saw miles of snow instead of miles of rain that might be different. I would definately be blue worrying about Mitch on slip slide roads.

CarlaB Enthusiast
I've heard of those light bulbs. I will be looking into getting them for next winter. I don't think I've really been bothered by winter blues. Now if we saw miles of snow instead of miles of rain that might be different. I would definately be blue worrying about Mitch on slip slide roads.

They're just like regular light bulbs, no big deal, I just get them at the grocery.

I know what you mean about the weather. Adam travels through 6 states. He was in Northern Ohio all week, stopped home for about 12 hours last night, and is in Nashville, TN today. He was in a freeway accident on a slippery road a couple years ago ... driving in snow a couple days ago.

jerseyangel Proficient

Andrea,

I'm sorry to hear that your dad isn't doing well. I know you've been concerned about him.

AndreaB Contributor
I know what you mean about the weather. Adam travels through 6 states. He was in Northern Ohio all week, stopped home for about 12 hours last night, and is in Nashville, TN today. He was in a freeway accident on a slippery road a couple years ago ... driving in snow a couple days ago.

You must not like snowy weather very well either. I actually love snow, just not on the roads. :P His schedule sounds not to my liking either. I know, you're probably used to it.

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I’m working a temporary job right now that involves: • Powder coating • Sandblasting • Wet spray painting • Anodizing There’s also a laboratory. I don’t need this job, and my OCD makes me believe that dust or air particles there might contain gluten somehow. Should I quit?   Doctors Haven’t Helped My family doctor told me: “Asymptomatic celiac isn’t serious, if you have no symptoms, your intestines won’t get damaged, so you don’t need a gluten-free diet.” I knew that was wrong, but he wasn’t open to listening. I just nodded and didn‘t argue. My gastroenterologist (who’s also a dietitian) said: „If your antibodies are negative, there’s no damage. It might even be okay to try small amounts of gluten later if antibodies stay negative.“ Also said, pepper that says “may contain gluten” is fine if it only contains pepper. She was more informed than my family doctor but didn’t seem to fully understand celiac either.   Questions I Need Help With 1. Is it realistically safe to eat food my mom cooks, if we get separate pans/ and boards even if gluten is still used in the same kitchen? There will always be low risk of cc chances like that she will still touch stuff that was touched by her and my siblings after they ate gluten. And as there are gluten eaters in the house and she also prepares and eats gluten. So would opening the fridge then getting the food and touching the food be okay? So basically what i am doing, washing my hands multiple times while preparing food, she would only wash it once before, then touch anything else (for example water tap or handles) that were touched with gluteny hands, then also touch the food. I dont know if I ever could feel safe, I could try telling her how important cc really is. And I trust her so she wouldnt lie to me then be careless about cc, but idk how safe it really can be if she and everyone else keeps eating gluten and touching stuff in the house after eating. 2. Do I need to worry about touching doorknobs, fridge handles, light switches, etc. that family members touched after eating gluten? What about public places like bus handles or school desks? Or like if i went to the gym, I would be touching stuff all the time, so there will be small amounts of gluten and those would get transferred on my phone if I touch my phone while in the gym. But I want to knos if it would be enough to do damage. 3. Is an endoscopy (without biopsy) enough to tell if my intestines are healed? I’d pay privately if it could help and if i dont get a refferal. Or do i need a biopsy? 4. Could my job (powder coating, sandblasting, etc.) expose me to gluten or damage my intestines through air/dust? 5. Do I need certified gluten-free toothpaste, hand soap, shampoo, or moisturizer? (For example: Vaseline and Colgate don’t contain gluten ingredients but say they can’t guarantee it’s gluten-free.) 6. Is spices like pepper with “may contain traces of gluten” safe if no gluten ingredients are listed? Or does everything need to be labeled gluten-free?  7. Is continuing to only eat my own food the better choice, or could I eventually go back to eating what my mom cooks if she’s careful? 8. is cutlery from dishwasher safe if there are stains? Stuff like knives is used for cutting gluten bread or fork for noodles etc. I often see stains which i dont know if its gluten or something else but our dish washer doesnt seem to make it completely clean. 9. I wash my hands multiple times while preparing food. Do i need to do the same when touching my phone. Like if i touch the fridge handle, I wash my hands then touch the phone. I dont eat while using my phone but i leave it on my bed and pillow and my face could come in contact with where it was.  10. Do i need to clean my phone or laptop if theyve been used by people who eat gluten? Even if no crumbs fall onto my keybaord, i mean because of invisible gluten on their fingers. 11. Does medication/supplements have to be strictly glutenfree? One company said they couldn‘t guarantee if their probiotics don’t contain traces of gluten.  12. I had bought supplements in the past, some of them say glutenfree and some of them dont(like the brand „NOW“ from iherb). I bought them and used them when i wasnt washing my hands so often, are they still safe? As I touched and opened them after touching door knobs, water taps etc. It was like a year ago when i bought those and even though i was eating gluten-free, I never worried about what i touch etc. I know this post is long. I’m just extremely overwhelmed. I’m trying to protect myself from long-term health damage, but the OCD is destroying my quality of life, and I honestly don’t know what’s a reasonable level of caution anymore. Thanks for reading.
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