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Omg...i Might Be On To Something


Rachel--24

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Rachel--24 Collaborator
YOU KNOW RACHEL..........THIS QUOTE SEEMS TO ME...

"IN MY OPINION' :lol: can't forget to add that god forbid!!! :ph34r: "

ROFL...

Ummm yeah...let me rephrase this....it might sound too much like fact...rather than opinion. <_<

"In my opinion....some people CAN overcome their intolerance when properly diagnosed. In my opinion...this would be considered a non-celiac gluten sensitivity.

In my opinion I will eat PIZZA again!! B)

Just to be sure there is no confusion. ;)

And no...I will not be eating pizza tomorrow...I do take my current restrictions seriously and will only indulge when all is clear. I'm waiting for that green light....may take some time...but PIZZA will still be around. :D

Judy....cant get anything by you!! :lol:

Thanks for the laugh... :wub:


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AndreaB Contributor
Just got some distressing news ...

I hope this gets resolved. :( I don't know anyone who would be comfortable in that situation.

Ummm yeah...let me rephrase this....it might sound too much like fact...rather than opinion. <_<

Judy....cant get anything by you!! :lol:

Thanks for the laugh... :wub:

My dumb. :lol: I totally spaced over this post of Judy's. Too funny you two. :lol::lol:

jerseyangel Proficient
Everything is progressing, I've come up with a second one, did I mention I am going to produce a line of gluten free foods?

This is great news! :D Can't wait to hear more when the time is right!

..when I'm done here I'm off to shower...then nothing but lay around until my massage. The candles are ready, bubble bath and epsom salts ready, clean jammies ready....

green nail polish...ready! :P

Sounds like a plan :P Have a lovely day, Donna :)

I'm glad you found the culprit. Waiting anxiously to hear how your appointment went. :)

It went fine. I like this doctor--very crisp, business-like demeanor--but I definately got the impression that he knows his stuff. Unfortunately, because of this allergic reaction, he dosen't want to do any bloodwork at all for 2 weeks till all this is out of my system. I made that appt today before I left.

He wants to do a full, fasting workup as well, so we'll see.

This is an allergic reaction, and he feels it is due to the generic med. I asked him why I was suddenly allergic to the active ingredient, and he told me that the active ingredient is not the same as the name brand--it's "close" but not the same. He was not terribly surprised that this happened. <_<

He said it should begin to resolve in about a week. (Probably less if I haden't taken it for 7 days. :ph34r: ) In the meantime, I'm doing Claritin. ;)

Oh, and my BP was very good with only taking the one other med, so he said to try only that until I see him again. Maybe I won't have to go back on the Norvasc at all :rolleyes:

I was more happy to hear that my SIL"s sister was pregnant than that she was eating pizza!

I am, too--how wonderful for her. Have a nice time soaking up those rays B)

Just got some distressing news ... a rapist just moved in four doors down. :angry: He raped a woman at gunpoint ... we live REALLY close to Head Start ... they came out and measured today to see if he was too close ... keeping my fingers crossed. We're also going to call the owner and give him a piece of our mind! :angry::angry::angry: WHAT could he possibly be thinking???? I ALWAYS check criminal records before I lease to someone! Then again, I'm not a slumlord like this guy is.

That is distressing! I'll keep my fingers crossed for you, too. :)

DingoGirl Enthusiast
I hope this gets resolved. :( I don't know anyone who would be comfortable in that situation.

Well.....*I* would not mind......because that rapist would be scared out of his wits by me, as there is a righteous anger I have always carried, from the Holy Spirit, I think....which is why God never allows me into those situations any more (witnessing the evil terrorizizng the powerless), because I could get myself killed......some of you may know my very fearless and vigilante streak, it has gotten me in some trouble over the years. :ph34r: But there is a way of looking, of seeing into the soul of a person like that - - - - they cannot handle the discomfort of it. I have done this many, many times in my life......with choice words to go with it...... :angry: And I have seen true fear in men from this. they are rendered powerless and it is a battle of good versus evil at that point, a battle of spirits, if you will. I have had girlfriends over the years who have actually called ME in the middle of the night for a perceived intruder or harassment.....and they know I"ll be there immediately, Iriquois Skull Crusher in hand. Am just wondering now, as I often have, how I can channel that fearlessness into something really productive and beneficial for others......

Carla - - it will be quite important to teach your children, I imagine yours alreayd know this but I have had to teach my nieces and the daughters of friends - - how to walk, make eye contact and carry themselves with power and with NO FEAR, and to look at people so carefully as to be able to give a description - - - the way in which to carry themselves so as not to be victims or be harassed.

:ph34r: Sorry for my rant......

Patti - - that man sounds like a great doctor!! What good news. So glad you're doing better.

GRUMP 1 Contributor

Some one smack me. Silly me went and bought a air conditioner on Sunday. My Sun-in-law and I spent about 4 hours putting it in yesterday. Now there is ice crystals all over the house. Wait got to go put on my snow suit. Ok I am back, the windows are starting to freeze over and I think I am getting frost bite on my nose. Don't know who is more silly me or my wife. Me for going and buying the darn thing or her because she has those female heat flashes. So it has to run 24 / 7, I think she figures we are all having the hot flashes. Ok got to go out side now to thaw out.

Have a great warm day, :unsure:

Grump

jerseyangel Proficient

Grump,

You sound like a great husband! As someone who's going through those female heat flashes, there's no way I'd get through this summer without an air conditioner.

I know it isn't always easy being the menopause-husband :D Make yourself a nice cup of cocoa, throw on a sweater, and try to stay warm ;)

AndreaB Contributor
Unfortunately, because of this allergic reaction, he dosen't want to do any bloodwork at all for 2 weeks till all this is out of my system. I made that appt today before I left.

He wants to do a full, fasting workup as well, so we'll see.

Gives you lot of time to get the Igenex paperwork sent to you. :D

Sorry you have to wait though......that's a bummer.

It does sound promising that you might be able to drop one med hopefully.

Some one smack me. Silly me went and bought a air conditioner on Sunday. My Sun-in-law and I spent about 4 hours putting it in yesterday. Now there is ice crystals all over the house. Wait got to go put on my snow suit.

Sorry, but..... :lol::lol::lol:

Hey, I just noticed your in Washington....unless I glanced wrong. :ph34r: Are you eastern or western. I'm in Western Washington.....Southwest actually. It's supposed to beautiful....for us that is. Rachel probably still on the cool side for you. :P


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Mtndog Collaborator
Some one smack me. Silly me went and bought a air conditioner on Sunday. My Sun-in-law and I spent about 4 hours putting it in yesterday. Now there is ice crystals all over the house. Wait got to go put on my snow suit. Ok I am back, the windows are starting to freeze over and I think I am getting frost bite on my nose. Don't know who is more silly me or my wife. Me for going and buying the darn thing or her because she has those female heat flashes. So it has to run 24 / 7, I think she figures we are all having the hot flashes. Ok got to go out side now to thaw out.

Have a great warm day, :unsure:

Grump

OMGosh- Grump that is HILARIOUS!!!!!!!!!!!! You know you could open a spa in your home and charge admission. My friend was just in Vegas and at the spa at Caesar's they have a room where snow falls! Not very attractive to those of us East Coasters but cool nonetheless! Start chanrging admission- you could open a life-size snow globe! :P :P :P

Patti- Your doctor sounds great! I HATE generic drugs-- they are NOT the same and I am tired of pharamaceutical companies claiming they are. Even though i can't stand michael Moore, I'm glad his new movie is about health care. If nothing else it will bring awareness!

Carla- Thanks for the sauna info!

Susie- I knew you were strong but wow! I would not want to be a bad man staring you down. You go girl!

I hate when you hear that a rapist or pedophile is moving into the area. It's like they have to live somewhere, but why next to Carla? Or any of us for that matter? Where we lived in Portsmouth, there were 10 convicted pedophiles in a one-mile radius. If I had kids, I would have been out of there the day I found that out! I agree with Susie- Carla- arm your kids with pepper spray if you can. That and confidence and knowledge.

nikki-uk Enthusiast
I hate when you hear that a rapist or pedophile is moving into the area. It's like they have to live somewhere, but why next to Carla? Or any of us for that matter? Where we lived in Portsmouth, there were 10 convicted pedophiles in a one-mile radius. If I had kids, I would have been out of there the day I found that out! I agree with Susie- Carla- arm your kids with pepper spray if you can. That and confidence and knowledge.

I don't like to get political in Rachelville but at least you have 'Megan's Law' in the US allowing you at least to know if your kids are at risk.

There is a huge campaign in the UK for parents here to have the 'right to know' after many, many truly heartbreaking crimes but government keeps blocking it.

I need my own personal Susan!! ;)

..sorry,...horribly off topic :ph34r: ...carry on... :)

CarlaB Enthusiast
Carla - - it will be quite important to teach your children, I imagine yours alreayd know this but I have had to teach my nieces and the daughters of friends - - how to walk, make eye contact and carry themselves with power and with NO FEAR, and to look at people so carefully as to be able to give a description - - - the way in which to carry themselves so as not to be victims or be harassed.

Yes, I've taught Morgan as she was becoming a teenager, how to not be a victim.

I took a self-defense class once that taught what you are saying. The teacher said that predators look for victims. He said it might start with, "What time is it?" He said that a man should never ask a woman who is alone this at night, so you should give him some choice words if he does.

Soooo, one time I was walking down the street alone and a business man asked me the time ... because he was so clean cut, I didn't use choice words, but I did say, "Are you serious, don't you know that a gentleman does NOT ask a lady the time after dark?"

Another time, I could hear someone walking behind me, I was getting ready to go into a relatively dark parking lot, so I stopped, turned around, looked him in the eye, then turned around again. He said, "Man, I hope my wife is as careful as you are!" Apparently, I had "the look"!! :lol:

But, predators don't want prey that is self-assured like that. Who knows what the outcome would have been in either case had I not been proactive.

But, just got good news, the guy was moving too close to a school, so the sheriff is not letting him move in.

tabasco32 Apprentice

mmmmmmm pizza! I want pizza! PIzza Hut, Little Ceasars eeven though I never likes it, Papa Murphy's Im hungry. Hey rachel ever have me n eds pizza in the valley. THE BEST. They have one in los banos. We should go when we are both better, god willing. Funny the bottle I got at whole foods says to take the charcoal with meals.?

DingoGirl Enthusiast
Susie- I knew you were strong but wow! I would not want to be a bad man staring you down. You go girl!

:lol: No you would indeed not, but you WOULD want to be wtih me if a bad man were staring YOU down! ;) And I will also chase storms with you and Jin. :) NOTHING BETTER than a good thunderstorn - - I leave the doors and windows open. BTW did not know that Michael Moore had a new film on health care, I think t hat should be really eye opening, and he is probably the man to do it...

Update on Stinker's health, full detail is on her "stroke" thread, but, short version - - she is doing SO much better on her fifth day of antibiotic, not really fallign any more, just a bit sideways and confused. Doctor just called, and her thyroid is quite low, poor baby - - so she is going on some meds. That should make her much more comfortable, I am so happy to report.

Grump - you are hilarious - - and I must be mental-pausal also because that ice-crystalled room sounds wonderful! Of course, temps are heading to 100 here - - dang it all....

jerseyangel Proficient
I don't like to get political in Rachelville but at least you have 'Megan's Law' in the US allowing you at least to know if your kids are at risk.

There is a huge campaign in the UK for parents here to have the 'right to know' after many, many truly heartbreaking crimes but government keeps blocking it.

I need my own personal Susan!! ;)

..sorry,...horribly off topic :ph34r: ...carry on... :)

I hope that campaign is successful, Nikki. It boggles the mind that the government would keep blocking it. :(

DingoGirl Enthusiast
Soooo, one time I was walking down the street alone and a business man asked me the time ... because he was so clean cut, I didn't use choice words, but I did say, "Are you serious, don't you know that a gentleman does NOT ask a lady the time after dark?"

Another time, I could hear someone walking behind me, I was getting ready to go into a relatively dark parking lot, so I stopped, turned around, looked him in the eye, then turned around again. He said, "Man, I hope my wife is as careful as you are!" Apparently, I had "the look"!! :lol:

;) VERY good work Carla. I think your girls will be fine, since your have the proper attitude about it...and SUCH god news that he is not moving in there!

CarlaB Enthusiast
Some one smack me. Silly me went and bought a air conditioner on Sunday. My Sun-in-law and I spent about 4 hours putting it in yesterday. Now there is ice crystals all over the house. Wait got to go put on my snow suit. Ok I am back, the windows are starting to freeze over and I think I am getting frost bite on my nose. Don't know who is more silly me or my wife. Me for going and buying the darn thing or her because she has those female heat flashes. So it has to run 24 / 7, I think she figures we are all having the hot flashes. Ok got to go out side now to thaw out.

Have a great warm day, :unsure:

Grump

Don't worry, once you get that first electric bill, you won't be nearly as cold anymore!!

jerseyangel Proficient

Good news about Stinker, Susie :) Hope she keeps improving!

DingoGirl Enthusiast
..sorry,...horribly off topic :ph34r: ...carry on... :)

:ph34r: I think I started it....but let's DO hope you get something like Megan's Law in the UK - - we can pinpoint, with maps and addresses, where the villains live. I don't think it's good for me to have that kind of information - - - :huh:

AndreaB Contributor
But, just got good news, the guy was moving too close to a school, so the sheriff is not letting him move in.

Good news!

:ph34r: I think I started it....but let's DO hope you get something like Megan's Law in the UK - - we can pinpoint, with maps and addresses, where the villains live. I don't think it's good for me to have that kind of information - - - :huh:

I hope UK passes a law too Nikki.

Susan,

You need to move up our way. :D I've never learned any of this stuff. :ph34r:

dlp252 Apprentice

Just a quick drive by...need to get back to my relaxation, lol.

Just a little hitch in my plan...the therapist at HN called in sick so they had to cancel my massage...BUT, I called the place I usually go to and was able to get in there...so within 45 minutes of the call to cancel, I was on the table. :) I love this place, they are quite good, and the only reason I didn't book here first was because the girl I usually see doesn't work on Mondays or Tuesdays and doesn't work until afternoon. I usually see her on Saturdays, but since BioSET started, I haven't been going. Anyway, the need for massage was great, so I took who was available today, and she was quite good.

So, all deep tissue massaged, nicely bubble epsom salt soaked and now just kicking back...not sure if the green toes will happen today or not...I'll have to play that by ear.

AndreaB Contributor
So, all deep tissue massaged, nicely bubble epsom salt soaked and now just kicking back...not sure if the green toes will happen today or not...I'll have to play that by ear.

Glad you got to get a massage today. Enjoy the rest of your day.....but don't forget about us. :D

DingoGirl Enthusiast
Susan,

You need to move up our way. :D I've never learned any of this stuff. :ph34r:

Hi Andrea :) Do you mean - - how to carry yourself, etc? I come by it innately, I think....as a very little girl, if I heard a strange noise in teh house at night, I just got out of bed, FURIOUS, and crept around with an aluminum bat, to find the offender(s). My parents never thought anything of this - well, I'm not even sure they knew....but when I was 13, a man with his pants down came to our kitchen window and was, um, amusing himself.......my mom screamed, freaked out, called the cops - - and guess who ran outside to find the guy, with bat in hand? :ph34r:

It is just sad......that I've had - MANY OF US have - - certain "skills" ( :huh: ) or abilities in my life - genetic talents or attributes or whatever - - and never was able to channel them appropriately, really, as my brain was SO messed up and fogged and confused my whole life, until this past year. Maybe I do have Lyme Brain? but from what I've read about that, even, almost nothign of it applies to me.....maybe I"m just really a misfit toy after all..... :( (oh dear, slipping into my unemployment craziness and terror as to what will become of me - - - :o )

Probably a good thing I couldn't become a cop, or something, because most of the miscreants would just cause such a fearsome and holy wrath in me, that I would NOT tolerate it/them...... :lol::ph34r:

So, all deep tissue massaged, nicely bubble epsom salt soaked and now just kicking back...not sure if the green toes will happen today or not...I'll have to play that by ear.

Yay! sounds fantastic, the massage with the DonnaSpa.

Judyin Philly Enthusiast
But, just got good news, the guy was moving too close to a school, so the sheriff is not letting him move in.

FANTASTIC...........................SO HAPPY CALRA

Judyin Philly Enthusiast
But, just got good news, the guy was moving too close to a school, so the sheriff is not letting him move in.

FANTASTIC...........................SO HAPPY CARLA

DONNA

So, all deep tissue massaged, nicely bubble epsom salt soaked and now just kicking back...not sure if the green toes will happen today or not...I'll have to play that by ear.

FOTGET IT AND CHILL..........I'LL PUT SOME GREEN HERE FOR YA

SUSIE Q.......HAPPY ABOUT STINKER.....IS THERE A THREAD ON HER??

MUST CK

AndreaB Contributor
Maybe I do have Lyme Brain? but from what I've read about that, even, almost nothign of it applies to me.....maybe I"m just really a misfit toy after all..... :( (oh dear, slipping into my unemployment craziness and terror as to what will become of me - - - :o )

YOU'RE NOT A MISFIT TOY!!!!!!! :angry:

You a lovely person with a wonderful personality. Don't let anyone tell you otherwise, including yourself! :angry:

We love you and that's that! :wub:

Now, it's probably a good thing you didn't become a cop, but it probably would have been fun for you. :P You'd make a great neighbor though. ;)

Oh, and yes, you could have lyme brain and I'd still love to see you tested. Lots of people are asymptomatic if you take into consideration the children that have autism that test positive for lyme.

rinne Apprentice
You can order pizzas very similar to that at the Risotteria in NY! Thin crust ... we had pesto, feta, and arugula. The bread sticks are to die for ... very salty.

I'll have to find a reason to go to New York. <_<

Oh you and me both!!!! DEfinitely could rachel me some of the rinne bars right about now!

We knew what you were saying! :P

Yay, for a second rinne bar! We have choices!!! Ugh, selling of houses...heinous!

My sweetie found me yesterday morning lying in bed going, "I've got to get off the Rinne bars man'. :ph34r::lol:

......

Selling a house, not fun.....well at least getting it prepped for sale. Sounds like a good counterplan since you can't paint to sit around Rachelville and take in some rays. :P

...

:lol:

.....

Rinne - - you really should be a writer, you are just an other-worldy creature and I think the above paragraph proves it. (insert winky face here)

...

;):lol:

How's Stinker?

Beverly, such great news about healing from Lyme.

Andrea, how is Talitha?

Patti- updates?

Rachel, the thread we shall not speak of. :lol:

Rinne- I love the REALITY IS NOT A MENU! I'm with you on the celiac diagnosis. I WONDER but I doubt I'll ever challenge it. I just hope that I walk out of this less sesnitive to CC and eating peanut butter. really. That and chocolate.

Glad you like it, :ph34r: and I am totally with you on the less sensitive stuff.

Carla, loved your parking angel story and yes, very scary to have a known rapist nearby.

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      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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