Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

jerseyangel Proficient
I believe I'm allergic and intolerant to soy, but I can handle shampoo that has soy protein in it. It's strange I can use it topically because when I injest it my skin breaks out. Soy oil honestly isn't as problematic, but if you're worried maybe you could return it to the store?

I'm intolerant to soy--I get symptoms similar to gluten if I eat the protein. I can eat lecithan in small amounts with no problem--not the oil, though. I am using a shampoo that contains soy protein (Giovanni) and after 2 weeks, have had no problem with it at all. Truth is, I'd rather not use soy at all since I'm intolerant, and really don't know if it is affecting me by using it topically. It is difficult to find a shampoo (and even moreso a conditioner) that has no SLS, gluten AND soy--so I took the lesser of the evils! Andrea--what kind of shampoo do you use, if you don't mind my asking?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
Rachel--24 Collaborator
I was going to say, can you imagine having bathroom duty in this community of celiacs. :lol:

I will be conveniently absent when that job is given out.

:lol::lol:

OMG...I never thought about that! :o

Yeah...I'll be busy shopping at The-Other-Side-Of-The-Mountain Mall when those kind of chores come up!

Camille'sBigSister Newbie

Oh dear God! I just read the spoon theory! How poignant, and true.

Susan, I'm so jealous! I adore raspberry and cream, so I'm coveting that garment! About my husband, he's still living in the 1940s! :lol::lol::lol: I haven't yet been able to drag him, in proverbial kicking and screaming mode, into the 21st century. Imagine, as a faux finish artist, trying to be stress-free while living in a house with LR and DR walls covered in 1970s paneling!!! :angry::angry::angry: He actually likes it. :blink: Poor old dear, he lives life with blinders on. :lol:

G'night all. Hugs all around.

Cissie

Camille'sBigSister Newbie
I was going to say, can you imagine having bathroom duty in this community of celiacs. :lol:

I will be conveniently absent when that job is given out.

I simply MUST add this caveat: I'll clean my own, but I AIN'T GONNA CLEAN NOBODY ELSE'S!!! :lol::lol::lol:

Cissie

jerseyangel Proficient
I simply MUST add this caveat: I'll clean my own, but I AIN'T GONNA CLEAN NOBODY ELSE'S!!! :lol::lol::lol:

Cissie

I'm with you, Cissie--we all do our own bathrooms! :lol:

Rachel--24 Collaborator
All I know about blood is that it is red outside the body!

:lol::lol: Yeah...me too and it makes me all woozy and weak if I see it...so you wont find me volunteering to do any blood draws in Rachelville. I'm such a baby. :ph34r:

I've never gotten used to having my blood drawn...I still cringe everytime and I turn away and either close or cover my eyes. I know....what a wuss huh? :ph34r:

One time the nurse told me I had been great through the whole thing and then she presented me with a Barbie sticker and a lolipop....cuz I was such a "trooper". :blink:

I was with my friend and apparantly she thought I was child w/ my Mom. :ph34r:

jerseyangel Proficient

I'm a huge baby when it comes to needles--or any medical procedure. I always remember what my dad told me when I was literally 5 years old. I was on his lap, and I had to get a shot. He put his had over my eyes, and whispered--just don't look. No matter what, when I'm about to be "stuck", I remember not to look. It helps :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mango04 Enthusiast

So all this talk about Rachelville has me thinking about farming LOL....

I noticed the other day that my co-op sells two different kinds of certain things. The two categories are organic and sustainable. So I'm wondering, are they allowed to use Auxigro and such on sustainable farms????

Fiddle-Faddle Community Regular

So, obviously in Rachelville, we are NOT going to have DOCTORS, are we? But what WILL we have?

Oh--I couldn't find the spoon thing that every one is referring to--what page is it on? :(

VydorScope Proficient
So, obviously in Rachelville, we are NOT going to have DOCTORS, are we? But what WILL we have?

Oh--I couldn't find the spoon thing that every one is referring to--what page is it on? :(

Her you go...

Open Original Shared Link

AndreaB Contributor
Andrea--what kind of shampoo do you use, if you don't mind my asking?

I just switched to Dove since it was listed on other sites. I would also prefer to avoid everything you are. What do the SLS's do anyway? I used to use Abba or Jason shampoos and conditioners.

jerseyangel Proficient

SLS-Sodium Laurel Sulfate is a detergent that can be irritating to some people. I researched it a bit, and felt I'd be better off using products without it. I had what was diagnosed as eczema on my eyelid for years--used everything to treat it, even Rx creams. When I stopped using products with SLS, it cleared up, and has not come back. It's a little bit of a challenge, like I said, to find products without that, gluten or soy--they all seem to have one or the other. :blink: Did you get a chance to try the Kiss My Face Olive Oil Soap? That is very good.

Lisa Mentor
SLS-Sodium Laurel Sulfate is a detergent that can be irritating to some people. I researched it a bit, and felt I'd be better off using products without it. I had what was diagnosed as eczema on my eyelid for years--used everything to treat it, even Rx creams. When I stopped using products with SLS, it cleared up, and has not come back. It's a little bit of a challenge, like I said, to find products without that, gluten or soy--they all seem to have one or the other. :blink: Did you get a chance to try the Kiss My Face Olive Oil Soap? That is very good.

Patti:

Is that you, how pretty you are. Inside and out. :)

Lisa

AndreaB Contributor

Patti,

I love your new picture! :P

Haven't bought the kiss my face yet. Our grocery bugdet is extinct. :) We've decided we can't afford to buy everything organic. :(

jerseyangel Proficient
Patti:

Is that you, how pretty you are. Inside and out. :)

Lisa

Lisa--You are too kind (hugs) :)

Green12 Enthusiast

Patti!! I love your picture, gorgeous :):):)

I also never look when I am getting a shot or blood drawn. I don't want to see the needle going in, or the blood being pulled out- I think I would pass out if I did look.

Mango, I'm not sure about the sustainable farming and auxigro. Will have to look into that. Are you planning on taking up farming? :lol:

Mango04 Enthusiast
Mango, I'm not sure about the sustainable farming and auxigro. Will have to look into that. Are you planning on taking up farming? :lol:

I do hear it's easy to find fruit picking jobs in Australia. Maybe I'll become a farmer. At least then I'll have something more valuable to contribute to Rachelville :lol::lol:

Green12 Enthusiast
I do hear it's easy to find fruit picking jobs in Australia. Maybe I'll become a farmer. At least then I'll have something more valuable to contribute to Rachelville :lol::lol:

:lol: There you go! Good plan :lol:

VydorScope Proficient

y'all better bring your hubby's, I dont want to be as alone there as I am here!!!

Matilda Enthusiast

Dear Girls,

Could you do me a favour please? I'm off on my holidays. Please don't post anything for the next 2 weeks as I'm already about 200 posts behind and will never catch up with the gossip. Feel free to resume posting on July 31st. Thankyou for your cooperation in this matter...

Hehe! There will literally be about a thousand posts to read when I get back! I'm looking forward to it already. I hope everyone will have miraculously got better.

Best wishes,

Matilda

jerseyangel Proficient

Julie and Celia--Thank you both! It's a little odd having my face pop up every time I post--will take some getting used to....Celia, we are non-identical twins (I forget the proper name for that) :D

Poor Vincent--don't worry, we'll bring our guys with us! :lol:

VydorScope Proficient

OMG THIS IS SO TRUE!!!

Open Original Shared Link

miamia Rookie
Patti,

It's Paternal Twins :)

Floridian

are you feeling any better?

Miamia

jerseyangel Proficient
Patti,

It's Paternal Twins :)

:lol: Yes! I knew it was that or Fraternal!

Vincent--I identified with more than a couple of items on that list :ph34r:

Lisa Mentor

If I missed it............but where would Rachelville be, what part of the country? I could offer a pilot, who could fly to Maine and bring back Lobsters and fresh seasonal corn-on-the-cob for the Feast of Sea and Land.

Rusla could do the blessing

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,068
    • Most Online (within 30 mins)
      7,748

    amnaarsal1989
    Newest Member
    amnaarsal1989
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Maybe celiac but maybe NCGS that was misdiagnosed as IBS morphing gradually into celiac. Is NCGS a new category to you? It shares many of the same GI symptoms with celiac disease but does not damage the small bowel lining like celiac.
    • knitty kitty
      Thiamine has antifungal properties.  The body uses thiamine to keep bacteria and yeasts from overgrowth in the digestive system.   Fluconazole use can cause thiamine deficiency.   Supplementing with thiamine in the form Benfotiamine would be beneficial as Benfotiamine promotes intestinal healing.   Thiamine and the other B vitamins tend to be low in Celiac due to malabsorption.  Talk to your doctor about supplementing vitamins and minerals.
    • Scott Adams
      Welcome @Natalia Revelo, your experience is profoundly difficult and, sadly, not entirely unique within the celiac community. It's the frustrating reality of "silent" or ongoing damage that isn't captured by the MARSH score alone, which only measures active villous atrophy. Your normal biopsy suggests your diet is preventing the classic autoimmune attack, but it doesn't mean your gut has fully healed or that other issues aren't at play. The inflammation from your newly discovered milk and egg allergies is a huge clue; this constant allergic response can create a low-grade inflammatory environment that severely hampers nutrient absorption, effectively creating a "leaky gut" scenario independent of celiac damage. This is likely why your iron stores deplete so rapidly—your body is both unable to absorb it efficiently and may be losing it through inflammation. While the functional medicine path is expensive, it's clearly providing answers and relief that traditional gastroenterology, focused solely on the gluten-free diet and biopsy results, is missing. To move forward, continue the gut-healing protocols your functional doctor recommends (perhaps exploring alternative options to glutamine that won't irritate your cystitis), maintain your strict avoidance of all allergens and irritants, and know that true healing is a multi-faceted process. You might seek a second opinion from a different gastroenterologist who is more knowledgeable about non-responsive celiac disease and the complex interplay of food allergies and micronutrient absorption, but your current path, while costly, seems to be leading you toward the steady health you need.
    • knitty kitty
      Have you had a DNA test to look for Celiac disease genes?  If she doesn't have any celiac specific genes, look for another explanation.  If she does have Celiac genes, assume they are turned on and active Celiac disease is progressing.  All first degree relatives (mother, father, siblings, children) should be genetically tested as well.   Sometimes blood tests are ambiguous or false negatives if one has anemia, diabetes or thiamine deficiency.  Certain medications like antihistamines and steroids can suppress the immune system and result in false negatives or ambiguous results on antibody tests.  
    • Heatherisle
      That was just the visual report, so need to wait for confirmation or otherwise from the results. They did take a biopsy from the upper end of the duodenum(D1). D2 looked unremarkable on the camera. Just wish we didn’t have to wait so long for the results as she’s naturally a very anxious person. But thanks so much for taking the time to answer me
×
×
  • Create New...