Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Megan's First Birthday

TCA

Recommended Posts

TCA Contributor
TCA
Posted

Just wanted to let all of you know that my baby girl had a wonderful gluten free first birthday. Because of her heart surgeries, I made her a gluten free heart shaped cake with pink cream cheese icing. It was delish! She couldn't eat any because of her gagging issues, but she had fun playing in her cupcake. Thanks for all the support over the past few months. She's doing so much better now that we're gluten-free.

We went to a feeding clinic yesterday and her dietician's mother-in-law has celiac disease. It's so awesome to have someone who understands to help us at last! Just had to share my excitement!!! The new dietian has also found something called Compleat Pediatric, which is something we can give her by her feeding tube to increase her caloric intake and put some weight on her before surgery. I hope it works since all the formulas made her sooo sick. This is basically blenderized whole foods like beef and carrots, etc. The only thing she has tolerated so far is breast milk and my supply is falling off.

We also got a call from Vanderbilt today and the next sugery is scheduled for August 15. Please keep her in your prayers.

Gotta go get the little princess into her bed. She's snoozing in her swing at the moment after a long day of partying!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


plantime Contributor
plantime
Posted

Happy birthday to your little princess, I'm so glad her party was a success! Yes, I will keep her in my prayers. :D

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

How nice for her to have a good birthday!

Canadian Karen Community Regular
Canadian Karen
Posted

I'm glad your sweet angel had a wonderful birthday!

August 15th, eh? That's my anniversary! And her and I also share the same birthday! I definitely feel a connection happening here! :P:D

Hugs.

Karen

jerseyangel Proficient
jerseyangel
Posted

Glad to hear she had such a nice birthday! Hope the new food is successful. August 15--I will remember her in my prayers. :)

Jnkmnky Collaborator
Jnkmnky
Posted

Keeping your family in my prayers! :)

VydorScope Proficient
VydorScope
Posted
We also got a call from Vanderbilt today and the next sugery is scheduled for August 15. Please keep her in your prayers.

You got it! And dont forget to email me if we can help you out....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted

So happy she had a great birthday and she will have many more to come. Ones where she will be able to eat her gluten-free cake.

schuyler Apprentice
schuyler
Posted

Your little princess will definately be in my prayers.

Danielle

nikki-uk Enthusiast
nikki-uk
Posted

Glad she had a good day.

Wishing you all the best for her surgery in the summer :)

Cheri A Contributor
Cheri A
Posted

Happy Birthday to your sweet girl!! Congrats on finding a dietician who can truly help you!

TCA Contributor
TCA
Posted
  • Author

Thanks so much. You guys are so sweet. I'm so glad I have all of you to vent <_< and be happy with! :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748
    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      Trip to Anaheim/Disney

      By Seaperky · Posted

      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.