Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What! I Have What?


carochip

Recommended Posts

carochip Newbie

Hey guys! I am 26 mom of two and was eating a chocolate Chip cookie when the nurse called me with my results with my stomach biopsy a week ago. I will savor that moment for a long time since i won't be eating that kind of cookie for a long time.

I was tired all the time and had strong pains on my lower right side for years that would come and go for months at a time. I had a hard time having bowel movements except when i was in Target all the way on the other side of the store. I would puch my cart and kid real fast and just say, "it's ok, honey mommy will change your diaper really quickly!"

I am happy to hear fom you guys and know that I have people I can share stories that I will try to make fun of since this intolorance is not always fun. Have any of you tried ordering from the gluten free food store online? What's worth spending the extra dollars on?

thanks!

Caroline


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StrongerToday Enthusiast

I mostly order from Knickiknick... great breads, wonderful treats - including chocolate chip cookies!! The shipping is worth it, only $10 up to a $200 order.

Welcome!

tiffjake Enthusiast
I mostly order from Knickiknick... great breads, wonderful treats - including chocolate chip cookies!! The shipping is worth it, only $10 up to a $200 order.

Welcome!

Ditto (to the welcome!) and ditto to the kinickiknick (sp?)! They are wonderful! A life saver! I hope you are able to adjust well! I, too, LOVED those chips ahoys, and could eat a sleeve in one sitting! But I have found gluten-free brownies that are better! LOL. Tiff

jerseyangel Proficient

Hi! Welcome!! I had to laugh when I read your post--I can relate :D I get a lot of things from

Open Original Shared Link free.com/

I have a ton of other food intolerances, and am able to use most of their stuff. I love the French Bread Mix--it's excellent. Their piecrust mix, cake and cookie mix and brownie mix are great, too. Best of luck with everything--and feel free to come here anytime and ask anything :)

carochip Newbie

Thanks guys for all the info. I kind of think this is exciting because of the all the new ways of eating. I ahve one more question, does Soy have gluten? I know that soy sauce has wheat? I'm confused. Is sushi safe?

tiffjake Enthusiast
Thanks guys for all the info. I kind of think this is exciting because of the all the new ways of eating. I ahve one more question, does Soy have gluten? I know that soy sauce has wheat? I'm confused. Is sushi safe?

Soy (like soy flour or soy beans) is ok. But soy sauce has wheat in it (maybe someone else on here knows why, I don't!) so not regular soy sauce. But they do make a gluten-free soy sauce. And sushi sould be ok as long as you don't get the kind of rolls with the fried shrimp. I got food poisoning from shushi, so I haven't had it in a LONG time, but from what I remember, my fav was simply avacado, crab meat (make sure they use real crab and not imitation meat), rice, seaweed wrap, and all of those are safe.

francelajoie Explorer

La Choy soy sauce is gluten free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



momandgirls Enthusiast

Just receive our first order from www.glutenfreepantry.com - We've tried several of their things and, for the most part, really like them. Their brownies are absolutely fantastic - I had to tell people to stop eating them and leave them for my daughter!

hez Enthusiast

Most commercial soy sauce is not gluten-free because it is fermented with wheat? Is that correct? You can easily find gluten-free soy sauce, I use San J. Another great find is for gluten-free pasta try Tinkyada. You will not be able to tell the difference! It is that good and worth the extra cost.

Hez

eKatherine Apprentice

Tamari is one type of traditional Japanese soy sauce that is wheat-free. Most brands that make tamari also make shoyu (regular Japanese-style), and often several kinds. Read the labels carefully.

TinkerbellSwt Collaborator

For your sushi cravings.. watch any with the imitation crab meat. almost all of it has wheat in it. I know somewhere out there there might be a brand that doesnt have wheat, but I have heard it isnt very good

But welcome to the board!!!

SueC Explorer

I absolutely love your attitude :) . Welcome.

This is a great place to ask questions and find lots of useful information. It has been a life saver for me many times!!! I hope you start to feel better quickly.

If you live in a city with health food stores you may find alot of gluten-free products on their shelves. There are lots of baking mixes you can get but it is pretty easy to substitute gluten-free flours into your favorite recipes.

Guest nini

Welcome to the board, and I have to say Kinnikinick is def. worth spending the money to order from them, especially because their Montana chocolate chip cookies are the closest thing I have found to satisfy my chips ahoy craving! Especially when they are dipped in milk!

I also shop from the Gluten Free Mall and again, worth the money. I order Barkat Porridge and Glutino Break Bars (Like a Kit Kat)

If you have a Whole Foods near you, you should be able to get a lot of gluten-free stuff, and check out health food stores, you may be surprised to find that you have stores near you that stock gluten-free foods and you won't need to spend the extra money on shipping.

Don't go out and buy a lot of replacement foods at first, stick with staples like Tinkyada pasta (I promise it's really really good) and make foods that are naturally gluten-free. Fresh fruits and veggies, meats that aren't breaded or marinated with wheat/gluten, potatos, rice, corn... there really is a lot you can eat, so don't worry, we will show you the bestest yummiest foods and help you with recipes and if you have a craving for anything in particular, don't hesitate to ask here and I'm sure one of us can help you satisfy your craving!

Mandy F. Apprentice

Welcome to the board! I'm still pretty new, too. Everyone on here has been extremely helpful and it really makes this disease more managable!

As far as foods, I got a sampler pack from glutensolutions.com. It was pretty good and fairly affordable for everything you get. Also, the Kinnikinnick chocolate chip cookies really are excellent. I gave one to my roommate and she never even knew it was gluten-free!

Also, If you have a Whole Foods, they have a "gluten free grocery list" on their website to help you find the items more quickly.

Mandy

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748

    Michelle C.
    Newest Member
    Michelle C.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Marsh 3b is the Gold Standard of diagnosis for Celiac Disease.  Until recently, regardless of antibody tests, positive or negative, you had to have Marsh 3 damage to be awarded the diagnosis of Celiac. As I understand you,  you were having constant symptoms..  Your symptoms improved on GFD, with occassional flare ups. Did your doctor say you do and you are questioning the diagnosis? Regarding your increasing severity when you get glutened it is "normal.  Gluten acts on the Opiod receptors to numb your body.  Some report withdrawal symptoms on GFD.  I was an alcoholic for 30 years, about 1/2 pint of voda a day. Each time I identified a trigger and dealt with it, a new trigger would pop up.  Even a 30 day rehab stint, with a low fat diet (severe pancreatis) during which I rarely had cravings.  Stopped at a Wendys on the way home and the next day I was drinking again.  20 years later, sick as a dog, bedridden on Thanksgiving, after months of reasearch, I realized that gluten free was my Hail Mary.  Back in 1976 my son was diagnosed at weaning with Celiac Disease and his doctor suggested my wife and I should also be gluten free because it is genetic.  At 25 years old I felt no gastro problems and promised if I ever did I would try gluten free.  Well, I forgot that promise until I was 63.  Three days of gluten and alcohol free, I could no longer tolerate alcohol. Eleven years gluten and alcohol free, with no regrets. Improvement was quick, but always two steps forward and one back.  Over time I found nineteen symptoms that I had been living with for my entire life, that doctors had said, "We don't know why, but that is normal for some people". Celiac Disease causes multiple vitamin and mineral deficiency.  It is an autoimmune disease, meaning your immune system B and T cells create antibodies against ttg(2) the small intestin in Celiac Disease and sometimes ttg(3) in skin in Dermatitis Herpetiformus.  Why is poorly understood.  In fact, it wasn't even know that wheat, barley and rye gluten was the cause.  Celiac Disease was also called Infantilism, because it was deadly, and believed to only be a childhood disease. So as part of your symptoms you must deal with those deficiencies.  Especially vitamin D because it contols your immune system.  Virtually all newly diagnosed Celiacs have vitamin D deficiency.  There are about 30 vitamin and minerals that are absorbed in the small intestine.  With Marsh 3 damage you may be eating the amount everyone else does, but you are not absorbing them into your system, so you will display symptoms of their deficiency.   As time passes and you replenish your deficiencies you may notice other symptoms improve, some you did not even know were sypmptos. Our western diet has many deficiencies build into it.   That is the reason foods with gluten are fortified.  Gluten free processed food are not required to fortify.  Vitamin D, Iodine, choline.  The B vitamins, especially Thiamine (B1) run deficient quickly.  We only store enough thiamine for 2 weeks for symptoms can come on quickly.  Magnesium, zinc, etc. each having its own symptoms affecting multiple systems.  High homocystene, and indicator of vascular inflamation can be cause by deficient Choline, folate, B6 and or B12.  Brain fog, deficient choline, iodine, thiamine. Dietary intake of choline and phosphatidylcholine and risk of type 2 diabetes in men: The Kuopio Ischaemic Heart Disease Risk Factor Study    
    • Rogol72
      I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
    • trents
      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
    • Scott Adams
      I am only wondering why you would need to cut out rice? I've never heard of rice being any issue in those with DH.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.