Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am Not Sure If I Can Explain This

Warrior Woman

Recommended Posts

Warrior Woman Rookie
Warrior Woman
Posted

I have been gluten-free for three days. During the 'diagnoses' phases I went gluten-free for two weeks and had the same thing happen to me.

This is going to sound weird-

It feels like something is moving inside of me- as if I was with child (I was once but not now that is why I compare it to that) but the movement feelings are higher, were the rib cage comes together. And it almost feels like my intestines are turning inside out, or as if they are shedding. I warned you it was odd.

Did anyone ever feel like this?

TIA

Lorraine

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Smunkeemom Enthusiast
Smunkeemom
Posted

do you have any pain with it or any other symptoms?

Lister Rising Star
Lister
Posted

i have been gluten free for about 3 weeks now and yes i feel it everyday i explained it as if something was randomly eating me at random spots of my body, does yours also come with wierd unexplaind noises like pops and gurgles that just dont make sense??? i too have no clue what it is but i did find a temporary cure for it but it involvs smoking a illegal substance that can be frownd apon. but it really does work to remove that feeling for a couple of hours atleast. Its whats been keeping going thru these past couple of days as the "movements" have become more frequint

ravenwoodglass Mentor
ravenwoodglass
Posted
I have been gluten-free for three days. During the 'diagnoses' phases I went gluten-free for two weeks and had the same thing happen to me.

This is going to sound weird-

It feels like something is moving inside of me- as if I was with child (I was once but not now that is why I compare it to that) but the movement feelings are higher, were the rib cage comes together. And it almost feels like my intestines are turning inside out, or as if they are shedding. I warned you it was odd.

Did anyone ever feel like this?

TIA

Lorraine

Your not nuts IMHO. I used to get this also. I don't know what causes it but I do know that for me it has gone away. It felt like when I was carrying my son and he would move in such a way that it felt like he was kicking me in the stomach from the inside under my ribs. It wasn't painful. I just figured it was gas and that I was feeling the contractions in my intestines. Hopefully others will respond and we will know what causes this but I wouldn't worry too much if it doesn't hurt.

elonwy Enthusiast
elonwy
Posted

I also get movement and gnawing sensations, and incredible noises. People can hear me gurgling from across the hall. On those frowned upon substances, which make my tummy feel so much better, be careful with rolling paper. Many roll your own papers are made from wheat, and zig zag gives me gluten belly. Rizla's are gluten-free, and do not give me bloat.

Just a thought.

Elonwy

ravenwoodglass Mentor
ravenwoodglass
Posted
i too have no clue what it is but i did find a temporary cure for it but it involvs smoking a illegal substance that can be frownd apon. but it really does work to remove that feeling for a couple of hours atleast.

While I would never reccommend this for anyone :ph34r: if it wasn't for that substance I never would have survived pre-diagnosis. Now that I am gluten free I no longer need it. You have only been gluten-free for a short time, make sure you check non-food sources for gluten also and that gassy ikky feeling should go away without assistance.

Warrior Woman Rookie
Warrior Woman
Posted
  • Author

thanks fo rthe replys-

I cant say that there are noises, but more of a movement inside of me, like carrying a child or alien ready to pop out (Although this one didnt come over the border)

There isnt pain per say except that it is uncomfortable sometimes really uncomfortable

And the last time I was gluten-free and went thru this, I went to yoga and when we were streching out, it was like my intestines were a big knot! and by the end of the class I was more loose in that area! How weird!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

This sounds like trapped gas to me. I got this a lot when I was first gluten-free and have had it since when eating something else that I am intolerant to.

Guhlia Rising Star
Guhlia
Posted

I got this A LOT when I was first getting sick with celiac (well, classical symptom sick anyway). It started about three weeks after my daughter was born and continued until I was so sick that I couldn't get out of bed. At that point it went away temporarily. I thought that it was just my uterus still having contractions as it felt exactly like end-stage pregnancy(I even had myself convinced that my daughter still had a twin inside me). Anyway, after going gluten free the feeling returned and my doctor told me that it was just excessive gas and intestinal contractions causing the feeling.

LKelly8 Rookie
LKelly8
Posted

It's called borborygmus. I once had an "attack" in the middle of class. Everyone was reading quietly, total silence, when all of a sudden this noise came out of my abdomen that sounded exactly like a creaking door opening - right out of a horror movie - I froze for a good ten seconds then fidgeted in my chair like it had made the noise. I don't think anybody bought it!

Here's a link. . .

Open Original Shared Link

Ursa Major Collaborator
Ursa Major
Posted

Thanks Kelly, at least now we know what it is called.

About eight years ago (before I had a hysterectomy) I had this so often, that I went and had a pregnancy test done, because I totally felt I must be pregnant, even though I really knew I wasn't. I felt very embarrassed when the test came back negative. I now realize that it obviously was caused by celiac disease. Because now I only get it when glutened.

odcdinah Contributor
odcdinah
Posted

I have been gluten-free for 6 weeks, and still get these feelings, along with LOTS of noise and gas. You're not alone..

key Contributor
key
Posted

I have the same thing. I feel as if something is "crawling in my intestines"!! It doesn't pain, but it is uncomfortable and very annoying. It seems to be worse at bedtime. It isn't like normal gas passing or anything I have ever experienced. There is no audible noise with mine at all. Mine has been better the past two nights. I started taking digestive enzymes and citrucel twice a day. I think these two things are helping very much. I highly recommend the digestive enzymes. I have never taken them constistantly and now that I am my digestion is SO much better. Oh and I cut way back on my dairy and processed food consumption. I also quit taking the probiotics I was taking that had lactose and dairy in them and now I am taking a dairy free one.

I can relate and was very happy to see that others have experienced this.

Monica

chattykathy Newbie
chattykathy
Posted

I experienced it too before I was diagnosed. I could actually lie on my couch and watch my gut roll - lovely sight. Since being gluten free, that symptom has gone away, unless I get inadvertantly glutened.

odcdinah Contributor
odcdinah
Posted

Key, what sort of digstive enzymes are you taking? What type of probiotic? Thanks!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.