Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Internal Itching Anyone?

discountshopper

Recommended Posts

discountshopper Rookie
discountshopper
Posted

Hi all,

Has anyone experienced internal itching as a symptom of glutening (or other strange disease)? I have been gluten-free since November and think I probably got some gluten about 4 days ago. Yesterday I started getting some very strange internal itching sensations on the right side of my torso, basically the line of the liver and ascending colon. There is no rash or skin issues, just a need to "scratch by rubbing" the itch that is inside. There do not seem to be any sore spots involved, just itchiness. I have had years of issues with internally itchy feet and hands which has subsided for the most part since going gluten-free. This internal torso itching is not constant, but comes and goes throughout the day. It has been going on for a day and a half so far and has not increased in intensity. Anyone experienced this?

Thanks,

Linda

Celiac, gluten-free since 11/05

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gointribal Enthusiast
gointribal
Posted

oh man I totally get that, but I thought it was just me. Some times my stomach itches, its weird but I know what you are talking about!

Ursa Major Collaborator
Ursa Major
Posted

Sometimes I get a terrible itch in my throat, and yes, inside the torso as well. It's maddening when it happens.

  • 1 year later...
lukewarmandbothered Newbie
lukewarmandbothered
Posted

Wow. This is the first I've ever heard of people having this same problem. I get that when I ingest something I have some sort of allergy towards. It's happened with a certain protein powder in the past and with some other things. I feel like there's this itch inside your esophagus that you JUST can't get to...you try and try to like clear your throat or itch your chest/throat, but nothing works.

Glad to see I'm not alone. :-)

pugluver31902 Explorer
pugluver31902
Posted

I get it in the exact same spot. Really wierd.

  • 4 months later...
RMARS Newbie
RMARS
Posted
Hi all,

Has anyone experienced internal itching as a symptom of glutening (or other strange disease)? I have been gluten-free since November and think I probably got some gluten about 4 days ago. Yesterday I started getting some very strange internal itching sensations on the right side of my torso, basically the line of the liver and ascending colon. There is no rash or skin issues, just a need to "scratch by rubbing" the itch that is inside. There do not seem to be any sore spots involved, just itchiness. I have had years of issues with internally itchy feet and hands which has subsided for the most part since going gluten-free. This internal torso itching is not constant, but comes and goes throughout the day. It has been going on for a day and a half so far and has not increased in intensity. Anyone experienced this?

Thanks,

Linda

Celiac, gluten-free since 11/05

fedora Enthusiast
fedora
Posted

When I first gave up wheat in 1995 it was because of internal itching ALL OVER. It was terrible. I thought I would go crazy. It went away in a week after giving up wheat. I stupidly went back to eating but never had as severe issues with internal itching.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Michi8 Contributor
Michi8
Posted

I've had problems with internally itchy ears. I know it if because of allergies though. Have also had it deep in the tissues of my toes and fingers...it coincided with a sudden drop in temperature last summer, so I had chalked it up to maybe being raynauds...likely tied to seasonal allergies.

Wouldn't be surprised if it happens elsewhere in the body too!

Michelle

ShayFL Enthusiast
ShayFL
Posted

Ive had the inner ears and my upper mouth (pallet) itch like crazy. I hate when it happens.

Oh and sometimes the bottom of my feet. But I think that has to do with my neuropathy.

johnfrancis Newbie
johnfrancis
Posted

I used to get sever itching on the muscle just above my knee, it was so bad that I wore a hole in two pairs of jeans scratching it.

Thankfully it went away when I started on a gluten-free diet.

The first doctor I told said it was a build up of lactic acid and I should make sure that I stretched and warmed down properly after excercise. But I still excercise without proper strectching and the itching has never returned!

AliB Enthusiast
AliB
Posted

I used to get a really itchy tip of my nose! It would drive me mad! Sometimes it would just come on out of nowhere, I mean even when I hadn't eaten anything for ages. I have had it occasionally since but rarely. I got it a couple weeks ago - I hadn't eaten anything for at least 3 hours so what the heck triggered it I haven't a clue. Weird.

I've had that itching in the roof of the mouth and in the hands and feet too. I used to get it in the balls of my feet and it would drive me so mad I'd want to dig something into it! That went away quite a while before going gluten-free and I never knew what caused it or why it went!

I did get restless legs virtually every night and itching in other areas of my feet like the heels (so bad my husband and I have separate rooms - between my thrashing and his snoring we were keeping each other awake all night!). I realised when I looked at a Reflexology chart that those areas equated with the colon and the RLS was linked to that too. I had a bad stomach one night and my legs were thrashing about in the bed like something possessed! Around 5am I had to 'evacuate'. I went back to bed and slept like a baby for what was left of the night. I slept and so did my legs.

Since going gluten-free, apart from when I have been affected by something, either gluten or some other something that has disagreed, not only has the itching gone, so has the RLS. Bliss. (PS. My husband joined me on gluten-free and he no longer snores to wake the dead!)

cupid Newbie
cupid
Posted

Hi, I just experienced the internal ichy stomache when I tried to do the candidia diet but assumed it was from getting rid of the toxins but also started a digestive pill @ same time so now I'm wondering about which caused it. Need to do the diet again but since haven't been on gluten-free/cf diet very long found it very hard!!

Megra Newbie
Megra
Posted

Hi all,

Has anyone experienced internal itching as a symptom of glutening (or other strange disease)?

Sometimes I itch like crazy all over! I scratch so hard I can make myself bleed. Gross, Gross, Gross,. I try to take something to make me sleepy, and then go to bed so I'll stop! (most always happens at night )

  • 5 years later...
doya Newbie
doya
Posted

Hi all,

Has anyone experienced internal itching as a symptom of glutening (or other strange disease)? I have been gluten-free since November and think I probably got some gluten about 4 days ago. Yesterday I started getting some very strange internal itching sensations on the right side of my torso, basically the line of the liver and ascending colon. There is no rash or skin issues, just a need to "scratch by rubbing" the itch that is inside. There do not seem to be any sore spots involved, just itchiness. I have had years of issues with internally itchy feet and hands which has subsided for the most part since going gluten-free. This internal torso itching is not constant, but comes and goes throughout the day. It has been going on for a day and a half so far and has not increased in intensity. Anyone experienced this?

Thanks,

Linda

Celiac, gluten-free since 11/05

Hi! I don't know if you're still there, since this post was sent many years ago, but I found it while looking at what my issue is. I have the exact same internal itch on the right side of my stomac, around the liver are, that just few weeks ago started to be on the left side too. I don't have pain, just this intollerable itch and a lot of nausea that comes with it. I was wondering if after all those years you found out what was causing yours, so maybe you'll be able to help me. Please, please.... I can't go on like this no more!! Thank you so much.

Doya

kareng Grand Master
kareng
Posted

Hi! I don't know if you're still there, since this post was sent many years ago, but I found it while looking at what my issue is. I have the exact same internal itch on the right side of my stomac, around the liver are, that just few weeks ago started to be on the left side too. I don't have pain, just this intollerable itch and a lot of nausea that comes with it. I was wondering if after all those years you found out what was causing yours, so maybe you'll be able to help me. Please, please.... I can't go on like this no more!! Thank you so much.

Doya

Sorry but the OP hasn't been here in 7 years.

GF Lover Rising Star
GF Lover
Posted

The member Doya who posted last has started a new thread.  I will go ahead and end this thread for being dated.

 

Colleen

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    2. Ginger38
      - Ginger38 posted a topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry. But Developing s...
    3. Russ H
      - Russ H commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

      This is the test KelleyJo is referring to: Blood-Based T-Cell Diagnosis of Celiac Disease
    4. Russ H
      - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Coeliac UK Research Conference 2025

      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease. https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    5. Rejoicephd
      - Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders
      5

      Basic metabolic panel results - more flags

      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources. I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,374
    • Most Online (within 30 mins)
      7,748
    Lynt
    Newest Member
    Lynt
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Shingles - Could It Be Related to Gluten/ Celiac

      By trents · Posted

      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      Coeliac UK Research Conference 2025

      By Russ H · Posted

      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Basic metabolic panel results - more flags

      By Rejoicephd · Posted

      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.