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Auto-immune Diseases

BRUMI1968

Recommended Posts

pixiegirl Enthusiast
pixiegirl
Posted

I have Celiac, eosinophilic gastroenteritis and a ton of food allergies. I was not diagnosed with Celiac until I was in my mid 40's but had GI problems for a good 10 + years prior, so that may have contributed to my other problems.

Susan

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nasalady Contributor
nasalady
Posted
Anyone else with other autoimmune diseases? I have ITP (Idiopathic Thrombocytopenia Purpura), though I'm currently untreated and just fine. It is when the spleen decides to kill off all your platelets until you bleed to death. Great!

Now I'm thinking having Celiac all my life might've contributed to getting ITP.

Yep! I have autoimmune hepatitis, Hashimoto's Thyroiditis, asthma, psoriasis, and rheumatoid arthritis. I'm being tested for celiac disease at the moment (I'm HLA DQ8). I also have a severe case of fibromyalgia that has put me in a wheelchair as of the beginning of September....there's some controversy as to whether or not fibro is an autoimmune disease.

Good luck to you!

JoAnn

1grnthmb Newbie
1grnthmb
Posted

I also have other auto immune diseases. Ankylosing Spondylitiis and Rheumatoid Arthritis along with many other health problems some of which are considered severe.

Mark

Live2BWell Enthusiast
Live2BWell
Posted

Another auto-immuner here (at the risk of sounding... complainish - autoimmune diseases suck!)

I have Hashimotos Thyroiditis, Celiac Disease, Fibromyalgia.. I also have type II diabetes ;)

mushroom Proficient
mushroom
Posted

Celiac, rheumatoid arthritis, psoriasis.

  • 2 years later...
JenniLu Newbie
JenniLu
Posted

Hello, I just wanted to let you know that when I was a child (4 or 5) I got Henoch-Schonlein Purpura. It came shortly after I had pneumonia and had it for about 6 weeks. I am 22 now but I still remember how terrible it felt when I was young, so I can sympathize with your daughter. Since it was so rare, especially then, doctors barely knew anything about it and I don't think my kidneys were ever even mentioned. I hope your daughter recovered well and has no long-term damage as a result. Anyway, I have tested mildly positive for Celiac in the recent past and I'm just wondering if there could be some link to this "allergic purpura" as a sign of what is to come in the future. I hope your daughter doesn't get Celiac D., like I did, but it would be smart for her to be tested for it. If you have any questions please feel free to email me at boysenberry_14@yahoo.com and I will do my best to help if I can.

Sincerely, Meghan Ganstine

My son had HSP when he was 14. A long drawn out episode. Prednisone didn't work, so he took injections of methotrexate. At the time he had to deal with painful intermittent stomachaches from the HSP and the metho. The HSP went into remission 14 months after the first onset. Off the meds, he had 3 good months followed by 3 more months of illness/weight loss before being diagnosed with celiac. I wonder if the damage the HSP / metho did to his gut contributed to the onset of the celiac. Of course, the doctors are not aware of any connections betweend his HSP and his celiac.

Juls Newbie
Juls
Posted

I have RA, anxiety, depression, psorasis. Had been misdiagosed with IBS for years before discovering I had Celiac.

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mushroom Proficient
mushroom
Posted

I have RA, anxiety, depression, psorasis. Had been misdiagosed with IBS for years before discovering I had Celiac.

Is your RA sero-negative like mine? After I developed the psoriasis my diagnosis was changed to psoriatic arthritis.

  • 6 years later...
celiacmomcedarpark Newbie
celiacmomcedarpark
Posted
On 5/22/2006 at 5:30 PM, AndreaB said:

No one in our family is Celiac that I know of. I am allergic and having my family tested by enterolab for wheat/milk/soy/egg/yeast.

 

I am curious as to whether anyone here has had a child with Henoch-Schonlein Purpura. They don't know much about it (medical profession). My daughter just got over it and still needs to see a kidney specialist for a few months. She was going through a lot for the 2 1/2 months she had it. Very painful. My older two children have always had a very mild eczema on their cheeks. One of the reasons I'm getting them tested by enterolab. The gal there recommended the stool test over the allergy test. She used to work for an allergist. At least it goes over 4 of the main allergens.

Yes my daughter had HSP at 3, then diagnosed celiac at 8.  So many symptoms over the years.  I finally pushed to figure out what was wrong with her

0A8E2AFC-4FB6-4B14-813D-E186AC756542.png

Jmg Mentor
Jmg
Posted
7 hours ago, celiacmomcedarpark said:

Yes my daughter had HSP at 3, then diagnosed celiac at 8.  So many symptoms over the years.  I finally pushed to figure out what was wrong with her

0A8E2AFC-4FB6-4B14-813D-E186AC756542.png

Hello and welcome :)

You've replied to an old post, Andrea was last on the forum 4 years ago so may not see this. Although not all is lost, others will see your post in the future if they're looking for a connection between the two. :)

 

Posterboy Mentor
Posterboy
Posted
5 hours ago, Jmg said:

Hello and welcome :)

You've replied to an old post, Andrea was last on the forum 4 years ago so may not see this. Although not all is lost, others will see your post in the future if they're looking for a connection between the two. :)

 

celiaccomcedarpark,

Let me add my welcome to jmg's.

Activity on the thread triggers the renewal of the thread.

I just wanted to add this new research on eczema in babies.

tI has been tied to the nutrient status of the mother. . .  so it possible you would need to be checked

for Celiac or NCGS yourself.

Open Original Shared Link

We don't think about disease being inherited traditionally through vitamins in this genetic age but research is finding more and more research ever day is acknowledging the role stress plays in a celiac diagnosis.  Who now's we might find it is more a 50/50 relationship than previously thought someday.

They are even studying the possibility of a vaccine for Celiac disease someday.

https://www.celiac.com/articles/23506/1/Stress-Common-Before-Celiac-Diagnosis/Page1.html

and that B-Vitamins can help/are beneficial for those who have received a celiac diagnosis.

https://www.celiac.com/articles/21783/1/B-Vitamins-Beneficial-for-Celiacs-on-Gluten-Free-Diet/Page1.html

I hope this is helpful as Jmg said for the next reader that comes along and finds this new research you have posted.

I am certain you are not the only one who has noticed this connection between hsp and celiac disease and who might/benefit can help from it.  And who knows who you might could help by sharing.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

posterboy by the grace of God,

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  • Posts

    • Wends
      Blood results

      By Wends · Posted

      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
    • Bennyboy1998
      Potential celiac need advice

      By Bennyboy1998 · Posted

      Yes gene HLADQ2 was positive 
    • Wends
      Inconclusive results

      By Wends · Posted

      Wow, the system is crazy isn’t it? Maybe switch Doctors if you can. It’s surprising from what you’ve written it seems obvious it’s celiac disease. The “potential” diagnosis means celiac is developing and it basically just hasn’t done enough gut damage to be captured on the biopsy yet, and meet that “criteria” to satisfy the current system! Given the overwhelming evidence already - family history, positive ttg and ema. And your own experience and intuition which counts far more. And the labs being reproduced after gluten elimination and reintroduction- elimination and reintroduction diet is the gold standard too. Shame on the Doc and the system. What was the Marsh score? I’m guessing not 0 if it’s potential celiac. Meaning the autoimmune process has been triggered and started. Your daughter is obviously very healthy and her immune system is putting up a good fight. It can take years for the gut damage to build to a point where there’s overt symptoms and then a conclusive diagnosis, hence why many celiacs receive diagnosis later in life. You can prevent it. See the positive and the gift in that. Hopefully the gluten challenge confirms it, but if it doesn’t maybe get a second opinion?
    • cristiana
      How Come Gluten Didnt Bother Me In Italy

      By cristiana · Posted

      @Gigi2025  Thank you for your interesting post.  Some of what you say chimes with something my gastroenterologist tells me - that he has clients who travel to France and find the same as you  - they will eat normal wheat baguette there without issue, for example.  His theory was he thought it might be to do with the locally sourced wheat being different to our own in the UK? But I have to say my own experience has been quite different. I have been to France twice since my diagnosis, and have been quite ill due to what was then (pre-2019)  poor labelling and cross-contamination issues.  My TTG test following my last visit was elevated - 'proof of the pudding', as we say in the UK!  It was not just a case of eating something like, say, shellfish, that disagreed with me - gluten was clearly an issue. I've also been to Italy to visit family a couple of times since my diagnosis.  I did not want to take any chances so kept to my gluten free diet, but whilst there what I did notice is that coeliacs are very well catered for in Italy, and many brands with the same ingredients in the UK are clearly marked on the front of their packaging that they are 'senza glutine'.  In the UK, you would have to find that information in the small print - or it puts people off buying it, so I am told!  So it seems to me the Italians are very coeliac aware - in fact, all children are, I believe, screened for coeliac disease at the age of 6.  That must mean, I guess, that many Italian coeliacs are actively avoiding gluten because, presumably, if they don't, they will fall ill?        
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Thank you both very much. I’m pretty familiar with the various tests, and my older two girls with official dxs have even participated in research on other tests as well. I just felt overwhelmed and shocked that these recent results (which I found pretty dang conclusive after having scott clean labs just six months ago) would still be considered inconclusive. Doc said we could biopsy in another six weeks because my daughter was actually way more upset than I anticipated about the idea of eating it for years before doing another biopsy. It doesn’t hurt her, but she’s afraid of how it may be hurting her in ways she can’t feel. She’s currently eating mini wheats for breakfast, a sandwich with lunch, and a side of pasta along with every dinner, so I’m hoping we’re meeting that 10g benchmark mentioned in that second article!
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