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Auto-immune Diseases

BRUMI1968

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pixiegirl Enthusiast
pixiegirl
Posted

I have Celiac, eosinophilic gastroenteritis and a ton of food allergies. I was not diagnosed with Celiac until I was in my mid 40's but had GI problems for a good 10 + years prior, so that may have contributed to my other problems.

Susan

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nasalady Contributor
nasalady
Posted
Anyone else with other autoimmune diseases? I have ITP (Idiopathic Thrombocytopenia Purpura), though I'm currently untreated and just fine. It is when the spleen decides to kill off all your platelets until you bleed to death. Great!

Now I'm thinking having Celiac all my life might've contributed to getting ITP.

Yep! I have autoimmune hepatitis, Hashimoto's Thyroiditis, asthma, psoriasis, and rheumatoid arthritis. I'm being tested for celiac disease at the moment (I'm HLA DQ8). I also have a severe case of fibromyalgia that has put me in a wheelchair as of the beginning of September....there's some controversy as to whether or not fibro is an autoimmune disease.

Good luck to you!

JoAnn

1grnthmb Newbie
1grnthmb
Posted

I also have other auto immune diseases. Ankylosing Spondylitiis and Rheumatoid Arthritis along with many other health problems some of which are considered severe.

Mark

Live2BWell Enthusiast
Live2BWell
Posted

Another auto-immuner here (at the risk of sounding... complainish - autoimmune diseases suck!)

I have Hashimotos Thyroiditis, Celiac Disease, Fibromyalgia.. I also have type II diabetes ;)

mushroom Proficient
mushroom
Posted

Celiac, rheumatoid arthritis, psoriasis.

  • 2 years later...
JenniLu Newbie
JenniLu
Posted

Hello, I just wanted to let you know that when I was a child (4 or 5) I got Henoch-Schonlein Purpura. It came shortly after I had pneumonia and had it for about 6 weeks. I am 22 now but I still remember how terrible it felt when I was young, so I can sympathize with your daughter. Since it was so rare, especially then, doctors barely knew anything about it and I don't think my kidneys were ever even mentioned. I hope your daughter recovered well and has no long-term damage as a result. Anyway, I have tested mildly positive for Celiac in the recent past and I'm just wondering if there could be some link to this "allergic purpura" as a sign of what is to come in the future. I hope your daughter doesn't get Celiac D., like I did, but it would be smart for her to be tested for it. If you have any questions please feel free to email me at boysenberry_14@yahoo.com and I will do my best to help if I can.

Sincerely, Meghan Ganstine

My son had HSP when he was 14. A long drawn out episode. Prednisone didn't work, so he took injections of methotrexate. At the time he had to deal with painful intermittent stomachaches from the HSP and the metho. The HSP went into remission 14 months after the first onset. Off the meds, he had 3 good months followed by 3 more months of illness/weight loss before being diagnosed with celiac. I wonder if the damage the HSP / metho did to his gut contributed to the onset of the celiac. Of course, the doctors are not aware of any connections betweend his HSP and his celiac.

Juls Newbie
Juls
Posted

I have RA, anxiety, depression, psorasis. Had been misdiagosed with IBS for years before discovering I had Celiac.

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mushroom Proficient
mushroom
Posted

I have RA, anxiety, depression, psorasis. Had been misdiagosed with IBS for years before discovering I had Celiac.

Is your RA sero-negative like mine? After I developed the psoriasis my diagnosis was changed to psoriatic arthritis.

  • 6 years later...
celiacmomcedarpark Newbie
celiacmomcedarpark
Posted
On 5/22/2006 at 5:30 PM, AndreaB said:

No one in our family is Celiac that I know of. I am allergic and having my family tested by enterolab for wheat/milk/soy/egg/yeast.

 

I am curious as to whether anyone here has had a child with Henoch-Schonlein Purpura. They don't know much about it (medical profession). My daughter just got over it and still needs to see a kidney specialist for a few months. She was going through a lot for the 2 1/2 months she had it. Very painful. My older two children have always had a very mild eczema on their cheeks. One of the reasons I'm getting them tested by enterolab. The gal there recommended the stool test over the allergy test. She used to work for an allergist. At least it goes over 4 of the main allergens.

Yes my daughter had HSP at 3, then diagnosed celiac at 8.  So many symptoms over the years.  I finally pushed to figure out what was wrong with her

0A8E2AFC-4FB6-4B14-813D-E186AC756542.png

Jmg Mentor
Jmg
Posted
7 hours ago, celiacmomcedarpark said:

Yes my daughter had HSP at 3, then diagnosed celiac at 8.  So many symptoms over the years.  I finally pushed to figure out what was wrong with her

0A8E2AFC-4FB6-4B14-813D-E186AC756542.png

Hello and welcome :)

You've replied to an old post, Andrea was last on the forum 4 years ago so may not see this. Although not all is lost, others will see your post in the future if they're looking for a connection between the two. :)

 

Posterboy Mentor
Posterboy
Posted
5 hours ago, Jmg said:

Hello and welcome :)

You've replied to an old post, Andrea was last on the forum 4 years ago so may not see this. Although not all is lost, others will see your post in the future if they're looking for a connection between the two. :)

 

celiaccomcedarpark,

Let me add my welcome to jmg's.

Activity on the thread triggers the renewal of the thread.

I just wanted to add this new research on eczema in babies.

tI has been tied to the nutrient status of the mother. . .  so it possible you would need to be checked

for Celiac or NCGS yourself.

Open Original Shared Link

We don't think about disease being inherited traditionally through vitamins in this genetic age but research is finding more and more research ever day is acknowledging the role stress plays in a celiac diagnosis.  Who now's we might find it is more a 50/50 relationship than previously thought someday.

They are even studying the possibility of a vaccine for Celiac disease someday.

https://www.celiac.com/articles/23506/1/Stress-Common-Before-Celiac-Diagnosis/Page1.html

and that B-Vitamins can help/are beneficial for those who have received a celiac diagnosis.

https://www.celiac.com/articles/21783/1/B-Vitamins-Beneficial-for-Celiacs-on-Gluten-Free-Diet/Page1.html

I hope this is helpful as Jmg said for the next reader that comes along and finds this new research you have posted.

I am certain you are not the only one who has noticed this connection between hsp and celiac disease and who might/benefit can help from it.  And who knows who you might could help by sharing.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

posterboy by the grace of God,

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    • Rogol72
      Ibuprofen

      By Rogol72 · Posted

      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

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    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

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    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
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