Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

B12 Test


Jennhaz

Recommended Posts

Jennhaz Apprentice

What is the B12 blood test called? If I had problems with B12 absorption would they of picked that up in my other bloodwork like Red Blood Cell count? Also can I use Colgate toothpast Total whitening? Thanks guys..Jenn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
What is the B12 blood test called? If I had problems with B12 absorption would they of picked that up in my other bloodwork like Red Blood Cell count? Also can I use Colgate toothpast Total whitening? Thanks guys..Jenn

Hi Jenn I don't know about Colgate but the test for B12 is called just that. Ask them to check you B12 levels and while they are at it have them check folate and iron as well.

jerseyangel Proficient

Colgate Toothpaste is gluten-free. :)

VintageChick Newbie
What is the B12 blood test called? If I had problems with B12 absorption would they of picked that up in my other bloodwork like Red Blood Cell count? Also can I use Colgate toothpast Total whitening? Thanks guys..Jenn

Are you thinking of the Methamalonic Acid test?

DeeTee33 Newbie
What is the B12 blood test called? If I had problems with B12 absorption would they of picked that up in my other bloodwork like Red Blood Cell count? Also can I use Colgate toothpast Total whitening? Thanks guys..Jenn

BEWARE of some of the Colgate Toothpastes. I think it was the Whitening one with Baking Soda and Peroxide i tried, it gave me the worse mouth ulcers/kanker sores. The more I used it the more I got. They got worse until I put 2 & 2 together and stopped useing Colgate and went back to Crest.

I have never had a problem with Crest Toothpastes.

Good luck, it's a lot of trial and error. Some companies will tell you there product is gluten-free and you find out it's not. I still love the email I received from Ketal One Vodka company telling me it was gluten-free, but made with 100% Wheat. Go figure.

penguin Community Regular
BEWARE of some of the Colgate Toothpastes. I think it was the Whitening one with Baking Soda and Peroxide i tried, it gave me the worse mouth ulcers/kanker sores. The more I used it the more I got. They got worse until I put 2 & 2 together and stopped useing Colgate and went back to Crest.

I have never had a problem with Crest Toothpastes.

Good luck, it's a lot of trial and error. Some companies will tell you there product is gluten-free and you find out it's not. I still love the email I received from Ketal One Vodka company telling me it was gluten-free, but made with 100% Wheat. Go figure.

With the toothpaste, it probably wasn't gluten that got you. There are a lot of chemicals in toothpaste, especially whitening ones, and you probably reacted to something like that. Not all reactions are caused by gluten.

Also, Ketel One vodka is gluten-free, even though it is made from 100% wheat. The distillation process doesn't allow for a huge protein like gluten to get into the final product. If you do a search on alcohol on this forum you'll see the whole debate about it.

YankeeDB Contributor

The "B12 Test" is Methamalonic Acid as VintageChick noted in this thread. It is NOT part of any of the standard blood test panels and so must be requested separately.

It was my B12 deficiency that first got me on the research path that led to my celiac diagnosis. Even gluten-free I have trouble with B12 absorption (2.5 years gluten-free) so I continue to supplement it.

Note that B12 is water soluable so there is no (less?) worry about taking too much. It is also cheap and easy to find. I like the sublingual format.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Another thought about the toothpaste--most of them have Sodium Laurel Sulfate in them. This is a detergent that can be irritating to some people. Health food type stores carry brands that do not have this ingredient--you need to read the labels, though. Colgate toothpaste does not have gluten.

blueeyedmanda Community Regular

I used to be a lab tech and it was called B12 and like someone suggested have the folate checked as well. It can be run off the same vile of blood. 98% of the time I saw Dr's ordering those tests together. RBC is not something that would show if your B12 levels are high/low. RBC just is looking at your blood counts in general, for the WBC if they are too low your body can't fight the infections. Hope this helps.

I can't help with the Crest issue, I use Arm and Hammer with baking soda

slpinsd Contributor

my b-12 def. was diagnosed through a vitamin b-12 blood test. it is not usally included in a regular CBC. If it was causing a significant anemia, that may show up in decreased RBC's, but you can have a b12 deficiency without anemia.

if your blood test looks low or you are having b12 def symptoms, they should run further testing, like antiparietal, or antiintrinsic factor antibodies to see if you have underlying pernicious anemia causing the deficiency.

  • 2 weeks later...
slpinsd Contributor

Hi Floridian-

Thanks for the info. I recently got a book called, "Could it be B12?" I may have pernicious anemia. I am going to be going in for some more testing. My levels were found very low- at 48, but I don't know of any positive family history. How were you diagnosed? Was it givng you symptoms? Is it common for the two- Celiac and Pernicious Anemia- to occur together?

This I am an expert at! I have Pernicious Anemia (can't absorb B12) Intrinsic factor is a glycoprotein secreted by parietal (humans) or chief (rodents) cells of the gastric mucosa. In humans, it has an important role in the absorption of vitamin B12 (cobalamin) in the intestine, and failure to produce or utilize intrinsic factor results in the condition pernicious anemia. I have to have Cyanocobalamin 1.0ml injections the rest of my life.

Many cells in our body need vitamin B-12, including nerve cells and blood cells. Inadequate vitamin B-12 gradually affects sensory and motor nerves, causing neurological problems to develop over time. It is important to know that the neurological effects of vitamin B-12 deficiency may be seen before anemia is diagnosed.

The anemia also affects the gastrointestinal system and the cardiovascular system. The following symptoms may indicate pernicious anemia:

shortness of breath

fatigue

pallor

rapid heart rate

loss of appetite

diarrhea

tingling and numbness of hands and feet

sore mouth

unsteady gait, especially in the dark

tongue problems

impaired sense of smell

bleeding gums

positive Babinski's reflex

loss of deep tendon reflexes

personality changes, "megaloblastic madness"

Tests that may indicate pernicious anemia include:

CBC results that show low hematocrit and hemoglobin with elevated MCV (low red blood cell count with large-sized red blood cells)

CBC showing low white blood count and low platelets

low reticulocyte count

bone marrow examination (only needed if diagnosis is unclear)

serum LDH

below normal serum vitamin B-12 level

Schilling test

measurement of serum holotranscobalamin II

measurment of methylmalonic acid (MMA)

Hope this helps!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,638
    • Most Online (within 30 mins)
      7,748

    Sheepeye
    Newest Member
    Sheepeye
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I agree, there can be contamination at many points--milling is another possible source of contamination for any flours.
    • trents
      Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction in some people.
    • deanna1ynne
      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
    • Inkie
      Thanks for the replies. I already use a gluten-free brand of buckwheat flakes I occasionally get itchy bumps. I'm still reviewing all my food products. I occasionally eat prepackaged gluten-free crackers and cookies, so I'll stop using those. I use buckwheat flakes and Doves Farm flour as a base for baking. Would you recommend eliminating those as well? It's a constant search.
    • Wheatwacked
      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.