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Massachusetts And New Hampshire

francelajoie

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francelajoie Explorer
francelajoie
Posted

I will throw a date out there and see if it works for you. If not, just reply with another possible day. Lets see if we can make this work.

June 9th?

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ehrin Explorer
ehrin
Posted
I will throw a date out there and see if it works for you. If not, just reply with another possible day. Lets see if we can make this work.

June 9th?

works for me!

francelajoie Explorer
francelajoie
Posted
  • Author

Ok, just bumping this up.

We're 2 so far...common, we need a few more!!

It most likely will be Dinner at Legal Seafoods i would say 6ish in Burlington, MA.

megzmc3611 Rookie
megzmc3611
Posted

I would love to join, although I can't committ just yet. My good friend who moved to Florida last September is back home that weekend for the first time since she left (and I have not been to visit yet!). So I am not sure what the plan will be and if I will be doing something w/ her that evening...

I will let you know next week if that is ok!

Guest BERNESES
Guest BERNESES
Posted

i can't make it :( I start a big week-long exam that day. Any time after June 16th I can do. Would love to meet up!

eKatherine Apprentice
eKatherine
Posted

I live in Maine, but getting down to Boston on a Friday would be kind of hard for me until school lets out.

francelajoie Explorer
francelajoie
Posted
  • Author

Ok, let's try this...

JULY 7TH?

Would you rather meet in New Hampshire? It's half way between maine and mass?

You New Hampshiriens know of any good places?...in Manchester maybe?

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Guest BERNESES
Guest BERNESES
Posted

Oh for gosh sake's- I am a PITA- July 7th is my sister's birthday.

Depends where in Maine you are. I live in Portsmouth NH which is about an hour from Boston (but traffic going through the Hampton Tolls is bad on a Friday). We have GREAT restaurants like Radici which is italian but I have never once had a problem with them. Most of the restaurants here are very accomodating.

Hmmm... could anyone do a Thursday. Like Thursday July 6th? I'll just throw it out there.

francelajoie Explorer
francelajoie
Posted
  • Author

I'll be changing jobs in 3 weeks..I'll be with a temp agency so i'm not quite sure what i'll be doing. I guess we'll give it a little more time.

eKatherine Apprentice
eKatherine
Posted

I live in Southern Maine. Do you have ezpass? The tollbooths are a heck of a lot better if you can jump right past everybody waiting in line for change. I usually take the commuter rail to Boston rather than drive.

Guest BERNESES
Guest BERNESES
Posted

Oh I meant the traffic was bad going through the tolls from Bboston into NH and ME because everyone wnts to come see us! :P

  • 2 weeks later...
NicoleAJ Enthusiast
NicoleAJ
Posted

Hello everyone,

I don't actually live in your area, so I probably wouldn't be able to get together for a meal (I'm in PA right now), but my family does have a cottage in York Beach, ME and I'm going to be there for the next week. When we're there I spend a lot of time in Portsmouth, Kennebunkport, Perkin's Cove, Ogunquit, etc. I haven't been back there since going gluten free. Do any of you know of restaurants that would be accomodating? I notice that there aren't a lot of chain restaurants with gluten free menus in that area. I'll probably do a decent amount of cooking and packing snacks, but I know that my family will tire of doing that, so if you have any suggestions, I'd really appreciate it.

Guest BERNESES
Guest BERNESES
Posted

oh my gosh- I'm so jealous. Thaat's great that you are going to York Beach for a week. Portsmouth has the Outback Steakhouse which has a gluten-free menu (actually, I think they are techincally in Newington) but don't eat there as there are so many places in Portsmouth that are accomodating. Radici is wonderful- I've eaten there several times since going gluten-free and they have always been wonderful. I would suggest calling them in advance just to let them know. Also, the Dolphin Striker is very accomodating. Those are both a little on the pricey side, but worth it.

Let me know if you want other recommendations. Portsmouth also has Thai Paradise and Shalimar Indian both of which I've never had a problem with. I can try to find out about places in York too, but I know that Five-O in Ogunquit is very accomodating too. And go get a massage at the Cliff House if you're up for a little pampering!

NicoleAJ Enthusiast
NicoleAJ
Posted

Berneses,

Thanks so much for the recommendations! I'm really excited about the trip, and I'm happy that there are so many places in the area that are accomodating because my initial searches didn't turn up many results. It's great to hear recommendations from a local to really know where to go. Of course I know I can have boiled lobster and a baked potato almost anywhere, but I'd like to have a few other options as well. Thanks again!

Nicole

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    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
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