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Anyone In Utah?


utdan

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utdan Apprentice
great to know! how are you doing gfdan? here's my fave places to eat:

los hermanos - provo (and af I think)

my husband's friend works here and he told me that they have several gluten-free items. their fajitas are the only thing i can think of at the moment, cuz that's what I usually get. :D best chips and salsa ever!

sizzler - provo/orem

i know it's buffet but I've never had a problem. I always get their 10-oz steak and carefully pick my way through the salad bar.

chick-fil-a - orem

only place i know that has gluten-free fries! And great ones they are! their side salads are yummy too, the ranch is super! the chicken isn't so good, i've gotten that on salads or just plain, and i prefer the first two items only :D

red robin's - provo

gotten glutened here a couple times, i think, but husband loves it. i've gotten the cobb salad before (w/out half the ingreds....), and the steak fajitas (bringing my own corn tortillas, warmed, in foil in my purse). i've also gotten the mushroom burger w/out a bun before, and a side salad. dunno how much i'd want to recommend this place though, depends on the server and cooks.

hm, don't eat out much else other than these places....i'll have to try and take hubby to that mexican place :D oh have you been to carrabbas? they're great and gluten-free :D

Hey, I've been doing pretty good thanks. Just got back from summer break. Thanks for the info. Are you and your husband students? Oh, and yes I like the name gfDan; how does one change one's name in here?

GFBetsy are there any upcoming classes?


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  • Replies 147
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justjane Rookie

Everyone try out Pudding on the Rice in Provo! Sooooo good!

Also try out the Old Spaghetti Factory in Taylorsville, very very good!

Sweetfudge Community Regular
Hey, I've been doing pretty good thanks. Just got back from summer break. Thanks for the info. Are you and your husband students? Oh, and yes I like the name gfDan; how does one change one's name in here?

GFBetsy are there any upcoming classes?

dan, i dunno how to change ones name...maybe just create a new acct? right now, husband and i are just working, he's planning on going back to school in the winter. aren't you a student? i can't remember.

This is what is on the gfutah.org site:

UCGIG Meetings:

New location for meetings!

Room 6 in the North West Plaza at UVRMC in Provo

Park north of the plaza, the room is on the second floor. If you take a right from the stairs it

  • 2 weeks later...
mother2gf3 Newbie

hey, I am in utah also (tooele). Nice to see some local info here.

justjane Rookie

hey, i've tried the chocolate one, i bought it at reams across teh street from the place. never actually been inside. are all their flavors gluten free? what's your fave?

Hey, they have a gluten free list... I love the cinnimon, I love vanilla, and now have started to make my own in attempts to copy it. The recipe is easy, if you want it I'll post it. :) Not all flavors are gluten free though, so watch out. Some of the ones I wanted to try (Toffee) were not gluten-free, so I just got like blueberry and cinnimon or something, I loved it.

Hey, Noodles and Co has a gluten-free menu? WHo knew? Well now I know where I can ask to go on dates! Hey, whats' good from there?

Sweetfudge Community Regular

mother2gf3- welcome to our thread :)

justjane-i'd love the recipes :D i really liked the chocolate one. it was a new experience.

as far as noodles and co goes, i love the pesto cavatappi, and the penne rosa. i've also heard their mac and cheese, as well as the pad thai is good (but never tried it gluten-free). be sure and ask for the rice noodles and specify you have an allergy. i get the pesto w/ the grilled chicken, or the shrimp. i love to go and get a large, then have 2 meals of it. you can go to their website for more menu options (noodles.com i think).

  • 1 month later...
sharps45 Apprentice

Hey, hi everyone! I'm from Price and newly diagnosed. The dr's down here are pretty unhelpful when it comes to celiac, and buying anything special is out of the question. It's good to see the list of stores up north that can help me.

Right now I'm just concentrating on reading labels (my wife gets irritated that I now take so long in the store!) and cleaning out my pantry of the foods that only I like but now can't eat. Who'd have thought that corn bread mix was more bread than corn? And rice krispies with barley? It doesn't seem right that there aren't more non-sweetened breakfast cereals that are safe to eat. The food bank is going to get a load of cereals.

Not to bring up a subject that causes heartburn for some forum members, but I hadn't really thought about the sacrament bread (and for others the sacrament wafer might not be good either).

It'll be a struggle, but it helps to have support close by.


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harrishart Newbie

Hi all - I am from Utah as well - I live in Hooper (well it's almost Roy). I am new here too - just diagnosed in July. I am lost too!!! LOL Glad to see I'm not the only one here from Utah.

barbara123 Apprentice
Hi all - I am from Utah as well - I live in Hooper (well it's almost Roy). I am new here too - just diagnosed in July. I am lost too!!! LOL Glad to see I'm not the only one here from Utah.

Welcome You should get some good info here alot of helpful people. I live in wyoming thats just a hop skip and a jump away. I travel to utah to see my gastro. welcome to the group :D

harrishart Newbie

Thanks :)

My sister just found out today that she has tested positive for Celiac too - so that's another one from Utah :) She will be here eventually I'm sure.

Sweetfudge Community Regular

Hey sharps45 and harrishart! welcome!

yes, utah isn't the most up to date with celiac, as far as doctors and shopping goes anyway. i'm ok w/ my dr here in provo, have heard a lot of good about the drs up in slc. no insurance right now though, otherwise i'd make a trip (think i might have more intolerances).

sharps - one way to cut back on store time is to know what is ok to buy. kraft is a great brand b/c they will clearly list any gluten source. lots of food companies have websites too, so you can check in advance to see if your fave foods are ok. also, walmart brand (great value) foods are clearly labeled, in bold too, making it easy to spot. maybe offer to do the shopping for your wife, so she won't feel hindered by your time consuming reading.

as far as cereals go, there pretty much isn't anything at the regular grocery store that we can eat. it sucks. amazon .com has lots of great food (namely cereals) that you can buy in bulk.

i'm not an active member of the church, but i have heard that the best tip for dealing w/ the sacrament is to bring your own bread or breadlike product in a tiny tupperware. ok it with the bishop first, and make sure that someone informs all the young men to not open it. i would even go so far as to use a hankerchief to handle it so you don't get crumbs on your fingers.

hang in there!!

Hey, hi everyone! I'm from Price and newly diagnosed. The dr's down here are pretty unhelpful when it comes to celiac, and buying anything special is out of the question. It's good to see the list of stores up north that can help me.

Right now I'm just concentrating on reading labels (my wife gets irritated that I now take so long in the store!) and cleaning out my pantry of the foods that only I like but now can't eat. Who'd have thought that corn bread mix was more bread than corn? And rice krispies with barley? It doesn't seem right that there aren't more non-sweetened breakfast cereals that are safe to eat. The food bank is going to get a load of cereals.

Not to bring up a subject that causes heartburn for some forum members, but I hadn't really thought about the sacrament bread (and for others the sacrament wafer might not be good either).

It'll be a struggle, but it helps to have support close by.

Hi all - I am from Utah as well - I live in Hooper (well it's almost Roy). I am new here too - just diagnosed in July. I am lost too!!! LOL Glad to see I'm not the only one here from Utah.
sharps45 Apprentice

Thanks sweetfudge for the reply. I'm planning a trip into SLC next week to do some shopping at some of the health food stores I've seen in this forum. I plan on maybe mixing up some baking mix, finding some kind of pizza crust stuff, and getting some frozen waffles or pancake mix. My family loves when I cook home-made pizza and we try to have breakfast for dinner at least once a week, so I need to get going on that at least.

I don't have the insurance problem you do, just needing to find a dr up north on my providers list who knows something about celiac. Does anyone out there recommend someone in the Provo-Orem area?

thanks everybody

  • 2 weeks later...
StevenD Newbie
Hey, hi everyone! I'm from Price and newly diagnosed. The dr's down here are pretty unhelpful when it comes to celiac, and buying anything special is out of the question. It's good to see the list of stores up north that can help me.

Right now I'm just concentrating on reading labels (my wife gets irritated that I now take so long in the store!) and cleaning out my pantry of the foods that only I like but now can't eat. Who'd have thought that corn bread mix was more bread than corn? And rice krispies with barley? It doesn't seem right that there aren't more non-sweetened breakfast cereals that are safe to eat. The food bank is going to get a load of cereals.

Not to bring up a subject that causes heartburn for some forum members, but I hadn't really thought about the sacrament bread (and for others the sacrament wafer might not be good either).

It'll be a struggle, but it helps to have support close by.

I am new to this and also in Price. I relate to all you said. I have yet to talk to anyone locally who is gluten intolerant but it seems everyone's cousin, sister, dad, etc., has it. I have a lot to learn and have been paying a high price in recent travels. Tonight I ate at Wendy's because they claim t have some fluten free items. Given my current pain, it is clear that I ate something I was not supposed to or that I was "contaminated."

Sweetfudge Community Regular

sorry to hear that. usually when i go to wendys i stick to a baked potato, w/ or w/out chili, or the southwest taco salad. other than that, i don't trust them. hope you get feeling better soon.

StevenD Newbie

Thank you for your kind response. A week ago I thought I could just breeze through this and now I am dealing with what feels like near desperation in my realization that there is much more to it than I thought. I was so excited to be feeling good and so chagrined to suddenly find myself feeling almost worse than before. Do you become even more sensitive as you clean yourself of glutens--in the sense that when you eat something bad, you now really know it, feel it, and recognize the impacts more clearly?

I know my villi are in need of serious healing. I was in a car wreck, followed by unusually high stress from various angles, followed by a supposed "healthy" super-duper high grain cereal diet for a few months that seemed to have put things over the top and to have led to sharp pains in my side (that left for about a week when I started the diet but are backnow most of the time), amongst the other symptoms you all understand in one way or another.

I look forward to learning from others and actually getting to talk to some of you. I am a rookie for sure. Do any of you attend meetings or conferences on this to learn more and to get support? I always thought I was independent but find myself needing to talk to others on this one. But, I ramble. Thanks.

StevenD

bump Newbie
Thank you for your kind response. A week ago I thought I could just breeze through this and now I am dealing with what feels like near desperation in my realization that there is much more to it than I thought. I was so excited to be feeling good and so chagrined to suddenly find myself feeling almost worse than before. Do you become even more sensitive as you clean yourself of glutens--in the sense that when you eat something bad, you now really know it, feel it, and recognize the impacts more clearly?

I know my villi are in need of serious healing. I was in a car wreck, followed by unusually high stress from various angles, followed by a supposed "healthy" super-duper high grain cereal diet for a few months that seemed to have put things over the top and to have led to sharp pains in my side (that left for about a week when I started the diet but are backnow most of the time), amongst the other symptoms you all understand in one way or another.

I look forward to learning from others and actually getting to talk to some of you. I am a rookie for sure. Do any of you attend meetings or conferences on this to learn more and to get support? I always thought I was independent but find myself needing to talk to others on this one. But, I ramble. Thanks.

StevenD

bump Newbie

I am originally from Utah but was not diagnosed until I moved to Colorado. I have family from both my side and my husband's side still living in Utah and we usually make it out for Thanksgiving.

I stop at "Good Earth" health food store (about 4th south and State in Orem) when we get into town because they have a good selection of gluten-free cereals, crackers and mixes. I do notice that the cost for gluten-free products in Utah is quite high. However if any of you can make it into SLC go to the "Wild Oats" store which was in Sugarhouse last time I was there. Wild Oats sells a lot a gluten-free items and even has an in-store list of all items which are gluten free. One of my favorite items is the wild oats gluten free chocoalte chip cookies. They are mini cookies that come in a small plastic drum and they are astonishinly delicious! They also have frozen bakery items such as dinners (Amy's organic enchiladas, rice lasagne, rice mac n cheese, (check the Amy's organic site for a complete listing) etc).

Now that Whole Foods Market and Wild Oats have merged I am hoping that a Whole Foods Market opens up in Utah. Whole Foods has some of the best gluten free baked goods I have had (check out their site for a listing of gluten-free products) including frozen pre-baked pizza crusts. I live quite close to a Whole Foods Market and don't know what I would do without it.

Eating out in Utah when we visit is always tricky, but there are several restaurant chains that have gluten free menus available (P.F. Changs (never thought I would get to eat Chinese food again!), Outback Steakhouse (the chocolate thunder from down under is gluten-free and the best brownie sundae ever!) Chili's, QDoba, Chipotle, Biaagi's, Etc). I am not certain that all of these have locations in Utah but it never hurts to call restaurant you are going to ahead of time and see what they can offer you.

I don't know if you have them in Utah, but in Colorado we have large support groups (3 chapters in all). The support groups are sponsored by the Celiac Sprue Association out of Omaha Nebraska. If you go to the CSA web site you might be able to locate a support group in your area. The support group has made all the difference in my life. We meet every other month in northern colorado (I also sometimes attend a Denver meeting which meets every month the northern chapter is off). In fact I meet with my group this upcoming Thursday. We are having a chili dinner. EVERYTHING at the dinner is safe including bread and dessert! I also find out about new products, restaurants and local bakeries when I go. Sometimes we have Specialists (gastroenterology) speak to us about new research or answer questions.

I did see that there are a couple of women in Orem who are making gluten free mixes under the company name "eating gluten free". They also have cooking classes and a cook book. They may have information on local support groups.

One thing that I can get in Utah that I look forward to is the gluten free torts at IKEA. Sadly we have no IKEA in Colorado. Celiac disease is really common in Europe (espcially Scandinavia) and the Swedes make some delicious almond torts which you can buy at IKEA under the brand name "Almondy". If you don't want to buy a whole tort they have a cafeteria upstairs where you can sample each type by the slice for around a dollar each. IKEA is huge if you have not been yet and just over the point of the mountain (Draper?). It is big and bright blue with big yellow letters, you can't miss it.

Our support group here has a gluten free product guide book that they update and print every other year or so. They sell it for 7 dollars and it includes gluten free products of most major name brands. The CSA site also has a guide book for sale.

I was diagnosed in 2002 and started feeling REALLY good again in September of 2006. The thing that helped me the most (besides a totally gluten free diet) was taking vitamins. After about 90 days of religious vitamin swallowing I felt more healthy than I had in 14 years. Just be sure to check your vitamins for gluten!

When I was diagnosed I was told that it would take my intestines about 120 days to heal. The journey back to health has been slow but worth it. I do notice that I respond more acutely to gluten contamination in my food. Before the gluten free diet I would just get tired and cranky when I ate wheat. Now I get a weeks worth of stomach ailments.

I hope this helps some of you Utah folk! Good luck and stay healthy!

  • 2 weeks later...
GFBetsy Rookie

Haven't been on the forum for a while, but I thought I'd just drop a line and let everyone know that we've got another free gluten-free class coming up next week.

We'll be holding the class at the Provo Macey's on Thursday, November 15th at 7 pm in the Little Theater. Please call the store and sign up (356-3216) so we know how much food to have available for sampling.

We'll be cooking stuffing, rolls, and pies (all those holiday things). It'll be yummy!

We also have a class scheduled for the 11th of December (that's a Tuesday). It's also at 7 pm, at the same store. We'll be doing a Christmas cookie tasting table, and demonstrating at least 2 of the cookies. We'll be sampling Pumpkin Pie Crust Cookies (they're GOOD!), Russian Tea Cake Cookies (aka Mexican Wedding Cakes), Thumbprint cookies (much like pecan sandies - also VERY good!), and snickerdoodles. We may have some other cookies, too, like peppernuts and sugar cookies. It will be a lot of fun.

Again, all the classes are free, and if you are feeling lost, it's a great chance to come and meet people who are also dealing with the gluten free diet. It's a bit of a drive from Price, but if you could combine a couple of Utah valley errands that day, it would be worth it to come up. If you can't make it, we always post our recipes on our website, which is Open Original Shared Link. All the recipes are free - and there are over 100 really yummy recipes on the site.

As far as taking the sacrament goes, talk to your bishop. Different bishops have people do different things - some have you bring your own bread and then sit in the same place each week so the deacons can find you, some have you bring your own bread and have a preisthood holder break it at your bench while the priests are doing the same with the regular bread, my sister had a bishop that set things up so that she could have the sacrament blessed and passed in her home. It all depends on what your bishop wants to do. Just make sure that he understands the seriousness of eating "just a little bit" of regular bread - it really can hurt you!

Sweetfudge - Glad to hear you're still around here! Hope you are doing well!

Sweetfudge Community Regular
Haven't been on the forum for a while, but I thought I'd just drop a line and let everyone know that we've got another free gluten-free class coming up next week.

We'll be holding the class at the Provo Macey's on Thursday, November 15th at 7 pm in the Little Theater. Please call the store and sign up (356-3216) so we know how much food to have available for sampling.

We'll be cooking stuffing, rolls, and pies (all those holiday things). It'll be yummy!

We also have a class scheduled for the 11th of December (that's a Tuesday). It's also at 7 pm, at the same store. We'll be doing a Christmas cookie tasting table, and demonstrating at least 2 of the cookies. We'll be sampling Pumpkin Pie Crust Cookies (they're GOOD!), Russian Tea Cake Cookies (aka Mexican Wedding Cakes), Thumbprint cookies (much like pecan sandies - also VERY good!), and snickerdoodles. We may have some other cookies, too, like peppernuts and sugar cookies. It will be a lot of fun.

Again, all the classes are free, and if you are feeling lost, it's a great chance to come and meet people who are also dealing with the gluten free diet. It's a bit of a drive from Price, but if you could combine a couple of Utah valley errands that day, it would be worth it to come up. If you can't make it, we always post our recipes on our website, which is Open Original Shared Link. All the recipes are free - and there are over 100 really yummy recipes on the site.

As far as taking the sacrament goes, talk to your bishop. Different bishops have people do different things - some have you bring your own bread and then sit in the same place each week so the deacons can find you, some have you bring your own bread and have a preisthood holder break it at your bench while the priests are doing the same with the regular bread, my sister had a bishop that set things up so that she could have the sacrament blessed and passed in her home. It all depends on what your bishop wants to do. Just make sure that he understands the seriousness of eating "just a little bit" of regular bread - it really can hurt you!

Sweetfudge - Glad to hear you're still around here! Hope you are doing well!

Can't wait! I'll definitely be at the class...putting it on my calender right now! And for anyone who hasn't visited the eating gluten free website...you HAVE to! It's amazing! GFBetsy is a genius! :D Just made your breadsticks tonight for dinner. Ate 3 of 'em :lol:

GFBetsy:

Yup, still here, hope all is well with you and the family! See you next week!

Tephie Apprentice

Last month at the Salt Lake GIG meeting they had a Dr. Karnam speak. It was very hard to understand him as he not from America, but he is super educated in Celiac Disease. Even though I have my diagnosis already, I have been contemplating on going down and meeting with him. Here is his info...

Karnam, Umaprasanna S, MD

1175 E 50 S 251

American Fork, UT 84003

801-772-0775

I hope that info is right, I pulled it off my insurance's doctor list.

Thanks sweetfudge for the reply. I'm planning a trip into SLC next week to do some shopping at some of the health food stores I've seen in this forum. I plan on maybe mixing up some baking mix, finding some kind of pizza crust stuff, and getting some frozen waffles or pancake mix. My family loves when I cook home-made pizza and we try to have breakfast for dinner at least once a week, so I need to get going on that at least.

I don't have the insurance problem you do, just needing to find a dr up north on my providers list who knows something about celiac. Does anyone out there recommend someone in the Provo-Orem area?

thanks everybody

Tephie Apprentice

StevenD

I know this isn't super close to you, but they have meetings done by the GIG group in Pleasant Grove. I don't know how often they are as I attend the ones in Salt Lake. I have found them very informative. They are hosting a gluten free Thanksgiving feast mid November, it will be catered and everything is gluten free. Check out this website... Open Original Shared Link I am fairly new to this as well (diagnosed in July), but feel free to PM me or ask questions.

Tephie

Thank you for your kind response. A week ago I thought I could just breeze through this and now I am dealing with what feels like near desperation in my realization that there is much more to it than I thought. I was so excited to be feeling good and so chagrined to suddenly find myself feeling almost worse than before. Do you become even more sensitive as you clean yourself of glutens--in the sense that when you eat something bad, you now really know it, feel it, and recognize the impacts more clearly?

I know my villi are in need of serious healing. I was in a car wreck, followed by unusually high stress from various angles, followed by a supposed "healthy" super-duper high grain cereal diet for a few months that seemed to have put things over the top and to have led to sharp pains in my side (that left for about a week when I started the diet but are backnow most of the time), amongst the other symptoms you all understand in one way or another.

I look forward to learning from others and actually getting to talk to some of you. I am a rookie for sure. Do any of you attend meetings or conferences on this to learn more and to get support? I always thought I was independent but find myself needing to talk to others on this one. But, I ramble. Thanks.

StevenD

Tephie Apprentice

Hi Harrishart,

I live in South Weber, so we definately are close! I was also diagnosed in July. I hope you are doing well :)

Tephie

Hi all - I am from Utah as well - I live in Hooper (well it's almost Roy). I am new here too - just diagnosed in July. I am lost too!!! LOL Glad to see I'm not the only one here from Utah.
GFBetsy Rookie
StevenD

I know this isn't super close to you, but they have meetings done by the GIG group in Pleasant Grove. I don't know how often they are as I attend the ones in Salt Lake. I have found them very informative. They are hosting a gluten free Thanksgiving feast mid November, it will be catered and everything is gluten free. Check out this website... Open Original Shared Link I am fairly new to this as well (diagnosed in July), but feel free to PM me or ask questions.

Tephie

The Utah County GIG meets at 7 pm on the first Thursday of every month (but not this December). They used to meet at Timpanogos hospital in Orem, but due to construction had to move them to UVRMC in Provo. At the last meeting, the branch manager told me that they aren't sure yet where they will be meeting in January because UVRMC hasn't gotten back to them yet about whether they can still use the room they've been using. If it turns out that UVRMC doesn't work out, there's a Dr. office in American Fork that they will probably use. So just check out the GFutah website for further information.

PRA Newbie

Meant to post this in this topic -but I added it as a new topic. Oops. Still can't figure out how to label my post.

Hi. I'm new and recently diagnosed. I live in Salt Lake. A friend of mine saw in the newspaper that "House of Bread" on 2700 South and about 2000 East is making gluten-free bread every Saturday.

I bought some on Saturday, and tried it yesterday. It's my first bread in over a month. I wasn't too impressed, but that's probably just because it's gluten-free. However, in the night, I got really sick. I am still feeling awful, and it's the only thing I can think of that I haven't had before.

Has anyone else tried the bread? Any reactions?

Paula in Salt Lake

  • 2 weeks later...
utdan Apprentice

Hello all, I just found my new favorite celiac friendly Provo/Orem restaurant last night:

Cafe Rio

2250 N University Pkwy # 816, Provo - (801) 375-5133

I had the enchiladas with steak, and it was very good. The price was about $6.95. I'm starting to think that ordering enchiladas at any Mexican restaurant is safe as I have yet to get a reaction from any of them. I just double check they use corn wraps instead of tortillas first.

Sweetfudge, yes I'm a student at BYU as an undergrad in Biology.

I tried the Pudding on Rice with the vanilla and cinnamon flavors and they were both good! I tried contacting the company to find a list of safe flavors but their website was down. Does anyone know which ones are safe?

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      @Riley., Welcome to the forum.   It was once believed that Celiac Disease was only a childhood disease and it can be outgrown.  That was before 1951, before gluten was discovered to be cause of Celiac Disease, also called Infantilism.  Back then Cileac Disease was thought to be only a gastro intestinal disease, once you  "outgrew" the colicky phase, you were cured. You were so lucky to be diagnosed at 5 years old so your developing years were normal.  Gluten can affect multiple systems.  The nervous system, your intellegence. The muscules, skeleton. It can cause neurological issues like brain fog, anxiety, and peripheral neuropathy.  It can cause joint pain, muscle weakness, and skin rashes. Epilepsy is 1.8 times more prevalent in patients with celiac disease, compared to the general population. Because through malabsorption and food avoidances, it causes vitamin D and numerouus other essential nutrient deficiencies, it allows allergies, infections, poor growth, stuffy sinuses and eustacian tubes. There is even a catagory of celiac disease called "Silent Celiac".  Any symptoms are explained away as this, that or the other thing. Gluten is one of the most addictive substances we consume.  Activating the Opiod receptors in our cells, it can numb us to the damage that it, and other foods are causing.  It has become socially acceptable to eat foods that make us feel sick.  "There's a pill for that".   It is generally accepted that n fact you are weird if you don't. The hardest part is that if you don't eat gluten you will feel great and think why not.  But slowly it will effect you, you'll be diagnosed with real diseases that you don't have. You'll be more susseptable to other autoimmune diseases.  As you read through the posts here, notice how many are finally dianosed, after years of suffering at older ages.  Is it worth it? I think not. Perhaps this book will help:  Here is a list of possible symptoms:   
    • Riley.
      Hi! Im Riley, 18 years old and have been diagnosed for 13 years.. the testing started bc I stopped growing and didn’t gain any weight and was really small and thin for my age.  I got diagnosed when I was 5 and have been living gluten free since, in elementary and middle school it was hard for me and I kept contaminating myself bc I wanted to fit in with my friends so so badly. I ate gluten secretly at school and mostly regretted it 30 minutes later.  I’ve had symptoms like diarrhea, nausea, headaches, stomachaches, threw up a lot and was really emotional.  In 2022 I really started working on myself and tried to stay gluten free and if I did eat gluten I wouldn’t tell anyone and suffer in silence.  Last year in July I begged my mom to let me „cheat“ one day bc I just wanted to fit in… I ate a lot of different stuff, all the stuff I missed out on in my childhood like nuggets, pizza and all that.. I didn’t have symptoms that day and was doing really fine My mom and I wanted to test how far we can go and said we would test it for 12 weeks to get my blood taken after to see if I’m doing good or if symptoms start showing  As a now 18 year old girl who finally gained a normal weight and doesn’t get symptoms I’m to scared to get tested/my blood taken cuz I finally found comfort in food and it got so much easier for me and my family.  A year and 4 months later i still didn’t get any symptoms and have been eating gluten daily.  I’m scared to get tested/my blood taken cuz what if I’m actually not fine and have to go back to eating gluten free. Any tips to get over that fear and „suck it up“ cuz I know I could seriously damage my body… sorry if I seem like a idiot here… just don’t really know what to do :,)
    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
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