Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dehydration

Alicia M

Recommended Posts

Alicia M Newbie
Alicia M
Posted

Does anyone have problems with dehydration? I literally drink 8-10 glasses of water a day. I do not drink any other liquids except that new mineral water. I drink alcohol one-two nights out of the week. With all that said, I get dehydrated an awful lot. I spent four hours last Saturday at the emergency clinic getting two bags of fluid pumped into me because I was so dehydrated. I don't understand why I could be so dehydrated when I drink so much water.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Does anyone have problems with dehydration? I literally drink 8-10 glasses of water a day. I do not drink any other liquids except that new mineral water. I drink alcohol one-two nights out of the week. With all that said, I get dehydrated an awful lot. I spent four hours last Saturday at the emergency clinic getting two bags of fluid pumped into me because I was so dehydrated. I don't understand why I could be so dehydrated when I drink so much water.

Have they checked you for diabetes or kidney problems? Have you brought this up with your doctor?

CarlaB Enthusiast
CarlaB
Posted

I have the same problem and have had many visits to the emergency room. I put a little shake of salt in my water to add electrolytes. Or you could drink Gatorade, Propel, or something else that has electrolytes. Even pouring a little fruit juice in my water helps, but as much as I drink, I can't drink enough if it's plain water. I have had this problem for as long as I can remember and drink at least two quarts of water a day.

I have been checked for diabetes, but not kidney problems.

lorka150 Collaborator
lorka150
Posted

is it possible that you are either getting a bit of gluten in your diet (i get horribly dehydrated when i do), or that your mineral water has sodium? i drink copious amounts of water, anyway, but just to make sure.

CarlaB Enthusiast
CarlaB
Posted

My dehydration gets worse when I get glutened, but I have to watch it all the time.

JenAnderson Rookie
JenAnderson
Posted

It seems that I stay dehydrated all the time. I can go into the ER and get an IV and about a day after that, BOOM...dehydration again. I drink water all the time. If I have a drink of alcohol or Dr. Pepper, it's all downhill from there.

flagbabyds Collaborator
flagbabyds
Posted

you should drink something with electrolytes in it because that should help the dehydration more than just plain water, that is what seems to help me when i get dehydrated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

I don't know if I'm actually dehydrated, but my lips are almost always dry. (Not chapped or red, just dry) I know I don't drink enough water :ph34r: When glutened, it gets worse.

Generic Apprentice
Generic
Posted

I have always suffered from dehydration problems. I had to go to the E.R. for the first time when I was 8 years old. I have been on a gluten free diet since I was 13, and yes I still suffer from dehydration especially if I get glutened. It used to be a guaranteed trip to the E.R. I would get both ends going and it wouldn't stop. Since I started going to accupuncture, I have had no major problems when I accidently got glutened. I have always drank gatorade. I can now drink just plain water. (Before it went straight thru me).

Alicia M Newbie
Alicia M
Posted
  • Author
I have the same problem and have had many visits to the emergency room. I put a little shake of salt in my water to add electrolytes. Or you could drink Gatorade, Propel, or something else that has electrolytes. Even pouring a little fruit juice in my water helps, but as much as I drink, I can't drink enough if it's plain water. I have had this problem for as long as I can remember and drink at least two quarts of water a day.

I have been checked for diabetes, but not kidney problems.

The thing is when I go to the emergency room for dehydration they test my electrolytes and they are perfect. I do drink Gaterorade time to time, especially if I am working out. I have been checked for diabetes as well and it came back negative. I also have been checked for kidney problems and that came back fine too.

Mango04 Enthusiast
Mango04
Posted

Natural coconut water can be excellent for hydration. You can drink it straight out of a coconut (if you can find one) or you can buy it at some health food stores.

Other than that, I'm not sure. I hate it when they test you for everything and say it's all normal, when clearly there's a problem. :( I hope you find your answer soon.

Alicia M Newbie
Alicia M
Posted
  • Author
I have always suffered from dehydration problems. I had to go to the E.R. for the first time when I was 8 years old. I have been on a gluten free diet since I was 13, and yes I still suffer from dehydration especially if I get glutened. It used to be a guaranteed trip to the E.R. I would get both ends going and it wouldn't stop. Since I started going to accupuncture, I have had no major problems when I accidently got glutened. I have always drank gatorade. I can now drink just plain water. (Before it went straight thru me).

Thanks so much for your response. I was doing accupressure and that seemed to work but that got so expensive. I am going to try accupuncture and start drinking more gatorade. Thanks.

schuyler Apprentice
schuyler
Posted

Whenever I'm dehydrated, I drink Pedalyte or Gatorade, because they help replace electrolytes.

indyceliac Newbie
indyceliac
Posted

Isnt this interesting. I was going to post about this but figured it was just me.

Ive always had a problem with dehydration also. Cant tell u how many times I had to go to the hospital when I was pregnant because of dehydration-which would induce contractions.

Still, no matter how much i drink (and i really hate water..but force myself).., I still tend to get dehydrated and get headaches from it. I avoid all alcohol now, too. Im hoping the longer Im on the diet the better all my weird little symptons will be.

I dont know how long you've been gluten-free but could it be if your intestines are damaged, as I know mine are, that we're just not absorbing water as well, also? Does that make sense?

Does anyone have problems with dehydration? I literally drink 8-10 glasses of water a day. I do not drink any other liquids except that new mineral water. I drink alcohol one-two nights out of the week. With all that said, I get dehydrated an awful lot. I spent four hours last Saturday at the emergency clinic getting two bags of fluid pumped into me because I was so dehydrated. I don't understand why I could be so dehydrated when I drink so much water.
GlutenWrangler Contributor
GlutenWrangler
Posted

I completely understand. I drink over 3 gallons of bottled water and gatorade a day. Its hard to stay hydrated.

Alicia M Newbie
Alicia M
Posted
  • Author
Isnt this interesting. I was going to post about this but figured it was just me.

Ive always had a problem with dehydration also. Cant tell u how many times I had to go to the hospital when I was pregnant because of dehydration-which would induce contractions.

Still, no matter how much i drink (and i really hate water..but force myself).., I still tend to get dehydrated and get headaches from it. I avoid all alcohol now, too. Im hoping the longer Im on the diet the better all my weird little symptons will be.

I dont know how long you've been gluten-free but could it be if your intestines are damaged, as I know mine are, that we're just not absorbing water as well, also? Does that make sense?

Thanks for your response. I have been gluten-free for two years, but not strict, but I have been super strict for a month now and will continue to be strict for the rest of my life. How long have you been gluten-free? Do you notice that you are getting better? I am actually going to get another test done to see how much damage I have to my intestines.

lindalee Enthusiast
lindalee
Posted
is it possible that you are either getting a bit of gluten in your diet (i get horribly dehydrated when i do), or that your mineral water has sodium? i drink copious amounts of water, anyway, but just to make sure.

I wake up thirsty and drink water by the bed. I've started drinking a mineral water (Gerolsteiner) it does have sodium but it makes me feel better, I think. Jersey Angel, my lips stay dry all the time.

lorka150 Collaborator
lorka150
Posted

homemade gatorade:

Dissolve 4 tbsp. sugar, 1/4 tsp. salt in 1/4 c. boiling water.

Add 2 tbsp. lemon juice and 3 and 3/4 c. cold water. Chill.

Green12 Enthusiast
Green12
Posted

It seems dehydration is a common theme with many on this board.

  • 6 years later...
Keshavdas Apprentice
Keshavdas
Posted

Another mystery solved. I started getting palpitations some years ago and my family doctor told me I was dehydrated and I thought he was crazy. The thing is - I am rarely thirsty. At a certain point I had to take it seriously and force myself to drink fluids. I HATE drinking water in any large amount. What helps is coconut water. I buy Vitacoco which I get cheap at my local deli. I've used it for years on breakfast cereals instead of milk. Every day when I go to work - I pick up gatorade which is frequently on sale at one place or the other - so I will buy as many of the two liter bottles as I can carry home. It's weird what others were saying about fluids just passing through. That's always been the case with me and it never occurred to me that it could be a malabsorbtion issue, tho I have suspected that was the case as regards why I've lost so much weight over the last few decades. 23 years ago I weighed 185. Back then I stopped alcohol (I always got hangovers so much worse than my friends) and fun drugs - but never thought that could account for my weight dropping so much. I now weigh 150 to 155 on a good day. I really hope that with healing the malabsorbtion will reverse and I'll be able to retain fluids in a more normal fashion. As things stand, sometimes I only have to look at a glass of water and I have to run off to pee. :huh:

PennyH Newbie
PennyH
Posted

Does anyone have problems with dehydration? I literally drink 8-10 glasses of water a day. I do not drink any other liquids except that new mineral water. I drink alcohol one-two nights out of the week. With all that said, I get dehydrated an awful lot. I spent four hours last Saturday at the emergency clinic getting two bags of fluid pumped into me because I was so dehydrated. I don't understand why I could be so dehydrated when I drink so much water.

This forum is wonderful, just when you're feeling weird, you see others are having the same issues! I've been fighting dehydration for years. It makes me very tired and my lips and mouth are always very dry. I hope someone can chime in on the reason.

eatmeat4good Enthusiast
eatmeat4good
Posted

Malabsorption of fluids is consistent with Celiac in addition to the malabsorption of vitamins and minerals. I recently read an article that said children with undiagnosed Celiac are prone to dehydration. The article was about children, but I suspect the same holds true for adults. It makes sense that if you aren't absorbing properly you can become dehydrated in spite of how much you drink. Google Celiac and Dehydration and you can find a lot of information.

Azuremackey Newbie
Azuremackey
Posted

I am newly diagnosed ( gluten-free for 3 months) I have the same problem. I drink almost 2 gallons of water a day and am still constantly thirsty. I have tried some herbal teas but some give me stomach issues has anyone else had this issue with teas?

sherrylynn Contributor
sherrylynn
Posted

I also have a problem with dehydration. I just thought it was because I have diarrhea all the time.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,951
    • Most Online (within 30 mins)
      7,748
    SY8
    Newest Member
    SY8
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.