Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Possible To Be Intolerant To Gluten-free Products?


aparth

Recommended Posts

aparth Newbie

Hi all,

I have had Crohn's disease for half of my life, the last 11 years. In the years since I have been diagnosed the condition has improved steadily so that I now lead a normal life. While I am unable to drink beer, coffee and milk, most other foods I can generally tolerate (if i dont overeat).

However I do occasionally get bloating, gas (burping repeatedly!), and some constipation/diarrheoa. I have recently switched to a new doctor who thinks diet may be the cause of these few nagging symptoms.

I was sent to undertake a fructose intolerance breathtest, which came out negative, despite getting obvious symptoms of diarrheoa. A dietician suggested i may therefore be intolerant to gluten and wheat products as well as fructose.

Here is my problem. During the week of breathtesting, I had to go on a special restricted wheat-free, calcium free, fructose free diet. On the third night I tried some gluten free bread - i actually loved the taste! But that night I awoke with bad diarrheoa, something which is completely rare for me (unless i had food poisoning).

I assumed it was the effect of the breathtesting (which was generally unsettling my gut throughout the week).

Yesterday, after purchasing a gluten-free cookbook I decided to give gluten free bread another shot. The last two days my gut had been feeling rather problem free. Once again, I awoke last night with unusually formed diarrheoa.

The only conclusion i can make is I'm allergic to gluten-free....because gluten-filled bread and pasta doesnt seem to make me feel ill as it does to some of you guys here.

Can anybody advise on my situation?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elonwy Enthusiast

Could you be intolerant of rice or corn? Most gluten free products are heavily rice and corn based.

Just a thought.

Elonwy

BRUMI1968 Collaborator

I've read lots of folks on here have trouble with tapioca, too.

aparth Newbie

that may be it, Bully4You. The second largest ingredient in the bread is tapioca flour.

I'm definitely not intolerant to rice and corn as I can eat these in fairly large quantities without trouble.

can anyone who has a problem with tapioca please share their thoughts?

AndreaB Contributor

I have a problem with beans which are in a lot of recipes and dry packet mixes.

Deej Newbie

I have problems that I think (don't know) are related to guar and xanthum gum which are often found in gluten-free baked goods. I get bloated and then suffer D. badly. I eat the baked goods only rarely. It never occurred to me it might be tapioca!

jerseyangel Proficient
that may be it, Bully4You. The second largest ingredient in the bread is tapioca flour.

I'm definitely not intolerant to rice and corn as I can eat these in fairly large quantities without trouble.

can anyone who has a problem with tapioca please share their thoughts?

Hi Aparth--I am one who is sensitive to tapioca. Before I was gluten-free, if I ate tapioca pudding (the only way I ever had it before), I would get a very dry mouth. I didn't notice any stomach reactions then, but I was sick for a good 20 years before I was diagnosed so it was not unusual for me to have stomach problems anyway. When I went gluten-free, after a few months, I was noticing a lot of my GI symptoms that had initally gone away on the diet were returning. I was eating gluten-free breads, and also using tapioca flour in my flour mix for baking. When I began reading up on the additional food intolerances that some Celiacs can develop--probably due to leaky gut--I began to experiment with my own version of a rotation diet. I found that with tapioca, I get symptoms very similar to gluten--D, nausea and stomach pain. I know there a few others here on the board who have reported being sensitive to tapioca, also.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishLisa Newbie

I don't know what ingredients the US gluten free breads contain, but I do know that many of the European brands contain soy of some sort. Being intolerant to soy, gluten free bread also gives me GI problems. You might also want to consider the yeast, which is another thing that I am intolerant too. Eating gluten free bread or any other yeast containing product gives me the same GI problems that you describe.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    2. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    3. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    5. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.