Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can I Have Soy


TERESE

Recommended Posts

TERESE Rookie

I have been gluten free for 10 months. I had neg. bloodwork but tests from Entrolab showed I am DQB1 0302 and 0501 and casein sensitive. I have yet to go dairy free but think I should as I am still having stomach issues. Can I have soy? I think I read here that soy wasn't good for people with celiac but does that go for gluten sensitivity too? What does that leave me with and far as milk for cereal and coffee and my beloved icecream?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

He Terese. Well, you could have rice milk (not Rice Dream, as it's not gluten-free), and Rice Dream ice cream (which is gluten-free). Or almond milk on your cereal. There are other choices, but since I am intolerant to all of them, somebody else would have more info.

Maybe you can have soy. Many people with celiac disease are soy and dairy intolerant as well. But by far not all. First eliminate dairy, since you actually tested to be intolerant to it. If you still have stomach issues, it may be something else, and would want to then try cutting out soy.

TERESE Rookie
He Terese. Well, you could have rice milk (not Rice Dream, as it's not gluten-free), and Rice Dream ice cream (which is gluten-free). Or almond milk on your cereal. There are other choices, but since I am intolerant to all of them, somebody else would have more info.

Maybe you can have soy. Many people with celiac disease are soy and dairy intolerant as well. But by far not all. First eliminate dairy, since you actually tested to be intolerant to it. If you still have stomach issues, it may be something else, and would want to then try cutting out soy.

Thanks Ursula,

I'll try going dairy free and hopfully soy won't be a problem.

AndreaB Contributor

Please don't make soy a staple in your diet but us sparingly if you choose to use it. My family that has been tested by enterolab came back with 2 soy intolerant/sensitive and 2 that scored 9 with 10 being the intolerant/sensitive level. Soy is highly allergenic and can cause damage to the intestines as well. Stick with Rice Dream ice cream or sorbet and try and use almond or rice milks (except Rice Dream milk). Try to limit soy to stuff like tofu and even cheese if you need to, unless you are just looking to replace milk and not use other soy products.

ms-sillyak-screwed Enthusiast

Soy for me caused many more problems then I prepared myself for 5 or 6 years ago when I went G&D FREE.

Visit my blogg (rightside) link has info about how bad soy is. There are people that are in denial about the dangers of soy, and plenty of threads here pro and con. But always remember SOY is listed in the 8 deadly allergens.

No -one tells you or prepares you about the secondary food intolerance/allergies that crop up as time passes living with celiac disease. You may think that going G&D FREE you will be healthy. For many of us it's NOT enough. I leaned the hard way that most of us have more then a gluten problem... and there are more things needed to avoid as well.

Soy for me caused many more problems then I prepared myself for 5 or 6 years ago when I went G&D FREE.

Visit my blogg (rightside) link has info about how bad soy is. There are people that are in denial about the dangers of soy, and plenty of threads here pro and con. But always remember SOY is listed in the 8 deadly allergens.

No -one tells you or prepares you about the secondary food intolerance/allergies that crop up as time passes living with celiac disease. You may think that going G&D FREE you will be healthy. For many of us it's NOT enough. I leaned the hard way that most of us have more then a gluten problem... and there are more things needed to avoid as well.

One last thing -- look into goats milk it doesn't break down like cows milk, or soy does.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,919
    • Most Online (within 30 mins)
      7,748

    globello
    Newest Member
    globello
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.