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Usa Weekend Magazine (sunday Paper)


StrongerToday

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StrongerToday Enthusiast

There's a great article in my Sunday paper USA Weekend Magazine - check it out!

Open Original Shared Link


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mouse Enthusiast

What a great article. Thank you for sharing it.

Green12 Enthusiast
There's a great article in my Sunday paper USA Weekend Magazine - check it out!

Open Original Shared Link

Great article :)

AndreaB Contributor

It's great to see an article like that in one of the mainline newspapers.

num1habsfan Rising Star

*bookmarks it* :P

~lisa~

marycubs Rookie

Great to see an article in a mainstream paper !!

I emailed Dr. Mitchell thanking him for the article and explaining that over a 3 year period I had 4 Drs. (including a GI) label my symptoms as IBS and a result of stress/depression. After being being sick of feeling sick, I did research on the web - asked my Dr. for a celiac disease panel and was confirmed a celiac disease with an endoscopy. I also mentioned that many people with celiac disease have other auto immune disorders. (I'm in the process of trying to figure out why I am still ill after 1 year of being gluten-free)...so a gluten-free diet isn't always the only answer.

I asked him to please continue to talk about celiac disease in his articles - as this is a very common disease that needs more attention and awareness.

I encourage all of you to email him - if you click on the article - there's an easy link to "contact us"..and send a note to him...

I've decided to start emailing papers, medical talk shows, news media, etc, to try to bring more awareness to this disease.

take care -

Mary

sillyactsue Explorer
Great to see an article in a mainstream paper !!

I emailed Dr. Mitchell thanking him for the article and explaining that over a 3 year period I had 4 Drs. (including a GI) label my symptoms as IBS and a result of stress/depression. After being being sick of feeling sick, I did research on the web - asked my Dr. for a celiac disease panel and was confirmed a celiac disease with an endoscopy. I also mentioned that many people with celiac disease have other auto immune disorders. (I'm in the process of trying to figure out why I am still ill after 1 year of being gluten-free)...so a gluten-free diet isn't always the only answer.

I asked him to please continue to talk about celiac disease in his articles - as this is a very common disease that needs more attention and awareness.

I encourage all of you to email him - if you click on the article - there's an easy link to "contact us"..and send a note to him...

I've decided to start emailing papers, medical talk shows, news media, etc, to try to bring more awareness to this disease.

take care -

Mary

Let's get Oprah. Everyone listens to her.


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      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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