Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mushrooms

elisabet

Recommended Posts

elisabet Contributor
elisabet
Posted

It was a program in Norwegian TV,a scientists has recommended celiac people avoid mushrooms.I watched the last 5 minutes of the program,so I did not heared the whole discusion.

have you heard of this before? do you react to mushrooms?

may be this is one thing that we did not think of as a NO FOOd.

please share your experiments.

Elisabet

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jennyj Collaborator
jennyj
Posted

I've never heard this so I hope it is not true because I eat ALOT of mushrooms, raw and cooked. :o

Lisa Mentor
Lisa
Posted

No problem with store bought mushrooms....don't know about mushrooms in the woods, some are poisonous.

CarlaB Enthusiast
CarlaB
Posted

I've never had a problem with mushrooms.

amybeth Enthusiast
amybeth
Posted

I definitely - and consistently react to mushrooms. But I never thought it'd be related to celiac disease. I just avoid them. Sounds like it varies from person to person - interesting, though.

AndreaB Contributor
AndreaB
Posted

I haven't had a problem with mushrooms. I was one of those people that didn't have any obvious symptoms before gluten free. Now I know when I've been glutened.

Lister Rising Star
Lister
Posted

not sure if its completly connected, but my main trigger for my sickness was mushrooms. i was drugged by some friends with a 8th of magic mushrooms(they slipt it into my drink) after that day i had lots of stomic problems for a few months and then i got really really sick, all is better for me now but, some of the mushrooms got logged into a stool thats still sindie me and slowly leeks into my system, so everyday i get slightly poisind as it works its way out

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carriefaith Enthusiast
Carriefaith
Posted

I haven't personally noticed a problem with mushrooms. I'm interested to know why they would say that though.

evie Rookie
evie
Posted
It was a program in Norwegian TV,a scientists has recommended celiac people avoid mushrooms.I watched the last 5 minutes of the program,so I did not heared the whole discusion.

have you heard of this before? do you react to mushrooms?

may be this is one thing that we did not think of as a NO FOOd.

please share your experiments.

Elisabet

Years ago I was found to be allergic to mushrooms so stay away from them. Also when I doctored for candida I was told not to eat them. Could that be the connection? :rolleyes: evie

Daxin Explorer
Daxin
Posted

I've also never had a problem with mushrooms, and it's a good thing. I love 'em!

lorka150 Collaborator
lorka150
Posted

people who have candida (which can be associate with celiac) are to stay away from mushrooms because of the yeast.

elisabet Contributor
elisabet
Posted
  • Author

Ok,I found out.

Mushroom is rich in valine,a branched amino acid. and when you have celiac you have a week digestive system,and you should not make youe digestive system weeker .branched amino acids makes extra work for digestive system,(according to that Norwegian sceintist).

Carriefaith Enthusiast
Carriefaith
Posted
Ok,I found out.

Mushroom is rich in valine,a branched amino acid. and when you have celiac you have a week digestive system,and you should not make youe digestive system weeker .branched amino acids makes extra work for digestive system,(according to that Norwegian sceintist).

That's interesting. I have never heard that before.
  • 1 year later...
KelBelle Newbie
KelBelle
Posted
Open Original Shared Link
Open Original Shared Link
Open Original Shared Link
psawyer Proficient
psawyer
Posted

I have no idea where KelBelle got that misinformation, but there is no gluten in any mushroom, at least not as we use the term. Prepared foods containing mushrooms could have gluten in them from another ingredient, but the mushrooms themselves are gluten-free. Period.

ravenwoodglass Mentor
ravenwoodglass
Posted
I have no idea where KelBelle got that misinformation, but there is no gluten in any mushroom, at least not as we use the term. Prepared foods containing mushrooms could have gluten in them from another ingredient, but the mushrooms themselves are gluten-free. Period.

Open Original Shared Link

She got it from the above link. I had a hard time finding the quote and had to read it a couple of times. I think the gluten reference may come from the lengthy talk about ergot fungus but I could be wrong. There are also more than one form of gluten, corn gluten for example, so perhaps that is what is being spoken about.

I do heartedly agree that mushrooms are gluten safe, as far as the type of gluten we worry about goes.

moldlady Rookie
moldlady
Posted

Mushrooms should not be a gluten issue. It is a fungus issue. Some may be safe, some are dangerous, and a few actually are medicinal.

larry mac Enthusiast
larry mac
Posted
not sure if its completly connected, but my main trigger for my sickness was mushrooms. i was drugged by some friends with a 8th of magic mushrooms(they slipt it into my drink) after that day i had lots of stomic problems for a few months and then i got really really sick, all is better for me now but, some of the mushrooms got logged into a stool thats still sindie me and slowly leeks into my system, so everyday i get slightly poisind as it works its way out

Excuse me, but this is the Celiac Disease Forum, not the Twilight Zone. :wacko:

best regards, lm

KelBelle Newbie
KelBelle
Posted

I have a copy of a recipe here that mentions that anyone sensitive to gluten should cut out the gills prior to consumption. The reason is not that anyone is saying that mushrooms naturally have gluten, but the gills are sticky and the possibility of them having gluten stuck to them is a possibility if you do not know for sure what medium they were grown in. Obviously this is not going to apply to every single mushroom type. It really shouldn't be any different than anything else we eat. Know your source. If it doesn't bother you, great. If it does, there's always the chance that there was CC.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    2. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in...
    3. SilkieFairy
      - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash...
    4. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.