Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Do If They Dont Give You A Strait Answer?


lightningfoot speakin words

Recommended Posts

lightningfoot speakin words Contributor

I called post about their fruity pebbles bronto bites and the person said that they will put the dereritive if its from gluten and I said well can you just tell me because I dont really know. Then she got all snappy and had a cow and was like I CANT HELP YOU!! I AM NOT SPOSSED to because I AM A JERK!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



penguin Community Regular

General Mills will clearly list wheat, barley, rye, and oats in the ingredients. They won't hide gluten under natural flavors or anything like that. Sorry you had a bad experience.

tarnalberry Community Regular

The companies that have a policy of clearly listing on labels won't generally tell you about particular items over the phone precisely because of their policy. They've shifted responsibilty to the label - they know their formula's change, so they take accountability at the labeling stage and use their labels to convey consistent information, not customer service representatives who can't know what the label you're looking at says. That means you become responsible for looking for the words "wheat" "barley" "rye" or "oats" on the label.

I kinda like that approach, myself.

kbtoyssni Contributor

I get annoyed when a company can't give me a straight answer (assuming they're not one of the companies who say that gluten will be on the label) and usually refuse to buy their food. I don't need that kind of hassle and I'd rather give my business to a company who knows what gluten is.

penguin Community Regular

Just so we're on the same page, Post makes the pebbles cereals and is a Kraft company, which means they'll clearly list wheat, barley, rye, and oats, even if they occur in trace amounts.

psawyer Proficient

This has been posted elsewhere, but here is the list I have of companies/brands that will always clearly disclose gluten sources. Many of them will tell you to read the label, and has been pointed out by others in this thread, that is a good thing!

My List:

Arrowhead Mills, Aunt Nelly's, Balance, Baskin Robbins, Ben & Jerry, Bertoli, Betty Crocker, Blue Bunny, Breyers, Campbells, Cascadian Farms, Celestial Seasonings, ConAgra, Country Crock, Edy's, General Mills, Good Humor, Green Giant, Haagen Daz, Hellman's, Hershey, Hormel, Hungry Jack, Jiffy, Knorr, Kozy Shack, Kraft, Lawry's, Libby's, Lipton, Martha White, Maxwell House, McCormick, Nabisco, Nestle, Old El Paso, Ortega, Pillsbury, Popsicle, Post, Progresso, Ragu, Russell Stover, Seneca Foods, Skippy, Smucker, Stokely's, Sunny Delight, T Marzetti, Tyson, Unilever, Wishbone, Yoplait, Zatarain's.

There may be others as well. Post is on the list.

tiredofdoctors Enthusiast

Will have to look in my pantry to give more brands . . . What I have come across, more often than not, is that the companies will take responsibility for their PRODUCT -- that they don't add anything that contains gluten. What they won't take responsibility for is checking from their suppliers if THEY have any gluten-containing ingredients in what they are purchasing from them. This is especially true in women's cosmetics, soaps (fragrance) things of that nature.

An example of that in food is, say, Company A makes soup. They list on the label "natural flavors". They purchase the natural flavors from Company B. Company B, for whatever reason, uses gluten-containing products, maybe to thicken the natural flavors into a paste that can be added to Company A's vats. Company A, that manufactures the soup doesn't put gluten into their product; however, they don't check with Company B, the supplier of the natural flavors to find out if their product contains gluten.

It seems to me that is the biggest "loophole" in the whole labelling system . . . and tends to decrease accountability.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lightningfoot speakin words Contributor

sorry, I kinda lost my temper with the whole situation. I understand but it would make it a whole lot easier if they could tell me.

  • 3 weeks later...
ms-sillyak-screwed Enthusiast

-

penguin Community Regular
I feel the same way - big companies really don't care about us.

Were we will make a differenece is writing and complaining to the FDA.

I have major issue with words like "NATURAL", "natural ingredients", "natural flavoring or natural additives".

For example - Prudue ground turkey, has natual ingredients. I called last year and they told me it's ROSEMARY. I don't have a problem with rosemary in general. But every time I eat their ground turkey, I get reactive. Yesterday I called again. The woman was nice but told me it was a trade secret. I pressed her and told her my daddyO was a friend of Frank (he really was) and that I have life threatening food allergies and I really need to know for medical reasons. She then told me its extracts from rosemary OIL. I didn't know rosemary oil EXTRACT was 'natura'l from the plant and was not processed in anyway.

Is rosemary oil extract a 'natural ingredients"?

Is SOY a natural ingredient? SOY is listed and one of the deadly 8 allergens. Why do they allow the manufacures to mislead us? We have to complain to the FDA.

I have been writing to the FDA and complain that the word NATURAL is used to loosely in the new labeling laws, these new lables need to be modified for people with special medical dietary needs. And WE must STOP them from using the word "NATURAL" in everything from body products to what we eat.

Rosemary oil is a natural product, because you just have to press rosemary leaves (in theory) to get it out. Rosemary is a plant that grows out of the ground, and is therefore natural.

As much as you like to demonize soy, it is also natural. Soy is a plant that grows out of the ground, just like wheat or grass or hemlock or an oak tree. Soy also happens to support much of the agriculture in Arkansas (and other places).

Are their labelling policies great? No. It's a good move to complain to the FDA, and also to your local senators/congressmen. :)

dkjones2 Newbie

I have found people react differnetly to ingredients, I have to avoid Rosemary and I never buy anything that says the words modified food starch unless it says corn otherwise it might be wheat. I also dont buy anything that is made "gummy" fruit snacks, swedish fish,gum drops, etc they may or may not go down a convor belt that had been sprinkled with flour some use sugars but most use flour.

lovegrov Collaborator

In this case the answer was just as straight as any company can give you. Read the lable and if it doesn't say wheat, rye or barley, it's gluten-free. It couldn't be any simpler. I wish that would be the response of EVERY company.

richard

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,912
    • Most Online (within 30 mins)
      7,748

    westman3d
    Newest Member
    westman3d
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.