Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kept Getting Glutened

Ursa Major

Recommended Posts

Ursa Major Collaborator
Ursa Major
Posted

The reason I am posting this is, to remind people to re-check ingredients on foods you think are gluten-free, because they've 'always been' gluten-free.

Well, my favourite chocolate is Lindt Lindor dark chocolate (with a cream centre). Last year it definitely had no gluten in it (even though it had a tiny bit of dairy and soy, which seemed okay and not causing a problem). So, I assumed (stupidly) that it was still gluten-free. Lately I've been having diarrhea and stomach pain, burning and tearing eyes and rashes again (amongst other symptoms), and didn't know why.

All those cleared up these past two weeks, because I ran out of chocolate and didn't have time to buy more. Yesterday I got some again and ate half of it. Not doing too well today, still not cluing in, I ate a few more pieces. Enter Susie, my youngest daughter (14), who comes up, says, "Can I have some of your chocolate?" I agree halfheartedly (kids always wanting MY treats, when they can eat anything they want, grumble, grumble), and she takes some. While chewing, she turns the box over and reads the ingredient list, saying, "Mom, are you sure you should be eating those, they have Barley Malt extract in them!" :o:blink:

Ouch, leave it to kids to make you feel stupid. There goes my favourite treat! I am glad that she is paying attention (sometimes) and cares about what I eat.

So, the moral of this story is:

Read the ingredients of products you buy every time you buy them, never assume they have the same ingredients as last time you bought them, they may suddenly contain gluten!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Ugh, sorry you're feeling bad. Reading labels is my favorite hobby! <_<

Guest nini
Guest nini
Posted

awww so sorry you are feeling bad... every so often I'll be eating something that I've eaten a dozen times and all of a sudden it will occur to me to check the label, usually I'm safe, but that ONE time that I've made a mistake means that I'm in for weeks of misery... So I am absolutely neurotic about checking and triple checking labels, and for some reason the rest of my family doesn't seem to "get that".

Lymetoo Contributor
Lymetoo
Posted

Thanks for the info......The regular Dark Choc is OK by Lindt, isn't it?? Gee, I hope so!! my favorite [fairlyLow] sugar treat.

BTW........Are Fritos OK??

Aerin328 Apprentice
Aerin328
Posted

Sorry to hear you're not feeling well!

tarnalberry Community Regular
tarnalberry
Posted

This is the other reason why I never answer "yes" or "no" when people ask "Is X gluten free?" Always, always, always read the label. Every time you pick up something, read the label. Ok, honestly, I don't always check the Lundberg Ricecake label - I check it once a month or so. But it's a good point, that stuff sneaks in there all the time.

Carriefaith Enthusiast
Carriefaith
Posted

Sorry that you kept getting sick :(

Thanks for the reminder. Sometimes it is very easy to assume something is safe and not look at the ingredients. I do this all the time and I have to start being more careful.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Yes--thanks for the reminder. I have to admit that I don't check a product again after I've checked once and used it with no problem.

I will make it a habit to check more often!

Hope you feel better, Ursula :)

Ursa Major Collaborator
Ursa Major
Posted
  • Author
Thanks for the info......The regular Dark Choc is OK by Lindt, isn't it?? Gee, I hope so!! my favorite [fairlyLow] sugar treat.

BTW........Are Fritos OK??

Well, I think the regular Lindt dark chocolate is okay, but you better check the label next time you buy it, there is no guarantee it's still safe!

gfp Enthusiast
gfp
Posted
The reason I am posting this is, to remind people to re-check ingredients on foods you think are gluten-free, because they've 'always been' gluten-free.

Well, my favourite chocolate is Lindt Lindor dark chocolate (with a cream centre). Last year it definitely had no gluten in it (even though it had a tiny bit of dairy and soy, which seemed okay and not causing a problem). So, I assumed (stupidly) that it was still gluten-free. Lately I've been having diarrhea and stomach pain, burning and tearing eyes and rashes again (amongst other symptoms), and didn't know why.

All those cleared up these past two weeks, because I ran out of chocolate and didn't have time to buy more. Yesterday I got some again and ate half of it. Not doing too well today, still not cluing in, I ate a few more pieces. Enter Susie, my youngest daughter (14), who comes up, says, "Can I have some of your chocolate?" I agree halfheartedly (kids always wanting MY treats, when they can eat anything they want, grumble, grumble), and she takes some. While chewing, she turns the box over and reads the ingredient list, saying, "Mom, are you sure you should be eating those, they have Barley Malt extract in them!" :o:blink:

Ouch, leave it to kids to make you feel stupid. There goes my favourite treat! I am glad that she is paying attention (sometimes) and cares about what I eat.

So, the moral of this story is:

Read the ingredients of products you buy every time you buy them, never assume they have the same ingredients as last time you bought them, they may suddenly contain gluten!

Second moral is have someone else read the labels!

My girlfriend (edited to stop sating gluten-free) always double check for me. We (humans) like to hear what we want and so if you want chocolate its easy to skim the labels and rely on "it was OK before"

Its not often but sometimes my gluten-free finds something I missed ... if you have brain fog then you can probably mutliply the risk x10 ....

awww so sorry you are feeling bad... every so often I'll be eating something that I've eaten a dozen times and all of a sudden it will occur to me to check the label, usually I'm safe, but that ONE time that I've made a mistake means that I'm in for weeks of misery... So I am absolutely neurotic about checking and triple checking labels, and for some reason the rest of my family doesn't seem to "get that".

Yep very true ... however I think the most dangerous things are those with some CC or trace gluten we only partially react to. I guess we all have comfort/safety foods. For ages I had some corn tortilla chips and had sporadic symptoms always the same brand and always unflavoured ... then one day my gluten-free points out "made in a factory using wheat" I swear it was new .. but I had been getitng progressively worse.

My belief is that we eat stuff like this and its just below a trigger but gradually builds up. I get little spots (not DH) but id put money they contain gluten ....

The problem is if we ate this once we would probably be fine but the real danger is in your regular comfort foods!

swittenauer Enthusiast
swittenauer
Posted

My husband is having the same issue. He has been eating the same foods he always has but something is getting him so we are checking & rechecking labels to see what has changed. Thanks for mentioning that. It is easy to get complacent & simply not double check.

penguin Community Regular
penguin
Posted

Doh! Sorry you got sick :(

In the US, every single Lindt product I've seen has barley malt in it, even the darks.

I buy the endangered species chocoalte, at least proceeds go to a good cause :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
    2. Colleen H
      - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

      Hello I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet. Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I...
    3. sleuth
      - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Of course my son is on a 100% gluten free diet. I wish his symptoms were not debilitating as there are right now. He cannot work, even when a miniscule of cross contamination occurs. It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc. It's literally neurological inflammation. Not to be taken lightly here. We...
    4. Scott Adams
      - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-F...
    5. Me,Sue
      - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea

      Hi all I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also]. BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,838
    • Most Online (within 30 mins)
      7,748
    Sarah C37
    Newest Member
    Sarah C37
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.