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Fyi: American Celiac Disease Alliance

Turtle

By Turtle
in Coping with Celiac Disease

Recommended Posts

Turtle Enthusiast
Turtle
Posted

The celiac community showed its strength and Congress passed a landmark food allergen labeling bill. Now, it's time to take on the health insurance

companies.

A major project of the American Celiac Disease Alliance (ACDA) is working

with insurance companies to provide reimbursement for dietician services.

Your help is needed to demonstrate there are many individuals with celiac

disease and almost ALL can benefit from the services of a registered

dietician. The ACDA has prepared a brief online survey to find out which

companies are covering dietician services and which are not. The survey

results will be used to educate insurance companies about WHY such services

are so vital.

Please participate in the survey by going to our online advocacy site -

www.capwiz.com/celiac . (Complete the survey just once, please.)

An earlier version of this survey was provided to attendees at the GIG annual

conference and may have been distributed to some support groups. If you

completed that survey, it's ok to take this survey, too.

If your support group has a website, feel free to link to the ACDA Advocacy

site to make it easier for your members to participate in the survey.

While you are at the advocacy site, don't forget to add your name to the

Action-E List to get updates on breaking news affecting the celiac

community.

Andrea

Andrea Levario, J.D.

Executive Director

American Celiac Disease Alliance

4331 E. Baseline Road

Suite B105-216

Gilbert, AZ 85234

Email: info@americanceliac.org

Phone: 703.622.3331

I couldn't get the survey to come up...anyone else??

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Guest cassidy
Guest cassidy
Posted

I just tried and it wouldn't come up.

Aerin328 Apprentice
Aerin328
Posted

Confirmed, the link "Take Action" does not work

Nantzie Collaborator
Nantzie
Posted

I just did it like two seconds ago and it worked for me when I clicked on Take Action. I was able to complete the survey with no problems.

???

Nancy

ravenwoodglass Mentor
ravenwoodglass
Posted

I just did the survey also. Make sure you click on the 'take action' in the center of the survey not the top.

Turtle Enthusiast
Turtle
Posted
  • Author

Got it to work! COOL!

cmom Contributor
cmom
Posted

This would be great if dieticians were up to snuff on celiac. However, in my experience, they are not very helpful. Advising things such as eating Rice Krispies are acceptable and when questioned about the malt, they have no idea. It was a waste of money for me and my health insurance.

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Judyin Philly Enthusiast
Judyin Philly
Posted

I just did it too

judy in philly

debmidge Rising Star
debmidge
Posted
This would be great if dieticians were up to snuff on celiac. However, in my experience, they are not very helpful. Advising things such as eating Rice Krispies are acceptable and when questioned about the malt, they have no idea. It was a waste of money for me and my health insurance.

We had the same experience with a Nutritionist (it was a waste of time and money) and it was paid by insurance as I had a note from the Gastro justifying the need for the visit. I only had to pay the normal co insurance.

DrMom Apprentice
DrMom
Posted

I just completed the survey with NO problems. I was asked by GI if I wanted to talk to a nutritionist, and I declined. I am self taught about celiac and doing fine. They are NOT up to date on celiac disease.

Dr Mom

mcsteffi Rookie
mcsteffi
Posted
This would be great if dieticians were up to snuff on celiac. However, in my experience, they are not very helpful. Advising things such as eating Rice Krispies are acceptable and when questioned about the malt, they have no idea. It was a waste of money for me and my health insurance.

My insurance did cover a dietician and she wasnt much help. The only thing she did that was helpful was give me the name of the celiac contacts at the health food stores. All other information she gave me I already had, even some was incorrect. And being that she isnt celiac she really couldnt answer alot of questions for me.... the best answers I have found have been on this message board.... this place is a life saver!!!

Stephanie

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