Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dizziness


jesscarmel

Recommended Posts

jesscarmel Enthusiast

Hi

I was wondering if anyone has experienced dizzines after going gluten free. its been a couple months now of it and the room sort of shifts, not vertigo spinning but more of a shift and an imbalance feeling. my dr said it was ann inner ear inbalance but i think hes wrong. im seeing a neuro next week but was wondering if anyone else experienced this. when im walking i never have it, only when im sitting, standing and worse when im lying down i feel like my body is moving when its not, sort of like being in a hammock. its driving me nuts but more than that is scares me. :(

Jess


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



plantime Contributor

It could be inner ear, or it could be neurological. I have bad respiratory allergies, so my ears do weird things to me all the time. Especially when the barometer decides to jump up and down!

Guest adamssa

Hi Jess,

I've had a lot of dizzy problems both before and after going gluten free, and for me it's definitely worse sitting as you've said. I also saw a neurologist, (before realizing my gluten problems) and he couldn't find anything--makes me think it's all gluten related. Does it get worse after you eat? Does it make you feel really really tired? I do think it's a good thing to see a neuro in case, but it could also just be your body adjusting. I've heard some alt. practitiones tell me that what happens to the gut happens to the brain, so I think there's a correlation that most traditional doctors just refuse to recognize. I've think digestive enzymes and some other supplements I've been taking have really helped. I Good luck,

Sara

Vladimir Gluten Newbie

Yes. It goes away. I'm in my second month of a Gluten-free diet. The first week was a little unnerving, but it got better. I coupled the gluten-free diet with more exercise and made sure I got enough sleep. I can really feel a difference.

I hope things get better for you.

faegan Contributor

I definitely have the same problem and it has gotten worse since going gluten free, though it did not start until I had been on the diet for a few months.

jenvan Collaborator
Hi

I was wondering if anyone has experienced dizzines after going gluten free. its been a couple months now of it and the room sort of shifts, not vertigo spinning but more of a shift and an imbalance feeling. my dr said it was ann inner ear inbalance but i think hes wrong. im seeing a neuro next week but was wondering if anyone else experienced this. when im walking i never have it, only when im sitting, standing and worse when im lying down i feel like my body is moving when its not, sort of like being in a hammock. its driving me nuts but more than that is scares me. :(

Jess

I had more dizziness, disorientation after going gluten-free. For me, it was my dairy intolerance finally showing itself now that gluten was out of the picture. Dairy gives me major brain fog, like clockwork. I don't consume any now and never have the brain fog. For me it felt like an out-of-body experience. I also had balance/vertigo issues for a while following a middle ear infection, so that can be a cause. Any blood pressure issues? Let us know what the neuro says...

jesscarmel Enthusiast

Hi Everyone,

so i went to the neuro yesterday and obviously he said it was probably an inner ear inbalance or a migrain with no headache. how could i have a migraine every day though throughout the day???? he referred me to an ear clinic where i have to see another neuro and then from there get some ear tests where they spin you around or something. i never thought that maybe it could be a nother food intolerance causing it??? should i try and cut something out of my diet??? i would die if it was dairy- i love cheese!!

Jess

I definitely have the same problem and it has gotten worse since going gluten free, though it did not start until I had been on the diet for a few months.

hi faegan,

thats so weird that you have the same thing. wouldnt you think something like that would go away not start after being gluten free? what do you think it is? is it all the time for you? i hate it!!!!!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator
Hi Everyone,

so i went to the neuro yesterday and obviously he said it was probably an inner ear inbalance or a migrain with no headache. how could i have a migraine every day though throughout the day???? he referred me to an ear clinic where i have to see another neuro and then from there get some ear tests where they spin you around or something. i never thought that maybe it could be a nother food intolerance causing it??? should i try and cut something out of my diet??? i would die if it was dairy- i love cheese!!

Jess

hi faegan,

thats so weird that you have the same thing. wouldnt you think something like that would go away not start after being gluten free? what do you think it is? is it all the time for you? i hate it!!!!!!!!!!

Hmmm, its hard to say. Do the symptoms come and go? If they do...try keeping a food and symptom journal to see if you notice any patterns. Before I figured out dairy caused my brain fog (still amazing to me at time that milk could do that!) I thought it was a blood sugar thing. Good luck to you ! Let us know if the ear thing gets confirm or if you make headway somewhere else!

queenofhearts Explorer

Have you considered blood sugar issues? Are you getting enough to eat? If you have suddenly cut out starches from your diet, that could wreak havoc on your blood sugar levels, & for me, that's a sure trigger for dizziness.

Leah

jesscarmel Enthusiast
Have you considered blood sugar issues? Are you getting enough to eat? If you have suddenly cut out starches from your diet, that could wreak havoc on your blood sugar levels, & for me, that's a sure trigger for dizziness.

Leah

Hi

well im often hungary so i eat every couple of hours if not more, i still eat lots of starches which is not good for weight but i love brown rice pasta and eat it to much!

evie Rookie
Hi

well im often hungary so i eat every couple of hours if not more, i still eat lots of starches which is not good for weight but i love brown rice pasta and eat it to much!

In your picture you don't look like eating more often would be a problem for you. I found I needed to eat 5 or 6 times a day to keep down the diarrhea (had 'dumping syndrome' and to keep my tummy from hurting (it wanted food). i also went through a period of a few months where I was unsteady (almost dizzy) and a cane helped, especially if I wanted to walk around the yard. Those problems went away after just a few months (that was plenty long) but of course we all have our own timeline!! :( Let us know if you find out an answer or figure one yourself, we are good at learnig from each other and helping too. Take care of yourself. :) evie

Sarah8793 Enthusiast

I have had dizziness that began a few months before going gluten free. I found out it was hypoglycemia. It improved upon going gluten free but didn't go away. Then I discovered that as long as I didn't have a large breakfast or any large meal for that matter, but instead snacked on high protein snacks, it went away. I still sometimes get it in the evening while standing doing dishes after dinner or if I have something with sugar in it for breakfast. Hope this helps,

Sarah

marciab Enthusiast

Wow, this thread has really cleared up some things for me. <_< I can relate to most of it.

I have hypo G too and have to eat every couple of hours. And I feel so much better if I only eat small meals.

I am getting a weird brain fog feeling (dizzy) from the Kefir I have been drinking, but all this time

I thought it had to be the sugars in it.

I had switched to only drinking it at nite right before bed because by then I wouldn't care if I had brain fog. :blink:

Thanks for posting this. :D

jesscarmel Enthusiast

okay so i went to the dr today for my cough and the nurse said my ears were impacted with wax........does anyone know if this could be the cause of my four months of dizziness.........if it is i will be pissed because i no one has bothered to check my ears this whole time and i even told one of hte drs i tend to have a lot of wax in my ear and he said oh that wouldnt cause dizziness??!! has anyone experienced dizziness due to ear impaction?

Jess

Guest adamssa

hey there,

not sure about the wax thing, definitely could make things worse.

i am finding out the same thing about dairy and brain fog though! i didn't know i had a problem w/ it till going gluten-free. now, if even add it to my coffee i just get so tired i can hardly sit up.

sara

jknnej Collaborator

I had that terrible dizziness after going gluten free, too. I personally think it is gluten withdrawl. It lasted a couple of months for me, then it got better.

eleep Enthusiast

Ear stuff, sinus stuff, hypoglycemia or withdrawal could all cause this. I had the same thing -- I have noticed that my sinus stuff is totally gone now and it was with me for years before going gluten-free.

eleep

jknnej Collaborator

I went crazy having everything checked; ears, brain, blood sugar, thyroid....all came up fine.

I just think it was gluten withdrawl.

jesscarmel Enthusiast

hmmmmm, maybe it is gluten withdrawl i just assumed it wasnt becaue at first when i went gluten-free, the dizzines wasnt that bad but has only gotten worse. i thought it would be the opposite???

jknnej Collaborator

When I went gluten free my tummy finally felt awesome; better than it ever had. But I got all of these other odd symptoms. I was posting on this website ALL the time; if you look back far enough you'd find them! My threads all had titles like this:

Dizziness after going gluten-free?

Reflux after going gluten-free?

Visual disturbances after going gluten-free?

Thyroid or neuro problems after going gluten-free?

Anxiety and depression after going gluten-free??

LOL the list goes ON and ON.

I saw so many drs so often it was worse than before I was diagnosed!!!

Basically, I developed Reflux, depression/anxiety, and visual disturbances after going gluten-free. I still have them. My theory is that carbs, specifically wheat carbs, play a role in the amount of serotonin your brain makes and when you take that away it causes some issues. The good news is that my stomach is much better and I am healthier in that way. The bad news is that I now take an anti-depressant (which works WONDERS) completely takes away the anxiety/depression that i had NEVER suffered before going gluten-free. And Nexium helps to control my reflux. So most days I feel OK. Many of the symptoms also went away after I was gluten-free long enough (it's been 19 months now).

So hang in there and don't go crazy with drs unless you are really, really sick....I truly believe most of it will pass for you as it did for me...if not, then talk to your dr about it. But hang in there!!!

  • 4 years later...
karagog Newbie

I can relate to the dizzyness. Before going gluten-free it would happen to me quite often, and I don't know if it was coincidence but it almost always happened after eating peanut butter on bread. After eliminating peanuts from my diet it happened much much less frequently but it still happened occasionally and I didn't know how to explain it. After eliminating gluten (since 2 weeks now) I have not had a dizzy spell but I'm still cautious. Until now I had always connected my dizzy spells with eating peanuts, but now that I see lots of gluten-intolerants are also dizzy I'm starting to think it was gluten all along.

  • 8 months later...
squirmingitch Veteran

okay so i went to the dr today for my cough and the nurse said my ears were impacted with wax........does anyone know if this could be the cause of my four months of dizziness.........if it is i will be pissed because i no one has bothered to check my ears this whole time and i even told one of hte drs i tend to have a lot of wax in my ear and he said oh that wouldnt cause dizziness??!! has anyone experienced dizziness due to ear impaction?

Jess

Gee, I really hope you're still around! I would love to know what finally turned out for you. Ear wax wise & otherwise.

I have been having small dizzyish, "out there" spells for about a year but then I only found out I was celiac (self diagnosed by textbook DH outbreaks) in Sept. of this year (2011). Been trying to go gluten-free since then but the learning process reveals one is not gluten-free when they "think" they're gluten-free. So many landmines! I've been searching all the threads about dizzy for a hint. So I've been truly gluten-free since 12/1/11 & since then I've been getting major spinning dizziness often within taking 3 bites of a meal. Example meal: roast chicken, peas, skillet browned potatoes. I'll be sitting there eating & WHAM! I'm spinning & foggy headed. Mostly it happens while I'm eating but sometimes it starts when I'm cleaning up the dishes. I'm soy free, dairy free, eating only egg whites. Example breakfast: hash browns with egg white & sausage - all gluten-free with a little fruit nectar.

Fall of 2010 I had all bloodwork incl. TSH, liver, fasting etc.... all okay.

Feedback anyone??????

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,248
    • Most Online (within 30 mins)
      7,748

    Tc clark
    Newest Member
    Tc clark
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.