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mouse Enthusiast

That would be so wonderful if you are now on the mend. I would think that when you cleaned out for the colonoscopy (and that sure cleans you out) that it did get the rest of the garbage that was still taking its sweat time to come out. So glad that today has been a wonderful one for you. BTW your Dad looks like a wonderful Irish sweetheart.


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Guest BERNESES

Thanks everyone- feeling better! Let's keep it that way- just in time to escape to the great Northwest!

Judyin Philly Enthusiast

BEV, SO GLAD YOU FIGURED IT OUT.

HAVE A WONDERFUL TIME.

JUDY

ravenwoodglass Mentor
For some reason I've felt better since taking that *bogus* stuff to clean out for the colonoscopy. I'm wondering if maybe it wiped out some of the bad stuff. I had more energy today than I have in the last month. :blink::blink:

The only time I had relief from my D before going gluten-free was for 3 days after my prep for the useless coloscopy they did. The doctor thought I was a nut cause I asked him if I could use the prep once a week. It was another year and a half before they found the celiac, the GI never even looked for it until after I had done an elimination diet and the allergist sent me back to him. Talk about a red face, he still apologizes every time I see him. I hope this will finally be over for you.

lindalee Enthusiast
I'm sorry you are so miserable! Yikes!! I know I"ve posted this before, but perhaps you will find something that will "speak to you"!

Candida diet and elimination:

Open Original Shared Link

Open Original Shared Link

"Successful control and elminiation of a Candida Albicans overgrowth requires a multifaceted program as described below. Failure to follow ALL the steps simultaneously will result in slow progress and will lengthen healing time significantly. The program should be tailored to the individual and must balance the need to eliminate the Candida and deprive it of its food source while insuring proper nutrition for the individual."

Five Steps to Candida Elimination:

1. You must starve it into submission by eliminating its food source.

2. You must kill it with anti-fungal herbs and supplements. [e.g....garlic, onion, caprylic acid, Pau D'Arco capsules or tea, clove, grapefruit seed extract, olive leaf extract, oil of oregano, tea tree oil, Echinacea, Goldenseal, black walnut, MSM, barberry root, uva ursi, neem leaf, biotin]

3. You must reestablish the proper balance and quantity of probiotic bacteria in the digestive tract. [...multi-strain lactobacillus acidophilus and bifidus capsules with FOS should be taken between meals to maximize repopulation of the digestive tract by beneficial bacteria.]

4. You must reestablish proper levels of all B vitamins (yeast free) and utilize other immune enhancing supplements to boost immune system function. [e.g ... B complex vitamins (yeast free), biotin, beta 1-3 glucan, colostrum, maitake mushroom, vitamins A, C, E, zinc and selenium]

5. You must cleanse and heal the digestive tract to promote proper elimination of toxins and Candida and assimilation of nutrients. [e.g...chlorophyll, MSM, omega 3 fatty acids found in flax seed and salmon oils, GLA found in borage, evening primrose and black currant oils. Pantothenic acid, digestive enzymes between meals]

I think there's a site online about the thyroid called " thyroid.about.com" Something like that...?

Bev, I also take some of those - and it helped especially the itch. I am also taking probiotics.

I think the National Institute of Health has about 1700 articles on probiotics -(ncbi.nlm.nih.gov).

My body temp is also low and am looking into "The Wilson's Syndrome" based on low body temp.

Sodium Laurel Sulfates caused me itching and rash- I think some got in my ears when Shampooing and am still fighting to get that out. I have eliminated all products with that and the only thing that I suspect is my hair get-"Sebastian Molding Mud" - which I love- Does anyone know of a good one?

Dry eyes- Get plenty of Omega 3's- I do flaxseed oil in my smoothie. LL

jenvan Collaborator

Praying you get better soon girl!!!

queenofhearts Explorer
Thanks everyone- the reproductive endocrinologist was useless. Seriously, it was like going to a baby factory. He actually said to me, "If all you want is a baby, we can get you a baby." Unprompted by anything I said. I'll use them to get some testing done because it's covered by my insurance but definitely didn't give me that warm fuzzy feeling. Geez!

I actually feel better today. I think I MAY have figured somethings out.

Bloating: percoset (took it last week for headache- prescribed in ER. I'm pretty sure it was this because I woke up all bloated again today after having narcotics for my colonoscopy.

This may have been what happened. First I took the Keflex which definitely weakened my system and gave me diarrhea. Then I think my system was further weakened about a week later when I got glutened by Sensodyne.Then I did the flagyl for C diff.

The flagyl stopped the D but made me very nauseous. At the end of my round of flagyl, looking back, my fridge had started malfunctioning and I think I ate some chicken that was bad so I think MAYBE the C-Diff was gone but I may have had food poisoning.

For some reason I've felt better since taking that *bogus* stuff to clean out for the colonoscopy. I'm wondering if maybe it wiped out some of the bad stuff. I had more energy today than I have in the last month. :blink::blink:

I'm so glad you are feeling better!

I had a bout of food poisoning recently too so I can relate to that part. (The culprit was chicken too-- I taste-tested some before it was fully done. STUPID, I know, but I swallowed one bite before I consciously realized it was undercooked.) I actually joked afterward that I should have scheduled a scope that day since I was so thoroughly "cleaned out"!

Hope your energy continues to bloom-- you've been through a LOT!

Leah


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kalanfan Explorer

I know you are feeling better but i was just gonna put in my two cents with "pituitaty gland" alot of your symptoms seem hormonal......

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    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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