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Rachelville 2

Rachel--24

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AndreaB Contributor
AndreaB
Posted

Chelsea,

I hope you get better and better each day. I know it must be hard, especially with the pain. HUGS.

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penguin Community Regular
penguin
Posted
Oh Chelse, I'm so sorry. I imagine your intestinal tract took a severe beating with all of the gluten for so long, so things have to be pretty stirred up. I don't really know much about the spasms (sounds a little bit like Rachel's alien baby), I would think it was from an irritant of some kind? It has to be very frustrating for you. Hopefully as you continue with the gluten-free diet you will heal and see some improvement. Hang in there!

I've had these for 3 or 4 years now. When they first started, I had them about once a week. They eventually tapered off to about where they are now, once every month or two. It's not like the alien baby, it's muscle spasms in my stomach muscle that are INCREDIBLY painful, about an 9 on the smiley face pain scale. I have yet to find a specific trigger, sometimes I can trace it back to something like orange juice, sometimes stress, sometimes irritating foods, but there is never a clear cut trigger. There is no rhyme or reason to it at all, and it never happens the same way twice. This time it could have been from the endoscope and it was a delayed reaction to that irritation, there's no way to know. I've tried diet changes, like no greasy food, carbonated drinks, no acidic food, no caffene, no milk (individually and all at once) and it would still happen. You're right, IT'S VERY FRUSTRATING!!!

Oh, and to add insult to injury, it happens whether or not I'm on gluten. I guess I can make that a more definitive statement on that front after I've been gluten-free for more than a year.

queenofhearts Explorer
queenofhearts
Posted

I'm feeling a little stronger these days... I think maybe just maybe I'm starting to absorb iron. I hope so anyway! I get tested again in a month & will know some answers then.

Also yesterday I FINALLY convinced my sister to be tested for Celiac! She has so many symptoms, arguably more than I do (though no anemia), but until yesterday she kept brushing off my suggestion. She's still not going to do anything until her yearly physical in November, but at least she promised to ask for the tests then. I'm so happy because I have a feeling this diet could really be the answer for her.

Green12 Enthusiast
Green12
Posted
That's interesting, Julie :lol:

Actually, makes perfect sense! How've you been?

I'm good Patti, how are you?? We are always missing each other lately on the board :lol:

I've had these for 3 or 4 years now. When they first started, I had them about once a week. They eventually tapered off to about where they are now, once every month or two. It's not like the alien baby, it's muscle spasms in my stomach muscle that are INCREDIBLY painful, about an 9 on the smiley face pain scale. I have yet to find a specific trigger, sometimes I can trace it back to something like orange juice, sometimes stress, sometimes irritating foods, but there is never a clear cut trigger. There is no rhyme or reason to it at all, and it never happens the same way twice. This time it could have been from the endoscope and it was a delayed reaction to that irritation, there's no way to know. I've tried diet changes, like no greasy food, carbonated drinks, no acidic food, no caffene, no milk (individually and all at once) and it would still happen. You're right, IT'S VERY FRUSTRATING!!!

Oh, and to add insult to injury, it happens whether or not I'm on gluten. I guess I can make that a more definitive statement on that front after I've been gluten-free for more than a year.

Is there a name for it, or do the doctors not really know anything about it? That makes it difficult when you can't pinpoint it to anything. I'm like you with my angioedema, no rhyme or reason for it, or anything to do about it. But I keep trying to find the answers. I am hoping that things improve for you the more you heal :)

I'm feeling a little stronger these days... I think maybe just maybe I'm starting to absorb iron. I hope so anyway! I get tested again in a month & will know some answers then.

Also yesterday I FINALLY convinced my sister to be tested for Celiac! She has so many symptoms, arguably more than I do (though no anemia), but until yesterday she kept brushing off my suggestion. She's still not going to do anything until her yearly physical in November, but at least she promised to ask for the tests then. I'm so happy because I have a feeling this diet could really be the answer for her.

Good to hear you are feeling stronger, that's a great sign that things are moving in a positive direction.

And great news about your sister! I wish I could get my family on a gluten-free diet, but they don't take it seriously or think it's a problem for them :(

2Boys4Me Enthusiast
2Boys4Me
Posted
Interesting is a word I use when something "interests" me.

All right then, you're off the hook. I'd heard "interesting" as a euphemism for "ugly" so many times with my dog that it rubs me the wrong way sometimes.

Person to my husband (gushing): Oh your dog is beautiful!

Husband (beaming): Thank you.

Person to me (with a tone I can't decsribe - maybe horror): Oh. Your dog is interesting too.

My dog now gets called a "Goober" a lot and since it suits him, I'm not offended. He is a goober. But my little Scout was beautiful. In an "interesting" kind of way.

Meanwhile, Chelsea, if you're putting up with this pain all the time, childbirth will be a gluten-free cake walk when the time comes.

AndreaB Contributor
AndreaB
Posted

Leah,

That's great on both fronts! :D

Chelsea,

Hopefully this is something that will heal in time as you are gluten free longer. It must be very annoying not being able to pinpoint something.......same for you Julie. :(

My family is also one that would bury their heads in the sand. Mitch's ex was going to look into testing. She says she has IBS. We were wanted Mitch's second oldest tested since he has bipolar and diabetes. Diabetes just diagnosed. He doens't show any symptoms either but we know all the boys got one celiac gene from Mitch since he has two. Mitch is the only one in our family that isn't active on the intolerance/celiac but he's still gluten free.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Hi everyone. :)

Normally I dont do drive-by's but.....

Just wanted to say hello... :D

I'll be having a pretty busy weekend so might not be on too much but will try to pop in here and there. :)

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queenofhearts Explorer
queenofhearts
Posted
Hi everyone. :)

Normally I dont do drive-by's but.....

Just wanted to say hello... :D

I'll be having a pretty busy weekend so might not be on too much but will try to pop in here and there. :)

Hail to the Chief! Enjoy your weekend!

AndreaB Contributor
AndreaB
Posted
Hi everyone. :)

Normally I dont do drive-by's but.....

Just wanted to say hello... :D

I'll be having a pretty busy weekend so might not be on too much but will try to pop in here and there. :)

Hi Rachel.....if you're still on here.

Have a great weekend and I'll talk to you later. :P

swittenauer Enthusiast
swittenauer
Posted
Hi everyone. :)

Normally I dont do drive-by's but.....

Just wanted to say hello... :D

I'll be having a pretty busy weekend so might not be on too much but will try to pop in here and there. :)

Same here. I've been pretty busy myself. My husband & I were supposed to go toBristol this weekend but decided to pass it up at the last minute because our daughter was invited to a slumber party that she really wanted to attend. We went antique shopping all day yesterday & went out to a lake at a state park & took a walk around it. It was a nice day. We are getting ready to go pick Kate up & then go racing. wish me luck. Well, I'll talk to you all later.

Green12 Enthusiast
Green12
Posted

Just checking in, doing a drive by myself!

Hope everyone is having a great weekend, see you all back in the ville soon :lol:

Carla, did you make it to the Commodores last night, and how were they if you did??

Rikki Tikki Explorer
Rikki Tikki
Posted

Hi Julie: Just taking a break from trying to catch all the tumbleweeds, I tell you, I take a couple of days off and look what happens! No I haven't checked anything off the list, hopefully soon! Thank-you for asking, you are always so kind.

Also yesterday I FINALLY convinced my sister to be tested for Celiac! She has so many symptoms, arguably more than I do (though no anemia), but until yesterday she kept brushing off my suggestion. She's still not going to do anything until her yearly physical in November, but at least she promised to ask for the tests then. I'm so happy because I have a feeling this diet could really be the answer for her.

Good for you Leah, I think I have mentioned that my mom and brother were diagnosed in the last year, my brother wasn't even sick but had lots of damage, no villi and it had already affected his bones. :unsure::unsure: I had been after him for at least a year prior just to get tested, he had asked his doctor who asked him why he would want to go on such an awful diet if he wasn't having any symptoms! :angry:

Another brother did not go get tested but was quite ill and has had positive results going gluten free

It seems like some people are of the mind that this is just the disease of the month! Oh, well gotta let it go, sorry for the rant

AndreaB Contributor
AndreaB
Posted

Rant away Tavi.

I'd be upset with the doctor of your brother also. :angry:

Why do most doctors etc think that this diet is so hard?

I'm glad they found out about celiac and can now work towards better health.

Rikki Tikki Explorer
Rikki Tikki
Posted
Rant away Tavi.

I'd be upset with the doctor of your brother also. :angry:

Why do most doctors etc think that this diet is so hard?

I'm glad they found out about celiac and can now work towards better health.

Just a thought Andrea, they might then have to admit they are not always right? :lol::lol::lol:

CarlaB Enthusiast
CarlaB
Posted
Carla, did you make it to the Commodores last night, and how were they if you did??

I did make it! Thanks for asking. I was a pretty fatigued, but enjoyed it nonetheless. I slept on the way home LOL. They were GREAT! I had pretty low expectations since there are only two original members and you don't really hear about them anymore ... but I always like their music ... they were quite the showmen and I highly recommend seeing them! Some concerts are a disappointment, but theirs was a pleasant surprise, even when I was feeling crummy.

queenofhearts Explorer
queenofhearts
Posted
Hi Julie: Just taking a break from trying to catch all the tumbleweeds, I tell you, I take a couple of days off and look what happens! No I haven't checked anything off the list, hopefully soon! Thank-you for asking, you are always so kind.

Good for you Leah, I think I have mentioned that my mom and brother were diagnosed in the last year, my brother wasn't even sick but had lots of damage, no villi and it had already affected his bones. :unsure::unsure: I had been after him for at least a year prior just to get tested, he had asked his doctor who asked him why he would want to go on such an awful diet if he wasn't having any symptoms! :angry:

Another brother did not go get tested but was quite ill and has had positive results going gluten free

It seems like some people are of the mind that this is just the disease of the month! Oh, well gotta let it go, sorry for the rant

I'm worried about my sister's bones too-- she's had back pain ever since I can remember & I worry it might be related. She's younger than I but has had dairy intolerance for a long time, plus candida, depression & anxiety... well, at least she's getting tested. I just hope her doctor isn't such a dork...

I did make it! Thanks for asking. I was a pretty fatigued, but enjoyed it nonetheless. I slept on the way home LOL. They were GREAT! I had pretty low expectations since there are only two original members and you don't really hear about them anymore ... but I always like their music ... they were quite the showmen and I highly recommend seeing them! Some concerts are a disappointment, but theirs was a pleasant surprise, even when I was feeling crummy.

Glad you got some fun in despite the mystery bug/ glutening.

CarlaB Enthusiast
CarlaB
Posted

HI MORGAN!!!!!

morganb Newbie
morganb
Posted
I hope it didn't mess up your schedule too much. :( I always hated having to rearrange everything.

Glad to hear that everything is going well and that you got a new job! That's great that you got a house. Should be much easier for you as far as cc issues. We will continue to await your muffin investigation. :D

I ended up finding an extra schedule in my orientation bag the next day....so everything worked out :) It wouldn't have messed me up in much, but I just wanted to have one for my own state of mind

I'm still feeling yucky ... :(

We're going to see the Commodores tonight. The concert's not till nine, so I'm going to have to rest all day so I can make it!!

Did you get some new "date" jeans to wear there? You didn't tell me yesterday that you were going to see the Commodores <_<

Good girl Morgan! The social scene has a way of sucking you in, it's great that you have your priorities set. If you balance the two you will do fine. I had a hard time myself doing that :ph34r:

:rolleyes::rolleyes::rolleyes:

Yea, classes sure got in the way of college, didn't they?! :lol:

:lol::lol: I start Monday :huh:

HI MORGAN!!!!!

Hi :)

CarlaB Enthusiast
CarlaB
Posted
Did you get some new "date" jeans to wear there? You didn't tell me yesterday that you were going to see the Commodores <_<

Yea, got a new pair of "skinny jeans", you know the new ones that have straight legs ... if you're going to be too skinny, you may as well wear skinny jeans! I got them at Abercrombie.

I thought you knew we were going.

morganb Newbie
morganb
Posted
Yea, got a new pair of "skinny jeans", you know the new ones that have straight legs ... if you're going to be too skinny, you may as well wear skinny jeans! I got them at Abercrombie.

I thought you knew we were going.

I didn't know it was THIS weekend!!!! I'm glad you had fun :D ....don't worry I didn't go get drunk last night :D

CarlaB Enthusiast
CarlaB
Posted
I didn't know it was THIS weekend!!!! I'm glad you had fun :D ....don't worry I didn't go get drunk last night :D

What did you do last night? I didn't expect you to go get drunk!! Don't worry, beer probably wouldn't agree with you, and you'd have trouble finding anything else on campus!

morganb Newbie
morganb
Posted
What did you do last night? I didn't expect you to go get drunk!! Don't worry, beer probably wouldn't agree with you, and you'd have trouble finding anything else on campus!

lol No it probably wouldn't I just hung out with some people on my floor....traveled to some of their friends dorms and then walked around. Then we came back and watched TV. It sounds boring, but I had fun. It was more interesting when there than when reading about it.

morganb Newbie
morganb
Posted

Well Rachelville seems to be vacant today :( but I'm stopping by to say Good Morning everyone :D

CarlaB Enthusiast
CarlaB
Posted
Well Rachelville seems to be vacant today :( but I'm stopping by to say Good Morning everyone :D

Yea, where is everyone?

Did you go to St. Paul's or are you going tonight? I think the students generally like the 5:30 or 9PM masses.

Rikki Tikki Explorer
Rikki Tikki
Posted

Leah:

How are you today? Did you get to see your friend? I know you are going throught a hard time and please, if I can be of any help let me know.

Just edited as after re-reading it I thought it sounded wrong, rude all of the above. Anyway, enjoy all the posts

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