Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rachelville 2

Rachel--24

Recommended Posts

flagbabyds Collaborator
flagbabyds
Posted

08 08 08 08 08 08

WE BEAT THE SENIORS!!!!!!!!!!!!!!

YAY!

I NOW HAVE TO DO HOMEWORK

I WILL HAVE PICTURES UP THIS WEEKEND!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 1.7k
  • Created
  • Last Reply
AndreaB Contributor
AndreaB
Posted

WooHoo! Good for your team! :D

Green12 Enthusiast
Green12
Posted
08 08 08 08 08 08

WE BEAT THE SENIORS!!!!!!!!!!!!!!

YAY!

I NOW HAVE TO DO HOMEWORK

I WILL HAVE PICTURES UP THIS WEEKEND!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Congratulations Molly! Looking forward to seeing the pictures and hearing all about it :)

Jessica, what have you been up to, wild on monkey island?? Please elaborate :lol::lol:

nikki-uk Enthusiast
nikki-uk
Posted

Hi fellow citizens!

Firstly, I must update you on my Felix (kitty).

The vet was very pleased with him this week and he is responding to the meds! :)

She thinks if he gets through the next month then he may actually have a few years in him yet but cats are notorious for going downhill fast-so fingers crossed for my furry friend !!

Secondly,my son's biopsy results came in today (I've just posted in Parents of babies and children)

and celiac disease has been confirmed.

I am pleased that we know what we're are dealing with, but I am a little down. *sigh*

Only today Alan complained that his hip and legs were hurting,and after 5 mins of running round in the garden he said he was ''too tired Mum'' ( :( )

As Alan has Downs Syndrome he just doesn't understand the ramifications of the diet, and all the negative aspects of the diet are at the forefront of my mind ( :( )

Even a silly thing today dragged me down.

My Mum was over and she wanted to buy him an ice cream (in a cone) but when I explained he couldn't have it anymore she commented that it was much harder for Alan than for Terry (hubby) and I suppose up to now -even though I knew it was coeliac,I didn't want to think about the actual specifics.

We are to be sent an obligatory appointment for the dietician ( :rolleyes: ) and you never know- maybe I can teach her a thing or two.LOL !! :lol::lol: (trying desperately to laugh at my own humour!)

I will go into his school on Monday and 'tackle' the kitchen staff and see if there's anyway they can accomodate him with a school dinner-but I think he'll probably have to have packed lunch.

This will be an oppurtunity for me to brush up on my cooking skills!!( :ph34r: )

Alan's birthday is on Wednesday , and my cake making skills weren't renound even when using gluten flour!!! :lol:

Sorry I'm so gloomy- just needed to vent. It's not the end of the world , I know, but sometimes I feel like life has dealt my son a cr@p hand :(

(Ahhh,hubby just gave me a chocolate bar-said it would make me feel better!! :D )

I explained to my eldest son (he's 17 yrs ) that Alan has definitely got celiac disease and he asked me if he could get tested as he feels he's got some of the symptoms (stomach aches ,loose stools achey bones )

OH DEAR LORD!!! (Damn those Genes!!!!)

I said I'll make an appt to go to the G.P with him in the week :unsure:

Well, I must make the effort to cheer up- I'll see what the 40ish girls are up to, and see what laughs are in the tickle me elbow thread (I need a laugh!)thanks for listening-what would I do without you :D:D

CarlaB Enthusiast
CarlaB
Posted

Nikki, it was harder for me when Chloe was diagnosed than it was when I was diagnosed. It's natural to feel as you do. Eat another chocolate bar!

AndreaB Contributor
AndreaB
Posted

HUGS Nikki.

I know it's a lot to deal with. We are holding your hand and will help as much as possible.

Hang in there.....isn't chocolate good? Not to much though or you'll get a tummy ache. :)

nikki-uk Enthusiast
nikki-uk
Posted

Thanks girls!! :)

Carla,-LOVING those braces!!! :D

Not to much though or you'll get a tummy ache. :)

DEATH BY CHOCOLATE!!!!! :lol:

Seriously though, I feel better already getting it off my chest. :)

I'm going to try and find a suitable pic of my new coeliac for my avatar. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flagbabyds Collaborator
flagbabyds
Posted

new pic this is of me after the dance not in costume with my gelled hair down and really really gross.

yeah i have more i will make a photo site and i will give it to y'alls.

AndreaB Contributor
AndreaB
Posted

We'll hold you to that Molly. Looking forward to seeing them.

flagbabyds Collaborator
flagbabyds
Posted

i can't do it the way i usually so where can i put pics up for free and everyone can see them>????

Guest melannen
Guest melannen
Posted
i can't do it the way i usually so where can i put pics up for free and everyone can see them>????

I use photobucket.com, just make sure to make your album public. or you could try flicker; I haven't had any experience with them but I know my aunt loves it!

flagbabyds Collaborator
flagbabyds
Posted

Open Original Shared Link

i didn't title them, ask if you have questions i will get more pictures later on when my friends post their and some from the game today.

flagbabyds Collaborator
flagbabyds
Posted

anyone here?

it's slowly dying

nikki-uk Enthusiast
nikki-uk
Posted

I'm here Molly!!

OMG ,those Sumo costumes look like great fun!!! :lol::lol:

flagbabyds Collaborator
flagbabyds
Posted

yeah that is the last game of homcming week and the day ralley and you have the biggest guy in your year do the summo wrestling

it's really funny to watch

AndreaB Contributor
AndreaB
Posted

Nice pics Molly. Just looked at them. Will be looking forward to what your friends have.

flagbabyds Collaborator
flagbabyds
Posted

new avatar it is of me at the dress rehersal in costume and with the hair but no make-up

CarlaB Enthusiast
CarlaB
Posted

Nice pics Molly. Looks like you had fun!

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

Hello All!!! We are back from Disney!!!

first Congrats to Molly! WTG on the win!

Now, Disney was great! I was in gluten free heaven!! I couldnt believe it! At one restaurant alone, in the Magic Kingdom, we got the greatest chef to come out and talk to me. He could make me anything on the menu gluten free. He also told me of all the stuff I could get thru out the parks.

The only mishap we had was in Epcot. We went to the restaurant, for my son to eat, as no one else was eating b/c it was the food and wine festival. I waited 20 minutes in line for my turn. I got to the front and a not so nice employee told me there was nothing that they could do for me!!! When I asked about a gluten free hamburger roll, he showed me the ingredient list for Wonder Bread rolls and said that was it!!

I went to Guest Relations a bit upset, the manager took me back to the restaurant, spoke to the manager and got my son a gluten free meal for free! They were also willing to feed my entire family, but we didnt want it.

Enough about the food... we had a great time! Colin loved the characters! We had so much fun at the character dinner with him. It was a blast. It was completely different being there for him than it was for myself, but it was amazing to see him so happy.

I hope this finds everyone well. We are good, just very tired. I am trying to get Colin back into the swing of things here... he is resisting that a bit! I will post a new avatar soon, probably of Colin and some character. Take care everyone!!!

Green12 Enthusiast
Green12
Posted

Molly, great pictures!!! Looks like you and your friends had so much fun :)

Stephanie, welcome back :) Good to hear you had such a wonderful trip in the land of Disney, only for that one mishap, but sounds like you got it all worked out.

AndreaB Contributor
AndreaB
Posted

Sounds like a great trip Stephanie. How often can you rave about a place catering to celiacs?

Will wait for you to get some rest and get back into the swing of things with Colin.....but am interested in seeing the new avatar.

CarlaB Enthusiast
CarlaB
Posted

Stephanie, thanks for letting us know about your trip. Disney sounds wonderful ... I have been there many times, but not since diagnosed.

Daxin Explorer
Daxin
Posted

Glad to hear you had such a good time Stephanie. I am planning a trip there in the next year or so. I am impressed they make it so easy to get along there.

2Boys4Me Enthusiast
2Boys4Me
Posted

Stephanie - were you in Florida or California? We are going to Disneyland in California in December. The boys know that I have bought and paid for a trip to be taken sometime "later". Glenn travels a bit for work, so we will go to the airport with the idea of dropping Dad off for a trip and then we'll just all go. Sneaky :ph34r:.

I found some info on the Calgary Celiac site and we will be phoning "Chef Chris" who is supposed to give us the lowdown on eating gluten-free. I also just ordered the Triumph cards, so that might help us out when we're not in the park.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

We were in Disney World. I havent been to Disneyland in years. I am sure they will be just as accomodating there. They said all their places to eat have to be. In Disney World even the restaurants that are not Disney owned, such as Rainforest Cafe, Fultons and others have to be up to Disney standards and accomodate all allergys at all times. I thought that was pretty great too!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      High TTG-IgG and Normal TTG-IgA

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    2. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    3. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    4. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    5. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748
    yooperjb
    Newest Member
    yooperjb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.