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Rachelville 2

Rachel--24

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flagbabyds Collaborator
flagbabyds
Posted

08 08 08 08 08 08

WE BEAT THE SENIORS!!!!!!!!!!!!!!

YAY!

I NOW HAVE TO DO HOMEWORK

I WILL HAVE PICTURES UP THIS WEEKEND!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

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AndreaB Contributor
AndreaB
Posted

WooHoo! Good for your team! :D

Green12 Enthusiast
Green12
Posted
08 08 08 08 08 08

WE BEAT THE SENIORS!!!!!!!!!!!!!!

YAY!

I NOW HAVE TO DO HOMEWORK

I WILL HAVE PICTURES UP THIS WEEKEND!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Congratulations Molly! Looking forward to seeing the pictures and hearing all about it :)

Jessica, what have you been up to, wild on monkey island?? Please elaborate :lol::lol:

nikki-uk Enthusiast
nikki-uk
Posted

Hi fellow citizens!

Firstly, I must update you on my Felix (kitty).

The vet was very pleased with him this week and he is responding to the meds! :)

She thinks if he gets through the next month then he may actually have a few years in him yet but cats are notorious for going downhill fast-so fingers crossed for my furry friend !!

Secondly,my son's biopsy results came in today (I've just posted in Parents of babies and children)

and celiac disease has been confirmed.

I am pleased that we know what we're are dealing with, but I am a little down. *sigh*

Only today Alan complained that his hip and legs were hurting,and after 5 mins of running round in the garden he said he was ''too tired Mum'' ( :( )

As Alan has Downs Syndrome he just doesn't understand the ramifications of the diet, and all the negative aspects of the diet are at the forefront of my mind ( :( )

Even a silly thing today dragged me down.

My Mum was over and she wanted to buy him an ice cream (in a cone) but when I explained he couldn't have it anymore she commented that it was much harder for Alan than for Terry (hubby) and I suppose up to now -even though I knew it was coeliac,I didn't want to think about the actual specifics.

We are to be sent an obligatory appointment for the dietician ( :rolleyes: ) and you never know- maybe I can teach her a thing or two.LOL !! :lol::lol: (trying desperately to laugh at my own humour!)

I will go into his school on Monday and 'tackle' the kitchen staff and see if there's anyway they can accomodate him with a school dinner-but I think he'll probably have to have packed lunch.

This will be an oppurtunity for me to brush up on my cooking skills!!( :ph34r: )

Alan's birthday is on Wednesday , and my cake making skills weren't renound even when using gluten flour!!! :lol:

Sorry I'm so gloomy- just needed to vent. It's not the end of the world , I know, but sometimes I feel like life has dealt my son a cr@p hand :(

(Ahhh,hubby just gave me a chocolate bar-said it would make me feel better!! :D )

I explained to my eldest son (he's 17 yrs ) that Alan has definitely got celiac disease and he asked me if he could get tested as he feels he's got some of the symptoms (stomach aches ,loose stools achey bones )

OH DEAR LORD!!! (Damn those Genes!!!!)

I said I'll make an appt to go to the G.P with him in the week :unsure:

Well, I must make the effort to cheer up- I'll see what the 40ish girls are up to, and see what laughs are in the tickle me elbow thread (I need a laugh!)thanks for listening-what would I do without you :D:D

CarlaB Enthusiast
CarlaB
Posted

Nikki, it was harder for me when Chloe was diagnosed than it was when I was diagnosed. It's natural to feel as you do. Eat another chocolate bar!

AndreaB Contributor
AndreaB
Posted

HUGS Nikki.

I know it's a lot to deal with. We are holding your hand and will help as much as possible.

Hang in there.....isn't chocolate good? Not to much though or you'll get a tummy ache. :)

nikki-uk Enthusiast
nikki-uk
Posted

Thanks girls!! :)

Carla,-LOVING those braces!!! :D

Not to much though or you'll get a tummy ache. :)

DEATH BY CHOCOLATE!!!!! :lol:

Seriously though, I feel better already getting it off my chest. :)

I'm going to try and find a suitable pic of my new coeliac for my avatar. :)

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flagbabyds Collaborator
flagbabyds
Posted

new pic this is of me after the dance not in costume with my gelled hair down and really really gross.

yeah i have more i will make a photo site and i will give it to y'alls.

AndreaB Contributor
AndreaB
Posted

We'll hold you to that Molly. Looking forward to seeing them.

flagbabyds Collaborator
flagbabyds
Posted

i can't do it the way i usually so where can i put pics up for free and everyone can see them>????

Guest melannen
Guest melannen
Posted
i can't do it the way i usually so where can i put pics up for free and everyone can see them>????

I use photobucket.com, just make sure to make your album public. or you could try flicker; I haven't had any experience with them but I know my aunt loves it!

flagbabyds Collaborator
flagbabyds
Posted

Open Original Shared Link

i didn't title them, ask if you have questions i will get more pictures later on when my friends post their and some from the game today.

flagbabyds Collaborator
flagbabyds
Posted

anyone here?

it's slowly dying

nikki-uk Enthusiast
nikki-uk
Posted

I'm here Molly!!

OMG ,those Sumo costumes look like great fun!!! :lol::lol:

flagbabyds Collaborator
flagbabyds
Posted

yeah that is the last game of homcming week and the day ralley and you have the biggest guy in your year do the summo wrestling

it's really funny to watch

AndreaB Contributor
AndreaB
Posted

Nice pics Molly. Just looked at them. Will be looking forward to what your friends have.

flagbabyds Collaborator
flagbabyds
Posted

new avatar it is of me at the dress rehersal in costume and with the hair but no make-up

CarlaB Enthusiast
CarlaB
Posted

Nice pics Molly. Looks like you had fun!

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

Hello All!!! We are back from Disney!!!

first Congrats to Molly! WTG on the win!

Now, Disney was great! I was in gluten free heaven!! I couldnt believe it! At one restaurant alone, in the Magic Kingdom, we got the greatest chef to come out and talk to me. He could make me anything on the menu gluten free. He also told me of all the stuff I could get thru out the parks.

The only mishap we had was in Epcot. We went to the restaurant, for my son to eat, as no one else was eating b/c it was the food and wine festival. I waited 20 minutes in line for my turn. I got to the front and a not so nice employee told me there was nothing that they could do for me!!! When I asked about a gluten free hamburger roll, he showed me the ingredient list for Wonder Bread rolls and said that was it!!

I went to Guest Relations a bit upset, the manager took me back to the restaurant, spoke to the manager and got my son a gluten free meal for free! They were also willing to feed my entire family, but we didnt want it.

Enough about the food... we had a great time! Colin loved the characters! We had so much fun at the character dinner with him. It was a blast. It was completely different being there for him than it was for myself, but it was amazing to see him so happy.

I hope this finds everyone well. We are good, just very tired. I am trying to get Colin back into the swing of things here... he is resisting that a bit! I will post a new avatar soon, probably of Colin and some character. Take care everyone!!!

Green12 Enthusiast
Green12
Posted

Molly, great pictures!!! Looks like you and your friends had so much fun :)

Stephanie, welcome back :) Good to hear you had such a wonderful trip in the land of Disney, only for that one mishap, but sounds like you got it all worked out.

AndreaB Contributor
AndreaB
Posted

Sounds like a great trip Stephanie. How often can you rave about a place catering to celiacs?

Will wait for you to get some rest and get back into the swing of things with Colin.....but am interested in seeing the new avatar.

CarlaB Enthusiast
CarlaB
Posted

Stephanie, thanks for letting us know about your trip. Disney sounds wonderful ... I have been there many times, but not since diagnosed.

Daxin Explorer
Daxin
Posted

Glad to hear you had such a good time Stephanie. I am planning a trip there in the next year or so. I am impressed they make it so easy to get along there.

2Boys4Me Enthusiast
2Boys4Me
Posted

Stephanie - were you in Florida or California? We are going to Disneyland in California in December. The boys know that I have bought and paid for a trip to be taken sometime "later". Glenn travels a bit for work, so we will go to the airport with the idea of dropping Dad off for a trip and then we'll just all go. Sneaky :ph34r:.

I found some info on the Calgary Celiac site and we will be phoning "Chef Chris" who is supposed to give us the lowdown on eating gluten-free. I also just ordered the Triumph cards, so that might help us out when we're not in the park.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

We were in Disney World. I havent been to Disneyland in years. I am sure they will be just as accomodating there. They said all their places to eat have to be. In Disney World even the restaurants that are not Disney owned, such as Rainforest Cafe, Fultons and others have to be up to Disney standards and accomodate all allergys at all times. I thought that was pretty great too!!!

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    • knitty kitty
      High DGP-A with normal IGA

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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