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Mayflowers

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Mayflowers Contributor
Mayflowers
Posted

:( NNOOOOOOOOO! I have it.... I don't understand what all these tests means but....I have the celiac gene..... :o

It's difficult to except. I thought I was milk intolerant. I was hoping I wasn't gluten intolerant.

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Ursa Major Collaborator
Ursa Major
Posted

Well, all these tests mean you're definitely gluten and casein intolerant, have mild malabsorption, and have two celiac genes. Welcome to the club.

The bright side is, that now you KNOW what the problem is, and you have the power to change your diet to get better. No more guessing and fooling yourself. It's hard, but you will manage, because you have to. Your only two choices now are to deny the facts and stay sick, or accept the diagnosis and find out what you can still eat (a whole lot) and get busy getting well!

I believe the choice is clear. All the best, you can do it! B)

jerseyangel Proficient
jerseyangel
Posted

Welcome to the family! :)

I know it's not what you wanted to hear, but at least you know and you can take steps to get healthy.

Like Celia said, you have all of us behind you--all you need to do is ask if there's anything we can help you with.

And may I say--I think your cat is so cute :D

Mayflowers Contributor
Mayflowers
Posted
  • Author
Welcome to the family! :)

I know it's not what you wanted to hear, but at least you know and you can take steps to get healthy.

Like Celia said, you have all of us behind you--all you need to do is ask if there's anything we can help you with.

And may I say--I think your cat is so cute :D

Thank you ladies (sniff) :( How long does it take for the wheat cravings to stop? I was almost 4 weeks and I was still having cravings...

You know this is really hard for an Italian to hear. Spaghetti was my favorite. Yeah, I know, rice spaghetti. yuck. :P

Thank you for the cat compliment. He knows he's cute. When he wants me to feed him he roles over on his back and strikes a pose.

oceangirl Collaborator
oceangirl
Posted
Welcome to the family! :)

I know it's not what you wanted to hear, but at least you know and you can take steps to get healthy.

Like Celia said, you have all of us behind you--all you need to do is ask if there's anything we can help you with.

And may I say--I think your cat is so cute :D

You have the same genes as me- I'm sorry. Everyone here will help, though. It will get better and a bit easier as time goes on. Sending you some "heart".

lisa

natalunia Rookie
natalunia
Posted

Welcome to our club... :D The cravings get better. I think it took 2 months before I stopped craving things. I came real close to giving in when my hubby bought Dunkin Donuts for breakfast one day this weekend. I loved the cinnamon munchkins... I do miss them.

Corn spaghetti is better than the rice spaghetti.... I haven't tried Tinkyada yet, but I hear it's great.

queenofhearts Explorer
queenofhearts
Posted

I remember that moment... & the roller coaster ride that followed... oh, no more pasta... but I'll finally get rid of that anemia... but no more french bread... but no more rushing for the bathroom...&c.

In the long run your health is much better than even the most delicious food. And doing without wheat gets easier when you start to get well.

Whenever I get down in the dumps & feel sorry for myself because I can't have something I want, I go to the thread that has all the good things gluten-free has done for everyone. It's a real mood-lifter for me.

Open Original Shared Link

Hang in there! It will all get better.

Leah

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Rikki Tikki Explorer
Rikki Tikki
Posted
Sending you a hug. I'm sorry you are sad... but look at the bright side... you have all of us... not sure if that's the bright side or not :o:lol:

Before you find something out you always think to yourself... it's okay, I can handle it... but once you know it to be true, it's hard to deal with.

I will pray for you.

P.S. Excuse the way I look in my picture, I didn't have lip stick on at the time.

ditto

Mayflowers Contributor
Mayflowers
Posted
  • Author
Welcome to our club... :D The cravings get better. I think it took 2 months before I stopped craving things. I came real close to giving in when my hubby bought Dunkin Donuts for breakfast one day this weekend. I loved the cinnamon munchkins... I do miss them.

Corn spaghetti is better than the rice spaghetti.... I haven't tried Tinkyada yet, but I hear it's great.

Corn spaghetti? Sounds....interesting. I must try it. Rice spaghetti is kind of mushy. Do they have it in Wild Oats or Whole Foods?

Lucky for me I never could tolerate Dunkin Donuts. The cloves in them gave me indigestion. except the chocolate ones... never mind. <_< Why torture myself.

You do realize I have a lot of cleaning out the pantry to do...

queenofhearts Explorer
queenofhearts
Posted
Corn spaghetti? Sounds....interesting. I must try it. Rice spaghetti is kind of mushy. Do they have it in Wild Oats or Whole Foods?

Lucky for me I never could tolerate Dunkin Donuts. The cloves in them gave me indigestion. except the chocolate ones... never mind. <_< Why torture myself.

You do realize I have a lot of cleaning out the pantry to do...

It helps if you cook the gluten-free pastas a little differently, boil them for a minute & then let the water cool down, testing frequently for doneness.

Leah

tarnalberry Community Regular
tarnalberry
Posted
Thank you ladies (sniff) :( How long does it take for the wheat cravings to stop? I was almost 4 weeks and I was still having cravings...

You know this is really hard for an Italian to hear. Spaghetti was my favorite. Yeah, I know, rice spaghetti. yuck. :P

Thank you for the cat compliment. He knows he's cute. When he wants me to feed him he roles over on his back and strikes a pose.

Tinkyada taste just like regular pasta - none of my friends notice the difference. The Italian gluten-free pastas are quite good as well. Celiac is actually quite common in Italy, and many of the better replacements come from there. There's a LOT of Italian stuff that is naturally gluten-free or naturally made gluten free. Bread's the tricky one, but the fish and meat dishes, as well as many of the vegetable dishes that are 'standards' can be made gluten-free relatively easily. And risotto - it's a celiac's dream come true! The best part about good Italian food is that it's made from scratch - so you control what's going into your food when you're cooking it. :)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Get Annalise Roberts' GLuten-free Baking Classics. The chocolate chip cookies taste just like the best gluten ones I've ever made, and the coconut cake is the best cake I've ever tasted (and I've always baked form scratch, even before going gluten-free this year)!

Guhlia Rising Star
Guhlia
Posted

DEFINITELY try the Tinkyada pastas. They even have a lasagna noodle. All of their pastas taste and feel just like the real thing. They withstand quite a bit of overcooking too.

Guest nini
Guest nini
Posted

Tinkyada pastas are my friend. Can't do without them... My non-gluten-free friends and family don't even know the difference.

Get Bette Hagman's book "The Gluten Free Gourmet cooks Comfort Foods" it is AWESOME! There are some amazing cake recipes in there as well as so much more. For the flour blends she uses, I usually just substitute whatever all purpose gluten-free flour mix I have on hand. (I just "guesstimate" how much to use based on what the recipe calls for of her flour blends based on what types of flours are in my particular gluten-free all purpose flour)...

elonwy Enthusiast
elonwy
Posted

Need a donut? Open Original Shared Link

They're more of the cake donut variety ( I always liked cake donuts better anyway) but yummmm. If you order them online, be sure to put them in the freezer as soon as you get them to keep them fresh. Many Whole Foods carry them, there is a store locater on the site as well.

Elonwy

Mayflowers Contributor
Mayflowers
Posted
  • Author
Tinkyada pastas are my friend. Can't do without them... My non-gluten-free friends and family don't even know the difference.

Get Bette Hagman's book "The Gluten Free Gourmet cooks Comfort Foods" it is AWESOME! There are some amazing cake recipes in there as well as so much more. For the flour blends she uses, I usually just substitute whatever all purpose gluten-free flour mix I have on hand. (I just "guesstimate" how much to use based on what the recipe calls for of her flour blends based on what types of flours are in my particular gluten-free all purpose flour)...

Thank you, thank you, thank you! :) I will get those cookbooks. This morning it was difficult. I woke up and I couldn't get back to sleep because I was upset. Then I thought: "Maybe these results are wrong, who know's this lab could be not a good lab and the doctor who did the tests is incompetent" Would you call that "denial"? I'm bummed today. My sister said even lipstick has gluten in it! :o What brand of lipstick do ya'all use?

I also told my two sons that I wanted to get them tested and my 16 year old said "So? I'm still gonna eat wheat" Now what can I do? I need a really good bread for their lunches any suggestions. Any that I bought at th store was either too wet (rice/almond) or way too dry (tapioca bread yuch)

eleep Enthusiast
eleep
Posted

Nars cosmetics are all gluten free and they have beautiful, highly pigmented lipsticks -- they're kind of high-end and an indulgence for me as a graduate student, but I don't wear lipstick that often. There are plenty of other gluten-free lipsticks out there, I'm sure -- and you can do a search on the boards for other people's favorites.

Welcome! I felt much as you did at first, but I've actually come to realize how lucky I am that this was all that was wrong with me! I also feel and function better than I have in my entire adult life after five months into this -- I should look a lot better too once I've put some more weight on! I'm a huge food person and this felt like an irreconcilable loss for me, but that's actually what's made it easier to get through the change in habits -- if you know how to love and appreciate something, that doesn't go away even though the way you love and appreciate it might have to change!

floridanative Community Regular
floridanative
Posted

Welcome to the club. I'd like to add that though Tinkyada pasta tastes fine to me - I much prefer the corn, rice, soy blend made by two Italian companies. Bi-Aglut is my fave with Dr. Schar coming in as a close second. I've only found them online - www.shopbydiet.com and a few other sites carry them. Schar crackers fooled my gluten eating freinds. Seven months into my new life, I find the diet is easy to follow (though difficult to learn) and I don't do without wonderful food. I eat more organic things now and try not to overindulge in the wonderful baked goods I've found. Check out www.123glutenfree.com for the best browines, pan bars and cookies. They are to die for yummy!

Mayflowers Contributor
Mayflowers
Posted
  • Author

Can anyone please tell me how to read this part of the test results?

HLA-DQB1 Molecular analysis, Allele 1 0302

HLA-DQB1 Molecular analysis, Allele 2 0601

Serologic equivalent: HLA-DQ 3,1 (Subtype 8,6)

What acutally does this say?

Thanks!

Diana

oceangirl Collaborator
oceangirl
Posted
Can anyone please tell me how to read this part of the test results?

HLA-DQB1 Molecular analysis, Allele 1 0302

HLA-DQB1 Molecular analysis, Allele 2 0601

Serologic equivalent: HLA-DQ 3,1 (Subtype 8,6)

What acutally does this say?

Thanks!

Diana

Hi! HLA-DQ 1 is a gene predisposing you to gluten sensitivity. You have TWO, which means you got one from each parent. This means all of your children will have gotten at least ONE gluten sensitivity gene as well. They are not the main celiac genes, but still mean your body doesn't tolerate gluten. Two copies mean" there is an even stronger predisposition to gluten sensitivity and the resultant immunologic response may be more severe."

(Dr. Kenneth Fine, Enterolab)

Hope this helps. Also, Lancome's "Rouge Absolu" lipstick is gluten-free. Pricey, but very nice! I have a 13 yeat old who doesn't want to give up his wheat and a sixteen year old who's a vegetarian who I don't want to! Sigh...

lisa

jukie Rookie
jukie
Posted

DQ1 subtype 6 is a gluten sensitive gene, but the DQ3 subtype 8 (also refered to as DQ8) is a celiac gene.

My test results also showed one celiac and one gluten sensitve gene...I was simultaneously in denial but also relieved to have answers. Just sent my son's test kit to Enterolab today, but he's not quite 5 so hopefully he'll be receptive to any potential dietary changes.

I sooo feel your pain :( But it will get better, it will get better, it will get better.....

Right???

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