Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Phew, Glad That's Over!

penguin

Recommended Posts

penguin Community Regular
penguin
Posted

I had my biopsy this morning, so I'm home resting and not driving or making any legal decisions :)

It went as well as could be expected, the last thing I remember is my doctor rubbing my arm and saying something along the lines of "are you ready?" and the first thing I remember upon waking is that I'd NEVER be able to remember what he said happened when he spoke. DH said that he said everything looked OK with the naked eye, but that my small intestines were a bit red and he took biopsies, and that I'll have the results by the end of the week. Cool. I'm fully expecting everything to come out normal, though.

In the meantime he's perscribed a gluten-free diet and to call in a week. I think, that's what the paper they gave me said. My doctor is very nice.

The worst part was the IV, and of course the 3 months leading up to it :P

gluten-free weight watchers starts tomorrow for me! Thanks for all the support over the last 3 months :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Yay! It's over! You'll be feeling better soon!

BostonCeliac Apprentice
BostonCeliac
Posted

Hey -- Good to hear it went OK -- I have mine on Friday and it sounds like it's pretty easy.

Gluten-Free WW? Sounds tough -- i'd be living on 94% fat free Pop secret pop corn at 1 point per bag!! Thats gluten-free right???

jerseyangel Proficient
jerseyangel
Posted

I was thinking about you yesterday--I'm glad that it went well and you're back home :)

penguin Community Regular
penguin
Posted
  • Author

It should be easy enough to do WW gluten-free, luckily things like Tinkyada pasta are about the same points as regular pasta, and I just gotta eat healthy, no biggie. Gotta get these 30 lbs. I gained on the effin' gluten challenge <_<

Oh, I believe pop secret is gluten-free. It's made by general mills, so any gluten will be clearly labelled.

EGD's are really no big deal. At least it wasn't a colonoscopy!!! My dr. is far to attractive to be looking up my butt :ph34r::lol:

How long are you supposed to keep the bandage over an IV site?

CarlaB Enthusiast
CarlaB
Posted
It should be easy enough to do WW gluten-free, luckily things like Tinkyada pasta are about the same points as regular pasta, and I just gotta eat healthy, no biggie. Gotta get these 30 lbs. I gained on the effin' gluten challenge <_<

Oh, I believe pop secret is gluten-free. It's made by general mills, so any gluten will be clearly labelled.

EGD's are really no big deal. At least it wasn't a colonoscopy!!! My dr. is far to attractive to be looking up my butt :ph34r::lol:

How long are you supposed to keep the bandage over an IV site?

LOL, my doc does not fit that description ... I had to have the colonoscopy, too. Do these guys really think, "Gee, when I grow up I want to do colonoscopies for a living?"

I take the bandage off as soon as it starts bugging me, which would be as soon as I walk out of the facility. How it's supposed to be done, I don't know.

jerseyangel Proficient
jerseyangel
Posted

I usually take the bandage off before I go to bed that night--same for blood tests.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


queenofhearts Explorer
queenofhearts
Posted

Congratulations, & welcome back to gluten-free land!

Leah

tiffjake Enthusiast
tiffjake
Posted

Welcome back to the land of better thinking! Glad that is over with for you too!!!!

AndreaB Contributor
AndreaB
Posted

Glad it's over and things went well. Will be waiting for the results. :)

TCA Contributor
TCA
Posted

glad it went well!

Helena Contributor
Helena
Posted

Hi Penguin, That's great that the whole procedure is over and you'll have the results soon! Do you mind me asking how much gluten your doctor "prescribed" beforehand. (not sure, but i'm guessing from your post that you were gluten free and then had to go back on gluten . . .? I'm in a similar situation. I've been trying to get a sense of the whole range of the recommended "dose of gluten" since different doctors seem to have different recommendations.)

penguin Community Regular
penguin
Posted
  • Author
Hi Penguin, That's great that the whole procedure is over and you'll have the results soon! Do you mind me asking how much gluten your doctor "prescribed" beforehand. (not sure, but i'm guessing from your post that you were gluten free and then had to go back on gluten . . .? I'm in a similar situation. I've been trying to get a sense of the whole range of the recommended "dose of gluten" since different doctors seem to have different recommendations.)

My doc said ~4 slices of bread (or equivalent) a day for 3 months for a chance of damage showing. He got his info from Dr. Green at Columbia.

CarlaB Enthusiast
CarlaB
Posted
My doc said ~4 slices of bread (or equivalent) a day for 3 months for a chance of damage showing. He got his info from Dr. Green at Columbia.

No wonder mine came out negative ... my doc said I might want to eat a little more than normal, but no sense in getting sick over it! I didn't even eat it every day! And that was only six weeks!

jayhawkmom Enthusiast
jayhawkmom
Posted

Hi Penguin... I'm jumpin' in on your thread.... since I'm having mine on Friday.

I'm glad to hear it went so well for you. I'm also glad to read that your doctor prescribed a strict gluten-free diet immediately, without waiting for the results. Mine also said the same thing.... he said that if I'm consuming gluten.... Thursday will be the last day I'll eat it, period.

My baby turns 1 on Thursday.... I was thinking of celebrating with pizza. That's not gonna happen though!!!

I can't wait to hear your results!!

penguin Community Regular
penguin
Posted
  • Author
Hi Penguin... I'm jumpin' in on your thread.... since I'm having mine on Friday.

I'm glad to hear it went so well for you. I'm also glad to read that your doctor prescribed a strict gluten-free diet immediately, without waiting for the results. Mine also said the same thing.... he said that if I'm consuming gluten.... Thursday will be the last day I'll eat it, period.

My baby turns 1 on Thursday.... I was thinking of celebrating with pizza. That's not gonna happen though!!!

I can't wait to hear your results!!

Chebe mixes make a fantastic gluten-free pizza :)

Helena Contributor
Helena
Posted
My doc said ~4 slices of bread (or equivalent) a day for 3 months for a chance of damage showing. He got his info from Dr. Green at Columbia.

Thanks! Dr. Green is pretty much *the* celiac disease expert . . . this info. will be very helpful when I have a little chat with my GI doc about the biopsy beforehand :rolleyes: (As I mentioned in my other post, I was having gluten for 3 months, but 1/3 of a cup of dry barley every *other* day. That probably gives the villi a chance to grow back a bit on the off gluten days. I've upped my gluten dose, but my biopsy is in Oct so I won't have enough time.)

penguin Community Regular
penguin
Posted
  • Author

The results are in...the biopsy was....

NORMAL!

Not surprising. I have to go back to the GI in 6 weeks to follow up, they told me I need to be gluten-free long-term anyway so the biopsy results really don't matter. I think I'm still going to say I'm celiac because 1: I don't want to look like a wishy-washy, I diagnosed myself with the disease du jour (though I guess I'm formally dx'ed) and 2: it'll make life easier for explaining.

Hmm, my small intestine was "a little red", I wonder why that would be? :huh:

I don't consider it a waste of time, because at least now I know what would have happened if I got the biopsy, because I did :)

AndreaB Contributor
AndreaB
Posted

Good news Chelsea....now onward with the gluten free diet and no looking back. :)

queenofhearts Explorer
queenofhearts
Posted

That's great that your villi haven't been damaged, Chelsea, & it's great that you have an enlightened doctor who doesn't think that means you should eat gluten.

Eat well & be well!

Leah

Guest ~jules~
Guest ~jules~
Posted
It should be easy enough to do WW gluten-free, luckily things like Tinkyada pasta are about the same points as regular pasta, and I just gotta eat healthy, no biggie. Gotta get these 30 lbs. I gained on the effin' gluten challenge <_<

Oh, I believe pop secret is gluten-free. It's made by general mills, so any gluten will be clearly labelled.

EGD's are really no big deal. At least it wasn't a colonoscopy!!! My dr. is far to attractive to be looking up my butt :ph34r::lol:

How long are you supposed to keep the bandage over an IV site?

Lol! I've had both! But my doc, is a short little phillipino guy, I am deffinetly not into... :lol::lol:

VydorScope Proficient
VydorScope
Posted

YAY!! Glad thats over!! Was worried about you!

jerseyangel Proficient
jerseyangel
Posted

Well, now you know, and don't have to wonder about it any more.

I'm glad that you discovered this before there was any lasting damage to your intestine. This should hopefully, make a full recovery quicker and easier for you :)

I really have to hand it to ya for going through with the whole challange--you're one tough cookie :D

penguin Community Regular
penguin
Posted
  • Author

Meh, if I was sick for 4 years, what's another 3 months? :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rejoicephd
      - Rejoicephd replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      Struggling to get into a good pattern

      Thank you @cristiana. Its really helpful to hear your experience, thanks for sharing. 8 years is a long time! And its also good to know that others have experienced worsening before it gets better. I've just started doing the food diary recently, and I'll keep that going. It's at least helping me try to get a handle on this, and also helps increase my...
    2. trents
      - trents replied to junell's topic in Related Issues & Disorders
      1

      Help!

      Yes, the development of additional food intolerances is a common spinoff of celiac disease. To ensure valid testing after beginning a "gluten challenge" you would need to be consuming at least 10g of gluten daily (about the amount in 4-6 slices of wheat bread) for at least two weeks. Many cannot follow through with this regimen, however, as their intolerance...
    3. junell
      - junell posted a topic in Related Issues & Disorders
      1

      Help!

      I've been gluten free for 5 years, as well as being intolerant to gluten, my list of intolerances is growing.. from dairy, eggs, soya, yeast, to mushroom, garlic, onion, spinach and quite a few in-between, basically my diet is gluten-free cornflakes, rice, banana, almond milk and fish anything else causes bloating, severe abdominal pain, mucousy diarrhoea...
    4. cristiana
      - cristiana replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      Struggling to get into a good pattern

      I think going back to your GI isn't a bad idea - my visits to the GI did not stop following my diagnosis as I had annoying issues on and off for some time. Thankfully he is a fantastic GI, with a great sense of humour, so it wasn't a chore to see him again although I'd rather not have had to, obviously! But I needed my mind to be put at rest as my symptoms...
    5. Rejoicephd
      - Rejoicephd replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      Struggling to get into a good pattern

      Thankfully those are normal. B12 was on the low end of the normal range when I first got diagnosed. When I last got it checked, it had come up a lot (455 last time checked).
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,642
    • Most Online (within 30 mins)
      7,748
    Sara Pennock
    Newest Member
    Sara Pennock
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Thank you @cristiana.  Its really helpful to hear your experience, thanks for sharing.  8 years is a long time!  And its also good to know that others have experienced worsening before it gets better.  I've just started doing the food diary recently, and I'll keep that going. It's at least helping me try to get a handle on this, and also helps increase my overall awareness of what I'm putting in my body. I will also message my GI doc in the meantime too.  Thanks, it's really helpful to talk through this.  
    • trents
      Help!

      By trents · Posted

      Yes, the development of additional food intolerances is a common spinoff of celiac disease. To ensure valid testing after beginning a "gluten challenge" you would need to be consuming at least 10g of gluten daily (about the amount in 4-6 slices of wheat bread) for at least two weeks. Many cannot follow through with this regimen, however, as their intolerance reactions are just too strong and present too much health risk.
    • junell
      Help!

      By junell · Posted

      I've been gluten free for 5 years, as well as being intolerant to gluten, my list of intolerances is growing.. from dairy, eggs, soya, yeast, to mushroom, garlic, onion, spinach and quite a few in-between, basically my diet is gluten-free cornflakes, rice, banana, almond milk and fish anything else causes bloating, severe abdominal pain, mucousy diarrhoea, lethargy, muscle and joint pain, kidney pain, headaches, and mouth ulcers. I've been told it's IBS, I think it's more than that... I've been sent to a gastroenterologist who tested for coeliac, if course it came back negative because, as I told him, I haven't eaten gluten for 5 years, he's asked me to eat gluten for 4 weeks and redo the blood test, so I've tried small amounts of crispbread for 3 days and am in agony, I can't do this for 4 weeks and then however long it'll take to recover. Has anyone got any suggestions, and is multiple food intolerances a common side effect of coeliac? I'm struggling! And struggling to be taken seriously 😒 
    • cristiana
      Struggling to get into a good pattern

      By cristiana · Posted

      I think going back to your GI isn't a bad idea - my visits to the GI did not stop following my diagnosis as I had annoying issues on and off for some time.  Thankfully he is a fantastic GI, with  a great sense of humour, so it wasn't a chore to see him again although I'd rather not have had to, obviously!  But I needed my mind to be put at rest as my symptoms didn't seem to go away overnight as I'd hoped they would.  Initially I recall he recommended I went Dairy Free for three weeks, and he told me it would take that time to see an effect.  At that time, even lactose free milk went straight through me, so it is important, I would say, to even avoid that during a Dairy Free trial. My ongoing symptoms were bloating which did respond a bit to that trial.   However, within about 18 months there was a return to a very sore stomach, plus various aches and pains.   It turned out some gluten was sneaking in with my iron supplement (I was buying Floradix instead of Floravital), but I also think the dishwasher, the oven and eating out were contributors, too. Before my numbers normalised (from memory, about eight years!) I had several follow up appointments and a few more tests, but things gradually did get better.  Having read many accounts on this forum over the years, I don't think it is uncommon for symptoms to get a bit worse before getting better, that was certainly the case with me.  Your gut is damaged so you may well have issues digesting other food in the short term. But do try to be as scrupulously gluten free as you can possibly be as a first step, and I'd definitely try a three week Dairy Free trial.   Your villi because they are damaged are not able to create the lactase required to digest dairy at this time so you may well see some improvement if you come off dairy for a while.  Perhaps keeping a food diary of what you eat, where you eat it, whilst a bit onerous to do, will help identify foods that are causing issues.  For a while, apart from oats, I found peas, lentils and soya products hugely aggravating.  Things should calm down.
    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Thankfully those are normal. B12 was on the low end of the normal range when I first got diagnosed. When I last got it checked, it had come up a lot (455 last time checked).
×
×
  • Create New...