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Scared

chgomom

By chgomom
in Coping with Celiac Disease

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chgomom Enthusiast
chgomom
Posted

I am so scared....my IGA levels were through the roof....

My c3c levels were as well as my crp.

I have to wait till Sept 8th for an appt with a Rheumatologist....and then the new GI doc isn't till October.

They say I can't have anything like Lupus or Sjogrens cause my ana ans sed rate were with in normal range, the very highest end of normal, but still in that range.

Then someone mentioned multiple myloma (sp) or addisons....what the heck.....

I am sooooo exhausted....sooo exhausted I wae up feeling like a ton of led...even with 8 hrs of sleep....

sitting here at my desk at work and just want to fall over with the tiredness....

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chgomom Enthusiast
chgomom
Posted
  • Author

By the way....I do have Celiac....but what the heck is going on....

ravenwoodglass Mentor
ravenwoodglass
Posted
By the way....I do have Celiac....but what the heck is going on....

Did they check you B12 levels and iron? Are you supplementing with sublingual B12? If you are not you may want to get some. Also check everything from OTC and prescription drugs to makeup and shampoos etc if you haven't already. How long have you been gluten free? It can take a while for some of the problems to resolve. I had fairly quick resolution of my GI problems but the muscle, joint, neuro and exhaustion took much longer to go away. Also early on I needed much more than the standard 8 hours of sleep a night. I would sleep 10 to 12 hours if just left alone with nothing to wake me up. Are you able to sleep till you wake up naturally or do you have to get up at a certain time? If you have to get up at a prescribed time could you try to get to sleep a bit earlier to see if it helps. One fairly reliable sign that you are not getting enough sleep is if you are always awakened by the alarm clock. If your body is getting enough sleep you will wake up on your own a few minutes before it goes off. I hope you get some resolution to this soon. I know how awful it is to have to function when your so tired you can barely walk, it is no fun at all.

queenofhearts Explorer
queenofhearts
Posted

You might have your doctor look into adrenal function-- that is what Carla is investigating right now.

wacky~jackie Rookie
wacky~jackie
Posted

:( So sorry to hear you're not feeling well. This has probably already been checked - but sometimes the obvious can be overlooked. Have they checked your thyroid? When I was first diagnosed with hypothyroid I was barely able to stand long enough to make dinner because I was so exhausted.

Hope you get some answers and feel better soon. ;)

ravenwoodglass Mentor
ravenwoodglass
Posted

Oh and one other thing to be sure they check is your Blood Sugar levels. My energy expolded once they realized I was diabetic and I started eating to control my sugar.

chgomom Enthusiast
chgomom
Posted
  • Author

Thyroid is all normal but they said my non fasting blood sugar was fine...and they did'nt have any reason to think I was type one or hypoglycemic.....although I....as a sneaky little bugger checked my blood sugar with a enighbors monitor one particularly bad day this past weekend...and it was like 68...So I think some of that is going on....

I have never had adrenal function testing....what ticker can that be known by on lad tests....

I think when I see the doc sep 8th I am going to ask him about diabetes....or adrenal function...

I mean it tough as heck right now not to go home fomr work....

And...also...no my B12 has never been checked. Funny you should mention it though...through the reading and research we do...I just had bought some sub lingual b12 celiac safe thinking that might help but was too afriad to take them yet....

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evie Rookie
evie
Posted
Thyroid is all normal but they said my non fasting blood sugar was fine...and they did'nt have any reason to think I was type one or hypoglycemic.....although I....as a sneaky little bugger checked my blood sugar with a enighbors monitor one particularly bad day this past weekend...and it was like 68...So I think some of that is going on....

I have never had adrenal function testing....what ticker can that be known by on lad tests....

I think when I see the doc sep 8th I am going to ask him about diabetes....or adrenal function...

I mean it tough as heck right now not to go home fomr work....

And...also...no my B12 has never been checked. Funny you should mention it though...through the reading and research we do...I just had bought some sub lingual b12 celiac safe thinking that might help but was too afriad to take them yet....

I think it is soo great that you can keep working, I could not do it and has been 6 months since dx but I am problavly older than you, it took me many years to find reason for my problems. I s there any way you could work less hours or?? Probavly you do need more rest than you are getting, there are so many of us who just lack energy, have you been dx'd long. Wish you the best in getting this problem under control, hang in there and keep posting, we are here to help you. :) evie

FaithInScienceToo Contributor
FaithInScienceToo
Posted

Hi - reading this thread made me want to tack on info about cinnamon and blood sugar. I like cinnamon A LOT, and so it was great to learn that only a small amount, added to sugar-free applesauce, or tea, is SO good for one's blood sugar levels:

The following is from:Open Original Shared Link but if you Google cinnamon and blood sugerr, you'll find lots of 'hits'

"Just half a teaspoon of cinnamon a day significantly reduces blood sugar levels in diabetics, a new study has found. The effect, which can be produced even by soaking a cinnamon stick your tea, could also benefit millions of non-diabetics who have blood sugar problem but are unaware of it.

The discovery was initially made by accident, by Richard Anderson at the US Department of Agriculture's Human Nutrition Research Center in Beltsville, Maryland.

"We were looking at the effects of common foods on blood sugar," he told New Scientist. One was the American favourite, apple pie, which is usually spiced with cinnamon. "We expected it to be bad. But it helped," he says.

Sugars and starches in food are broken down into glucose, which then circulates in the blood. The hormone insulin makes cells take in the glucose, to be used for energy or made into fat.

But people with Type 1 diabetes do not produce enough insulin. Those with Type 2 diabetes produce it, but have lost sensitivity to it. Even apparently healthy people, especially if they are overweight, sedentary or over 25, lose sensitivity to insulin. Having too much glucose in the blood can cause serious long-term damage to eyes, kidneys, nerves and other organs.

Molecular mimic

The active ingredient in cinnamon turned out to be a water-soluble polyphenol compound called MHCP. In test tube experiments, MHCP mimics insulin, activates its receptor, and works synergistically with insulin in cells.

To see if it would work in people, Alam Khan, who was a postdoctoral fellow in Anderson's lab, organised a study in Pakistan. Volunteers with Type 2 diabetes were given one, three or six grams of cinnamon powder a day, in capsules after meals.

All responded within weeks, with blood sugar levels that were on average 20 per cent lower than a control group. Some even achieved normal blood sugar levels. Tellingly, blood sugar started creeping up again after the diabetics stopped taking cinnamon.

The cinnamon has additional benefits. In the volunteers, it lowered blood levels of fats and "bad" cholesterol, which are also partly controlled by insulin. And in test tube experiments it neutralised free radicals, damaging chemicals which are elevated in diabetics.

Buns and pies

"I don't recommend eating more cinnamon buns, or even more apple pie - there's too much fat and sugar," says Anderson. "The key is to add cinnamon to what you would eat normally."

The active ingredient is not in cinnamon oils. But powdered spice can be added to toast, cereal, juice or coffee.

Anderson's team were awarded patents related to MHCP in 2002. But the chemical is easily obtained. He notes that one of his colleagues tried soaking a cinnamon stick in tea. "He isn't diabetic - but it lowered his blood sugar," Anderson says.

The group now plans to test even lower doses of cinnamon in the US, and also look at long-term blood sugar management with the spice.

Journal reference: Diabetes Care (vol 26, p 3125)

lindalee Enthusiast
lindalee
Posted

Thanks faith in science, I used to drink cinnamon tea often and will start again.

penguin Community Regular
penguin
Posted

Hmm, thanks! I have hypoglycemia...I wonder if that's why I'm compelled to add cinnamon to everything. My subconscious tells me a lot, like not to eat bread, nuts...and to eat more cinnamon! :P

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