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Wheat Allergy/celiac Disease


Drama Queen

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Since my Open Original Shared Link, I have gotten an appointment with the G.I. that did my colonoscopy. It's not till the 11th, so I'm trying to be patient and not change my diet, so as not to mess with the blood work...even though I really feel like I would feel much better if I just started eating gluten-free.

I get weekly allergy injections, so it occurred to me to get a list of the things that I'm allergic to today. Wheat was one of them! It wasn't the highest on my list, but it was close (2 points difference). Higher ones were corn, coconut, eggs, milk, and peanuts...but soy and yeast were also there.

To me, it makes total sense that the allergins that I tested for with allergies would also be giving me problems intestinally. Am I thinking right? Will showing the G.I. my allergy test results hold any weight? Could my problems JUST be food allergies and not Celiac Disease?

At one point, the Allergist (ENT) started me on food drops (not injections), but they seemed to be giving me intestinal issues (constipation, then diarrea)...which also makes sense, because the syrum is made up of the things you are allergic to--to build up a tolerance to them. My "inhalent" allergies are so bad, though, he wanted to get those under control, so we stopped the food drops and haven't started them back up.

What do you guys think?


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AndreaB Contributor

You could be allergic and intolerant.

I had allergy tests done and found out I was allergic to wheat/gluten/gliadin/soy and dairy among others.

I then went through enterolab for everything they offer and found that I was intolerant to gluten and soy but not dairy.

An intolerance to something means you can't ever eat it again, whereas an allergy is something that you may be able to get your body to forget by not eating it for at least 2 months, preferably 6 or longer and then adding that food back in and seeing if you have an allergic reaction to it. You would need to drop all the foods you tested allergic to for this to work.

Welcome. :D

Michi8 Contributor
Since my Open Original Shared Link, I have gotten an appointment with the G.I. that did my colonoscopy. It's not till the 11th, so I'm trying to be patient and not change my diet, so as not to mess with the blood work...even though I really feel like I would feel much better if I just started eating gluten-free.

I get weekly allergy injections, so it occurred to me to get a list of the things that I'm allergic to today. Wheat was one of them! It wasn't the highest on my list, but it was close (2 points difference). Higher ones were corn, coconut, eggs, milk, and peanuts...but soy and yeast were also there.

To me, it makes total sense that the allergins that I tested for with allergies would also be giving me problems intestinally. Am I thinking right? Will showing the G.I. my allergy test results hold any weight? Could my problems JUST be food allergies and not Celiac Disease?

At one point, the Allergist (ENT) started me on food drops (not injections), but they seemed to be giving me intestinal issues (constipation, then diarrea)...which also makes sense, because the syrum is made up of the things you are allergic to--to build up a tolerance to them. My "inhalent" allergies are so bad, though, he wanted to get those under control, so we stopped the food drops and haven't started them back up.

What do you guys think?

Allergy and intolerance are two different things, but allergies can give you GI symptoms just the same. I've seen my allergies change over my lifetime. Food wise, I've since outgrown my peanut allergy, but have developed food allergies related to my severe Birch pollen allergy: all raw tree fruit, almonds & halzelnuts. From what I understand it's unusual to outgrow something like a peanut allergy, but to keep it out of your diet for a long period of time could help. Apparently, once you "outgrow" a food allergen, you need to keep ingesting it to remain free from allergy to that particular food.

Knowing that you are allergic to wheat should mean something to your G.I. I think it's reason enough to eliminate it from your diet regardless of your gluten intolerance/celiac status. Also, if you eliminate your food allergens from your diet, you may actually see some improvement with your inhaled allergies as well. Personally, I think it's hard on your body to continue to bombard it with allergens...giving it a break could be a good thing.

Michelle

Carriefaith Enthusiast

You could have gluten intolerance and a wheat allergy.

plantime Contributor

I have multiple respiratory allergies that cause severe nasal symptoms. The worst was the congestion. No drug on the market could wipe out my congestion. When I stopped eating gluten, the congestion went away. It was an intolerant reaction to the gluten. You could very well have the same complication.

mouse Enthusiast

I tested positive for a wheat allergy and also positive for Celiac Disease.

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    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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