Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Miss?

Guest ~jules~

By Guest ~jules~
in Coping with Celiac Disease

Recommended Posts

CarlaB Enthusiast
CarlaB
Posted
I haven't tried ghee, but I'd like to. Do you make your own, or is there a good brand I should look for?

I can't, unfortunately, use coconut oil because I'm intolerant to coconut. :angry:

I thought the brand was Ghee :lol: I just buy it in a glass jar at the Wild Oats. I am afraid to make my own since it's mechanically separated, I figure that the machines are more more accurate than I would be. I don't use it often, usually just for popcorn.

In the same way that Ghee doesn't have casein, I have read that coconut oil does not have the protein in coconut so it usually doesn't bother those allergic to coconut. I thought of you when I read that. Don't go on my word ... it was just something I read the other day ... but it might be worth researching.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 92
  • Created
  • Last Reply
jerseyangel Proficient
jerseyangel
Posted

:lol: Ghee!

Interesting about the coconut oils. I'm not allergic (that I know of), just intolerant. I know that there is coconut in most natural soaps and shampoos, and those don't cause me any obvious problems.

I am also soy intolerant, and soy oil bothers me, but a small amount of soy lecithin does not :blink:

CarlaB Enthusiast
CarlaB
Posted

The article may have said intolerant, I can't remember. I guess it's up to you if you'd want to risk discomfort to see if the oil bothers you or not. Some things are worth the risk ... others are not!

Rusla Enthusiast
Rusla
Posted
I miss being able to go to any restaurant and eat with everyone else. I always try and recreate the foods I miss myself in a gluten-free and casein free way.

Excuse me for being off topic,but Carrie, your wedding gown is so gorgeous. You look positively enchanting in it, I didn't realize the big day had already gone by. Congratulations.

ianm Apprentice
ianm
Posted

New Castle Brown Ale, Guiness Stout and Two Hearted Ale. New Grist is good but it is not the same. I miss all of the other gluten foods like a big giant hole in the head.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Sorry if this has already been suggested, but there are some unbelievable good recipes in Annalise Roberts' GLuten-Free Baking Classics. There is somethign she calls Submarine Sandwich Bread which tastes to ME like the artisanal bakery breads, and the sandwich bread leaves Kinnikinnick's in the dust! The Sub bread is made in a French bread pan (with little holes like a pizza pan), and the crust is crispy and the bread is chewy and it kept for over a week in my fridge (wrappeed tightly in plastic wrap and then foil) and it reheated beautifully in the toaster oven....the sandwich bread is good enough for a PBJ sandwich.

Her cakes and cookies are amazing, too--I thought the chocolate chip cookies tasted almost exactly like Tollhouse cookies, and the coconut cake was better than any gluten cake I'd ever made before, scratch or mix! (And I love to bake!)

The nicest part is, the good taste totally satisfies the cravings--but the fact that they don't contain gluten means that these recipes don't bring back the cravings after you've eaten the bread (or cakes or cookies), so you don't get trapped in that wanting more andmore andmore cycle.

  • 2 weeks later...
CMarente Newbie
CMarente
Posted

Dear All,

On the pizza genre, if you live in Colorado, Beau Jo's pizza now has a gluten free menu, and their gluten-free prairie pies (pizzas) have a crust that tastes just like Pizza Hut's!

On another note, a lot of the recipes I've seen suggest using Xantham gum to keep gluten free flours together and also to keep them from getting crumbly. It suggests putting the Xantham gum in before butter. Hope this helps someone!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mango04 Enthusiast
Mango04
Posted

Does anyone have the Smart Squeeze Ingredients?

Adelle Enthusiast
Adelle
Posted

OREOS!!! I miss oreos like crazy!!! I'm still looking for a decent replacement. Going crazy for it. Oreo's were my favorite junk food!! Didn't get them very often, but I miss them terribly!!

Canadian Karen Community Regular
Canadian Karen
Posted

Oh, this is so easy......

The thing I miss the most is my chinese food feasts..... Nothing beat a night of ordering chinese food from our favourite Szchewan restaurant. Szchewan beef, Szchewan shrimp with peanuts, curry vegetables, beef fried rice smothered in soy sauce, spring rolls, sweet and sour chicken balls.......

Wow! If I could only have that one more time....... :(

Karen

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Same thing, always. Krispy Kreme doughnuts. When the "Hot Doughnuts" light is on, and you can get them boxed right off the conveyor belt. If I bought them now, I would probably eat the WHOLE dozen while they were hot. Mmmmmm........

I also miss Black & Tan beer. When we would go to Maryland, we'd have steamed crabs, spend the entire DAY cracking those babies, drinking Black & Tan beer.

I also miss the marshmallow doughnuts from the little corner German bakery there. They're not glazed, like some doughnuts are. They're just . . . great. The marshmallow filling is home-made. And Smircase (sp?) cake from there . . .

And King Fish fried white fish sandwiches . . . I ate a TON of them when I was pregnant with Ashley!

Guest ~jules~
Guest ~jules~
Posted

Okay, Okay I'm getting hungry. We ate out tonight at one of "their places" their meaning the rest of my family, and I was just watching my husband eat this big sloppy taco salad with nacho cheese, Ugh some days are just harder than others. Oh and has anyone had the bread dream? You know your sitting at the table in a restaraunt eating the bread out of the basket, then you realize its bread and panick?

What happened to the normal nightmares I used to have like falling, or running? LOL....Oh well :D

Nooner Newbie
Nooner
Posted

Oh my gosh!!! I have gluten nightmares too!!! Waking up in a cold sweat, thinking you've just eaten bread or pizza or pasta... :o

My husband thinks I'm crazy...okay maybe I am, but not in this case!

~Li

shai76 Explorer
shai76
Posted

I can live without gluten, but I really miss dairy. I want a piece of cheese so bad, and maybe some real ice cream. Creamy mushroom soup, or pumpkin pie. I'd like to be able to eat turkey on thanks giving, but since I'm allergic to turkey I can't. I miss the convienence of dining out.

TriticusToxicum Explorer
TriticusToxicum
Posted
Oh my gosh!!! I have gluten nightmares too!!! Waking up in a cold sweat, thinking you've just eaten bread or pizza or pasta... :o

My husband thinks I'm crazy...okay maybe I am, but not in this case!

~Li

Weird, the same thing happened to me last night! I startled myself awake thinking I had just eaten a bowl of Campbells Chicken Noodle Soup. The only expalnation I have is that my wife has the flu, so I was just being a good husband in my sleep?

taz sharratt Enthusiast
taz sharratt
Posted
I am trying to figure out what food I miss the most. I have never had any problems with eating or food, fortunetly enough. I have always been a very healthy eater, and consider myself fortunate not to have a "picky" problem like my hubby, or an eating disorder of any kind. I've always eaten right, and splurged occasionally....I am having trouble with the freedom I have lost to eat what I want when I want I guess, even though 9 times out of 10 I wouldn't have eaten it anyway! But, I can say I will miss the occasional old fashioned glazed donut, Kentuky Fried Chicken, and anything salty when I felt like splurging before. So what is your most missed? (and how do I make it now?) recipes wanted... :D

i miss pasta a lot.

valerieann Newbie
valerieann
Posted
I am trying to figure out what food I miss the most. I have never had any problems with eating or food, fortunetly enough. I have always been a very healthy eater, and consider myself fortunate not to have a "picky" problem like my hubby, or an eating disorder of any kind. I've always eaten right, and splurged occasionally....I am having trouble with the freedom I have lost to eat what I want when I want I guess, even though 9 times out of 10 I wouldn't have eaten it anyway! But, I can say I will miss the occasional old fashioned glazed donut, Kentuky Fried Chicken, and anything salty when I felt like splurging before. So what is your most missed? (and how do I make it now?) recipes wanted... :D

Pikelets, real sandwiches, ice-cream, cream buns, doughnuts, hot cross buns, fried runny eggs, sausages, POTATOES, milky drinks, fast food, cappochinos, chocolate, and so on and so on.

prinsessa Contributor
prinsessa
Posted
I can live without gluten, but I really miss dairy. I want a piece of cheese so bad, and maybe some real ice cream. Creamy mushroom soup, or pumpkin pie. I'd like to be able to eat turkey on thanks giving, but since I'm allergic to turkey I can't. I miss the convienence of dining out.

I think my MIL makes cream of mushroom soup without using cream. I asked her how she makes it (because it is really good) and she said she just blends the mushrooms in the blender after cooking them. I thought for sure she used cream. I will try to get the recipe from her. She is one of those people that doesn't use recipes though, so I'm not sure if she knows exact ingredients.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      32

      Does anyone here also have Afib

      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil He suggested he take Black Cumin Seed Oil for inflammation. He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation." I don't think black seed oil is...
    2. knitty kitty
      - knitty kitty replied to lehum's topic in Super Sensitive People
      9

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      Healthy Omega Three fats. Olive oil or flaxseed oil, oily fish, fatty cuts of meat. Our bodies run much better on burning fats as fuel. Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body. Unfortunately, thiamine mononitrate is used to enrich rice. Thiamine mononitrate is relatively unusable...
    3. Scott Adams
      - Scott Adams replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

      The reaction one gets when they get glutened varies a lot from person to person. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
    4. Theresa2407
      - Theresa2407 replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

      A gluten ingestion can last for many months. Many years ago there was a celiac conference in Fl. Everyone there got contaminated with some having difficulty 6 months to recover. It will hit your Lympatic system and spread through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn...
    5. Hmart
      - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

      Thank you so much for the responses. Every piece of information helps. I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday. I haven’t had either breath test. I did ask about additional testi...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748
    Michelle C.
    Newest Member
    Michelle C.
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By knitty kitty · Posted

      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
    • Scott Adams
      Is this celiac?

      By Scott Adams · Posted

      The reaction one gets when they get glutened varies a lot from person to person.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Theresa2407
      Is this celiac?

      By Theresa2407 · Posted

      A gluten ingestion can last for many months.  Many years ago there was a celiac conference in Fl.  Everyone there got contaminated with some having difficulty 6 months to recover.  It will hit your Lympatic system and spread  through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn't checked close enough.  the Pharmacuticals change vendors all the time.
    • Hmart
      Is this celiac?

      By Hmart · Posted

      Thank you so much for the responses. Every piece of information helps.  I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday.  I haven’t had either breath test. I did ask about additional testing but the PA recommended me to a celiac specialist. Unfortunately the first available is mid-December.  As far as diet, I am a pescatarian (have been for 25+ years) and I stopped eating dairy mid-last week as my stomach discomfort continued. Right now, I’m having trouble eating anything. Have mostly been focused on bananas, grapes, nut butters, DF yogurt, eggs, veggie broth.   I ordered some gluten-free meal replacements to help.  But I’ll get all the items (thank goodness for Instacart) and try the diet you recommended to get me past this period of feeling completely awful.  Yes, my doctor diagnosed celiac. I was concerned it wasn’t right based on the negative blood test and my continued symptoms.  Even if you are ‘glutened’ it shouldn’t last forever, right? Is four days too long?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.