Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Miss?

Guest ~jules~

By Guest ~jules~
in Coping with Celiac Disease

Recommended Posts

CarlaB Enthusiast
CarlaB
Posted
I haven't tried ghee, but I'd like to. Do you make your own, or is there a good brand I should look for?

I can't, unfortunately, use coconut oil because I'm intolerant to coconut. :angry:

I thought the brand was Ghee :lol: I just buy it in a glass jar at the Wild Oats. I am afraid to make my own since it's mechanically separated, I figure that the machines are more more accurate than I would be. I don't use it often, usually just for popcorn.

In the same way that Ghee doesn't have casein, I have read that coconut oil does not have the protein in coconut so it usually doesn't bother those allergic to coconut. I thought of you when I read that. Don't go on my word ... it was just something I read the other day ... but it might be worth researching.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 92
  • Created
  • Last Reply
jerseyangel Proficient
jerseyangel
Posted

:lol: Ghee!

Interesting about the coconut oils. I'm not allergic (that I know of), just intolerant. I know that there is coconut in most natural soaps and shampoos, and those don't cause me any obvious problems.

I am also soy intolerant, and soy oil bothers me, but a small amount of soy lecithin does not :blink:

CarlaB Enthusiast
CarlaB
Posted

The article may have said intolerant, I can't remember. I guess it's up to you if you'd want to risk discomfort to see if the oil bothers you or not. Some things are worth the risk ... others are not!

Rusla Enthusiast
Rusla
Posted
I miss being able to go to any restaurant and eat with everyone else. I always try and recreate the foods I miss myself in a gluten-free and casein free way.

Excuse me for being off topic,but Carrie, your wedding gown is so gorgeous. You look positively enchanting in it, I didn't realize the big day had already gone by. Congratulations.

ianm Apprentice
ianm
Posted

New Castle Brown Ale, Guiness Stout and Two Hearted Ale. New Grist is good but it is not the same. I miss all of the other gluten foods like a big giant hole in the head.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Sorry if this has already been suggested, but there are some unbelievable good recipes in Annalise Roberts' GLuten-Free Baking Classics. There is somethign she calls Submarine Sandwich Bread which tastes to ME like the artisanal bakery breads, and the sandwich bread leaves Kinnikinnick's in the dust! The Sub bread is made in a French bread pan (with little holes like a pizza pan), and the crust is crispy and the bread is chewy and it kept for over a week in my fridge (wrappeed tightly in plastic wrap and then foil) and it reheated beautifully in the toaster oven....the sandwich bread is good enough for a PBJ sandwich.

Her cakes and cookies are amazing, too--I thought the chocolate chip cookies tasted almost exactly like Tollhouse cookies, and the coconut cake was better than any gluten cake I'd ever made before, scratch or mix! (And I love to bake!)

The nicest part is, the good taste totally satisfies the cravings--but the fact that they don't contain gluten means that these recipes don't bring back the cravings after you've eaten the bread (or cakes or cookies), so you don't get trapped in that wanting more andmore andmore cycle.

  • 2 weeks later...
CMarente Newbie
CMarente
Posted

Dear All,

On the pizza genre, if you live in Colorado, Beau Jo's pizza now has a gluten free menu, and their gluten-free prairie pies (pizzas) have a crust that tastes just like Pizza Hut's!

On another note, a lot of the recipes I've seen suggest using Xantham gum to keep gluten free flours together and also to keep them from getting crumbly. It suggests putting the Xantham gum in before butter. Hope this helps someone!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mango04 Enthusiast
Mango04
Posted

Does anyone have the Smart Squeeze Ingredients?

Adelle Enthusiast
Adelle
Posted

OREOS!!! I miss oreos like crazy!!! I'm still looking for a decent replacement. Going crazy for it. Oreo's were my favorite junk food!! Didn't get them very often, but I miss them terribly!!

Canadian Karen Community Regular
Canadian Karen
Posted

Oh, this is so easy......

The thing I miss the most is my chinese food feasts..... Nothing beat a night of ordering chinese food from our favourite Szchewan restaurant. Szchewan beef, Szchewan shrimp with peanuts, curry vegetables, beef fried rice smothered in soy sauce, spring rolls, sweet and sour chicken balls.......

Wow! If I could only have that one more time....... :(

Karen

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Same thing, always. Krispy Kreme doughnuts. When the "Hot Doughnuts" light is on, and you can get them boxed right off the conveyor belt. If I bought them now, I would probably eat the WHOLE dozen while they were hot. Mmmmmm........

I also miss Black & Tan beer. When we would go to Maryland, we'd have steamed crabs, spend the entire DAY cracking those babies, drinking Black & Tan beer.

I also miss the marshmallow doughnuts from the little corner German bakery there. They're not glazed, like some doughnuts are. They're just . . . great. The marshmallow filling is home-made. And Smircase (sp?) cake from there . . .

And King Fish fried white fish sandwiches . . . I ate a TON of them when I was pregnant with Ashley!

Guest ~jules~
Guest ~jules~
Posted

Okay, Okay I'm getting hungry. We ate out tonight at one of "their places" their meaning the rest of my family, and I was just watching my husband eat this big sloppy taco salad with nacho cheese, Ugh some days are just harder than others. Oh and has anyone had the bread dream? You know your sitting at the table in a restaraunt eating the bread out of the basket, then you realize its bread and panick?

What happened to the normal nightmares I used to have like falling, or running? LOL....Oh well :D

Nooner Newbie
Nooner
Posted

Oh my gosh!!! I have gluten nightmares too!!! Waking up in a cold sweat, thinking you've just eaten bread or pizza or pasta... :o

My husband thinks I'm crazy...okay maybe I am, but not in this case!

~Li

shai76 Explorer
shai76
Posted

I can live without gluten, but I really miss dairy. I want a piece of cheese so bad, and maybe some real ice cream. Creamy mushroom soup, or pumpkin pie. I'd like to be able to eat turkey on thanks giving, but since I'm allergic to turkey I can't. I miss the convienence of dining out.

TriticusToxicum Explorer
TriticusToxicum
Posted
Oh my gosh!!! I have gluten nightmares too!!! Waking up in a cold sweat, thinking you've just eaten bread or pizza or pasta... :o

My husband thinks I'm crazy...okay maybe I am, but not in this case!

~Li

Weird, the same thing happened to me last night! I startled myself awake thinking I had just eaten a bowl of Campbells Chicken Noodle Soup. The only expalnation I have is that my wife has the flu, so I was just being a good husband in my sleep?

taz sharratt Enthusiast
taz sharratt
Posted
I am trying to figure out what food I miss the most. I have never had any problems with eating or food, fortunetly enough. I have always been a very healthy eater, and consider myself fortunate not to have a "picky" problem like my hubby, or an eating disorder of any kind. I've always eaten right, and splurged occasionally....I am having trouble with the freedom I have lost to eat what I want when I want I guess, even though 9 times out of 10 I wouldn't have eaten it anyway! But, I can say I will miss the occasional old fashioned glazed donut, Kentuky Fried Chicken, and anything salty when I felt like splurging before. So what is your most missed? (and how do I make it now?) recipes wanted... :D

i miss pasta a lot.

valerieann Newbie
valerieann
Posted
I am trying to figure out what food I miss the most. I have never had any problems with eating or food, fortunetly enough. I have always been a very healthy eater, and consider myself fortunate not to have a "picky" problem like my hubby, or an eating disorder of any kind. I've always eaten right, and splurged occasionally....I am having trouble with the freedom I have lost to eat what I want when I want I guess, even though 9 times out of 10 I wouldn't have eaten it anyway! But, I can say I will miss the occasional old fashioned glazed donut, Kentuky Fried Chicken, and anything salty when I felt like splurging before. So what is your most missed? (and how do I make it now?) recipes wanted... :D

Pikelets, real sandwiches, ice-cream, cream buns, doughnuts, hot cross buns, fried runny eggs, sausages, POTATOES, milky drinks, fast food, cappochinos, chocolate, and so on and so on.

prinsessa Contributor
prinsessa
Posted
I can live without gluten, but I really miss dairy. I want a piece of cheese so bad, and maybe some real ice cream. Creamy mushroom soup, or pumpkin pie. I'd like to be able to eat turkey on thanks giving, but since I'm allergic to turkey I can't. I miss the convienence of dining out.

I think my MIL makes cream of mushroom soup without using cream. I asked her how she makes it (because it is really good) and she said she just blends the mushrooms in the blender after cooking them. I thought for sure she used cream. I will try to get the recipe from her. She is one of those people that doesn't use recipes though, so I'm not sure if she knows exact ingredients.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    2. Theresa2407
      - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

      thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    3. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
    4. Scott Adams
      - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
    5. KathyR37
      - KathyR37 posted a topic in Coping with Celiac Disease
      3

      New here

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748
    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New here

      By trents · Posted

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      New here

      By KathyR37 · Posted

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.