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Fear

cowrdlyon

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cowrdlyon Rookie
cowrdlyon
Posted

I was diagnosed 3 weeks ago with Celiac Disease thru blood tests. It's been a challange to change my eating habits and diet but my wife has been incredibly helpful and supportive. I have to have an Endoscopy and a Colonoscopy and I'm absolutely terrified!! I can't quite decide if I'm more afraid of the procedures themselves or the possible outcomes. Has anyone else been thru this?

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mle-ii Explorer
mle-ii
Posted

Honestly I was terrified about the procedure and a bit about the outcome. Turns out the prepwork was the most terifying part in the end. (Ha ha, pun intended ;) ) The outcome was not quite what I wanted as it turned out to be a rare disease (Lymphocytic Colitis) of which we know very little. But it did turn out for the positive. I found out that gluten can be a trigger and thus after removing gluten I got a lot better.

jerseyangel Proficient
jerseyangel
Posted

Hi--welcome to the board! :)

I had both tests done on the same day last year. I was also very nervous and afraid of the tests themselves, and of the outcome--I have a family history of colon cancer, so that was on my mind.

Turns out, there's really nothing to worry about regarding the tests--the prep for the colo is by far the worst part. I was completely out for the procedures, and I don't remember anything after the IV went in. I woke up feeling fine (but thirsty), and was able to leave shortly afterward.

Good luck with everything--don't worry too much, it'll be fine ;)

jenvan Collaborator
jenvan
Posted

Hi! I've had both and they are not bad... The worst parts are being hungry b/c you can't eat ;) and just the *annoying* prep for the colonoscopy...but no need to be scared, although I understand being so! These procedures pretty much go without a hitch for the vast majority of folks. Good luck and hope its over soon so you don't have to think about it anymore! :) Think of the peace of mind having both can give--that you will know exactly the state of things in there and can find any other issues...and also have a starting point to track your celiac with.

Guest ~jules~
Guest ~jules~
Posted

The liquid diet is the worse thing, oh and the IV depending on how you feel about needles. I don't remember anything, and nothing felt weird afterward....

sspitzer5 Apprentice
sspitzer5
Posted
I was diagnosed 3 weeks ago with Celiac Disease thru blood tests. It's been a challange to change my eating habits and diet but my wife has been incredibly helpful and supportive. I have to have an Endoscopy and a Colonoscopy and I'm absolutely terrified!! I can't quite decide if I'm more afraid of the procedures themselves or the possible outcomes. Has anyone else been thru this?

I'm having both of these done next week. I'm not as terrified about the procedure itself, but I am concerned about being able to drink all the icky stuff. I'm not good at getting myself to drink stuff that tastes bad. :( I guess I am a little concerned about the outcome. Weird as it sounds, I might actually be glad if they find something since at least I'll have a more definitive answer on a few symptoms and can start making forward progress.

S

Kat-Kat Newbie
Kat-Kat
Posted

I was 16 when they were done one me. To make it light my DR. looks at me and says, now you can tell everyone you have seen the LIGht ALL THE WAY THROUGH. I did not think it was as bad as a spinal tap. So think of it as an answer I hope you are more than 16

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lindalee Enthusiast
lindalee
Posted

I haven't had one so let us know how it is. Hope yours turns out well. :)

Guest dreams25
Guest dreams25
Posted

Hey don't be scared both of the procedures are ok the liquid before colonoscopy is the worst part i had a gastrocopy done and a biopsy taken, and at least you will know.

I think half the battle with this disease is the not knowing, and wondering why you feel so sick.

I had a pacemaker put in 2 years ago and that was much worse than either of these..

Be brave it will be ok

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